Participant Page: My Vertigo: Marcia's Story

$ 550.00
Raised so far
Of target
My Vertigo: Marcia's Story
My Story
It's time to bring vertigo and vestibular disorders out of the shadows. Please share my story with others so that more people will hear about VEDA, the Vestibular Disorders Association. And, while we're at it, let's raise some serious $$ for BALANCE AWARENESS WEEK, September 15-21, 2014!
People with vertigo can usually tell you the exact day it began, where they were and what they were doing. The onset of these terrifying, life changing bouts of disorientation, chaotic spinning, nausea, and (sometimes) vomiting often seem to strike without warning.

My first vertigo attack occurred on Sunday, August 18, 2013 as I was preparing for a dinner party. I leaned over twice in quick succession to retrieve items from a bottom cupboard when, suddenly, I felt light headed and realized everything in the room had tilted. My kitchen looked like a scene from “Titantic.” I continued setting the table but had to hold on to the chairs to remain upright. Fifteen minutes later I was totally incapacitated . . . and I mean totally. I was as helpless as a baby. Two weeks later it happened again. I ended up in the Emergency Room of our local hospital.

Today, one year later, I have had over 20 vertigo episodes. It’s unclear whether I suffer from Labyrinthitis, Secondary Endolymphatic Hydrops, Meniere’s Syndrome or Migraine Affected Vertigo. It seems that I may have a combination of all four. By the fourth month, I reduced my work schedule to half-time. The random nature of vertigo attacks destroys one’s sense of confidence and I had become very anxious about my bus commute in to Seattle. By the fifth month, I opted to resign my position as Chief Development Officer of Easter Seals Washington to devote full time and attention to recovering my health. I was exhausted and felt like I was operating in a fog.

Throughout this odyssey, VEDA has been a great resource for me. In fact, I don’t know what I would have done without VEDA. The Emergency Room physician gave me a VEDA document regarding Labyrinthitis. Later, my neuro otolaryngologist gave me a VEDA report on Meniere’s. Eventually – probably around the fourth month – it occurred to me to check out this “VEDA.” When I found VEDA’s website, I was absolutely enthralled. Here were people going through exactly what I was experiencing! I no longer felt alone. When physicians told me my condition was likely a chronic one for which there was no cure, I turned to VEDA’s online resources to find answers for my questions, as well as strategies, tips and links to additional information. Since then, I’ve made numerous changes to my diet and exercise and I’ve greatly reduced my stress levels. I’m not out of the woods quite yet, but I’m steadily improving. My vertigo episodes are less frequent and far less debilitating. Hope is on the horizon.

We need to get the word out about vestibular disorders and VEDA. Please help me raise $1,000 for BALANCE AWARENESS WEEK by donating $25 or more to VEDA. Your tax-deductible gift will allow VEDA to provide a wide variety of resources that enable patients like me to cope and find help. Thank you!

This Page is 17th out of the 48 fundraisers taking part in event.
The Barker Family has donated $ 100.00

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