Hypnagogic hallutinations - Patient: Symptoms

RE: Hypnagogic hallutinations

Gordon — Sun, 31 Dec 2023 03:35:51 +0000

Sleep disorders are very common among people who have chronic migraine (vestibular or otherwise). Chronic migraine can lead to all sorts of symptoms associated with sleep: insomnia (difficulty falling and/or staying asleep), nightmares, night terrors, panic attacks, restless legs, periodic limb movements, hypnagogic hallucinations, sleep paralysis, and more. The tricky thing is that these symptoms often occur without headaches, obscuring migraine as a potential cause. If you also experience dizziness, vertigo, rocking, swaying, etc. then the culprit is very likely to be migraine. Another common feature of migraine is that laying down can often exacerbate the symptoms. The doctors that are more likely to be aware of this are neurologists who specialize in sleep disorders or migraine. If migraine is the cause of these symptoms, and they occur frequently, then trigger avoidance and migraine preventive medications (such as amitriptyline, nortriptyline, verapamil, topiramate) may be needed to reduce the frequency and intensity of these symptoms. Some people may find taking an NSAID (such as ibuprofen, celecoxib, naproxen) before bed to be helpful as well. Hope this information helps.

RE: Hypnagogic hallutinations

Girlwithnosleep — Fri, 29 Sep 2023 13:00:59 +0000

@maurabcn can you tell me what med you are on ? I have the same issues

RE: Hypnagogic hallutinations

Girlwithnosleep — Fri, 29 Sep 2023 12:57:36 +0000

@mollierosen11 I’m experiencing the same … but I am from the myoclonus group my issues have turned into hypnic jerks as well . It’s awful .

RE: Hypnagogic hallutinations

Girlwithnosleep — Fri, 29 Sep 2023 12:55:38 +0000

@maurabcn … how did you ever treat this ? I have the same .

RE: Hypnagogic hallutinations

Girlwithnosleep — Fri, 29 Sep 2023 12:54:41 +0000

@perplexed i have developed tons of sleep

onset issues .. myoclonus , adrenaline rush , exploading head … they all started with hypnagogia at sleeponset .. how have you ever controlled this ?

RE: Hypnagogic hallutinations

Perplexed — Fri, 07 Apr 2023 16:01:16 +0000

@minemax I've got the same thing. It started with memory loss, over 1 year, I then had a vertigo episode and 2 days later am having horrible hallucinations at night. Did you get better,and...

RE: Hypnagogic hallutinations

Mau — Tue, 20 Dec 2022 19:58:02 +0000

Hi all, I am giving an update on my current situation. I was diagnosed with VN, epilepsy and finally vestibular migraines. I spent 1 year dizzy and nauseous 24/7, on the wrong medication for epilepsy, lost 20 pounds but finally went to another neurologist who put me on the right medication. However, he can't explain my nocturnal episodes and he thinks it is unrelated... I am taking an anticonvulsant at bedtime, so I can have a full night of sleep. I also take 2 other medications and 3 supplements. After almost 2 years, I have my life back. It took 7 different doctors to find a response and 7 days doing an EEG at the hospital. Do not give up! There is something out there that is right for you.

RE: Hypnagogic hallutinations

Dex — Fri, 16 Sep 2022 11:49:48 +0000

@mollierosen11 I also have faced the same issue for two years. At first, I consulted the ENT specialist, who prescribed some medications and advised me to avoid situations that worsen my migraine. Such as skipping sleep and food and doing strainful exercises. The two weeks went satisfactory to the effect of medicines, but after that, I again felt the same headache. The doctor referred me to a neurologist, who found that the migraine was related to vestibular. He suggested a physiotherapist, and I started vestibular therapy for migraine with his help. The first days were horrible; even I can't imagine the pain I experienced. But after two weeks, the severity of the pain comes low, and now I lead a headache-free life. So happy.....

RE: Hypnagogic hallutinations

Mollie — Thu, 08 Sep 2022 19:35:13 +0000

I have the same exact issue. I was diagnosed with Vestibular Migraine. I am going on 4 months of constant battle of floating, rocking, along with closed eye hallucinations- causing me to have panic attacks at night. The hallucinations came on about 3 weeks after my vestibular migraine started. Going to sleep is a nightmare for me. I see complete nonsense hallucinations. They’re vivid, and keep my up at night. I also too have vivid dreams and nightmares. I am working with an neurologist as well as vestibular rehab. So far, no answers and lots of “I’ve never heard of anything like this before”.
If you ever get diagnosed, I would love to know with what. And I will let you know if I am diagnosed eventually too. I have an MRI today, but it looks as if I will find nothing..

Good luck on finding answers. I know how much of a hell ride this all is.

RE: Hypnagogic hallutinations

MineMax — Wed, 07 Sep 2022 06:01:53 +0000

@maurabcn I’m having 100% the same symptoms you described. I’m posting now because I can’t sleep! The hypnagogic hallucinations and nausea are freaking me out.

Did you ever find out more definitive info on what is going on? How it’s treated?

I’m interested to know an update.