Here is a link to the website for the event - still working on planning.
It's called "Real Not Rare"
If you think you will attend, I can let people know so they can block rooms at the hotel, or there may be a space at the site to say you are attending.
I contacted their website weeks ago and they just finally sent me instructions today actually. A few days after I contacted them I had some serious reservations. I think Dr Patterson is a smart guy, and maybe he found something useful in his research. However, I read as much as I could about the guy and the organizations he worked for. Frankly, they had a ton of ethical issues, that isnt necessarily a reflection on him but it could be. Im sure you've heard the expression, to a hammer every problem looks like a nail. Well, his whole career is wrapped up in these non classical monocytes and CCR5 drugs. He has worked for companies that produced CCR5 drugs, holds stock in companies that produce CCR5 drugs, and has tried to acquire the patent rights to manufacture CCR5 drugs.
I also havent heard of a single person who has recovered from his process, despite "thousands" according to him, signing up. lots of people on forums talking about him but no success stories. There was one woman on youtube who posted an initial video of her getting started on the program taking statins and miraviroc (ccr5 inhibitor). She posted a follow up a few weeks later, she didnt report any significant improvement. She said she had to quit the statin because the side effects were to much. Last I heard Dr. Patterson was trying to get in bed with another CCR5 drug maker lernioab or something like that. Not trying to put the guy down, but Ive read lots of stories of people getting better with time and OTC supplements. It makes me question his motivations. This whole deal is pretty good for him, he's got a bunch of scared, desperate people who would give anything to have their health back, and there is no science to prove or disprove his work. His papers havent been peer reviewed, but he's getting famous for publishing them, making a mint on his program, and through his blood work research he's getting lots of "free" data. Not saying this is all bad, I am glad someone is doing research in this area, but it feels off to me.
It just seems to me that if he had a legit "cure" it would be spreading like wildfire. Remember he started out treating long covid patients- for which there is an ENORMOUS amount of people suffering. I actually suspect the negative impact from the vaccines may be larger than it appears simply because a lot of people got covid, then got vaccinated, and THEN developed symptoms. Of course the symptoms mimic long covid so its very difficult to tell. I think they were just told they had a late onset long covid.
Been having a decent day today. slight dizziness, and some minor neuropathy issues, 1/10 on both. Not taking any antihistimines, just a lot of the support vitamins everyone else is. I suspect im a little worse because I didnt get much sleep last night and had a big day yesterday. Was able to exercise a little today also, felt good! Prior to my vax I was athletic so, its been a real bummer wasting away. The neuropathy freaks me out, forearms feel weak and "shaky"- but my hands are steady when I hold them up. I do think it is improving. I am having less generalized muscle twitching, the tingling is still pretty common at night, but comes and goes. During the day is becoming less common and less intense. Brain fog is becoming a rare thing, I still get a dizziness or like a heavy feeling in my head fairly often but it seems less intense than it was.
Still waiting on blood labs- they are taking forever. I did get a referral for a neurologist at the Mayo Clinic today #bigguns. I havent made the appointment yet but we'll see what they say. Been a bit anxious today, I just want so badly to be sure about the future of my health again. I know you can all relate. Hope you're all doing well!
@someone hey I think I have had the same vision issues as you. It’s like I can’t focus on anything properly which creates blurred vision. Did you have constant vision issues all the time as well? It’s been 6 weeks for me and hasn’t improved yet. I’m so glad you’re feeling better now - that must be such a relief!
@nick Thank you for the response! This whole thing with Patterson is starting to feel like a scam. Now that I've already paid over $500 for labs these people have been little to no help. Same as you, I've yet to meet a person that's been cured by him. He certainly has plenty of time to do youtube videos bragging about his success, I guess he just doesn't have enough time to see actual patients. The thing that bothers me the most is that they've supposedly hired all these new doctors to do their telemed visits, so even if I in fact do get an appointment, it won't be with Patterson, it'll be with someone that was basically hired off indeed to help this guy keep minting money. I have a feeling whoever does the telemed visit is going to refer directly to the FLCCC Protocol for treatment. Feels like a major money grab.
@cherry101 i sent you by message. Hope it helps. Glad to answer questions. I dont come to the site too often anymore.
hope you feel better
People have bern asking me to repost the regimen that helped me. Here it is.
Im glad to share what helped me. I had head whirring, dizziness, like on a boat. But just note I am not a dr - it was recommended to me with the person knowing me. I dont know your health history or contraindications. So you have to decide for yourself. I had one dose pfizer. Had symptoms for 5 weeks. This got me 50% better 1st day and almost all better by 2nd. But i think it’s a kind of high dose. So you have to look into it yourself.
