I had J&J last July, and it was terrible. But, things have improved. Here’s what happened and what I’ve done.
Within days of the shot, I had severe tinnitus and extremely sensitive ears. Felt like I was driving 90 miles an hour with my head out the window. There was a lot of pressure in my head. I had difficulty focusing my eyes on anything, and it was really difficult to think clearly for any prolonged period of time. I certainly couldn’t read well and retain anything. And, for a few weeks, I had shooting nerve pain in my face and neck.
I was initially prescribed prednisone, and it helped some. But the symptoms crept back in (although not as severe) by late September. More steroids knocked it back, but by the end of December, I wasn’t feeling great again. My vision got really bad, and I’ve always been 20/20.
I began working out steadily primarily to burn off the stress that came from wondering if I permanently screwed myself up with the shot. That helped with the anxiety. But my symptoms largely vanished after doing a 7 day water fast. Within 2 days, the tinnitus was gone, and my vision was perfect somewhere between 3-4 days. I felt better than I had in years by the end of the week. I also take 750 mg of Curamed curcumin daily, as well as a blend of lions mane and reishi mushrooms. Occasionally I’ll still get a little ringing in my ears, but by and large, I feel much better.
I’m not a medical professional, so take this all as just my personal experience. Fasting was not easy, but I could certainly tell my body was healing itself. Inflammation seemed to melt away. I plan to fast 3-4 times per year going forward just for general well being.
Hope this helps someone. I will say, anxiety can be incredibly toxic for your body, so please don’t overlook this aspect of our collective experience.
How are you doing now?
do you still experience tinnitus?
are you back to regular eating without symptoms? Are you back to prevax? Just curious to how you’re doing to give us some hope.
Hi All,
just want to update you on my last post above. I was getting better and I had about 4 or 5 months with barely any nerve pain at all. Sadly in the last 3 weeks I have had a relapse almost 9 months since my side effects started after getting the Pfizer booster. I’m obviously gutted that I have had a relapse in nerve pain and tingling pins and needles as I thought i was finally recovering. I’ve now decided to proceed with a neurologist for tests and investigations to get some answers and rule out any nerve conditions.
One piece of advice for you is to look into the carnivore diet. I have just started it 2 weeks ago - I have read so many good things about it helping to heal inflammation and burning nerve pain. I saw a video of a guy who had burning pain in his feet for years and was on a high dose of gabapentin. After a few weeks/months on carnivore his nerve pain had gone and he was off his meds. If you go on YouTube and search carnivore to help nerve pain you will see quite a few videos on it. It’s certainly worth a try - I’m 2 weeks in and already noticing some health benefits from cutting out the sugar and carbs!
i have read throughout this forum that people are suffering with relapses and I just wanted to be honest and update you all by replying to my own story. It’s a positive sign that I did have a few months where I felt better and almost 100% back to how I was - it helps me to think that if this was a serious nerve condition I had then surely I would be in pain every day and not have had a few months where I felt better.Hi. I have been wondering how you were doing and thought you must have been significantly better. Thanks for your post. Do you know what might have triggered your relapse? Have you caught the C virus by any chance?
I was doing okayish before I caught the virus, and I think I probably would have improved more if i hadnt caught C. Unfortunately C ramped up my symptoms and gave me more. Some of my symptoms then died down, but over time some have changed.
I went to a neurologist recently and was diagnosed with SFN, mainly because of the pain I experience and because I failed a temperature test. The neurologist put a cold instrument on my leg and then my foot. My leg felt it was cold, but my foot didn't. He tested my hands as well. So when you go see your neurologist make sure they do this test as well. Every other test I passed. He gave me a list of blood tests which I will find out the results soon. Some are autoimmune tests. Anyways I will update you and everyone if I find out something interesting.
I have heard about the carnivore diet helping some people who experienced elevated blood glucose levels by covid. Anti-inflammatory diet is supposed to be good for autoimmune. Have you lost any weight on the carnivore diet? This is my concern as I had previously cut out starch and sugar and lost a lot of weight.
Have you tried PEA (Palmitoylethanolamide)?
Anyways because you had a 4-5 month window of pretty much being you again, I think you will bounce back.
