Patient: Working with a vestibular disorder - VeDA Forum https://vestibular.org/forum/patient-working-with-a-vestibular-disorder/ VeDA Discussion Board en-US Thu, 16 Jul 2026 16:38:35 +0000 wpForo 60 Company asks for detailed medical paperwork, doctor refuses to fill it out – who has been there? https://vestibular.org/forum/patient-working-with-a-vestibular-disorder/company-asks-for-detailed-medical-paperwork-doctor-refuses-to-fill-it-out-who-has-been-there/ Thu, 05 Jun 2025 02:43:34 +0000 Hi everyone,
I have been living with vestibular neuritis since 2014 and have been working remotely as a software engineer almost full-time ever since. Work was stable until recently, when the company asked me to re-submit my medical paperwork in order to continue working from home and using personal devices such as a large monitor (to reduce eye strain and dizziness).

The problem is that they send a long questionnaire with questions like “What limitations affect work performance?” or “How would your doctor suggest improvements?” – which my doctor frankly said they could not answer due to legal concerns and not knowing the specifics of the job. This doctor is extremely reputable and is currently very difficult to reschedule (4–6 month wait).

I feel caught between an unrealistic administrative requirement from my employer and a healthcare system that does not support this type of paperwork. I am considering hiring an attorney to defend my ADA rights.

Has anyone here been in a similar situation? How do I get through this without burning out? Any advice or experience would be greatly appreciated.

Thanks everyone!

]]> Patient: Working with a vestibular disorder barkerxavierr https://vestibular.org/forum/patient-working-with-a-vestibular-disorder/company-asks-for-detailed-medical-paperwork-doctor-refuses-to-fill-it-out-who-has-been-there/ Computer Screen help https://vestibular.org/forum/patient-working-with-a-vestibular-disorder/computer-screen-help/ Fri, 15 Mar 2024 18:54:13 +0000 I need to replace my laptop and I have a lot of trouble with my eyes visual vertigo and looking at the screen makes my vestibular disorder and migraine symptoms worse. I was wondering if anyone has had any luck with a type of screen there are so many out there I feel lost on make and type. I’ve tried glasses and brightness reduction I’m just looking for advice on make and screen type please  

]]> Patient: Working with a vestibular disorder Carrie10129 https://vestibular.org/forum/patient-working-with-a-vestibular-disorder/computer-screen-help/ Best type of jobs for people with Vestibular disorders https://vestibular.org/forum/patient-working-with-a-vestibular-disorder/best-type-of-jobs-for-people-with-vestibular-disorders/ Fri, 23 Apr 2021 15:40:12 +0000 Hi,

I am a Teaching Assistant in a busy Nursery and moving around all day, up and down, bending over constantly tidying up, picking toys up off the floor, cleaning, changing children is making my dizziness really bad.

I absolutely love my job but I was wondering if anyone has any ideas on types of jobs that wouldn't be too hard on the Vestibular system or jobs that you manage ok with?

I have tried working with the older children  in a classroom and found looking at the board then back at the children all the time, standing up, reading and writing made everything even worse than working in Nursery did and I only lasted 3 months before going back to work in Nursery.

Any help/tips would be greatfully appreciated 😊

 

]]> Patient: Working with a vestibular disorder Georgie4 https://vestibular.org/forum/patient-working-with-a-vestibular-disorder/best-type-of-jobs-for-people-with-vestibular-disorders/ Difficulty getting accomodation at work? https://vestibular.org/forum/patient-working-with-a-vestibular-disorder/difficulty-getting-accomodation-at-work/ Tue, 23 Feb 2021 21:04:39 +0000 I've been living with severe vestibular neuritis for about ten years now. I was diagnosed in 2014. I'm a software engineer. At the time I had the doctor's office fax a signed letter to my HR department indicating my need to work from a home office. My supervisor was in complete agreement, and HR didn't complain. I also submitted a request for accommodation to make sure I was clearly indicating I needed this under the ADA.

Fast forward, the company has demanded I send a long questionnaire to the doctor's office (now 7 years since I was last seen) to have the doctor answer questions like "What limitations interfere with job performance?" and "How would your suggestions improve the employee's job performance?" which I know for a fact no doctor is going to answer. I saw a similar problem when my significant other was dealing with Worker's Compensation from a traumatic brain injury / post concussive syndrome... the doctors wouldn't answer anything they felt was a liability legally. One of the neurologists said honestly, "we don't want to be subpoenaed to court, we're not medical examiners, the liability is too great." and "we don't know anything about your job, your job skill requirements, and won't comment on your fitness for any particular employment."

Specifically, I bought (at my expense) larger monitors and equipment to reduce my visual fatigue that I have come to know greatly harms my ability to move around when I've taxed it too far. This worked fine for many years, but recently the company swapped out my laptop with a model that can't support those larger monitors and all the external devices. I was told to use smaller standard-issue monitors to fix the issue (instead of just getting the proper dock hardware)... I explained I need these to prevent severe burn out medically.  They want proof in the form of a long 8-question essay format questionnaire, and despite my concerns about the reality of getting that filled out they are persisting.

So now I'm left with trying to argue with a doctor's office to do something they wouldn't normally do, and the lack of doing so will cause a major problem with my employer--of whom I think is being unrealistic in what a doctor will and won't sign off on. I also know it's been 6-7 years since I've seen my doctor, and it takes 4-6 months to get an appointment. He's a very prestigious oto-neurologist in the Northeast US and his time is very hard to get--but he's the best medical provider I ever saw for my vestibular diagnosis journey.

Is this the unfortunate moment I need to retain an attorney to be allowed my accommodations to do my job? Any advice on how to handle this? Has anyone been through this?

Thanks to any who have advice or feedback.

]]> Patient: Working with a vestibular disorder mbnh https://vestibular.org/forum/patient-working-with-a-vestibular-disorder/difficulty-getting-accomodation-at-work/ Coping with everyday work issues https://vestibular.org/forum/patient-working-with-a-vestibular-disorder/coping-with-everyday-work-issues/ Mon, 01 Feb 2021 15:02:07 +0000 How do those who work cope with everyday stress and workloads at your jobs?

]]> Patient: Working with a vestibular disorder David Morrill https://vestibular.org/forum/patient-working-with-a-vestibular-disorder/coping-with-everyday-work-issues/