My life was a living hell after the vaccine and I was perfectly healthy before. Im still tired but my head is better
Trifortify flavored liposomal glutothione 2 tsp 3x per for only for a week (compared to the tube directions this dose i was prescribed is pretty large)
Thorne zinc picolinate 30 mg 1 capsule 2x per day
Vital nutrients quercetin 250 mg 1 capsule 2x per day (zinc and quercetin at same time)
My understanding is that your monocyte ratios get thrown out of proportion by the vaccine. Some monocytes eat and dispose of cellular material. If they do too much the cellular material is left in the tissues causing inflammation which makes you feel terrible. My understanding is this cleans it out and does a reset.
Today started out great at the ENT. Getting new ideas and treatments. Checking blood work for calcium issues and simple OCT herbal pills. Opted to not get another steroid shot into my ear to not effect future testing. Damned if 20 minutes after I left the office I got a terrible vertigo attack and vomited in a parking lot of a Smoothie King for about an hour till my dad and fiancée came to rescue me as the vertigo was constant. I mean it would not stop as I’ve been good at slowing it down by focusing on a single point. Took 2 Zofran to keep it together. So now I’ve been prescribed Clonazepam which I have yet to take as it causes …….dizziness.
I think people like us our starting to be listened too. Really interesting ready guys. And a name for what we have! Show this to your Dr's x
@larag finally some acknowledgement! Hope this gets picked up and officially acknowledged.
Hello everyone, i had my first and only pfizer vaccine on July 29th. In response to @Nick and other people asking about Dr. Patterson. I felt my worst 1 day after the vaccine and my lowest state continued for 1 month. Currently 3 months out, symptoms have subsided in severity but still persist. Contacted Dr. Patterson and ordered a cytokine Panel test at the 3 week mark (this is when I had strong palpatations, vomiting, nausea, dull chest pain, tremors, chills, stomach palpatations). After ordering the nearly 400 dollar cytokine panel, the cytokine panel test told me all of cytokines were completely normal and within range despite me scoring a 13.1 out of normal <1 on his long hauler index. I called and spoke with a lady in HR and I asked her questions as to why my long hauler score was so high. She seemed very hesitant to answer any of my questions and said I needed to book an appointment with them to get my questions answered. I asked her " is there a chance I could get better on my own without taking medication or setting up a telemedicine appointment?" Her response was " of course not!! You need to see one of our doctors!"
Make what you will of that response but to me it sounded like a serious sales pitch with no concern to my well being.
Ok. So I am 39 years old, no real history of medical issues (perhaps slightly overactive immune system, since I rarely get sick). I took my first Pfizer vaccine August 18th 2021. I was not worried, scared, or anxious at all about it.
8 days later I consumed alcohol. Nothing unusual, been having drinks socially for years, no hangover, no excess amount, nothing.
On day 10 (Aug 28th) I woke up feeling light headed, dizzy. It was a weird feeling, not like anything else I have felt before. That feeling did not go away the entire day, and turned to extreme heart palpitations for the entire day. It was the scariest feeling ever. I became nauseated, unable to take down food most of the day, and felt like I would need to call the ambulance. The heart palpitations and feeling of dread/anxiety were so strong that I could not do anything for 3 days. I saw my doctor 3 days later (Aug 31st) and in the office he measured my BP on each arm, which was high in one arm and low in the other. This was suggestive of a heart issue (Myocarditis?). I was rushed to ER. ER checked me out, but did not find anything wrong with my blood work (all normal) and no sign of heart attack or issues. Was put on a heart monitor for 24 hours, or told to take it home. That was all normal.
My heart palpitations and feelings of anxiety did not go away for 2-3 weeks. They would come back but slowly started to wax and wane off. But it took almost a month for me to feel better. It is now Oct 18th and I am due for a second shot but I will NEVER take another shot of this again. It was the worst feeling and experience I have ever felt in my entire life. I live in Canada, Vancouver, BC, and the doctors here are striving for the highest vaccination rate in the world and striving to sweep everything else they can under the rug. I am worried that there are many people who experienced something similar but are not being given a venue to share it.
It has been almost 3 wks and no problems at all with our pfizer booster shots other than few days of sore arm and fatigue immediately following the shots. My husband never had any mild dizziness or brain fog I experienced after my second pfizer for a few weeks. His has been problem-free.
