Patient: Vertigo - VeDA Forum

Am i dying or what?

Joeflemenco — Sun, 28 Sep 2025 15:37:46 +0000

My story starts about 12 years ago in a prison in Southern Illinois. I found myself in a fistfight with a very large man which I lost in spectacular fashion. I'm not sure how many undefended punches I sustained but they were mostly in the ear as my ear was about the same thickness as a steak afterwards, also for a good month following the fight every time I would sit up in bed I would get vertigo, and my eyes don't line up now when I look up. After I got out I noticed I would get these dizzy spells accompanied by neck pain trouble chewing and a ridiculously heavy head. Now it's too the point I am losing consciousness 3 times so far this week and when these spells come on I am useless because I am too dizzy to do anything. I just kept thinking it would eventually sort itself out but instead has gotten progressively worse. I am diabetic and I do have high blood pressure and I've been fighting a 7 month infection in my foot that I still may lose some of my toes to. All of this I can handle except the dizziness and fainting. Also I've noticed when these spells come on everything gets too bright like being snowblind.

Constant Residual light headedness after vertigo attack

DIlen Fernando — Wed, 09 Aug 2023 10:34:26 +0000

HI everyone

I had a vertigo attack 3 months ago and ive been feeling light headed and ‘off’ day in day out ever since.

Even though I am on medication (prochlorapazine 30MG and betahistine 48MG) on a daily basis I still feel the same way

Although multiple doctors told me that I have BPPV I have done all manoeuvres and really done everything under the sun to get rid of this feeling of constant light headedness.

The first clarification I have for you is,

1. Is feeling light headed constantly all day and feeling ‘off’ without dizziness for 3 months straight normal after a vertigo attack?

2. Will your paid program help me recover from this?

Thanking in advance for your response!

Desperate for help 20+ years of untreated Vertigo

42joe42 — Mon, 15 May 2023 17:35:34 +0000

Greetings & Hii to all from this community!

I am reaching out and sharing my story & health as it's about time I extend my reach for help and solutions, to be quite frank I am extremely desperate for any type of help so I am praying someone will have some sort of guidance or just anything to potentially help me. I also would like to apologise in advance as this may be a very long post and I know reading lots of text on a screen isn't always great for everyone.

My name is Joe and I am a 25 year old male from the UK. From age 0-5 I had a perfectly normal good life. I was walking by 8 months old and by age 4 my mother had me in all sorts of athletic curricular programs including gymnastics where I was doing all kinds of rollovers & flips. Everything until this point was either great or normal, the only negative thing to happen to me during this time of life is I had a very traumatic birth and was on life support & incubators, I am not sure of the details but my mother told me I was very very sick and that the Dr's used forceps on my head to pull me out which is what she thinks caused my issues today. Skip to age 5-6 I am now in Primary School full time public education still perfectly normal and excelling but one day out of nowhere I was running on the playground and I got struck with a bout of dizziness, nothing too intense just a dizzy spell of spinning sensation. I was sent home and it passed but this is where everything then began. Each year I would get these bouts of dizzy spells more and more each year. I could still do most things when I didn't have the spells but eventually it got worse even more to the point where I'm not having an attack of dizziness but I can still feel it in the background like something is off and that if I did something wrong like turned to quick or went upside down it could make an attack come on. Come to age 15 the dizziness evolves from what started off as just spinning sensation now when an attack comes to now more severe where gravity feels completely sideways or shifted, I feel like I'm falling in the wrong direction, my balance is gone, my heal tilts, I visually see movement that isn't there, the motions loop, I really wish I could explain it well but it honestly just feels like being put in a washing machine or physics breaking roller coaster. So now when an attack comes I get disabled and panic, unable to move which has started giving me anxiety. But now it evolves again, after an attack comes sometimes it can have a lasting effect where I have been stuck in bed laying down for up to 4 months unable to move at all due to small movements bringing on an attack. More years go by and the same story I get more and more attacks throughout the year and I now live in fear daily with the amount of little background vertigo that is there. Sometimes I have had a solid year where I am almost unaffected but I have had to live carefully in those years no planes no boats no elevators no sleeping on my back no sports or anything that could trigger a possible attack. Fast forward to today I am now 25 years old I suffer from chronic depression & anxiety all due to my vertigo. I have tried to end my life multiple times due to the vertigo being so intense and me realising I can not live like this anymore its torture and completely un berable. It has prevented me from getting a job, going to university, having children, travelling, getting a driver's license, missing family & friends events the list is endless. Lately this year I have noticed now I have been getting some tinnitus in my left ear only but it's very minute and new and doesn't happen 24/7. This could also be unrelated but since age 20 I started getting tremors in my hands too along with body convulsions when a vertigo attack comes.

