Support Groups

This is support-group contact information for people dealing with vestibular disorders. Some of these groups may be linked to other networks or organizations. They may be led by patients, health professionals, or others. Their size, scope, and agendas vary widely. All are financially and legally independent of VEDA.

Support groups that meet face-to-face
Support groups that meet online only
 
 

Face-to-Face Groups


Alabama

Alaska
  • Anchorage
    Brenda Boyden
    Alaska Dizziness & Balance Center
    4001 Laurel St., Ste. 204
    Anchorage, AK 99508
    (907) 561-2102
    e-mail

Arizona
  • Phoenix
    Amy Alexander, PT
    Shelly Massingale, PT
    Banner Vestibular Support Group
    Banner Good Samaritan Rehabilitation Institute
    Conference Room B
    1012 E. Willetta
    Phoenix, AZ 85006
    (602) 239-5230
    Amy: e-mail
    Shelly: e-mail
    This group meets monthly.

California 
Colorado
  • Colorado Springs
    Jenna Saunders, PT
    Colorado Springs Balance and Dizziness Support Group
    (719) 632-2220
    mailing address: LifeJourney OutPatient Rehab
    2520 International Cir.
    Colorado Springs, CO 80910
    e-mail 
    meeting location: The Inn at Garden Plaza
    2520 International Cir.
    Colorado Springs, CO

Florida
  • Jupiter
    Co-leaders: Rose Ann Curboy, MS, OTR/L and Dianna Nuquist, OTA/L
    Dizziness and Balance Support Group of South Florida
    meeting location: 210 Jupiter Lakes Blvd., Bldg. 5000, Ste. 106
    Jupiter, FL 33458
    (561) 745-0028
    e-mail 
    Web page 
  • Sarasota
    Vicki Alexander, LPN, PT
    Silverstein Institute
    1901 Floyd St.
    Sarasota, FL 34239
    (941) 366-9222
    e-mail

Georgia
  • Atlanta
    Gaye Cronin, OTD, OTR
    Atlanta Vestibular Disorders Support Group
    Atlanta Ear Clinic
    980 Johnson Ferry Rd. NE, Ste. 470
    Atlanta, GA 30342
    (404) 851-9093
    e-mail
    Web page for support group 
    meeting location: Northside Hospital Auditorium or St. Joseph's Hospital classrooms

Hawaii

Idaho
  • Meridian:
    Gayle Hynes, PT
    Dayna Olson, PT
    Hearing and Balance Centers of the Elks
    520 S. Eagle Rd., Ste. 1225
    Meridian, ID 83642
    (208) 489-5999
    Gayle: e-mail
    Dayna: e-mail 
    This group meets four times per year.

Illinois
  • Chicago
    Michele A. Kehrer, PT, DPT, ATC
    LifeStyle Physical Therapy & Balance Ctr.
    3130 N. Lincoln Ave.
    Chicago, IL 60657
    (773) 525-5200
    e-mail
    This group meets four to six times per year.

Indiana

Kansas
  • Overland Park
    Co-leaders Susan Thomas and Jo O'Dwyer
    Balancing Life with Vestibular Disorders (BLVD)
    meeting location: Turning Point Center for Hope and Healing. Meets the third Sunday of each month.
    8900 State Line Road, Ste. 240 except during summer or December
    Overland Park, KS
    Susan: (913) 390-9859
    Jo: (816) 353-7256
  • Kansas City
    Mike Sharp
    Dizziness and Balance Disorders Support Group
    5818 Meadow Heights Dr.
    Shawnee, KS 66226
    (913) 441-0890
    e-mail

Maine
  • Portland
    Paul Albert MS, PT
    Portland Area Vestibular and Balance Disorders Support Group
    mailing address: 43 Baxter Blvd.
    Portland, ME 04101
    e-mail
    meeting location: Woodfords Congregational Church
    202 Woodfords St
    Portland, ME 04103

Massachusetts
  • Metro Boston
    Claire Haddad
    Boston-Area Vestibular Disorders Support Group
    10 Heritage Ln.
    Cohasset, MA 02025
    (781) 383-0253 (please call between 9am and 8pm)
    e-mail
    meeting location: Newton-Wellesley Hospital
    Newton, MA

Michigan

Minnesota

Nevada
  • Las Vegas (Summerlin) 
    Brian K. Werner, MPT
    Vestibular Support Group
    Werner Institute of Balance and Dizziness
    7660 West Cheyenne Ave., Ste. 114
    Las Vegas, NV 89129
    (702) 880-1515
    e-mail
    This group meets twice yearly on average and would like to increase that frequency.

