Had the Pfizer vaccine. Slight occasional dizziness for two days after the first shot and none after the second. I have tinnitus and it went up slightly after the first shot but within a few days it was normal (generally pretty quiet). After the second shot, no dizziness and no increase in my tinnitus. You need to talk to your doctor as getting the virus could be a lot worse than these side effects of the vaccine.
I'm glad it sounds like that may be true for you, truly I am! 👍 BUT, it may surprise you to learn that some have had Covid, then an adverse response to their Covid vaccine and have said their Covid infection was the milder experience. We really don't have reason to think we know what is the case for others ...and some doctors advise against it, but others say they honestly don't know. These vaccine injuries are unpredictable as to who they'll happen to and they can be very severe. What's really concerning is when you've not gotten on the recovered list and wonder you're wondering if you will 😔
Hi everyone, it's been a few days since I last posted but things haven't been going so well. My anxiety has been heightened with the relentless dizziness and muzzy head feelings I'm getting going on 12 weeks now. I had to have my beautiful cat put to sleep this week, my friend for 18 years and that was very upsetting. I had a dental appointment this morning, the second in two weeks and I dreaded going, wondering if I would cope, how I would feel and it was exactly as I had expected. Being lowered in the chair and turning my head and then being raised back up again really made me feel dizzy and weird. Visiting dentists and doctors always stress me out, it's like white coat syndrome with me. I know stress and anxiety can contribute to dysfunction of the vestibular system which could lead to dizziness so now I don't know what is causing what anymore. I have more treatment to follow so I am dreading that. I try to plough through but this is slowly eating me and I am scared of it being permanent. I've had anxiety before when I was incorrectly diagnosed with a heart murmour. I went through lots of tests for a few months and that's when my anxiety started, waiting for test results and the next appointment letter coming through the letterbox. At the end of it all I was told that my heart was normal. I was relieved of course but I have never really recovered from that ordeal. Sorry you are all still suffering and I pray we will all get over this, whatever this is, very soon.
Wow, friend ...when you don't post here for several days I wonder if you're busy doing better or having hard days. I'm very sorry about your loss of your companion. If we spend our days with a pet as our companion we can miss them more than a relative we don't live with. In my experience, grief is a puzzling thing sometimes. 🙏 And dental work- never, ever any fun, and it must feel like torture to be going thru it now. But you are strong & I trust you'll get onto the other side of it.
I agree with someone's post recently that this vestibular injury actually causes anxiety - so don't feel to blame when you're experiencing it. Get out your emotional surfboard and try to stay on top of the waves! Did you know that one of the symptoms of an acute allergic reaction is a feeling of "impending doom". That is a physiological response and this stuff feels bad kind of like that. I don't think we can predict how much of this we're going to deal with or for how long. But at least we've figured out that a lot of us will improve, still have days that are worse again, without that signaling that all our future days will be so bad. Remembering that helps me ride the waves of those lousy days. I do hope for more good days for you, and for us all!
@nataliemccrory What you are saying....all the more reason this needs to be taken seriously and looked into rather then being dismissed the way it is, because at this point no one knows what is going on. WHY is this happening to some people? Is there a common thread in the cases? What percentage of vaccinated people are experiencing this? Some of the cases may be coincidental, but I don't believe for a minute that all of them are, especially among those with no prior history of vestibular issues.
Yes, I agree - a very puzzling situation! I gather that diagnosis and treatment of vestibular issues is challenging enough, without this strong vaccine injury suspicion thrown in the mix!
Today, I finally got in for my second vestibular rehab therapy appointment. The eval 3 wks ago was with the DPT (Dr of PT, I think). I saw a vestibular specialist PT today. He said he's never seen someone with the particular constellation of symptoms I have and encouraged me to make as many of my future appts with the DPT that did my eval. I think he was a bit puzzled as to how to progress my home exercises and said there were some I obviously needed, but some of the usual ones I didn't need. My symptoms are similar to many of us here, with the exception of the tinnitus/hearing issues that I don't have.
I had decided I'm willing to travel 3+ hours to a larger population center if that would afford me a chance to get the ENG that my ENT has ordered without having to wait another month. So, I stopped by my ENT's office and asked them to look into that possibility. I'm concerned that in another month my symptoms may have improved enough that they couldn't give me a diagnosis and treatment recommendations. Which would be great if this goes away, never to return. But I did have a one night episode 6 months prior to my vaccine, so I'm concerned that if it went away, it could return and I could go thru the cycle again of waiting a month for testing... I just want to get as much input as I can and appropriate treatment, if there's any to be had.
