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migraine

The Vestibular Patient Experience

Vestibular disorders are invisible. You look fine on the outside, but inside you’re struggling with a myriad of debilitating symptoms. It’s easy to feel like you’re alone, and no one understands what you’re going through.

Reading about others who have been in your shoes can validate your experience and give you tips on what to expect and how to deal with it.

You can also share your story to spread hope and increase awareness about what it’s like to live with vestibular dysfunction.

Theresa G.

My name is Theresa and I have been diagnosed with a vestibular disorder, convergence insufficiency as well as post-concussion syndrome. It all started with a bicycling accident that resulted in trauma to my head, neck

Sian Day

I have been diagnosed with vestibular migraines although my original diagnosis was Labyrinthitis. My background was marketing and sales although I had to leave my full time job 2 years ago and I now work

Applying for Disability When You’re Too Dizzy To Work

ICU – “I SEE YOU” PODCAST Applying for Disability When You're Too Dizzy To Work LISTEN NOW Available wherever you get your podcasts. APPLE PODCASTS SPOTIFY YOUTUBE You never thought it would happen. You thought

Vestibular Community Survey

VeDA asked patients to share information about their symptoms and VeDA's role in supporting the vestibular community.Here are some of the key findings: Almost half took over a year to get correctly diagnosed. When asked to

Amber Painter

In August, 2016 I started to feel dizzy on occassion. The previous year, I had just earned my Bachelor degree in Social Work. I was still on the hunt for that perfect job to utilize

Podcast: The Vestibular Patient Experience During Audiological Testing

ICU – “I SEE YOU” PODCAST Vestibular Patient Experience During Audiological Testing LISTEN NOW Available wherever you get your podcasts. APPLE PODCASTS Spotify Audiological testing can be an important step in helping doctors

What is the Best App for People With Dizziness, Imbalance, and Vertigo

There’s an app for that. Mobile apps focused on health and fitness help users track their physical activity, monitor their diet, set fitness goals, and access workout routines So what does an app designed for

Recovering From A Benign Brain Tumor

Friday morning, 14 May 2010, Claire Snyman opens her eyes to find the room spinning around her, the light fixture dancing above. Then she develops her first migraine ever. What is this all about? She

Vestibular Healthcare Across the Pond

Making Vestibular Visible Podcast Vestibular Healthcare in the US vs the UK Vestibular patients across the globe share many common experiences besides the physical symptoms of vestibular disorders. In this recorded live event, UK-based Peter

Anticholinergic Drugs Like Meclizine Can Lead to Dementia

A new study provides the strongest evidence that anticholinergic drugs may increase the risk for dementia in older adults. The drugs implicated are commonly used, estimated to be taken by about 20% of the older

Podcast: How Does Sleep Affect People with Vestibular Dysfunction?

ICU - "I See You" Podcast How Does Sleep Affect People with Vestibular Dysfunction? Listen Now Available wherever you get your podcasts. Apple Podcasts SpotifY If you’re dealing with vestibular dysfunction, getting high-quality

Research: Functional Brain Activity in PPPD During GVS

Functional brain activity in persistent postural-perceptual dizziness (PPPD) during galvanic vestibular stimulation reveals sensitization in the multisensory vestibular cortical network What is PPPD and why study it? Persistent postural‑perceptual dizziness (PPPD) is a chronic condition