Hi, I've been following this forum since early July 21 when I have experienced a number of the symptoms reported by others. I'm 37, male, from the UK and initial investigations were via the NHS before being fortunate enough to see specialists privately (neurological surgeon, physios, cardiologist, neurologist).
My symptoms began 1 week after my 2nd pfizer vaccine. Symptoms varied in nature and intensity over 7 months. The first 2 months were the worst with constant dizziness, tiredness, severe back and neck ache, tingling in arms and legs, tinnitus, head pressure, brain fog and insomnia. I was off work for 6 weeks and daily tasks including looking after 2x young children were really very difficult indeed. Prior to the vaccine I was very fit, cycling and running most days. Saw numerous doctors and all blood tests, scans came back negative. Then in early January I saw a neurologist who thought the vaccine could have triggered vestibular migraines (possible I've always been susceptible to them but never been triggered the way they had with the vaccine). He prescribed me with v low dosage nortriptyline (10mg) every day for a period of 6 weeks. During that time there was very little change to my symptoms. I was prescribed another 4 weeks as some people take a long time to react to the drug apparently. By 8 weeks of taking the drug my symptoms quickly started to disappear and by 10 weeks totally gone. In my case I feel it was vestibular migraines triggered by the vaccine.
I wanted to share my story as hopefully it might help someone on here with a line of investigation they have not already tried. Given the complexity of this whole things I suspect this may not be the answer for everyone unfortunately. For long periods I thought I would have to live with the life changing symptoms, which had a massive impact on my and my family's quality of life. I feel I got very lucky with the neurologists diagnosis and his prescription of what is a relatively common and well-used drug.
Take care everyone.
Hello everyone. I am very glad to have found this forum, it helped me through the first dark weeks when my neurological problems were the worst, being scared i might be turning paralyzed... Now it has been four months and the worst seem to be over but I am still struggling with constant peripheral tingling, sleep disturbances and a major draw on my mental health from not being able to live my life as i used to. I was very healthy and active before this, working out often once or twice a day... It all started 3 weeks after 2nd dose of phizer. (had the tingling in left arm, pain at the injection site and sleepdisturbances after the first and decided NOT to have the second, then five months later it started being mandated in my line of work and many was acting as if it was nothing and that I was crazy who was hesitant, so one day I impulsively went and had it not wanting to think about it more...). I also have mildly desensitized fingertips and parts of the feet which I think is pretty scary... but I comfort myself with the fact that peripheral nerves actually do grow back.
My question: has anybody had a thyroid biopsy? Was there any point it having it? It's what my doctor want me to have next as all my bloodtests looked fine and the mri as well except for an overactive thyroid. I do feel it being sore but I don't suspect they'll find anything, but thinking i might go along and not give up completely on getting some medical validation. But so far it has been more energydraining then anything being in contact with them, and I am not too keen on having more needles put in me at this point except for regular bloodwork, but might be interesting to know what it would show. Just have a hard time deciding if i can trust the risks with different tests and treatments now...
Also want to share some interesting stuff i found about baking soda. Have only tried it for a few days so can't really say anything about results https://www.naturalhealthnews.uk/article/try-baking-soda-to-fight-inflammation/ https://www.verywellhealth.com/baking-soda-for-inflammation-5093321 https://nutritionreview.org/2018/05/baking-soda-reduces-inflammation-of-rheumatoid-arthritis-other-autoimmune-diseases/
@nresearcher Patterson says any statin can work; they all have similar effects in body both on cytokine targets and helping clear spike protein by blocking Fractalkine reactions at the vascular surfaces. Patterson's group started out using atorvastatin and then moved to pravastatin. The reason they switched is when they added maravoric they were concerned about interactions (both use same P450 CYP3A metabolic pathway). As noted. Marburg is using rosuvastatin.
