Participant Page: Stepping For Life Rebalanced
I have been living with vestibular issues for almost 4 years and have been diagnosed with Vestibular Migraines. My days and weeks are up and down. Migraine one day or more, feeling great the next. Medication helps but still needs some tweaking.
I want people to know we are not alone. VEDA provides an abundance of resources and their goal is to help educate patients & support research in hopes to see more specialized doctors. These disorders are not well known, unless you are the one suffering with one. Explaining your disorder to someone is even harder.
When you are dizzy your body is working to balance itself & while your body works you become mentally & physically exhausted. Many of us have to lay down, sleep more and carefully find ways to stay active.
This year I completed Trek Up The Tower in one of Omaha's tallest buildings, clmbing 40 floors of stairs, 870 steps, 633 feet into the sky. This was my 5th climb but also my 1st with VM.
My goal for Steps 2 Balance is first and foremost to raise awareness. I will be hiking at Fontinelle Forrest in Bellevue, Nebraska on May 18th during Steps to Balance Week. In addition I've started walking more and joined a gym.
I want to raise awareness and show that life doesn't stop at diagnosis. We will have setbacks, we will want to give up, but it can be done one step at a time.
Let's support those fighting Vestibular Neuritis and other Vestibular Disorders.
I recently found out my right vestibular nerve is barely functioning due to an injury. The doctor said it's possibly due to a virus but could be anything that injured it. Finding out what virus is nearly impossible without taking a culture and possibly damaging the inner ear even more.
The nerve will never heal so my left side will always be compensating for my right. This is what has been causing my Vertigo. There is no cure, only PT to help "manage" the vertigo. Most of the time I just feel off balance and in layman's terms....drunk. It's uncomfortable, can put me on my butt for a day just watching tv because walking around is obnoxious running into things but they say to keep moving because it helps the left side work at compensating.
I am also being monitored for Meniere's Disease, which is a disorder of the inner ear that causes episodes in which you feel as if you're spinning (vertigo), and you have fluctuating hearing loss with a progressive, ultimately permanent loss of hearing, ringing in the ear (tinnitus), and sometimes a feeling of fullness or pressure in your ear. In most cases, Meniere's disease affects only one ear. Meniere's disease can occur at any age, but it usually starts between the ages of 20 and 50. It's considered a chronic condition, but various treatments can help relieve symptoms and minimize the long-term impact on your life.
You do not have to join in the Dash but if you feel like donating to a good cause I think the those who suffer from Vestibular Diseases would greatly appreciate it.
Welcome to Team Ambassadors's PCP