New Jersey

New York
  • Albany
    Gail L. Steslow
    Capital District Ménière's Disease Support Group
    59 Virginia Blvd.
    Scotia, NY 12302
    e-mail
    (518) 393-5229
  • Buffalo
    Randy S. Atlas
    Dizziness & Balance Support Group of Western New York
    PO Box 466
    Buffalo, NY 14215
    e-mail
    Web page for support group

Ohio
  • Lyndhurst (Cleveland)
    Mohamed A. Hamid, MD, PhD
    Diane Kish, RN
    Meniere's Support Group of Cleveland
    Cleveland Hearing and Balance Center
    29001 Cedar Rd., Ste. 203
    Lyndhurst, OH 44124
    Tel:  (440) 684-9970
    Fax: (440) 684-9971
    This group meets one to two times yearly.
  • Euclid (Cleveland)
    Larry Maurer
    Tinnitus Support Group - Cleveland
    meeting location: Cleveland Clinic Euclid Hospital
    18901 Lake Shore Blvd.
    Euclid, OH
    mailing address: 9680 Glenstone Dr.
    Kirkland, OH 44094
    (440) 256-8023
    e-mail
  • Parma (Cleveland)
    Larry Maurer
    Tinnitus Support Group - Cleveland
    meeting location: Health Education Center
    7300 State Rd.
    Parma, OH
    mailing address: 9680 Glenstone Dr.
    Kirkland, OH 44094
    (440) 256-8023
    e-mail

Oregon
  • Eugene
    Co-leaders: Linda Diáz and Claudia Bark
    Eugene Vestibular Support Group
    mailing address: 250 Ferndale Dr.
    Eugene, OR 97404
    e-mail

Pennsylvania

Texas
  • Austin
    Bridgett Wallace, PT
    Dizziness & Balance Disorders Support Group
    360° Balance
    7900 Shoal Creek Blvd., Ste. 200
    Austin, TX 78757
    (512) 345-4664
    e-mail
    Web page for support group

Virginia
  • Norfolk
    Marlene Kuntz, PT
    Inmotion Physical Therapy
    Norfolk Fitness & Wellness Center
    7300 Newport Ave., Suite 300
    Norfolk, VA  23505
    Web page for support group
    This group meets every other month.

Washington
  • Seattle
    Seattle Vestibular Disorders Support Group
    Facilitator: Cheryl Rowe
    meeting location: Pacific Balance & Rehabilitation Clinic
    400 Mercer, Ste. 302
    Seattle, WA 98109
    (206) 448-1906
    e-mail
    Web page for support group
    This group meets from 12 pm to 2 pm on the first Saturday of each month.

Wisconsin

Canada
  • Acoustic Neuroma Association of Canada
    http://www.anac.ca/endocs/ChapterMeetings.pdf
    This is a comprehensive .pdf of acoustic neuroma support groups throughout Canada.
  • St. John's, NL 
    Brian Marshall
    Canadian Hard of Hearing Association, Newfoundland and Labrador (CHHA-NL)
    136 Crosbie Rd., Ste. 103
    St. John's, NL A1B 3K3
    (709) 753-3224
    Fax: (709) 753-5640
    email
  • Toronto, ON
    Co-leaders: Heather DesRoches, RN; Don Lynch
    Meniere's Support Group
    30 Gloucester St.
    Toronto, ON
    (416) 340-3666
    Fax: (416) 340-3745
    e-mail
    This group meets monthly.
  • Vancouver, BC
    B.C. Balance and Dizziness Disorders Society
    325 - 5525 West Blvd.
    Vancouver, BC V6M 3W6
    604-878-8383
    1-866-780-2233 (toll free)
    e-mail
    Website:  http://www.balanceanddizziness.org
    This group meets monthly.
  • Winnipeg, MB
    Joanne Craig
    Winnipeg Meniere's Support Group
    c/o Canadian Hard of Hearing Association (Manitoba Chapter)
    825 Sherbrook St.
    Winnipeg, MB R3A 1M5
    (204) 975-3037
    chha-mb.ca 
    email 

 Europe
  • United Kingdom
    Glen Swanwick, Chair
    Wendy Hales, Fundraiser
    Dizzy Self Help Support Group
    12 Ridgewood Drive, Chilwell
    Nottingham (Robin Hood), England NG9 5NW
    meeting location: Self Help Nottingham UK. 
    This group meets and additionally holds therapeutic outings bi-monthly.

 
New Zealand
  • Wellington
    Meniere's Support Group 
    PO Box 19-038
    Courtenay Place
    Wellington