The Dizziness, Vertigo & Imbalance Patient Registry collects disease-specific natural history data about individuals with vestibular disorders, with the goal of improving the understanding of vestibular disorders and informing treatment development. Registry questionnaires were built from common data element standards and cover the following topics:
- Socio-demographics
- Medical history and diagnostics
- Treatment and disease progression
- Management of care
- Quality of life
- Clinical trial participation
- Symptoms and triggers
- Cost of medical care
We are interested in sharing our data with you! If you would like access to the Dizziness, Vertigo & Imbalance Patient Registry data for a research project, please contact our registry administrator at [email protected] for more information. Access to the Dizziness, Vertigo & Imbalance Patient Registry data is contingent upon project approval by the Dizziness, Vertigo & Imbalance Patient Registry Advisory Board.
