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Info for NEW & EXISTING support group leaders

If you administer a vestibular disorders support group, or want to, we're eager to help. VEDA assist support groups by publishing contact information for new or established groups as well as meeting dates and times in our Support Group Directory. Please e-mail us with the group's meeting address, contact person with e-mail and/or phone number, website URL (if you  have one), and how often you meet. We also encourage support group leaders to join us on Facebook, where you can share your group's activities or post a notice about your interest in forming a group.

If there are no existing support groups in your area we encourage you to start your own - VEDA can help! By joining the VEDA Support Group Network (VSGN) you gain access to resources such as meeting outlines, mentoring, and help promoting your meeting locally. Email us for more information about how to join the VSGN, including an application and agreement. You can also click here for a list of recommendations on how to start a support group.

Possible Formats and Considerations for Support Group Meetings

Varying the presentation and organization of meetings can be helpful for providing variety and for delivering information. But the ultimate goal is to establish a network with which people can ground themselves in order to move forward. Read more...

Possible Discussion Topics for Support Group Meetings

Download a list of possible topics for meetings. You might also find it helpful to cross-reference this list with our free downloadable publications. Read more...

Sample meeting outlines

Sometimes being in charge of leading a discussion can be daunting, but if you go to the meeting with a few key questions to pose to the group, you’ll find it easy to keep the session lively! To review a support-group leader’s outline for leading a meeting about understanding a vestibular disorder as an invisible chronic illness, read more.

Finally, don’t be timid about simply starting the meeting by reading from some of our free download publications. For example, check out “Addressing Vestibular Patients’ Stressors and Self-Doubts”  for a topic that may trigger a lively discussion about experiences with the author’s point of view.

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