Can you please share about your neurologist appointment when you have it? Thanks
Hi @buzzgirl
yeh I got better from end March/ early April (symptoms started 10th Jan). My nerve pain had massively improved and was just left with groin ache and the occasional light pins and needles in my right leg. I relapsed about 4 weeks ago when I came back off my honeymoon. I think my diet has played a huge part in it to be honest. I got married in June and so in the build up to the wedding I was being strict with my diet - cutting carbs and all junk food and processed sugar. This may coincide with my symptoms improving at that time. Then my relapse came after returning from honeymoon 2nd week of September. On the honeymoon I was eating whatever I wanted - cakes, carbs etc. I absolutely believe this is linked to my symptoms returning. I did get covid for the very first time after my wedding in June but it didn’t make my side effects of the booster any worse that I noticed. Haven’t had covid since then again so it wouldn’t explain why I’ve relapsed.
I saw the dr yesterday and was sent for blood tests which also tested my antibodies. I should get the results this week so will let you know. Im still chasing my appointment with the neurologist to try and get further tests done/ investigation. My Dr wrote to them in March and still haven’t heard back with an appointment date so the waiting list in the UK to see a neurologist must be months long!
I’ve been doing a lot of research into oxalates, carnivore etc as I mentioned and I’ve only been doing a low oxalate high meat diet for 2 weeks but already seeing improvements in not just my nerve pain but also my gut health etc as it’s helping other inflammatory issues in my body.
How are your symptoms doing? Have they improved with time at all since they started?Hi. Thanks for your reply.
Congratulations on getting married!!
Yes i think diet does play a part for some people. When I laid off sugar and starch and got out running, my pins/needles improved a lot. Pre virus a lot my initial symptoms had stopped except for an occasional pain in my left hand and light pins/needles on hands and feet. This was livable.
2-3 weeks post virus my hands got really bad, along with aches and pains in my arms. My neuropathy in my feet, moved up to below my knees. I also developed a constant headache, over time brain fog (this has improved a lot), tingling, and anxiety (this improved with PEA). I think PEA helped with my pain as well. It took some time but i recovered a lot from the virus and felt okayish, a part from the additional symptom of a headache. I was later greeted by another symptom: insomnia. Honestly post virus the first month afterwards was hard but I improved. Of late I have slipped back (pain in arms) but I am unsure if I am legitimately getting worse and/or its caused by some additional stress in my life. I know the stress wont be helping but we cant live in a bubble. This is what prompted me to go to a neurologist. I also tried to see an immunologist but to no avail.
I haven't heard of a low oxalate diet. How did you hear about this?
Well that's great that Covid didn't flare up your symptoms. For some people it doesn't, or the flare is relatively short and people return to their pre virus baseline. Unfortunately for some, they start a new longhaul.
My suggestion would be to phone the neurologist you are wanting to see and ask when will your appointment be. Also ask to be added to the cancellation list. Neurologists are hard to get into, most were booked out til the new year, so I went to the best one I could find that was available. Thankfully there was a cancellation so I jumped the queue by 4 weeks.
Are you on reddit? There are some interesting points on this platform as well. Have you tried St John's Wort again?
Hi @buzzgirl,
I’ve had my blood test results and all they found was possible low iron! Now that I’ve started carnivore and eating more steaks I reckon if they test me again in 4 weeks my iron levels will be good! I have an appointment to discuss the results over the phone in 2 weeks so I will ask about my antibody results then too. I called the hospital to chase up my neurology appointment and they said the waiting list is 12 months long and there are thousands of patients in front of me!! I’m hoping that by the time I actually get an appointment I’ll be well into my new way of eating animal based, no carbs and no sugar and that my symptoms will be pretty much resolved. If you haven’t already then I advise you watch some YouTube videos by Dr. Ken D Berry - he talks about the carnivore diet and how it resolves inflammation. There’s also Paul Saladino MD, and and Sally k Norton who talks a lot about oxalates which are defense mechanisms in plants that make us sick. She and many others have cured a lot of their illnesses and inflammation from going low oxalate.
I’m starting back on the hypericum today and see how I get on. I ran out of magnesium glycinate supplements so I’m going to order some more of those. Thanks for introducing me to PEA. I’m going to see how I get on with this animal based diet first so that I can truly see if it’s working. If I take the PEA at the same time it will be hard to tell which one worked.
