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The Vestibular Patient Experience

Vestibular disorders are invisible. You look fine on the outside, but inside you’re struggling with a myriad of debilitating symptoms. It’s easy to feel like you’re alone, and no one understands what you’re going through.

Reading about others who have been in your shoes can validate your experience and give you tips on what to expect and how to deal with it.

You can also share your story to spread hope and increase awareness about what it’s like to live with vestibular dysfunction.

Theresa G.

My name is Theresa and I have been diagnosed with a vestibular disorder, convergence insufficiency as well as post-concussion syndrome. It all started with a bicycling accident that resulted in trauma to my head, neck


Change comes unsolicited and I have to roll with it.

My journey started at age 27 in 1986. I had an emergency medical procedure following a miscarriage. When I got home to my 3 year old daughter and husband the migraines started. My first diagnosis


Wisdom from the UK’s Large Vestibular Support Group

The UK’s largest support group for anyone with a balance condition, with now over 250 members, mainly from the UK, but also with American and European members enjoying the English style of support. The group


Stephanie Hynson

To my memory, my first real experience with motion discomfort, or abnormal dizziness was on the bus in eighth grade; there were three buses parked in a row and I was on the center bus