Share

Clinical Trials Recruiting Patients

Vestibular Research Studies

Below are clinical studies that are currently recruiting research study participants.

*If you are a VEDA professional member and would like to recruit participants for your research study, click here to submit your request.

Title: Understanding MdDS Questionnaire for spontaneous/other onset patients only

Objective: Learn more about spontanous/other onset MdDS patients - focusing on onset, symptoms, triggers, health/well-being and therapies.

Participant Information: This online survey is for patients whose Mal de Debarquement Syndrome (MdDS) has clear cause of onset (spontaneous/other onset).

You are invited to participate in a research study being conducted by Dr. Cherylea Browne and Dr. Rachael Brown from Western Sydney University, Australia, and Ms. Viviana Mucci from University of Antwerp, Belgium, in collaboration with Assistant Professor Mingjia Dai (Mount Sinai, U.S.A), Associate Professor Sergei Yakushin (Mount Sinai, U.S.A) and Dr. Shaun Watson (Prince of Wales Hospital, Australia). This research aims to contribute to the understanding of the underlying mechanisms of MdDS. Specifically, this study seeks to collate data regarding the basic clinical features of MdDS, which might be unidentified or overlooked due to the subjective nature of the condition. We aim to collect survey data from spontaneous/other onset MdDS patients, both within the state, nationally and internationally. Participation in this study involves completing an online questionnaire about your MdDS onset, symptoms, triggers, health and well-being, and therapies that you have found useful in managing your symptoms. By completing the questionnaire you are giving consent for your anonymous responses to be used for research purposes and to be published.

Study Status: Recruiting

Study Results Expected: Jan. 01, 2018

Sponsor: Dr. Cherylea Browne - Western Sydney University, Australia

Collaborators: Ms Viviana Mucci, Dr. Mingjia Dai, Dr. Sergei Yakushin, Dr. Shaun Watson and Dr. Rachael Brown

Contact Info: Dr. Cherylea Browne, Telephone: +61 2 4620 3491, Email: [email protected]

Webpage: https://www.facebook.com/MdDSResearchGroup/

Survey link: htthttps://uwsssap.co1.qualtrics.com/jfe/form/SV_cFSMIHaBDxNBZqZ 


Title: Understanding MdDS Questionnaire for motion-induced onset patients only

Objective: To learn more about motion-induced onset MdDS patients - focusing on onset, symptoms, triggers, health/well-being and therapies.

Participant Information: This online survey is for patients whose Mal de Debarquement Syndrome (MdDS) was initially induced by a motion event, even if you are triggered by non-motion events now.

You are invited to participate in a research study being conducted by Dr. Cherylea Browne and Dr. Rachael Brown from the School of Science & Health and School of Medicine, Western Sydney University. This research aims to contribute to the understanding of the underlying mechanisms of MdDS. Specifically, this study seeks to collate data regarding the basic clinical features of MdDS, which might be unidentified or overlooked due to the subjective nature of the condition. We aim to collect survey data from MdDS patients, both within the state, nationally and internationally. Participation in this study involves completing an online questionnaire about your MdDS onset, symptoms, triggers, health and well-being, and therapies that you have found useful in managing your symptoms. By completing the questionnaire you are giving consent for your anonymous responses to be used for research purposes and to be published.

Study Status: Recruiting

Study Results Expected: Sep. 01, 2017 |

Sponsor: Dr. Cherylea Browne - Western Sydney University, Australia

Collaborators: Dr. Mingjia Dai, Dr. Sergei Yakushin, Dr. Shaun Watson and Dr. Rachael Brown

Contact Info: Dr. Cherylea Browne, Telephone: +61 2 4620 3491, Email: [email protected]

Webpage: https://www.facebook.com/MdDSResearchGroup/

Survey link: https://www.surveymonkey.com/r/MdDS_Survey_Brown


TITLE: Multichannel vestibular implant early feasibility study

Objective: Study the safety and effectiveness of an implanted inner ear stimulator system designed to restore vestibular sensation.

