Participant Page: Mind Over Meniere's Balance Awareness Week
In 2011, four words changed my life forever: “You have Meniere’s disease.”
After 6 months of declining health I finally had a diagnosis, and after everything I’d been through, I expected the problem would be over soon.
I couldn’t have been more wrong. I had a long road ahead of me.
When the dizziness first started, I was a senior at Florida Atlantic University in Boca Raton, Florida.
I was young and at a time in my life when I still felt invincible, so I just ignored it. But slowly, everything started to get worse as new symptoms made their introduction. I started having trouble focusing in class, my ears felt congested all the time like I had a bad cold, and my Tinnitus was louder than it had ever been before.
A few weeks later, I got my first taste of Vertigo. Though at the time, I was sure it was food poisoning. I had been violently sick succumbing quickly to the nausea the comes with the total loss of equilibrium.
But still, I ignored it. I pressed on in denial for months. Suffering without understanding, until finally a massive vertigo attack struck me down one night after class. It was undeniable. Something was very wrong with me.
My first doctor, a local ENT, was hasty with the diagnosis, running no tests and deciding on the spot that I had Meniere’s disease. It would be confirmed later by a much kinder, gentler, and all around wonderful doctor later on.
But at the time, I was swallowed by fear. My first doctor gave me very little to go on.
So I took to Google to do more research, only to find report after report of conflicting information and the worst cases of suffering. Meniere’s disease is such a complicated illness and it’s easy to be overwhelmed with despair.
I had no hope. I really believed my life was over.
But somehow, I was lucky enough to stumble across the Vestibular Disorders Association’s website. And things started to change. For the first time, in a long time, I had hope and a clear sense of the problem.
VEDA was a lighthouse in one of the darkest times of my life, one that I am eternally grateful for and proud to be associated with.
For more than 30 years, the Vestibular Disorders Association has been educating, supporting, and advocating not just for the Vestibular patient community, but for Vestibular professionals as well.
In a world of people who don’t understand, the Vestibular Disorders Association does.
It’s time to give back!
Join me in my support of VEDA for Balance Awareness Week 2016 and make a donation today so that VEDA can continue to support us for years to come!