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imbalance


Curt
 Curt
(@curt)
New Member
Joined: 6 months ago
Posts: 2
Topic starter  

Hi, I'm Curt, a 78 year-old male who developed vestibular difficulties after undergoing chemotherapy for lymphoma. My problem exactly mimics tipsiness or drunkenness-- a chronic imbalance 24/7. I feel normal sitting down, but not otherwise.

I've gone through various exercises via a large local clinic but I think these are only "coping" mechanisms, nothing to actually increase control or improve the problem. I'd like to hear of any exercises that might have helped others.


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Geoff (Jeff)
(@geoffcaplan)
New Member
Joined: 6 months ago
Posts: 2
 

Hi. I'm Geoff (Jeff). I never had vertigo or balance issues anytime i my life, then about three weeks after getting the second Moderna vaccination, I developed severe vertigo. Is this just a coincidence? It gradually went away. I had a complete Vestibular Workup (VNG) and it showed nothing. I asked the ENT today where this might have come from and they had no idea. Thoughts? Comments? Thank you.


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Sandy
(@sandybrunner)
Active Member Patient Forum Moderator
Joined: 1 year ago
Posts: 6
 

Hi Geoff!  What a terrible side effect - I am so sorry! I've been seeing this reported in a lot of the vestibular support groups, so you are not alone.  I have vestibular migraine, and my first vertigo attack happened after a virus, but went away within a few months.  I wonder if this is a similar phenomenon for you, maybe the immune system changes triggered something in your brain to cause vertigo.  I really hope it gets better soon!


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Gordon L
(@gordonalipsky)
New Member
Joined: 6 months ago
Posts: 4
 

Previously posted I experienced what I term  a "vestibular attack"  two weeks after 2nd Moderna vaccination. Not simply peculiar feelings in head or "dizziness" with sensation of swelling in ears and tubes, but extreme imbalance resulting in inability to walk independently.  Very debilitating first 7 to 10 days after "attack" leading to ER visit,  but balance has improved off and on so walking independently most of the time now. For example, able to walk through grocery store today without needing cart for balance so not to fall. People receiving these vaccines should be cautioned not simply about "dizziness" but about potential IMBALANCE AND DANGER OF FALLING which can result in serious potentially permanent injuries.


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Brenda
(@bree)
Active Member
Joined: 6 months ago
Posts: 19
 

@geoffcaplan hi Geoff. I have the same diagnosis. You’re the second person I’ve read to have symptoms after the C-19 vaccination. This is not good. I hope your symptoms have subsided. 


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Brenda
(@bree)
Active Member
Joined: 6 months ago
Posts: 19
 

Hi Curt. I have imbalance issues also. They get bad at least a couple of times a year. What has helped me most is a “vestibular therapist” or a physical therapist with vestibular therapy training. I hope this helps!


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JenX
 JenX
(@jbkmail)
New Member
Joined: 5 months ago
Posts: 3
 

@geoffcaplan, I just got the label PPPD (Persistent Postural Perceptual Dizziness) and my trigger was the Pfizer vaccine. I was told that dizziness is a common side effect of both Moderna and Pfizer, but that it generally resolves on its own over time. I was not so lucky, but it's speculated that my job that requires 100% screen time is aggravating it and preventing it from remitting on its own. Hope this info helps!


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WhirlyJig
(@alferdhitchcock)
New Member
Joined: 3 months ago
Posts: 3
 

@gordonalipsky I agree. You sound like me. Same experience.


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