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The Vestibular Patient Experience

Vestibular disorders are invisible. You look fine on the outside, but inside you’re struggling with a myriad of debilitating symptoms. It’s easy to feel like you’re alone, and no one understands what you’re going through.

Reading about others who have been in your shoes can validate your experience and give you tips on what to expect and how to deal with it.

You can also share your story to spread hope and increase awareness about what it’s like to live with vestibular dysfunction.

Yap Wein Fook

Hi, my name is Yap Wein Fook. I was born in 1995 in Malaysia. First, I want to say "thanks" to VeDA for their support. I was first diagnosed with vestibular neuritis. My symptoms included headache, tinnitus,

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Visual Snow Syndrome

Visual Snow Syndrome (VSS), is a chronic, debilitating, and persistent neurological condition that affects a person’s vision, hearing, and brain function. The primary, and shared, symptom of VSS sufferers is Visual Snow. This resembles “TV

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When the World Become a Trigger: Climate and Vestibular Health

I live with vestibular migraine, a condition that affects balance, sensory processing, and the nervous system in ways that are difficult to explain and even harder to live with. My symptoms began during pregnancy in

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2025 Champion of Vestibular Medicine Award

Advocates for Patients with Inner Ear & Brain Balance Disorders The Vestibular Disorders Association (VeDA) announces the annual VeDA Champion of Vestibular Medicine Award initiative to increase awareness of vestibular disorders that affect the inner

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Claire Snyman

14 May 2010, a spinning room upon waking – my first vertigo attack and the onset of my first migraine, prompted a CT scan. I remember lying in the ER room listening to the doctors

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Kayla McCain

Have you ever felt that the room is spinning? You know, that sensation we desired to feel when we were kids. That by turning in circles 100 times and flopping on the floor, a gut-tickling

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Putting Movement Back In Life

Putting Movement Back In Life By Claire, Through the Fibro Fog Deliberately trying to pursue movement can feel a little strange when you have a vestibular disorder, don’t you find? After all, we often experience

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8 Effective Home Remedies for Photophobia (Light Sensitivity)

If you have been diagnosed with photophobia1 or feel you may have it, the most important thing you can do is talk to your doctor about what you’re experiencing. They can help you determine what

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One Who Listens (OWL)

People with vestibular disorders often wish for someone who will listen to them: listen with empathy – not judgement, listen with a deep knowledge – not dismissing their concerns, and listen with understanding for the emotional impact vestibular disorders have brought to their lives. The OWL Award recognizes two individuals and one organization for their contribution to the healing power of listening.

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Noel Newby

When I was in school as a child, I cannot recall us normally wearing helmets, and I do recall multiple hits to the head with various balls, including while playing softball and, when I was

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