I’m just abit deflated that all my symptoms have returned months later, just when I thought it was finally going for good, it’s very disheartening when that happens isn’t it.
the fact that we’re all having tests and they can’t find any real issues and that we’ve had periods where we’ve felt better and it’s not been a day in and day out struggle or getting worse each day, this all gives me hope that what we are suffering with is temporary and it will go away.
when you saw the neurologist did they say they’ve had other patients come to see them with vaccine side effects and did they say they think it’s all temporary?
Hi. I totally understand you feeling deflated. Honestly though I think you will bounce back as you have done before and the virus also didn't impact you.. so you should be okay. It sounds like the jab didn't impact your immune system too much. Plus you have had periods with no symptoms. I am a bit jealous lol, its a shame that everyone doesn't have the same trajectory. Perhaps some people immune systems reset, inflammation comes down...where others don't. Dunno.
Thanks for the info re you tube. I will check it out. Laying off sugar and starch is a good idea. It helped me a lot post jab along with exercise.
I am trying low dose naltrexone at present. Started 5 days ago. It helps to modulate the immune system. I think mine has been heightened so anything to help bring it down would be great. I start on 0.5mg and will work myself up to 4.5mg over time. I am currently on 1.0mg. I am taking it slowly to see how my body responds. A lot of long covid people have found it beneficial... but some haven't.
I hope the hypericum works for you again. If not, try PEA or LDN. You will need a prescription for LDN unfortunately.
I went to a private neurologist otherwise I would be waiting forever. Unfortunately I was his first patient with neuropathy post jab/covid but he acknowledged that he had heard of it post virus. He wasn't that forthcoming about things, only recommendation was to increase amitriptyline medication for pain. Did order blood tests to eliminate other possible things. They pretty much came out clear. My dsdna is elevated at 7, but the threshold is 10.. so it's then deemed okay. Covid has elevated my blood glucose so it's been a constant fasting 5.7 over the past few months..(previously was 5.0) but thankfully I don't have any diabetic neuropathy antibodies so they can't blame that. My IgA was below normal which relates to sinus and throat membranes etc. I think it might be covid related as post jab I have had sinus every day.. pre jab I have never had an issue.
The neurologist did say that it might just go away. Yeah it might.. or it might not. He did acknowledge that we don't have a lot of tests here so can only test what they can. And that's the thing.. covid is so new.
I have been told via another person that his neurologist highly recommended exercise if possible. To help increase blood flow to our nerves. I personally think diet is important, hydration and sleep.
Do you mind sending me a direct message about what you eat during the day and over the week. I am pleased to hear you eat some vegetables as solely meat can become a bit tedious. I do have another specialist appointment next month, an endocrinologist and I wonder if they have seen covid people. I will definitely ask and share what I find. The endocrinologist received a copy of my blood tests as well.
I am definitely interested in your antibody levels. Apparently in my country they can report the levels but choose not to.. just said Positive.
We all regret it, getting the jab.. well I do - everyday. It is weird your relapse. And others have experienced the same... typically after catching the flu, covid or something.
Stress makes my pain worse but no change on pins/needles.
I was on holiday a little while ago and ate more wheat etc.. and it probably I increased my symptoms.
Uk parliament to debate opening an inquiry into vaccine safety. Thank you to anyone on this forum that signed the petition!
That's great news.. its a start!!
This is horrible I’m getting worse by the days because tonight my dog let out a very loud sudden bark and I didn’t have my ear protection on my left side just my tissue in the ear and I developed dizziness and now a louder hissing in my head. I am so down about it. This just keeps getting worse. Nothing seems to work. I can’t even try to go on with my life. It’s at a much higher level. I did fall asleep earlier but the hissing sound woke me up and I also have a fan on too which use to drown the sound but now it’s so loud the fan doesn’t do anything. I just cry and cry. This is awful. I don’t know how much more I can take of this. I wish there was something I can do to help myself I tried everything and nothing seems to work. I have a 10 year old too I’m always hushing my family to keep it down. My daughter was blaming herself for making the dog bark loud because she was playing and then he thought she was being silly with him. Then I screamed and immediately covered my ears. But I definitely got worse from this little incident. I did read a post from open window. In this forum on may 17th 2022 she writes:
I had J&J last July, and it was terrible. But,
things have improved. Here's what happened
and what I've done.
