Adults with Rare Disorders Support Study
Oregon State University conducts the largest survey of quality of life among adults with rare diseases.
News Updates: Research
Mal de Debarquement Survey
This report is the first study to investigate quality of life for those suffering with Mal de Debarquement Syndrome (MdDS).
Documenting the Patient Perspective
In 2014, VEDA asked members to assist in a research project by signing onto a patient registry and providing information on their diagnosis experience. This data was analyzed and the results published in the Journal of Otology and Neurotology.
Oral Device May Help Patients With Imbalance
Initial patient trials are being conducted on an intraoral balance device that works by sending additional balance information to the brain to help vestibular patients who experience imbalance.
Falls Research Corner
Dizziness symptoms can be difficult for patients to describe to family, friends, or healthcare providers. Similarly, it can be difficult to identify and discuss factors leading patients to unsteadiness and falls. Inconsistent language used to describe a fall is a barrier to developing and practicing falls prevention techniques.
APTA's Clinical Practice Guidelines for Vestibular Hypofunction
The American Physical Therapy Association's (APTA) Neurology Section has recently announced new Clinical Practice Guidelines for Vestibular Hypofunction.
More than 1 in 20 U.S. children have dizziness and balance problems
More than 1 in 20 (nearly 3.3 million) children between the ages of 3 and 17 have a dizziness or balance problem, according to an analysis of the first large-scale, nationally representative survey of these problems in U.S. children.
STUDY LAUNCHED FOR MÉNIÈRE’S DISEASE TREATMENT
Seeking Patients to Enroll in Study to Treat Vertigo-Inducing Disease
Cognitive and Neurobehavioral Functional Outcomes Before and After Otic Capsule Repair
Research study demonstrates that cognitive dysfunction in patients with otic capsule defects can be measured and that improvements in depression and cognitive function can be accomplished with appropriate, targeted, vestibular surgery.
Physician Survey About Vestibular Disorders
Dr. Rachael Trommelen is conducting a survey to assess physician knowledge of and experience with diagnosing vestibular disorders.