@jessiekhri to be honest I really didn't do anything, it started to improve some weeks ago. I did go to my gp in the beginning and she gave me eye drops for dry eyes but I didn't take them.
@markm90 hello, yes I started noticing them after my first dose of Sinopharm, and now 5 months after they just keep getting worst and it’s been very hard to adjust and live with. I was wondering if it gets better with time or if you managed to get used to them?
RECOVERY UPDATE
I got my first shot of Pfizer on June 3rd, 2021. Two days after the shot, I had terrible neck pain followed by sinus pressure. I started to take steam, thinking that it was a mild sinus infection. It helped me to some extent but did not resolve the problem. A few days later, the neck pain came back. My GP prescribed me Diazepam, which I took for a week. I felt 100% while on Diazepam. Then I met my Neurologist, who suggested that I must stop Diazepam. After a week, my symptoms came back. This time it was worse.
The list of symptoms is below.
Dizziness, Head/Ear Pressure, burning sensation on face and feet, weaknesses in arms, Ear fullness, Anxiety attacks, depression, clicking/clenching sound when yawning/swallowing, tinnitus, sound sensitivity, and visual disturbance- I wasn't able to focus, everything looked dark, floaters, dry eyes, light sensitivity, I wasn't able to focus on moving objects and some weird transparent circles in the site of my vision. I started physiotherapy in the last week of June. I did some vestibular exercises, which were helpful. My neck and shoulder pain was gone. Some of my visual symptoms also improved. If you are having neck/back/shoulder pain- ask your physiotherapist to put the tape. You can do it at home as well- here is the link for a Youtube video https://www.youtube.com/watch?v=W1Vnc5Vyl3A Rocktape - Posture Taping for shoulder blade(s)-
JULY- In June, my symptoms were not that bad. It progressed in the month of July. ANXIETY ATTACKS were so common in July. I was very teary for no reason, depressed, and this attack would stay for almost two-three hours, and after that, I was okay. This would come in bouts. CRYING HELPED ME WHEN I HAD ANXIETY ATTACKS. SO DONT FEEL BAD - JUST LET IT ALL OUT. .. I had 10-12 days in the month of June when I was walking 5000-8000 steps. In July, I had 7-8 good days. I also got a viral infection which again flared up my symptoms.
I STARTED MY SUPPLEMENTS IN THE SECOND WEEK OF JULY. I was taking Vitamin C, D, and Fish Oil.
On my good days, I used to walk 5000-7000 steps. I met a new Neurologist on July 25 and started Lamotrigine 10mg. I started getting better in the last week of July. My Neurologist also added Vitamin B2. I asked him if I can take magnesium but he advised me not to take it as it excites the nerves more.
AUGUST- I was feeling back to normal in early August. I also started an anti-histamine diet strictly. I had another viral infection from my daughter, which again flared up my symptoms. I also stopped taking lamotrigine as I got side effects. Post-infection, my symptoms were terrible again. I had head pressure, ear fullness, sinus pressure, and headache. I had awful light and sound sensitivity. Mid-August, I revisited my neurologist, who prescribed me topiramate which I did not take as I was worried about the side effects.
SEPTEMBER- I STARTED TO FEEL BETTER AND HAD MORE GOOD DAYS 🙂 🙂 . I revisited my Neurologist and asked him to prescribe me a mild drug. I started taking Amitriptyline (10 mg for 10 days and 25 mg for 4 weeks). I am now feeling much better. All my symptoms have gone except tinnitus, floaters, and slightly off vision. But, I can function normally and work for 8 hours, play with my daughter, back to a regular diet but still mindful of sugary foods, and have started drinking coffee again. In 3.5 months, I was 90% back to normal.
ADVICE TO MOTHERS/ YOUNG PARENTS- DON'T LOSE HOPE IT WILL GET BETTER. KEEP YOURSELF HYDRATED, EAT WELL, AND TAKE PLENTY OF REST WHENEVER YOU CAN.
FOR ANXIETY- please get some meds to help you cross the rough patch; meditation and ashwagandha have also helped me deal with anxiety. Cry if you want to, don't think about why you are so teary.
SECOND DOSE OF VACCINE???
I live in the UK, and it is possible to get an exemption here. The govt has posted it up on their website for all exemptions- https://www.gov.uk/guidance/covid-19-medical-exemptions-proving-you-are-unable-to-get-vaccinated.
My Neurologist has exempted me. His suggestion is- based on my age and medical history, it's more likely that I will get a mild reaction if I get COVID.
One of my friends in the USA has got an exemption too. His PCP mentioned that one vaccine is enough for protection. You can check antibodies level if in doubt. But again, immunity is not only calculated from the number of antibodies but also memory T cells that contribute to immunity equally.