Hi all,
I wanted to share that my lightheadedness has pretty much gone away and I feel back to normal.
I got a COVID antibody test after testing positive on 4/11 (even after getting my first Moderna on 3/21 and being very cautious) and according to a friend who is a nurse, this test by Northwell lab (relatively new since March), distinguishes between whether or not you have COVID antibodies from infection or from the vaccine. She thinks it is from infection which makes me wonder if my symptoms of dizziness and fatigue were due to me having COVID and not realizing it. I haven't gotten my 2nd shot yet and because my antibodies are so high right now, I'm fine with waiting.
It is an anxious time with so much unknown about this virus. I hope you all get the support you need and I wish everyone a full recovery. I will report if I experience the dizziness again after the 2nd shot.
Been watching this forum for a few weeks now, but wanted to jump in and share my experience. I got my second COVID shot on 5/14. The first two days I had a sore arm and some slight fatigue, similar to my response to the first COVID shot. Then, two nights after my second shot my right ear blocked up and I could not hear at all. 24 hours later, I woke up in the middle of the night with extreme vertigo and could not stop vomiting and could barely move for over an hour. I was taken to the ER where I was given diazepam and anti-nausea medication which seemed to help the vertigo.
A hearing test with an ENT revealed that I am completely deaf in my right ear and he thinks I may be having an auto-immune response to the vaccine, possibly related to my history of two bouts with cancer and a stem cell transplant. I was prescribed 60mg of prednisone on an 18 day taper. After the first week, my my vertigo was mostly gone, but I still continue to experience dizziness, deafness, and tinnitus.
Today I had a steroid injection in my eardrum which we hope will help, given that the steroid taper did not relieve my symptoms. I also plan to see an acupuncturist in the next week to hopefully get some relief.
I am glad to have found this forum and will keep updating with my progress.
Got my first Pfizer vaccine on 3/27 13 days after 1st shot went to bed woke up at 6 am with the room spinning out of control had several more episodes that morning when I turned my head. Called my pcp and had a telehealth appointment that Tuesday the 13th she said vertigo and asssured me it had nothing to do with the vaccine and called in a prescription for prednisone which I started right away felt some relief not feeling dizzy all day long but still at night when turning from side to side. I am still having vertigo just not as severe as 1st episode but it is still there called my doctor after finishing the steroids and she recommended I see an ENT I told her it felt like it was more related to my neck then my ear so I had an mri of my neck, results showed degenerative disc disease from aging but nothing that she thought would cause dizziness or vertigo Had my 2nd shot on 4/17 and 3 1/2 weeks later still experiencing dizziness and nausea pain in the left side of my ear head and neck Thank God I found this sight because I always felt that this was from the vaccine but until I read all the posts here now I know it is. I have beefed up my vitamin C and D started using Flonase and I can honestly say this week I have been feeling slightly better. Very scary though, but I am still hoping that this will eventually stop completely, the question is next year when they tell us we need a booster shot do you take the shot and start this nightmare all over again?? Praying for us all that they discover what is in this vaccine that is causing people to have this dizziness that the medical community can be honest with us and admit that this is a side effect caused from the vaccine!
I stumbled upon this forum after experiencing extreme vertigo 2 1/2 weeks after my first Moderna shot. I only had pain in my arm after my first shot. Then, out of no where, in the middle of the night I woke up with extreme vertigo. I’ve never experienced vertigo to this degree. I began sweating and I had to hold onto the wall to keep my balance. I remember going to the restroom and lying back in bed. I passed out as soon as I made it back to my bed. I woke up hours later and the vertigo was gone. I remained dizzy that day and the following few days. After a few days, my dizziness was there but not nearly as strong. My dizziness did not totally leave until about 8 weeks after my first shot. I would still have days with a little dizziness but nothing like in the beginning. I also had tinnitus. It left at around 6 weeks. Some days were stronger than others. I’ve seen an ENT. He believes it was a systematic inflammatory response. He was not dismissive. I’m glad I had his support. I pushed off getting the second dose. He said I probably would be fine not getting the second dose. He did schedule me for an MRI. I plan to have it done next week. I don’t expect it to reveal much. But, after the MRI results are back, pending the results being good, I’ll probably get the second dose. I’m not sure yet. How did I get to where I’m at now? I prayed a lot and took Vitamin D, Vitamin C, Iron, Ibuprofen and Zyrtec (for several days). I stopped taking the Zyrtec when it appeared it started to make the dizziness worse. That’s really all. I believe this stuff has to wear out of our system over time. Some people will recover quicker than others. It took me 2 months just to feel normal. I don’t want to go back to square 1. Definitely a lot to think about. If I do get the second dose I’ll be sure to send an update.
