@aishara how long did it take for your symptoms to go or do you still have them? it’s been 2 weeks for me, i’ve dizzy, have a fast heart beat having muscle twitches and vertigo.
how long did it take for your side effects to clear up ? i’ve been like this for 2 weeks and i’m worrying 🙁
Hello all,
I was wondering if anyone could give me ideas of what I have. I had Moderna May 15th, never got the 2nd due to side effects. One of those effects is possibly vestibular. From the moment I wake up, it's like my whole body moves with my heartbeat. It feels like I'm on a water bed all the time. Chairs, pillows, beds, etc may shift slightly, but I get almost an enhanced sense that it happened, hence the water bed example. I constantly rock back and forth because it seems to help mildly. Doctors don't know, and chiropractor gave me the epley maneuver to do, but I don't feel it helps much. I can focus, but it just always feels like I'm moving or trembling. I think the fidget and rocking helps my mind tell me I'm moving and it's ok, but as soon as I stop, I just feel so off and need to take extra effort to focus. Sometimes I feel like head movements can make it slightly worse,, but it's not super apparent and I get shoulder and neck pain here and there.. Any idea would be helpful. This has been constantly happening since May. Thanks!
This isn't a reply to any one particular post but I wanted to share my experience as it might help others. Just finding this forum has helped me. I know these days one can find almost anything online, but almost 500 pages of posts with similar stories has made me think there might be something to this. I had my second Astra Zeneca jab on July 16 and on Aug 11 in the wee hours of the morning I woke about 4am for my usual trek to the bathroom, but ... I could barely walk and became violently dizzy, plus stomach spasms with vomiting and diarrhoea. Repeatedly. I couldn't get to the toilet in time but managed to clean myself up in case I had to call an ambulance - it was that bad. Because it came on so suddenly I tried to convince myself it was probably food poisoning though I hadn't had anything dodgy but I had had a bit of chicken. (Stories about food poisoning often involve chicken. Or fish.) So I took my phone back to bed and told myself if it was food poisoning it'll be intense but short lived, though I've never had it before that I know of. I called a friend and asked them to call me back and if I didn't answer to please call me an ambulance. I was really scared and every time I moved the dizziness started. By 10am I was a lot better but still too scared to walk outdoors or risk taking a shower or eating hardly anything. The next day (Friday) I was feeling much better and did everything almost as normal including a bit of a gym workout. All was fine until I lay on the floor on the mat and the room started spinning again. The next morning I phoned to get a doctor's appt and they managed to fit me in on Monday when I explained my symptoms. I'm 66 and healthy and have had all sorts of vaccinations with no trouble at all. And will continue to do so. Anyhoo, the doctor seemed to think it was norovirus (gastro) and gave me a Rx for pills (ProCalm) to help the nausea and dizziness, which I don't think really do much. I think it was highly unlikely I caught any virus with all the hand sanitising, mask wearing, physical distancing we're all doing. I live alone. It has been over two weeks since the doctor visit and I still don't feel confident it has gone as I still get a bit dizzy in bed, if I look up, getting up and down off the floor. Oh - and to top it all off - on my way to the doctor's office two weeks ago, I fell and fractured a bone in my left hand! I had flat shoes on with good tread and there was no obvious tripping hazard so it may have been due to balance or just a coincidence; not sure. But that has added to my current debilitating issues. I hope this passes soon as it was scary to think this could be a permanent condition. I'm still pro vaccines but I think people should be warned that this sometimes happens and what to do about it and that it is only temporary. And to be extra careful so you don't break anything, including your own bones!
Your symptoms sound like a classic case of vertigo not norovirus. Welcome to our happy little group. I’m sorry you had to find us.
@aishara I would check out the FLCCC.net which is a group of doctors fighting Covid who formed an alliance. They have a protocol for post vaccine problems. In that protocol they have had success with Ivermectin and you should be able to get that over the counter in India for a very reasonable price. Your problems are caused by an inflammatory response to the vaccine. Ivermectin has anti inflammatory properties. Some other people on the forum have also taken Ivermectin so you may want to read through and see if you can find how it has worked for them. Personally I chose not to get the 2nd shot and am taking Ivermectin as a preventative which quite possibly will protect me better than the vaccine. Ivermectin binds to the spike protein and will not let Covid enter your cell no matter what the variant. There is a major media smear campaign on Ivermectin right now but it is filled with misinformation.Good Luck
@estonia I take something called Redecan CBDreign drops. There are two different types of CBD that I'm aware of. One that is considered more of an upper and one that is considered to have more calming effects. I clearly went for that one. Mine is a 14 mg dose and I take a full syringe on the nights that I feel the surges start. I hope this helps your suffering
@aishara Hi there, my name is Kate. My symptoms have lasted 3 months so far, still dealing with a swaying sensation most days but a very dulled version of it now. I highly suggest vestibular therapy. I also live in Canada and received the Pfizer shot on June 3. I am absolutely terrified to get my second shot but feeling hopeless as it looks like Ontario is about to adopt a vaccine passport. I talked to my internal med doctor yesterday and she said in order to be medically exempt from the second one you have to have a listed side effect. And of course, as we all know what we have experienced is not listed, YET.