I am not getting the second vaccine as I can't deal with these symptoms for another 3-4 months, and I am unsure how my body will respond to the second shot. It's on hold until there is more research on these vaccines, and there is a mandate from the govt instructing doctors to take us seriously-OUR SYMPTOMS ARE NOT FIGMENT OF OUR IMAGINATION.
I feel like my twitching went but it seems to be coming back again. I'm nearly 18 weeks out now. The twitching is also in my face and behind my ears and when I close my eyes its a sensation of my face vibrating like I can feel my muscles moving inside but not strong enough to be visible. My neck/base of skull is so tender and achy and that hasn't let up since the day of my jab. I feel really dizzy atm too. I feel really low today because I thought I was on the up. 😔 I can't be like this forever. Its killing me mentally. I miss the old me so so much it hurts 😪
Hang in there!! I’ve been where you are SO many times-where I thought it was over but then it came back. It crushed me every time. I am 7.5 months post second Moderna vaccine and I am mostly better. I’ve had weeks at a time symptom-free followed by return of very mild and intermittent symptoms (which still really annoy me and make me sad). However, I do think at some point this will all completely burn out and not return. I noticed you mentioned pain at the base of your skull/top of neck. You may want to read my old posts as I also had that symptom (among many others) which was actually addressed by an upper cervical spine specialist. If you click my name and then “activity” you’ll be able to see my old posts. Hang in there!!
@jaydev55 I'm 8 months post Pfizer vaccine and have improved to 90%. I was diagnoised with POTS (postural orthostatic tachycardia syndrome) 6 weeks after my second vaccine, I spent a week in the hospital with extreme tachycardia. I had balance issues, shortness of breath, numbness in my legs, pressure in my head. Only felt okay when I was laying down. After my hospital stay, I increased my hydration, increased my sodium intake, restarted my vitamin regime, which included a multivitamin with Zinc, B12 and D3. I also drink half a bottle Pedalyte a day and I also bought a rowing machine and started with 5 minutes a day and increased over time.
I'm now back to walking 4-5 miles a day, heart rate is normal, no more numbness or head pressure. I do some morning have a small flair up, but it subsides fairly quickly.
My doctors think I had an over-reactive immune response to the vaccine that set this all off and now that the antibodies are weaning, so are the symptoms.
My advice to you is read through all these post and find out what has work for others and see if something works for you.
Sending you much positive healing energy.
@katie Just wanted to comment, that I'm 8 months post vaccine and 90 - 95% improve. One of my doctors thinks its due to antibodies weaning.
Thanks for your information and replies. I'm also on the I-Recover Protocol (3 weeks in) and symptoms seem to be getting better although they come and go. Do you have any updates on your progress? I've not seen you post in awhile. I hope you're doing much better. Thank you.
@seemamkhrj thanks for the details and congrats on your progress. How are you feeling now in October? Any more positive progress?
Struggling on whether or not to get the vaccine again. I had got moderna vaccine in late march, about a week in I noticed my ear was swelling but didn't think much of it until a few days later I began experiencing severe vertigo for 30 seconds or so when turning my head too fast or laying down in a certain direction. After about a month, the vertigo went away and I got prescribed anti inflammatory steroids which may or may not have worked to relieve the remaining inflammation in my ear that was causing fullness. The fullness got less worse as time went on, but for a while it felt like I just had minor fullness forever, at least until a month ago. Now my ears for the most part feel normal, and only VERY LITTLE fullness, UNLESS I get congested from allergies or something else, which then I could have moderate ear fullness that sometimes leads to a headache.
Though my symptoms were similar, they were far from the worst here, and the most bothering part was just the anxiety of this thing never getting better, or something being seriously wrong. I never got an MRI or visited an ENT or anything like that, though my next dr appt coming up within the next few days, I will ask to see one in regards to all this - though I don't see how they can answer what I want to know, which is if I'll be fine getting the vaccine or not. Obviously in my situation, covid is much worse, but what's scary is I how my body reacted to the vaccine- and what if this time it's much worse? I still feel weird laying down flat where my eyes constantly want to move, especially when closed. Also with the ear fullness still not fully recovering (though close) I'm wondering if this is permanent, and if me getting the vaccine again would only cause more damage.
My hope is that this is just a one off issue, that it has nothing to do with me, and the next vaccine I get won't have any side effects. My worse fear is that these things will never come to light, and they won't improve the vaccine or explain what even happened. (This is what I was waiting for before making the decision, but rather than getting this, we're getting mandates that forces us to get the vaccine)