This entire situation has completely freaked me out. I worry a great deal that we are going to be stuck with some sort of chronic condition. Some of our symptoms overlap with those of MS. Does anyone think there is a possibility that this vaccine has led to the development of MS? I don’t know much about the disease, except what google tells me. Someone help me down off this ledge! 🤦♀️
Hi, I've toyed with that idea, too. But it felt so much like something I shouldn't be entertaining at this point!
I think even if we get diagnosed with this or that, at this point we need to remind ourselves that it's pretty possible that this is an adverse reaction to our vaccine. And, if that's so, then (even after 12 weeks) I can also say I think it would be premature to think that it's going to be permanent.
No matter what our reactions look like, to us or even to our docs, can we keep hoping against hope that our bodies will continue to recuperate?
And, if so, would you be willing to give me your hand and climb down with me to where we've got our feet back on the ground, even if it does still seem to buck and sway a bit for now?
I hope so! The view up here is a bit too much!! 😏🥴
here to report my symptoms - got first dose (moderna) april 13 - was fine for about 14 days, then slowly started noticing the vertigo, it was not extremely apparently - but doing certain things would trigger it (lying down for a workout, flipping over on a pillow too quickly). Basically stopped doing certain movements so it wouldnt trigger the vertigo, felt like it slowly got better, and each time I tested myself - it would be a 1/5 chance I would get a bout of vertigo. Received second dose on May 12 - same thing happened - went about 1.5 weeks not doing certain moves, seemed like it was getting better and less noticeable, but today as I went to workout - it happened again. Wondering if I should completely stop doing certain movements to minimize this terrible feeling. Doctor suggested doing the head exercises - but afraid it could further worsen things.
If you do some research about vestibular rehabilitation therapy exercises you'll find that they're designed to expose you to the very things you're inclined to avoid and the reason for that is so that the other parts of your body (brain, eyes, body) can start adjusting to what has happened to cause your symptoms. When I went back to my vestibular physical therapist for my second visit, I was asked if the first set of exercises were still making me dizzy. When I said no I was given a new set to do that did make me dizzy! 🥴 But that's what's needed to progress, although the process may take month or two to fully get the best results. Unfortunately, my insurance and my doctor changed and now I have to wait until I do some tests before I can resume my therapy. But the several weeks that I did it I felt it was beginning to help me, so I'm looking forward to doing it again.
@thenystagmus Who is at risk for developing that side effect? I hear all group ages speaking up about persistent side effects after the vaccine. The super vaccine that everyone is encouraging us to take???
omg, I hope this is not permanent. I had second shot March 26 and still lightheaded, off balance heavy legs, headache. Going for acupuncture now along with Dramamine all the time. My ent finally said side effects from shot.
wish we could do something to them about this! It’s horrible not able to drive and rests all day! Enough of this, I had ct scan mri w/ contrast . I am so done
there is nothing we can do about this I guess! I am so furious and nothing we can do... they should be aware of how many people feeling ill from these horrible shots!
i have Meneres since 24 now 72. Went through all those exercises all my life. I will not put myself there again! Never helped and made me more dizzy. So I ended up with nerve section and still get dizzy! But managed. Now since these rotten shots all over again!!!! Just pray it is no permanent.
@teresawarren40 Thank you! I truly hope we all get better and no longer have to worry about any of this.
@thenystagmus Thank you so much for your words! I do need to learn to be kinder to myself. My body needs to heal. I have some "good" days but not enough to counter the bad ones. I have faith that we will all recover.
Hello,
I had my 1st shot of Moderna vaccine on April 4th. No symptoms. Two weeks later my arm had a red spot on the vaccine site. Didn't really hurt and no swelling.
I had the 2nd shot of the vaccine on May 2nd. Later that night in the middle of the night I woke up and I was burning up. Got up, took 3 motrin and went to sleep. The next morning, the fever was gone and I noticed I was sweating (fever broke). That same day I had chills and felt totally exhausted. Next day, exhaustion was better and the day after that I felt fine.
May 9th in the evening I started getting ringing in both ears. May 27th it is still with me. Yesterday, it spiked and drove me insane but today it is tolerable.
I have a sister who is a registered nurse and works at very busy Hospital in Boston, MA. She contracted Covid-19 in March of 2020. I called her yesterday because I am so distraught about the tinnitus. By the way, I have NO other symptoms. Never had tinnitus before the vaccine.
My sister told me that she lost her sense of smell and taste and had both ears ringing as a result of contracting the virus. She also told me that her sense of smell and taste took a full year to get back to normal. The ringing in her ears lasted about 6 months. During that time some days were better than others. Some days it drove her crazy.
The good news she shared with me is this: If the ringing in your ears is the result of the vaccine then it is only temporary. This to me is EXACTLY what I wanted to HEAR!
I hope the others here that read this can have some hope that although things are miserable right now, there is hope
Ginger
@giants101214 I'm so sorry you are also going through this, but I am glad I found this thread because I have had the same depression due to these symptoms. I'm going on week 3 of dizziness, brain fog and inability to concentrate which makes it really difficult to work and can't drive myself anywhere on top of that. A little background, I received the 1st Phizer dose on 4/28, but didn't experience the dizziness and "out of it" feeling until about 2 weeks after. I was actually on my way to my primary care doctor to see what was going on and felt as if I was going to pass out on the highway. My husband picked me up on the side of the highway and drove me to the ER. Couldn't find anything wrong with me with the tests that they ran, and my primary ordered a brain MRI after not seeing anything concerning when I visited her office. She gave me Meclizine which did not seem to improve symptoms. Went ahead with the second dose on 5/19, and still experiencing this "out of it" feeling with fullness in the ear. Doctor prescribed a steroid to reduce any inner ear inflammation, but none of the doctors I've seen have related any of this to the vaccine, however, it's the only thing that is different from my norm in the last month. I'm glad to see I'm not the only one in this position, but I'm starting to think there is no light at the end of the tunnel based on these responses!
@thenystagmus why isn't this something being announced in the news?!? This is a serious side effects that the public should be aware of. People get sick for weeks! Still don't know if they will recover from?! Nobody is taking any responsibility.
omg, I hope this is not permanent. I had second shot March 26 and still lightheaded, off balance heavy legs, headache. Going for acupuncture now along with Dramamine all the time. My ent finally said side effects from shot.
wish we could do something to them about this! It’s horrible not able to drive and rests all day! Enough of this, I had ct scan mri w/ contrast . I am so done
Good morning! Well, at least I wish you a better one! 😏 I hope the things you're doing will hasten recovery for you. It must have been encouraging for your ENT to relate what's going on for you to your vaccination. I do hope having gotten the vaccine will give us some protection. It's just been a high price to pay for some of us to gain that. I'm leaning into having enough from this one. My ENT hasn't ordered any brain tests other than an ENG and whatever else they will do at the balance testing center, but I'm having to wait a month for that - so I'm digging deep for patience for now!
I'm still taking Flonase and Azelastine. I finished the course of hydrochlorothiazide the other day. Still have dizzy spells (more lightheadedness really), not as many headaches, blurry vision off and on and still tinnitus. Some days are better than others. Still going to PT for vestibular rehab. Four sessions so far. The PT added a new maneuver the other day. It's the Dix-Hallpike maneuver. It's sort of like a partial Epley maneuver. I can tolerate 5 reps on each side. It's not fun. Still too early to tell if rehab is helping. I hope it does. Back to see the neurologist next week for an EEG. Considering seeing another ENT specialist since the last one was of no help. He did hearing, balance and VNG tests and when they came back normal he punted me off to a neurologist.