Same.for me after one dose I suffered 3 months and still have problems with my vision but I am in Canada Quebec and passport is starting tomorrow really lost
@aishara what was your doctor's advice? Did he say you will eventually go back to normal?
This whole passport (one size fits all) is bs. I’m sure these boosters they are pushing are going to add to more victims to the tally. But will they listen?? So fed up.
@macey i am 46 female and having the same problem like you. I got first vertigo after first shot then several dizziness after 2nd shot on 29july. I got Pfizer vaccine. Could you please help me out that how you are doing and what is the process doctor did to you? They give me medication for dizziness and told me to do the Epley maneuver excersize. I am super scared:(
@aishara, your story is almost identical to mine (except all of my symptoms began after the second shot, not the first). Tomorrow marks 6 months from the day my symptoms began and what I can tell you is that I’m mostly better. All of my many symptoms have gone and stayed away, except for dizziness which is now much more mild and comes in spells here and there rather than being a constant issue. I think I really started to feel better around the 4 month mark (July) and actually thought I was completely done with this nightmare. Unfortunately after a few almost normal weeks without dizzy spells, they returned in august (I was then again mildly dizzy on/off for probably 3ish weeks before things improved again). So, like many others on here, I’ve experienced relapses which are SUPER upsetting to me emotionally.
All of my millions of tests always came back normal. The only thing that was abnormal were the x-rays of my upper cervical spine. My C1-C3 are all misaligned pretty significantly so I see an upper cervical spine specialist (atlas orthogonist) for adjustments. She also diagnosed me with craniocervical instability. I definitely think this is connected to the whole vaccine side effect mystery for me. My doctor agrees that the vaccine created a huge amount of inflammation that then affected the nerves near my upper spine where everything is misaligned/bottle-necked. So because I’m so misaligned, my body could not handle the inflammation and those nerves became pinched or irritated and lead to the symptoms I’ve experienced (dizziness, ear fullness, ringing, brain fog, headache, neck pain/stiffness, etc). I find it interesting that many people commenting on this forum also have neck pain/stiffness. It certainly makes me wonder if anyone else has the same neck condition/issues I have and they just don’t know it. Throughout my treatment/adjustments I’ve question whether or not my neck was really part of the problem, or if I was just chasing a “cure.” BUT, I’ve noticed that the adjustments agitate me and cause some dizziness (which I know sounds terrible to think about) but to me it proves my neck is at least part of the problem here. Otherwise, if my neck had nothing to do with the dizziness, the adjustment shouldn’t bother me, right? Just throwing my experience out there hoping it might help someone. Stay strong! We can get through this!
@schwark4 do you think you will eventually make a full recovery and get rid of your dizziness completely?
Did corticosteroids help anyone else with their symptoms? I've seen a number of people mention it on this forum- does it work if you have mal de debarquement-esque symptoms rather than full on classic vertigo? Has anyone else's symptoms lasted for almost 3 months?
My side effects (dizziness, vertigo, headaches, tinnitus, muscle stiffness in neck, blurred vision, brain fog) lasted over 6 months after the first Pfizer shot. I did go on a Medrol pack but it was a few months after the side effects started so it didn't have any effect apart from giving me a headache. There was a physician who posted on this forum a while ago who had side effects and he mentioned a high corticosteroid dose with taper and vestibular rehabilitation. I also went to PT for vestibular rehab and it did help.
@pfizervictim, yes I do. My treatment consists of adjustments twice a week for 8 weeks and then once a week for 16 weeks. So the treatment process for my neck is long, but I’m about four months in already. I’ve had weeks at a time where I feel almost normal again which has been amazing and has given me the sense that I will eventually fully recover. For me, the vaccine was definitely the trigger, but I’ve also had two other dizzy spells in my life (one 3 years ago and one 10 years ago, both lasting two weeks with VERY mild dizziness only). For years I’ve wondered why I get dizzy (ENTs and docs never had any answers and I’ve been tested for lots of things) so now I feel like I finally understand what’s wrong with me.