As a valued member of VeDA you receive exclusive access to our quarterly newsletter, On the Level. VeDA members will also have exclusive access to a "Member Forum, "which will be launched in the near future.
VeDA's quarterly newsletter, On the Level, containing patient stories and articles on current research, coping strategies, etc., is available only to VeDA members.
If you are NOT a VeDA member and would like to subscribe, please click here for more information on membership.
VeDA members can access On the Level Archives by clicking "Read More" below. You will need a website login to gain access to to this page. If you do not have a website login, click "Register" above. If you do have a website account, please make sure you are logged in.
Has anyone had trouble with intimacy in a special relationship and if so what solutions have you found to help? This is a challenge a member is trying to figure out.
Nick asks, "Has anyone ever had severe headaches post perilymphatic fistula surgery for extensive periods of time? For example, 15 days during any month where you needed to take something to help it go away?
Nick asks, "I had three exploratory surgeries for a persistent perilymph fistula in my right ear and as a result have severe hearing loss in this ear(which is understandable). Surprisingly, I have developed a moderate hearing loss in my good (left) ear that cannot be explained. Has anyone had a similar experience? My otolaryngologist is perplexed about this."
Chris says, "I was diagnosed with bilateral perilymph fistula's and suffer with daily persistent headaches. I'd like pharmaceutical suggestions for the headaches." Any suggestions?
Chris asks, "A doctor I had speculated that I might have 'floppy ear.' What is floppy ear?"
VeDA member asks, "Has anyone tried the surgery or know anyone who has? Has anyone been to the House Clinic in Los Angeles....is the surgery dangerous and do you end up deaf in one ear?"
Member Nancy describes the following:
When sitting, standing, or walking, I experience the sense of motion you usually experience riding on a bus or subway. I experience this motion constantly during waking hours. I also have a constant sensation of plugged ears. I've seen seven Doctors about it without any diagnosis.
What helped you or do you have any suggestions?
I have single side deafness and am wondering if any one has experience with a BAH type hearing device.
Thanks for any thoughts and sharing your experience.