Participant Information: Please see the Vestibular Implant Study link at www.jhu.edu/vnel for details regarding study inclusion criteria and how to apply to participate. Five subjects will be implanted in the first study. Potential candidates should have bilateral loss of vestibular sensation of at least one year duration, inadequate recovery despite adequate vestibular rehab, good hearing in at least one ear, prior testing (including audiogram, caloric tests, MRI of the internal auditory canals) confirming the diagnosis and showing that they are otherwise healthy, and motivation and ability to undergo implantation surgery and to participate in device activation continuous device use for 3 months, device activation, and quarterly monitoring visits until a year after surgery.

Study Status: Recruiting
Study Results Expected: Jan. 01, 2018 |
Sponsor: NIH-NIDCD, John Hopkins School of Medicine; Labyrinth Devices, LLC
Collaborators:
Contact Info: Study Coordinators Carolina Treviño and Kelly Lane (401) 955-7876 [email protected]

More Information and an application to participate can be accessed via the Vestibular Implant Trial link at www.jhu.ed/vnel

Location: Johns Hopkins Vestiblar NeuroEngineering Lab; Baltimore, Maryland USA
NCT Number: NCT02725463
E-Mail: [email protected]


 

Title: A new diagnostic test to measure vestibular function

Objective: Validate a novel method to measure the extent of loss of vestibular function.

Participant Information: We are recruiting a limited number of patients with either bilateral (both sides) or unilateral (one side) loss of vestibular function. Participants wear a pair of goggles and keep head in the upright position and then tilted to each shoulder for a few minutes. As part of this study you will also have vestibular evoked myogenic potentials (VEMP), a standard test used to evaluate vestibular function. You will be compensated for your time for participating in this study. Costs for parking at the Johns Hopkins Outpatient Center Garage will be covered.

Location: Johns Hopkins, Baltimore, MD.

Contact: Please email [email protected] or phone 410-955-3319 for more information or submitting medical records.


Safety, Tolerability and Efficacy for CGF166 in Patients With Bilateral Severe-to-profound Hearing Loss

Purpose: The goal of the current study is to evaluate the safety, tolerability, and the potential ability of CGF166 delivered through IL-infusion to improve hearing and vestibular function. CGF166 is a recombinant adenovirus 5 (Ad5) vector containing a cDNA encoding the human Atonal transcription factor (Hath1).

Location: Kansas City, KS; Baltimore, MD; New York, NY. Read more


 

Why is vision stable during walking?

Purpose: Objective:To identify a novel and practical means of assessing vestibular function during a functional task 
Participant Information:13 Individuals with vestibulopathy (bilateral vestibular loss) and 13 healthy individuals are being recruited for this study. 
Walking portions of this study (~1 hour including set up) will be conducted at the gait and motion analysis lab at Kennedy Kreiger Institute and the portion of the study involving sitting on a motion platform (~2.5 hours) will be conducted in room 710 in the Ross Building.  Any vestibular function testing will be conducted in The Johns Hopkins Outpatient Center, Department of Otolaryngology.
For participating in this study you will be compensated $50.  Costs for parking at the Johns Hopkins Outpatient Center Garage will be covered.
Location: Johns Hopkins, Baltimore, MD. Email [email protected] or phone (410) 564-7828 for more information.

 

Genetic Analysis of Hereditary Disorders of Hearing and Balance

Purpose: To identify the genetic causes of hereditary hearing loss or balance disorders.
Location: Bethesda, MD. Read more

 

Clinical and Molecular Analysis of Enlarged Vestibular Aqueducts

Purpose: To identify and understand the genetic factors that lead to enlarged vestibular aqueducts
Location: Bethesda, MD. Read more

 

Studies of Vestibular Loss

Purpose: To seek persons with confirmed bilateral vestibular loss to participate in one or more research studies of human balance function. Location: Portland, Oregon. Contact by e-mail.

Search for other vestibular research studies here.

Did this information help you? 

 

Join VEDA's email list to receive the latest news & updates! 

Sign me up! No, thanks