Within days of the shot, I had severe tinnitus
and extremely sensitive ears. Felt like I was
driving 90 miles an hour with my head out
the window. There was a lot of pressure in my
head. I had difficulty focusing my eyes on
anything, and it was really difficult to think
clearly for any prolonged period of time. I
certainly couldn't read well and retain
anything. And, for a few weeks, I had shooting
nerve pain in my face and neck.
I was initially prescribed prednisone, and it
helped some. But the symptoms crept back in
(although not as severe) by late September. More steroids knocked it back, but by the end
of December, I wasn't feeling great again. My
vision got really bad, and I've always been
20/20.
I began working out steadily primarily to burn
off the stress that came from wondering if I
permanently screwed myself up with the shot.
That helped with the anxiety. But my
symptoms largely vanished after doing a 7
day water fast. Within 2 days, the tinnitus was
gone, and my vision was perfect somewhere
between 3-4 days. I felt better than I had in
years by the end of the week. I also take 750
mg of Curamed curcumin daily, as well as a
blend of lions mane and reishi mushrooms.
Occasionally I'Il still get a little ringing in my
ears, but by and large, I feel much better.
I'm not a medical professional, so take this all
as just my personal experience. Fasting was
not easy, but I could certainly tell my body
was healing itself. Inflammation seemed to
melt away. I plan to fast 3-4 times per year
going forward just for general well being. I'm not a medical professional, so take this all
as just my personal experience. Fasting was
not easy, but I could certainly tell my body
was healing itself. Inflammation seemed to
melt away. I plan to fast 3-4 times per year
going forward just for general well being.
Hope this helps someone. I will say, anxiety
can be incredibly toxic for your body, so
please don't overlook this aspect of our
collective experience.
I wonder how’s she’s doing I did send her a message hoping she would respond but no luck yet my exact same symptoms hearing sensitivity and tinnitus difficulty focusing my eyes which I’m still dealing with. I wonder if this fasting actually works. I wish I had a friend that I could talk to who knew what I am dealing with I feel so alone in this it’s so awful. I am so sad.
Hi all, I am new to this group and was felt at such relief when I found it as I realised I am not the only one.
I have been suffering with a major ‘panic disorder’ for over a year now. It was diagnosed by the drs due to the pandemic and home stress I was having.
however when I look back on Facebook memories in April 21 I was absolutely fine and healthy. I was out with friends in London happy and healthy and this was after the pandemic. But all my memories seem to stop after may 21 (when I had my first Pfizer vaccine!
I have only just put the 2 and 2 together.
i would always feel extremely unwell, dizzy, exhausted, sick, suffered vertigo for the first ever time. Which lead me to have extreme panic attacks and anxiety. I have a 3 year old daughter and become scared to leave the house with her in fear I would come over dizzy and who would be able to watch her if I was to come over unwell.
i never had any other vaccines after the first jusy incase they were related but 17 months on I am still suffering with feeling unwell which leads to panic. I have got to a point a can’t leave the house more than a ten minute radius as that’s the only way I feel safe.
i have to avoid busy and loud places as I’m extremely sensitive to sound.
i work in the city and have luckily been signed off to work from home but I’m in fear I may lose my job as I just cannot see a way forward of getting myself back into they busy atmosphere so far from home.
i read someone’s post about upping my vitamins c which I have now done. My bloods are all fine. I am having weekly CBT sessions and I am on some antipsychotic pills for anxiety attacks.
has anyone else had similar and have any other recommendations to get rid of these awful feelings once and for all please?
from a desperate mum wanting her life back x
@ksharky13 I just saw you also got tinnitus from the vaccine. Mine began 2 days after my 1st Pfizer dose in May 2021, got worse over the following 3 weeks. It has got worse over the last 17 months not better. I am sick of it. Do you have any hope for us ? Not sure how long I can cope like this. I have about 3 or 4 different noises and it is reactive, so everything I hear increases the tinnitus.