The downside/upside of using those is they only effect the body. They are hydrophilic (water loving) and cannot pass the blood brain barrier into brain. Only lipophilic (fat loving) statins like atorvastatin can penetrate. So with those you get less benefit in brain. You get some because reducing body inflammation (as with cholesterol) effects the brain too. But they cannot directly go to brain to block spike proteins and have direct anti-inflammatory effects. Atorvastatin can. In a few videos, Patterson briefly admits atorvastatin may be slightly more effective, but since maravoric does penetrate into brain, it's fine with pravastatin. Again, outside the brain, they all have the same effects treating long covid/post vaccine issues with spike protein and inflammation (increased cytokines).
The downside potential with a statin that crosses into brain is there "can" be more side effects like dizziness, headaches, and insomnia than with the others. Does not mean that will happen or you won't adjust but it's a watch out. I had been taking rosuvastatin and switched to atorvastatin in early March. never had any side effects with the former but when I switched had some dizziness and mild nausea that lasted for several days before I adjusted. Since then all has been fine.
I prefer atorvastatin 20mg as I'm not taking maravoric yet and want to get the most anti inflammatory and immune modulating effects directly into the brain, hoping both to address recent neurological symptoms and hopefully prevent new ones from developing. I already have my hands full! Atorvastatin 20mg to 40mg is also what the FLCCC recovery protocol calls for. If I try out maravoric later this summer, I will likely switch to pravastatin while taking that and then if I still need statin after, would then switch back.
Thanks for the thorough analysis!
Hope @heybro sees your post as well.
Hi Everyone
I am new here, how are you all feeling now
My mom 68, is having exactly the same issues like you all mentioned.
She started having dizziness and high BP after getting booster shot covishield in Jan30th 2022 , she is in India. She went to Cardiologist,neuologist all tests came negative.
She takes BP and dizziness medicines in the morning and night but nothing seems to work, now her BP is like 139/80 but still have lot of dizziness.
We are so worried about her condition. She was a very active person and now after the covid booster her life has changed.
Can you please share the medication name you took for dizziness?
Any information will be helpful.
Thanks,
Riya
Riya, I'm from India too. 1st of all, stop those medicines.
Telling you out of experience. I took medicines on top of the V and now my condition has become worse. After taking tablets, I developed a heart condition which doesn't seem to go away. Also developed hell lot of new symptoms and the ones I had just got worse.
Also a headsup, symptoms might get worse or one also ends up developing new symptoms but don't take allopathy. Some symptoms subside on its own.
I usually don't respond but I know the condition in India is horrible. I'm struggling to find treatments and doctors who'd acknowledge my condition.
Stop those medicines. You can continue heart related tablets but don't take any else. It hasn't worked for many. It might work for a few. So if its working for her, let her continue. If it isn't helping, please take a call accordingly.
Try herbal treatments. I cannot comment must since I don't know all her symptoms. Bit you could check the posts here, you'd get an idea of what's working and what isn't.
Get her basic tests done which also includes D dimer. Don't depend on a doctor. They will not ask you for any. No doctors were interested to look into my case and I later learnt I had developed blood clots as well. These tests I did it on my own.
I am 7 months into this nightmare and still struggling. Lost my job as well.
Start with supplements. Vitamin B12, multi vitamin, Vitamin D, fish oil for starters. Have a clean diet. No red meat, processed foods etc.
I do eat chicken and eggs rn as my weight has come down to 39 kgs and I look like a skeleton rn. But meat must be avoided. Try satvik diets if possible. You might know more about it.
Try detox mentioned on the forum. It works. Haven't worked for me due to my weird heart condition. Or should I say I can't do most things other have as everything ends up messing my heart.
You could msg me if anything. Also which part of India are you from?
Is there anyone out here who has chest coldness and tightness which just happens once you fall asleep??
Mine doesn't seem to go away at all.
@medee hi Dee. I had that cold chest and actual shivers along with it a few times but not lately thank God. It’s horrible feeling. How is your BP lately?
