You can participate in two studies on Mal de Debarquement Syndrome: 1) To develop a guide for new patients; 2) To examine the impact of hormones on the disease.
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Balance issues are more common in the first two weeks following a concussion than cognitive impairments (Karr, Areshenkoff, & Garcia-Barrera, 2014). Thus, physical therapists are a vital member of the rehabilitation team treating concussion for both assessment and recovery. Also of interest is that abnormal heel-to-toe (tandem) and feet together with eyes closed (Romberg) testing at 2-3 weeks correlates with poor neuropsychological testing related to poor effort and/or invalid test results.
Oregon State University conducts the largest survey of quality of life among adults with rare diseases.
This report is the first study to investigate quality of life for those suffering with Mal de Debarquement Syndrome (MdDS).
In 2014, VeDA asked members to assist in a research project by signing onto a patient registry and providing information on their diagnosis experience. This data was analyzed and the results published in the Journal of Otology and Neurotology.
Initial patient trials are being conducted on an intraoral balance device that works by sending additional balance information to the brain to help vestibular patients who experience imbalance.
Dizziness symptoms can be difficult for patients to describe to family, friends, or healthcare providers. Similarly, it can be difficult to identify and discuss factors leading patients to unsteadiness and falls. Inconsistent language used to describe a fall is a barrier to developing and practicing falls prevention techniques.
The American Physical Therapy Association's (APTA) Neurology Section has recently announced new Clinical Practice Guidelines for Vestibular Hypofunction.
More than 1 in 20 (nearly 3.3 million) children between the ages of 3 and 17 have a dizziness or balance problem, according to an analysis of the first large-scale, nationally representative survey of these problems in U.S. children.
Seeking Patients to Enroll in Study to Treat Vertigo-Inducing Disease