@ksharky13 I just saw you also got tinnitus from the vaccine. Mine began 2 days after my 1st Pfizer dose in May 2021, got worse over the following 3 weeks. It has got worse over the last 17 months not better. I am sick of it. Do you have any hope for us ? Not sure how long I can cope like this. I have about 3 or 4 different noises and it is reactive, so everything I hear increases the tinnitus.
@vscience: I'm sorry to hear about your tinnitus issue. Yes, there are a lot of us out there suffering from these vaccine side effects. I wish I had more than just "optimistic hope" to offer, but I haven't seen any real evidence of tinnitus resolving in short order from people on this site. That said, there are some such success stories that I have come across, both here and on other site/forums, so that gives me reason for hope. I am about 9 months into my tinnitus. After the first 3+ months mine started to resolve (or at least I felt it was), but then I got hit with a relapse about 4 months ago. Mine is a very high-pitched screech that reminds me of the sound TV used to make back in the date. My wife's is the same way. Mine also seems to be reactive, and things like wind, road noise in a car, exercise, and watching TV (EMFs), among other things, seem to spike it for me. I totally avoid loud things/events now, even things that aren't really that loud. I love music and playing my electric guitar, but that is all on hiatus if/until I get this resolved.
I am now taking a daily regimen of: Krill oil, Vitamins B12 & D3, and Turmeric to promote blood flow and fight inflammation. I will probably be adding Magnesium in the near future (just one more pill to take - Lol). I have been feeling lately that I seem to be having "good days" and "not so good days". On the good days, I barely notice it at all. Other days it pretty prevalent all the time. I'm also going through a very stressful time and I know that doesn't help tinnitus.
I can tell you this much based on what I've researched: It has been proven that the spike protein created by the mRNA vaccines did not stay at the site of injection, as planned. As a result, it travelled to other parts of the body. Subsequently, the antibodies that our immune system created travelled there too to fight the spike protein. One pathway that was affected by this is the vagus nerve, and form there entered the audio-vestibular system. There is a thing called cell mimicry, meaning the spike protein resembles other cells in our body, including ACE2 receptor cells, which are found in the audio-vestibular area. The theory being that our own antibodies could have attacked our healthy ACE2 cells by mistake. This could cause either inflammation (potentially temporary) or actual damage (potentially permanent). There are other areas, such as the nerves involved in the hearing process, that could have also been inflamed in this way. Finally, it has also been proven that the spike protein crossed the blood brain barrier (not a good thing), and with our immune system following it, could have cause inflammation in the brain, causing the tinnitus. It is also speculated (maybe proven) that our bodies, for many people, could have had a hyper immune system reaction to the vaccines and created a cytokine storm in it's attempt to attack it, thus causing wide-spread damage/inflammation in the body.
Unfortunately, the government, the medical profession, and big pharma are still trying to sweep this under the rug. But I am seeing more and more information coming out, from reputable areas such as clinical researchers, etc., that is confirming that these "stories" are, in fact, reality. It will likely take years/decades before we know the true long-term effects of these mRNA vaccines. In the meantime we all need to stick together, stay strong, and keep sharing our stories, especially the success ones.
@ksharky13 I just saw you also got tinnitus from the vaccine. Mine began 2 days after my 1st Pfizer dose in May 2021, got worse over the following 3 weeks. It has got worse over the last 17 months not better. I am sick of it. Do you have any hope for us ? Not sure how long I can cope like this. I have about 3 or 4 different noises and it is reactive, so everything I hear increases the tinnitus.
@vscience: I'm sorry to hear about your tinnitus issue. Yes, there are a lot of us out there suffering from these vaccine side effects. I wish I had more than just "optimistic hope" to offer, but I haven't seen any real evidence of tinnitus resolving in short order from people on this site. That said, there are some such success stories that I have come across, both here and on other site/forums, so that gives me reason for hope. I am about 9 months into my tinnitus. After the first 3+ months mine started to resolve (or at least I felt it was), but then I got hit with a relapse about 4 months ago. Mine is a very high-pitched screech that reminds me of the sound TV used to make back in the date. My wife's is the same way. Mine also seems to be reactive, and things like wind, road noise in a car, exercise, and watching TV (EMFs), among other things, seem to spike it for me. I totally avoid loud things/events now, even things that aren't really that loud. I love music and playing my electric guitar, but that is all on hiatus if/until I get this resolved.
