Patient Spotlights

The Vestibular Patient Experience

Vestibular disorders are invisible. You look fine on the outside, but inside you’re struggling with a myriad of debilitating symptoms. It’s easy to feel like you’re alone, and no one understands what you’re going through.

Reading about others who have been in your shoes can validate your experience and give you tips on what to expect and how to deal with it.

You can also share your story to spread hope and increase awareness about what it’s like to live with vestibular dysfunction.

Sandra

Happy Saturday everyone! I will share my story often so I can help anyone who needs it. I became ill one November. I felt dizzy, nauseous, and my vision was slightly blurry. I went to

Untreated Shingles virus lead to vestibulopathy, imbalance, otolith disease, Labyrinthine dysfunction and Ramsay Hunt auricular syndrome

Hi! My name is Cheryl. I'm new to VEDA. In mid June, 2022 I was in the hospital for 3 days. In retrospect, I believe I was exhibiting symptoms of extreme stress and anxiety and

My seven year journey

I was an Occupational Therapist working in pediatrics for thirty plus years. When I was 57 in 2016 my life changed. I had been painting a ceiling for several hours with short intermittent breaks to

Yap Wein Fook

Hi, my name is Yap Wein Fook. I was born in 1995 in Malaysia. First, I want to say "thanks" to VeDA for their support. I was first diagnosed with vestibular neuritis. My symptoms included headache, tinnitus,

Lightheaded daily since Aug 2021

Hi! I'm retired, age 71. In August 2021, my neurologist prescribed Lyrica for my mild essential tremor. Within a few days I noticed I was very lightheaded whenever standing and sometimes when driving, I had

Migraine Associated Vertigo (MAV), Vestibular Migraine

Before my life with Vestibular Migraine I was on the go always, I was a busy corporate Accountant, studying my Master in Business Management, a Dancer and Dance Teacher. I liked being busy and would

Athlete and student has central vestibular dysfunction

When I was starting my senior year in 2021 I was feeling great and excited to see what it would all be about! It started out fun and great, but as October hit I started

Keeping the Balance

I grew up in a rather rural area with nature as my playground. I loved exploring, going on roller coasters, climbing trees, and sharing in my imagination. I had such great energy and excitement for

When My Life Went Sideways, A Story of Binocular Vision Dysfunction

My life in 2019 was normal before anything happened. At the time, I was working at a busy Chiropractic office as the lead Chiropractor and at the same time I was an instructor at a

My complicate relationship with G force

My name is Sara, I’m about 38. I’m Italian and I’ve always been living in Trento, in the North East of Italy. I developed impactant balance disorders when I was 22, but the first memory

Struggling with “Head Dizzies”

I am writing on behalf of my 12 year old son. He has been struggling with vestibular migraines for the last 5 years. I can't recall when we actually received the diagnosis but it took

Chronic migraine, BPPV

Hi, My story started about 14 months ago. I was standing while talking to my son. All of a sudden this feeling like someone just poured a bucket of water over my head. I was