@am85 Thanks for the tips - much appreciated. It's good to hear from others what helps (and what doesn't). I think I would do the VNG/ENG testing if recommended by the ENT since it could confirm/change the diagnosis. Cheers. 

@adelaide great and let us know! Another member of the forum posted a very interesting article of Functional Neurological Disorder. Which is when all the hardware studies of the body come normal, but the patient has still symptoms (software). Probably through a good Oto neurologyst and Neurologist explorations can define if it is some sort of dizzinness or functional neurological disorder, but in my opinion maybe both of them are of the same family because rehabilitation is important for both.

I think vestibular disorders generate a huge impact on the nervous system, and probably we are very sensitive, intelligent people that care for our body and smart enough to not accept a bad dx and want to know what really is happening to us. Probably this makes the psychological response to the symptoms (symptoms are real!) make the nervous system to stay in a type of fight or flight mode and visiting many doctors, blood tests and scans, and everything comes up normal. I have Tinnitus and this is very common in these types of sufferings.

Obviously all of the above is if all tests come up normal and just an assumption. But what I mean is that the psychological aspect of all this when having the symptoms is very hard, and probably, if there is not a clear diagnostic in the tests and they come up normal, it should cheer us up that this is temporary and everything will be ok instead of making us more anxious. 

Just a pure theory above. Let us know your progress and lets stay all positive, this will pass! No matter what and how! Stoicism power!

@nath7 what symptoms do you have from vaccine 

@deb-mar20 when did you get vaccinated and what are your symptoms? 🙏🏼

@psargie when was your vaccine? I’m glad your pins abs needles are better. Let us know if your MRI is good. 🙏🏼

@deedee why were you on it to begin with? 

@ladyd when was your shot? 

@twitch 8th May!!!

@ladyd any improvement? Do you have tingling and twitching? I do…

@twitch no improvement I’m afraid. I have been diagnosed with PPPD and bilateral intermittent tinnitus and anxiety. The only twitching I have is muscle twitching which is anxiety related. 

@twitch my symptoms are, chest pain and chest tightness, breathing difficulties, dizzy and fainty spells and heart palpitations, heart rate changing all the time not going to lie I seem to have them all! Not great really what are your symptoms?

@ladyd did you have it before the shot? I didn’t have any issues before the shot. 

@nath7 mine are mainly twitching, tingling, breathing is off mainly at night. I had chills then bad tremors the first part of 2nd week but they are gone. Heart issues like fluctuations in heart rate and blood pressure (improving), heavy feeling in chest (improving), headaches (gone) I had insomnia really bad couldn’t sleep!!! (1-3 hours at a time only) That’s improved. Lost 6 lbs no appetite the first 2-3 weeks…that’s gone. Brain fog. And tinnitus comes and goes. Seems to be improving. Mainly now: Pins and needles that come and go and the twitching and tingling are the symptoms that remain. Come and go throughout the day. Just got put on tetracycline for probable Lyme disease. 30 days worth

Had no issues before perfectly healthy. Exercise regularly and felt great!!! Former athlete 

@nath7 Im not sure if the antibiotics are what’s helping. I’ve been on them since Monday night. 

@nath7 how long since your shot?