A patient registry is a database of health information that helps describe the patient experience. When you participate in VeDA’s patient registry, you share your diagnostic journey. That data is anonymously summarized and analyzed for trends to better inform policy-makers and the medical community so that improvements can be made to the diagnostic and treatment process.
VeDA is a grassroots non-profit organization. We have a small budget and big goals, so every hour you spend volunteering with us has a huge impact, bringing us closer to our vision of a global community where vestibular disorders are widely recognized, rapidly diagnosed, and effectively treated.
The NIDCD National Temporal Bone, Hearing and Balance Pathology Resource Registry (the Registry) is a non-profit organization established in 1992 by the National Institute on Deafness and Other Communication Disorders (NIDCD) of the National Institutes of Health. The Registry serves as a resource for the public and scientific communities about research on the pathology of the human auditory and vestibular systems.
What is the Isabel Symptom Checker? The Isabel Symptom Checker is a highly sophisticated medical knowledge system adapted from the professional Isabel Diagnosis Checklist System. Its job is to take a set of symptoms and
What Is Balance? Our sense of balance is a complex interaction between the inner ear, vision, and somatosensory systems (physical cues that tell the brain where the body is in space). Those suffering from vestibular
VeDA advocates for the vestibular community to increase awareness about vestibular disorders, while implementing programs to reduce diagnosis times and improve treatment effectiveness, thereby improving the quality of life for vestibular patients. You can make an impact by joining our Community of Support.
Track Your Progress Keeping track of your symptoms, activities, what you eat and drink, and the medications you take can help you see trends that may aid your medical provider in determining a diagnosis and
Support VeDA by Shopping Online Merchandise Make "vestibular" visible by purchasing and wearing VeDA-branded items with designs such as Life Rebalanced Chronicles, "Dizzy-Not-Drunk," "Brain Fog," and Fiona Flamingo. Shop VeDA Merchandise Amazon Support the Vestibular
Many of our members share with us the story of their journey with a vestibular disorder. These heartfelt tales take you through the initial discovery of their symptoms – such as dizziness, vertigo and lightheadedness – to their struggle to find a qualified vestibular specialist, and often include the challenges they have had to face at work and at home, including a lack of understanding and compassion by others to whom their symptoms are invisible. VeDA invites you to share your story!
REACH VESTIBULAR PATIENTS AND PROFESSIONALS By aligning your brand with VeDA's you demonstrate your commitment to support the vestibular community while gaining exposure to your target audience. DOWNLOAD A SPONSORSHIP PACKET We offer a comprehensive
Vestibular disorders affect children When the vestibular system in children is disrupted it results in symptoms of vertigo or dizziness, oscillopsia or gaze instability, and delayed development or diminished balance and other motor abilities. Children
The following information is provided by the Acoustic Neuroma Association. This information appears in the organization’s “Newly Diagnosed Handbook”. Additional information can be found at anausa.org. What is an acoustic neuroma? Acoustic neuromas, also referred to