Vestibular Research Studies
Below are clinical studies that are currently recruiting research study participants.
*If you are a VEDA professional member and would like to recruit participants for your research study, click here to submit your request.
Title: Understanding MdDS Questionnaire for motion-induced onset patients only
Objective: To learn more about motion-induced onset MdDS patients - focusing on onset, symptoms, triggers, health/well-being and therapies.
Participant Information: This online survey is for patients whose Mal de Debarquement Syndrome (MdDS) was initially induced by a motion event, even if you are triggered by non-motion events now.
You are invited to participate in a research study being conducted by Dr. Cherylea Browne and Dr. Rachael Brown from the School of Science & Health and School of Medicine, Western Sydney University. This research aims to contribute to the understanding of the underlying mechanisms of MdDS. Specifically, this study seeks to collate data regarding the basic clinical features of MdDS, which might be unidentified or overlooked due to the subjective nature of the condition. We aim to collect survey data from MdDS patients, both within the state, nationally and internationally. Participation in this study involves completing an online questionnaire about your MdDS onset, symptoms, triggers, health and well-being, and therapies that you have found useful in managing your symptoms. By completing the questionnaire you are giving consent for your anonymous responses to be used for research purposes and to be published.
Study Status: Recruiting
Study Results Expected: Sep. 01, 2017 |
Sponsor: Dr. Cherylea Browne - Western Sydney University, Australia
Collaborators: Dr. Mingjia Dai, Dr. Sergei Yakushin, Dr. Shaun Watson and Dr. Rachael Brown
Contact Info: Dr. Cherylea Browne, Telephone: +61 2 4620 3491, Email: [email protected]
Survey link: https://www.surveymonkey.com/r/MdDS_Survey_Brown
TITLE: Multichannel vestibular implant early feasibility study
Objective: Study the safety and effectiveness of an implanted inner ear stimulator system designed to restore vestibular sensation.
Participant Information: Please see the Vestibular Implant Study link at www.jhu.edu/vnel for details regarding study inclusion criteria and how to apply to participate. Five subjects will be implanted in the first study. Potential candidates should have bilateral loss of vestibular sensation of at least one year duration, inadequate recovery despite adequate vestibular rehab, good hearing in at least one ear, prior testing (including audiogram, caloric tests, MRI of the internal auditory canals) confirming the diagnosis and showing that they are otherwise healthy, and motivation and ability to undergo implantation surgery and to participate in device activation continuous device use for 3 months, device activation, and quarterly monitoring visits until a year after surgery.
Study Status: Recruiting
Study Results Expected: Jan. 01, 2018 |
Sponsor: NIH-NIDCD, John Hopkins School of Medicine; Labyrinth Devices, LLC
Contact Info: Study Coordinators Carolina Treviño and Kelly Lane (401) 955-7876 [email protected]
More Information and an application to participate can be accessed via the Vestibular Implant Trial link at www.jhu.ed/vnel
Location: Johns Hopkins Vestiblar NeuroEngineering Lab; Baltimore, Maryland USA
NCT Number: NCT02725463
E-Mail: [email protected]
Title: A new diagnostic test to measure vestibular function
Objective: Validate a novel method to measure the extent of loss of vestibular function.
Participant Information: We are recruiting a limited number of patients with either bilateral (both sides) or unilateral (one side) loss of vestibular function. Participants wear a pair of goggles and keep head in the upright position and then tilted to each shoulder for a few minutes. As part of this study you will also have vestibular evoked myogenic potentials (VEMP), a standard test used to evaluate vestibular function. You will be compensated for your time for participating in this study. Costs for parking at the Johns Hopkins Outpatient Center Garage will be covered.
Location: Johns Hopkins, Baltimore, MD.
Contact: Please email [email protected] or phone 410-955-3319 for more information or submitting medical records.
Safety, Tolerability and Efficacy for CGF166 in Patients With Bilateral Severe-to-profound Hearing Loss
Purpose: The goal of the current study is to evaluate the safety, tolerability, and the potential ability of CGF166 delivered through IL-infusion to improve hearing and vestibular function. CGF166 is a recombinant adenovirus 5 (Ad5) vector containing a cDNA encoding the human Atonal transcription factor (Hath1).
Location: Kansas City, KS; Baltimore, MD; New York, NY. Read more
Why is vision stable during walking?
Genetic Analysis of Hereditary Disorders of Hearing and Balance
Clinical and Molecular Analysis of Enlarged Vestibular Aqueducts
Studies of Vestibular Loss
Purpose: To seek persons with confirmed bilateral vestibular loss to participate in one or more research studies of human balance function. Location: Portland, Oregon. Contact by e-mail.
Search for other vestibular research studies here.