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The Vestibular Patient Experience

Vestibular disorders are invisible. You look fine on the outside, but inside you’re struggling with a myriad of debilitating symptoms. It’s easy to feel like you’re alone, and no one understands what you’re going through.

Reading about others who have been in your shoes can validate your experience and give you tips on what to expect and how to deal with it.

You can also share your story to spread hope and increase awareness about what it’s like to live with vestibular dysfunction.

Untreated Shingles virus lead to vestibulopathy, imbalance, otolith disease, Labyrinthine dysfunction and Ramsay Hunt auricular syndrome

Hi! My name is Cheryl. I'm new to VEDA. In mid June, 2022 I was in the hospital for 3 days. In retrospect, I believe I was exhibiting symptoms of extreme stress and anxiety and

Betty Cress

The Wobbles - My New Normal The year 2015 was definitely a challenge for me. It was a year I would never have imagined in my wildest dreams or worst nightmares. I had back surgery at Laser

VeDA’s Executive Director Joins Rare Disease Leaders at NORD Annual Conference

Earlier this month, VeDA Executive Director Cynthia Ryan attended the National Organization for Rare Disorders (NORD) Breakthrough Summit in Washington, D.C., where nonprofit, research, and advocacy leaders gathered to advance the voice of patients living

Vestibular Patients Create Petition

A group of vestibular patients has created a petition to urge the World Health Organization to consider better awareness of vestibular disorders among primary care physicians and specialists, and multi-disciplinary teams to diagnose and treat

Finding Joy (Life Rebalanced Live)

Finding Joy Life Rebalanced Chronicles Season 3 After two years following 9 incredible vestibular warriors, the Life Rebalanced Chronicles are back for season 3 with an all-new cast! EPISODE 1: FINDING JOY Marissa thought she was done

Neurologist: How to know when dizziness is serious

You probably got here by googling "Why am I dizzy?" A good place to start is our Patient Toolkit. More current and complete information can be found in our Educational Resources Library. It can be

Poetry-4-Balance 2025

Poetry can be a powerful way for those living with a chronic vestibular disorder to express their invisible and often misunderstood experiences through metaphor, rhythm, and emotion. For many, poetry can be healing and offer

Evidence for Cognitive Impairment in Patients with Vestibular Disorders

Summary by Divya Chari, MD, Harvard Medical School & Jeffrey Sharon, MD, UCSF Health Brain Fog Brain fog is a common complaint for those with vestibular disorders. Forgetfulness, inattention, trouble concentrating, and errors in navigation

Lynn Johnson

Lynn's vestibular journey started on Thanksgiving in 2015, when Lynn started to feel off-balance and nauseous. She went to urgent care and was told to take Sudafed for the fluid in her inner ear. By

Life Rebalanced Chronicles

Life Rebalanced Chronicles Documenting the Vestibular Experience Season 1 Season 2 Season 3 Meet the Cast Season 1 and 2 Nicolle Cure Benign Paroxysmal Positional Vertigo Secondary Endolymphatic Hydrops Bio Nicolle is a Colombian-American artist

LRL 2022 Transcript: Neurological Symptoms associated with Long-haul COVID-19

This is a transcript from the 2022 Life Rebalanced Live (LRL) Virtual Conference on the topic of Neurological Symptoms associated with Long-haul COVID-19. Learn more about this annual conference at vestibular.org/LRL. Dr. Danielle Tolman, PT

From darkness and despair to hope and recovery

I was a victim of a hit and run traffic v pedestrian in 2022. I received emergency care right away and was found perseverating and in and out of consciousness at the scene. Imaging showed