As a valued member of VEDA you receive exclusive access to our "Members Forum," where you can engage in discussions with other members about topics related to vestibular disorders. A VEDA moderator will post discussion topics, links to articles about research, treatments, new technologies, coping strategies, and other issues that affect people with vestibular disorders. We will also post copies of our most current newsletter, On the Level, where members can access them as soon as they are published.
Nick asks, "Has anyone ever had severe headaches post perilymphatic fistula surgery for extensive periods of time? For example, 15 days during any month where you needed to take something to help it go away?
Nick asks, "I had three exploratory surgeries for a persistent perilymph fistula in my right ear and as a result have severe hearing loss in this ear(which is understandable). Surprisingly, I have developed a moderate hearing loss in my good (left) ear that cannot be explained. Has anyone had a similar experience? My otolaryngologist is perplexed about this."
Chris says, "I was diagnosed with bilateral perilymph fistula's and suffer with daily persistent headaches. I'd like pharmaceutical suggestions for the headaches." Any suggestions?
Chris asks, "A doctor I had speculated that I might have 'floppy ear.' What is floppy ear?"
In this Issue:
- An Alteration of Life Plans
- Research: Recovering from Semi-Circular Canal Surgery
- Tips for Working Out in a Busy Fitness Center
- Tinnitus: The Ringing In My Ears Is Driving Me Crazy!
- AHRF Symposium on Dizziness & Balance Disorders
VEDA member asks, "Has anyone tried the surgery or know anyone who has? Has anyone been to the House Clinic in Los Angeles....is the surgery dangerous and do you end up deaf in one ear?"
Member Nancy describes the following:
When sitting, standing, or walking, I experience the sense of motion you usually experience riding on a bus or subway. I experience this motion constantly during waking hours. I also have a constant sensation of plugged ears. I've seen seven Doctors about it without any diagnosis.
What helped you or do you have any suggestions?
I have single side deafness and am wondering if any one has experience with a BAH type hearing device.
Thanks for any thoughts and sharing your experience.
Has anyone had surgery for an acoustic neuroma? Any advice for someone needing it?