I am now taking a daily regimen of: Krill oil, Vitamins B12 & D3, and Turmeric to promote blood flow and fight inflammation. I will probably be adding Magnesium in the near future (just one more pill to take - Lol). I have been feeling lately that I seem to be having "good days" and "not so good days". On the good days, I barely notice it at all. Other days it pretty prevalent all the time. I'm also going through a very stressful time and I know that doesn't help tinnitus.
I can tell you this much based on what I've researched: It has been proven that the spike protein created by the mRNA vaccines did not stay at the site of injection, as planned. As a result, it travelled to other parts of the body. Subsequently, the antibodies that our immune system created travelled there too to fight the spike protein. One pathway that was affected by this is the vagus nerve, and form there entered the audio-vestibular system. There is a thing called cell mimicry, meaning the spike protein resembles other cells in our body, including ACE2 receptor cells, which are found in the audio-vestibular area. The theory being that our own antibodies could have attacked our healthy ACE2 cells by mistake. This could cause either inflammation (potentially temporary) or actual damage (potentially permanent). There are other areas, such as the nerves involved in the hearing process, that could have also been inflamed in this way. Finally, it has also been proven that the spike protein crossed the blood brain barrier (not a good thing), and with our immune system following it, could have cause inflammation in the brain, causing the tinnitus. It is also speculated (maybe proven) that our bodies, for many people, could have had a hyper immune system reaction to the vaccines and created a cytokine storm in it's attempt to attack it, thus causing wide-spread damage/inflammation in the body.
Unfortunately, the government, the medical profession, and big pharma are still trying to sweep this under the rug. But I am seeing more and more information coming out, from reputable areas such as clinical researchers, etc., that is confirming that these "stories" are, in fact, reality. It will likely take years/decades before we know the true long-term effects of these mRNA vaccines. In the meantime we all need to stick together, stay strong, and keep sharing our stories, especially the success ones.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8788157/
I would like to share a link:
"Why can't I sleep with Long Covid and vaccine damage?"
@ksharky13 I only had 2 pfizer shots but the adverse reactions were worse after the second shot im happy to say the dizziness,loss of balance,the feeling that your legs were no longer your own,heart palpitations and irregular rhythm have finally disappeared. It took 18 months from my first shot before I could say I was better. I gave up caffeine which helped immensely. One thing that never improved was my arthritis. I had mild arthritic pain mostly in my hands prior to the vaccine but experienced a huge flair in all my joints. I don’t think this was a coincidence but to date Im still suffering. Hopefully that will ease up to.
@ksharky13 I only had 2 pfizer shots but the adverse reactions were worse after the second shot im happy to say the dizziness,loss of balance,the feeling that your legs were no longer your own,heart palpitations and irregular rhythm have finally disappeared. It took 18 months from my first shot before I could say I was better. I gave up caffeine which helped immensely. One thing that never improved was my arthritis. I had mild arthritic pain mostly in my hands prior to the vaccine but experienced a huge flair in all my joints. I don’t think this was a coincidence but to date Im still suffering. Hopefully that will ease up to.
@ksharky13 I only had 2 pfizer shots but the adverse reactions were worse after the second shot im happy to say the dizziness,loss of balance,the feeling that your legs were no longer your own,heart palpitations and irregular rhythm have finally disappeared. It took 18 months from my first shot before I could say I was better. I gave up caffeine which helped immensely. One thing that never improved was my arthritis. I had mild arthritic pain mostly in my hands prior to the vaccine but experienced a huge flair in all my joints. I don’t think this was a coincidence but to date Im still suffering. Hopefully that will ease up to.
@pattybear: Thanks for your note. Glad to hear that you have recovered from the majority of your adverse side effects. Sorry to hear that your arthritis has not resolved. Since I'm "only" 9 months into my tinnitus situation, your story about taking 18 months gives me and other hope. I did go back and review all of your prior posts. It does not appear that you got tinnitus as a side effect. Is that correct? Thanks again for telling us your recovery story. Best wishes that your arthritis eventually improves.
Hey check this out guys this guy totally explains why this is happening finally
he has other videos posted at well