I hope I managed to fit every detail about my condition and how it progressed over the years. As for doctors I have had no luck at all most have just tried to brush my aside and give me anxiety medication because they think it's in my head, some wanted to try MRI scans and other tests but I can't physically do any of those cause they trigger an attack for me and they refuse to put my under anaesthetics for any scans. No DR has seemed to grasp how intense this is for me even though I am suicidal from it. I tried to explain that if they do anything to trigger an attack I could be bed bound for months after it and have even higher anxiety on top of the severe attack of vertigo. So it's been really really difficult to do anything with health care. I even tried stem cell treatment in 2020 which was not cheap and it did work. I was 70% myself again and able to do a lot more than usual like going on a plane or playing sports BUT it only seemed to last about 18 months before wearing off or so it seems. Dr's have given me all sorts of theories too from Meniere's Disease to Positional Vertigo some even suspected a brain tumour but to be fair I have only tried a handful of medications or treatments as I explained I am terrified of something I try whether it be medication or treatment to trigger an attack.

So now I am completely lost and very close to giving up because I can't live much longer like this. I have already missed out on so much of my life due to this condition so I am desperate for any help or just something. I don't even mind not having a cure. I just want to be able to live normally and do all the things I dream and desire in life without any limits from my health. Personally I have no idea what could be the issue. I used to think it was an issue in the inner ear as I have a little bit of difference in hearing in one ear and that's also the side which the vertigo and world feels and looks tilted too but at this point I have no idea because stuff like Meniere's Disease to Positional Vertigo doesn't seem to add up to all my symptoms and how it seems to get worse over time too and evolves in the way the motion and visual things look. I really don't know. I am booked in with a neurologist next month who apparently specialises in vertigo so lets see but please anyone who has any suggestions or ideas I am willing to pay any amount of money for help. Also I know I mentioned anxiety & suicide but please do not be alarmed I am being cared for and in a safe space as I write this I just had to be upfront about how severe the vertigo is that it leads me to suicidal attempts in the past so people can hopefully understand this isn't just a spinning room sensation or that when it passes I am okay.

Thank you to anyone who reads this, whether you can help or not. I am just glad this has reached somebody and can maybe even help someone else out there who has the same experience as me to know you are not alone.

From Joe :)

Strange Symptom Pre-Vertigo Attack

JamesB28 — Tue, 24 Jan 2023 01:44:51 +0000

Hello all,

Without going into all of my symptoms, I wanted to focus on one thing in particular that preceded my recent vertigo attack, and know if anyone has ever experienced this. Hopefully someone will have had a similar experience that could aid in my diagnosis.

Has anyone ever experienced a STRONG sensation of air being blown into their ear (or air being sucked into their ear), preceding a vertigo attack? And not a vague feeling - it felt like someone put a straw in my ear and then blew in it, lasting for about 15 seconds.

I had a vertigo attack on December 6th, which has turned into what is now a 7-week long stay in hell with what doctor has tentatively diagnosed as vestibular migraine. Several hours before the vertigo attack, I had the above sensation in my right ear.

Anyone experience something similar, or have any insight into this? Neither my ENT or neurologist had anything of significance to say about this.