@medee hi Dee. I had that cold chest and actual shivers along with it a few times but not lately thank God. It’s horrible feeling. How is your BP lately?
Oh! You had it too? How long did these last? Were these on and off? Also did you do anything to get rid of this?
I don't have any BP issues. But my chest is shaky and I have odd beats at times.
@medee I don’t know why it happened. I haven’t had it in a month or so. I just take vitamins every day and herbs, the same ones I always take. When it happens to me my whole body on top is literally shaking for a few seconds and then it stops. So SCARY
@josephduncan: Thanks so much to taking the time to post your success story. There are so many of us that need to hear these. Quick question, did your tinnitus also resolve? Thanks.
On the German forum are told positive experiences with ginkgo biloba extract, well known remedy to try to treat tinnitus, maybe it would be worth trying:
https://nebenwirkungen-covid-impfung.org/community/?wpfs=tinnitus+gingko
Hello everyone. I am very glad to have found this forum, it helped me through the first dark weeks when my neurological problems were the worst, being scared i might be turning paralyzed... Now it has been four months and the worst seem to be over but I am still struggling with constant peripheral tingling, sleep disturbances and a major draw on my mental health from not being able to live my life as i used to. I was very healthy and active before this, working out often once or twice a day... It all started 3 weeks after 2nd dose of phizer. (had the tingling in left arm, pain at the injection site and sleepdisturbances after the first and decided NOT to have the second, then five months later it started being mandated in my line of work and many was acting as if it was nothing and that I was crazy who was hesitant, so one day I impulsively went and had it not wanting to think about it more...). I also have mildly desensitized fingertips and parts of the feet which I think is pretty scary... but I comfort myself with the fact that peripheral nerves actually do grow back.
My question: has anybody had a thyroid biopsy? Was there any point it having it? It's what my doctor want me to have next as all my bloodtests looked fine and the mri as well except for an overactive thyroid. I do feel it being sore but I don't suspect they'll find anything, but thinking i might go along and not give up completely on getting some medical validation. But so far it has been more energydraining then anything being in contact with them, and I am not too keen on having more needles put in me at this point except for regular bloodwork, but might be interesting to know what it would show. Just have a hard time deciding if i can trust the risks with different tests and treatments now...
Also want to share some interesting stuff i found about baking soda. Have only tried it for a few days so can't really say anything about results https://www.naturalhealthnews.uk/article/try-baking-soda-to-fight-inflammation/ https://www.verywellhealth.com/baking-soda-for-inflammation-5093321 https://nutritionreview.org/2018/05/baking-soda-reduces-inflammation-of-rheumatoid-arthritis-other-autoimmune-diseases/
Compared to other types of side effects, about those that concern the thyroid, there are many medical articles.
Hyperthyroidism is reported in enough cases and it is important because many of the symptoms, described by many people with side effects, are the same as those in hyperthyroidism: tachycardia, arrhythmia, insomnia, anxiety, weight loss, tremor, sweating, changes in menstrual patterns, fatigue, muscle weakness.
But each symptom can be produced by other causes, therefore, only medical investigations could clarify the cause. For example, insomnia can be a symptom of a thyroid that works in excess, but it can also be caused by MCAS.
Of the article:
“SARS-CoV-2 vaccine-associated subacute thyroiditis: insights from a systematic review”
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8800554/
I would like to reproduce a fragment: “Subacute thyroiditis is an inflammatory disease of the thyroid gland causing transient thyrotoxicosis, characterized by neck pain and symptoms of thyroid hormones excess. Baseline thyroid exams revealed thyrotoxicosis in 88.2% of patients, decreasing at 31.6% at follow-up.”
Some useful links:
https://link.springer.com/article/10.1007/s40618-022-01739-0
https://www.endocrinologyadvisor.com/home/topics/thyroid/covid-19-vaccine-and-graves-disease/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8514605/