I have not posted with an update in a while. My first dose was March 28th and 2nd dose was April 18th. This was the Pfizer vaccine. I had no flu like symptoms, no fever, etc. It did cause a big vestibular flare up though. My neurologist was not surprised and said it happened to many. We just had to give it time. We also were hoping that my dose of Ajovy in May would help. I have good days, and I have bad days. Nothing has really changed though. However, my neurologist decided it had gone on long enough that he wanted to do some more involved blood work. I had three results come back with concerns. I have never had any issues bloodwork wise. Now I have things out of whack. He is asking my primary care doctor to do some additional testing to help get answers. Did some reaction to the vaccine cause this? Who knows. All we do know is that now someone perfectly healthy who previously had optimal vitamin D levels, perfect across the board glucose and other numbers, and zero thyroid issues before the vaccine now is having problems with all three.
Yeah hopefully good days will be longer with time, but bad days make me total anxiety...
In the past few days I recognized that my eyesight was also gotten worse. My eyes tired after the day and I have to concentrate to see things with my good eye. I have glasses but one of my eye was total okay but now it got worse...
Many people said that after the immune reaction gone it will be better. But who knows how long does it take? Weeks, months, years...?
Doctors are not supporting with these symptoms they have fear and they don't want to complain on the vaccine.
@thenystagmus Hi Sassafras, thank you for your kind message, I really do appreciate it. This site has really taken off but it saddens me to see so many people being affected by the vaccine. I learned how to deal with anxiety before and I'll do it again. Hopefully it will be short lived this time. Positive thinking is the key, hope for the future and allowing anxiety to do it's ugly thing. Accepting it and then onwards and upwards. So many people here have mentioned how their symptoms come and go only to come back yet again, I seem to fall into that category. It's reassuring though that some have reported full recovery and that sends a positive message for us all. I've not read all of your posts yet but from what I have read it seems you are undergoing therapy. I'm not familiar with all the abbreviations you mention but I hope it all works well for you and you too continue to make good progress. Your posts are invaluable to us all. Thank you🙏
@smileyoer Hi, I know what you mean about eye sight worsening, it's happening to me too. My sight seems to be more blurry now, I used to be able to manage for a short while before putting my contact lenses in but these days I have to put them in straight away. It's the same feeling I get when I have a migraine. It could also be stress related because blurry vision is a symptom of stress along with dizziness. Hopefully this will return to normal once these weird systemic side effects go away. Best wishes.🙏
Hy Tabby,
Ahh okay it calmed me down that I am not the only one with these weird symptoms...
Have you also got the second shot? Maybe you have answered that but too many conversations to remember each of them.
I have fear from covid because maybe we are much more sensitive to covid if we have reacted to the vaccine this way. But I also have strong concerns about the second dose...
Will you get it, or you will skip that?
I am also considering to get it asap because if I will be better and then get the second one and the recovery time will start again...
@smileyoer Hi, I'm due for my second one on Monday. I was hoping to speak to my doctor first but I couldn't get an appointment. I don't want to make matters worse but maybe there won't be a problem with the second one. My hubby's friend's wife was ill after her first but fine after her second. Here in the UK there is another Indian variant threatening and our government may consider more lockdown in affected areas to try to deter it from spreading. There's talk of speeding up second doses here and 50million doses of booster jabs have been ordered. It makes you feel a responsibility to others to get it done. I will think about it over the weekend but most likely will get it done and hope for the best.
Yeah understood. The Indian variant appeared in many European countries unluckily... Hopefully it won't make such a big wave like the previous ones.
I am also considering the second one, but before that, I would like to get recommendation from a neurologist.
I hope that you it won't make you worse symptoms. I pray for you! And give us a feedback if you get it how you doing!
Wish you the best!