Thanks for any input,

James

Vertigo

After COVID — Sun, 17 Oct 2021 16:18:32 +0000

I have not being vaccinated but I had COVID 2 months ago and since then I started having some side affects. One of them is lighthearted does anyone have the same side affect and what are you doing to get better?

Vertigo on both sides

Laura P. — Fri, 24 Sep 2021 20:16:51 +0000

hi I’ve been struggling with vertigo for six months. First episode was in April. Second episode was in June and the latest last Saturday. In each case After the first day I felt much better but had vertigo on both sides when rolling over for around 2 weeks. Have had EKG, VGN test. Bloodwork and brain MRI. ALL normal but I don’t feel normal! Doc thinks it MIGHT BE vestibular neuritis or BPPV. If it is BPPV however it’s strange that it’s on BOTH sides. Anyone else have vertigo on both sides and did you get a diagnosis?

Recurring vertigo, triggered by specific body movements - ideas on next steps?

leaningdizzy — Sat, 18 Sep 2021 21:05:50 +0000

QUICK HISTORY:
I’ve been dealing with imbalance, dizziness, and vertigo spells since 2016. A teaching doctor at the local university/audiology lab diagnosed a right labyrinthine dysfunction from RCT and VEMP testing, with no additional peripheral or central vestibular pathology. DHP testing suggested concomitant possible BPPV. I’ve had multiple rounds of vestibular therapy since then. My PT also suggested there might be a vestibular migraine component, and/or food sensitivities.

In the past 1.5 years I’ve predominantly experienced recurring vertigo spells (yes, the room spins). I’m sensitive to fluorescent/LED lights, and loud/ongoing noise. I’ve finally started experimenting with the removal of certain foods, to see if there are any sensitivities (hours or next day(s)).

TRIGGERS/MOVEMENTS:
I’m often in a crouching/leaning forward position right before the vertigo episode. Think of crouching down to pull weeds, then leaning further forward to grab another weed. Then getting up, walking, and crouching down again. Another trigger is leaning into a car to vacuum it out. Vertigo will hit out of nowhere. Rarely, I can feel it coming on, roll back my head (look up), sit on my butt, and ‘short-circuit’ or calm it temporarily. Usually the spinning begins and I have to lie back or down for awhile (the spin lasts minutes, sometimes 30; the longest 3 hours). Sometimes looking down (like at your phone or papers on a desk) will trigger a milder ‘off’/imbalance feeling. Since Covid has gotten worse, I don’t even call or go to my PT. I do my hallpike diagnostics, and an epley for whichever side seems to indicate spinning. Afterwards I usually I still feel ‘off’ or that my head feels slightly ‘disconnected.'

My QUESTION… Is it possible there’s an escaped otolith (ear crystal) from one of the canals, that the epley maneuver doesn’t resolve? Is it possible an otolith has never gotten back to where it needs to be? I remember my PT telling me any stray otoliths will break down and be absorbed by the body, but I really wonder how much of that is true. I gather science still has much to learn about inner ear disorders and vertigo. My point is, isn't it strange a specific set of body movements (described above) are involved right before almost all of my vertigo spells anymore? It’s not 100% of the time, but I’d argue 75%.

Ideas? Thoughts? Next steps?

Thank you!

Pfizer Vaccine

pgreen — Wed, 02 Jun 2021 21:02:45 +0000

I was diagnosed with Benign Positional Vertigo about 20 years ago and have migraines along with them sometimes optical. I have found that these problems get worse with vaccinations ie pneumonia and flu. I also did find out another big trigger is usually lights especially flourescent and others in restaurants. I used to get epley maneuver but it pulled out my neck so I won't try that anymore. I did take meclizine periodically. Fortunately, since covid and staying in, I have almost been vertigo and migraine free. So am trying to decide about the Pfizer vaccine. I want this one as I heard this one has the least amount of side effects. It is also less of a dose than J&J as only 1/2 does compared to full dose. I noticed that some people on here are having vertigo from the vaccine and was just wondering if any of it has subsided by now. The problem I had before with the other vaccines was that it lasted for years.