Why does it take so long for researchers to develop new treatments for vestibular dysfunction? Learn more about the research process, and find out how you can participate in advancing the science of vestibular medicine.
Health & Wellness
A patient registry is a database of health information that helps describe the patient experience to better inform policy-makers and the medical community so that improvements can be made to the diagnostic and treatment process.
With data collected through this patient registry VeDA will be able to advocate for vestibular patients. Our goal is to reduce the time it takes to diagnose a vestibular disorder and ensure that patients are receiving appropriate treatment that will improve their healthcare outcomes.
VeDA’s medical advisors will analyze the data, looking for trends. Once sufficient data is collected it will be summarized to create a baseline from which to measure the progress of our advocacy efforts. As a participant you can select whether or not to share your data with medical professionals performing research.
The more patients participate in the registry, the more valuable the data is. If you’d like to help us recruit vestibular patients to participate in VeDA’s patient registry, download this flier and bring it to your physician to distribute to their patients. You could also bring copies to your local senior center or other community organization.
VeDA is collecting demographic information about our community to better understand the people we serve and to create a baseline for our efforts to improve our outreach and foster equity, inclusivity, and diversity.