After watching the Patterson video, does anyone have an explanation for why so many people have symptoms that go away for weeks at a time and then reappear? I’ve had many good weeks the past few months, but I always seem to have a relapse at some point.
I personally notice my symptoms reappear when my immune system ramps up such as when I get a cold, eat rubbish foods, menstruate etc then the symptoms calm down again.
How long do your symptoms generally last once they reappear?
Thanks David for the quick response!!
Her condition is getting worse because of the dizziness. She has a doctor's appointment tomorrow, will see how it goes.
I had full blow vertigo for 3 weeks. It took 2 weeks to come on after my first and only Pfizer vaccine. I refused to get the 2nd vaccine since most people on this site said that the 2nd shot had even worse side effects. I wear a real N95 mask and am very careful where I go and what I do and I have not had Covid yet. I do not want to go on like this forever and wondered if anyone has any info on Evusheld the monoclonal antibody type treatment for immunocompromised people? Is it safe? I have read the published side effects and they are mild but we all know you can not necessarily trust that. I have Ivermectin that I plan on taking based on the FLCCC protocols if I happen to get Covid.I took Ivermectin for many months as a prophylactic and decided to stop once Omicron was the dominant variant and there was less of a chance of hospitalization and death. Ivermectin has no testing in the high doses and duration of time I had been taking it.
@saba thank you so much for your reply. Did you take anything for insomnia? I hope it comes back because it’s torture. It’s harder on top of all the other symptoms. I sleep and wake every couple hours, and some nights every hour. 😔
@saba there is a few others on here with sleep issues. I sleep and wake now faithfully every two hours no,matter what I take. I pray it comes back. How did yours come back? Gradually?
I had full blow vertigo for 3 weeks. It took 2 weeks to come on after my first and only Pfizer vaccine. I refused to get the 2nd vaccine since most people on this site said that the 2nd shot had even worse side effects. I wear a real N95 mask and am very careful where I go and what I do and I have not had Covid yet. I do not want to go on like this forever and wondered if anyone has any info on Evusheld the monoclonal antibody type treatment for immunocompromised people? Is it safe? I have read the published side effects and they are mild but we all know you can not necessarily trust that. I have Ivermectin that I plan on taking based on the FLCCC protocols if I happen to get Covid.I took Ivermectin for many months as a prophylactic and decided to stop once Omicron was the dominant variant and there was less of a chance of hospitalization and death. Ivermectin has no testing in the high doses and duration of time I had been taking it.
Have the same questions. Am wondering if Paxlovid (if not on a medication that interacts with it) - or maybe some future, better anti-viral - could be a good approach if someone with a vaccine injury tests positive and is eligible to get Paxlovid. It is prescribed by one's doctor or through the test to treat program in the U.S. (link below). The key would be to get the treatment as soon as possible, within 5 days of covid symptoms.
https://aspr.hhs.gov/TestToTreat/Pages/default.aspx
One reason am a bit hesitant about monoclonal antibodies for those with vaccine injuries is based on comments by Dr. Patterson. In the video below (minute 43:27 to 44:30), he mentions some bad effects of monoclonal antibodies (and covid vaccination) in some of his patients with long covid.
https://www.youtube.com/watch?v=UJ4QjiXT1EY
"...These monocytes bind to endothelial cells and can cause endothelial inflammation...these cells also carry S1, can induce antibody responses. This is why we think long-haulers get worse when they get vaccinated. They certainly got worse when people tried monoclonal antibodies which targeted S1 - that was a disaster and sent some of our patients to the emergency room."
Since he is talking about patients with long covid and not vaccine long-haulers, am not sure if the same issue would apply. However, he seems to suggest that long covid may have the same basic cause as vaccine injuries - the spike protein taken up by monocytes which results in inflammation of the blood vessel lining. So maybe it could apply - would have to ask Dr. Patterson or another researcher who is working with people with vaccine injuries.
Am mostly hoping the current wave of Omicron variants and sub-variants will get past its peak in the U.S. soon and allow cases to be way down by early summer so our risk of exposure becomes very low.
If anyone has taken monoclonal antibodies at some point after having had a vaccine reaction, it would be good to hear from them.
Has anyone already tested Maraviroc?
It is what Dr. Patterson's group is recommending, in addition to statins, for some patients with long-covid and for some covid vaccine long-haulers.
Maybe @krista @gingerjones @heybro @libbysimon @ncoleston might have a better opinion on whether Maraviroc is a good medication to consider for vaccine long-haulers and if they know of any side effects?
Thanks!
Has anyone already tested Maraviroc?
It is what Dr. Patterson's group is recommending, in addition to statins, for some patients with long-covid and for some covid vaccine long-haulers.
Maybe @krista @gingerjones @heybro @libbysimon @ncoleston might have a better opinion on whether Maraviroc is a good medication to consider for vaccine long-haulers and if they know of any side effects?
Thanks!
What statin do you recommend? I know several people on Maraviroc. They have mixed results to say the least. It's better than doing nothing but I don't know anyone who was cured by it (yet).
Has anyone already tested Maraviroc?
It is what Dr. Patterson's group is recommending, in addition to statins, for some patients with long-covid and for some covid vaccine long-haulers.
Maybe @krista @gingerjones @heybro @libbysimon @ncoleston might have a better opinion on whether Maraviroc is a good medication to consider for vaccine long-haulers and if they know of any side effects?
Thanks!
What statin do you recommend? I know several people on Maraviroc. They have mixed results to say the least. It's better than doing nothing but I don't know anyone who was cured by it (yet).
Thanks for your reply. That is good to know.
It seems Dr. Patterson's group is using a statin that doesn't interact with Maraviroc but I think he said other statins should also work to reduce monocyte binding to endothelial cells and thus reduce the resulting inflammation. It seems the University of Marburg in Germany is using a different statin for post-vaccine injuries. Maybe @mike411 has more thoughts about which statin could be best for vaccine injuries? It might be easier to tell once theories about what causes vaccine injuries are confirmed.
@nresearcher Patterson says any statin can work; they all have similar effects in body both on cytokine targets and helping clear spike protein by blocking Fractalkine reactions at the vascular surfaces. Patterson's group started out using atorvastatin and then moved to pravastatin. The reason they switched is when they added maravoric they were concerned about interactions (both use same P450 CYP3A metabolic pathway). As noted. Marburg is using rosuvastatin.
The downside/upside of using those is they only effect the body. They are hydrophilic (water loving) and cannot pass the blood brain barrier into brain. Only lipophilic (fat loving) statins like atorvastatin can penetrate. So with those you get less benefit in brain. You get some because reducing body inflammation (as with cholesterol) effects the brain too. But they cannot directly go to brain to block spike proteins and have direct anti-inflammatory effects. Atorvastatin can. In a few videos, Patterson briefly admits atorvastatin may be slightly more effective, but since maravoric does penetrate into brain, it's fine with pravastatin. Again, outside the brain, they all have the same effects treating long covid/post vaccine issues with spike protein and inflammation (increased cytokines).
The downside potential with a statin that crosses into brain is there "can" be more side effects like dizziness, headaches, and insomnia than with the others. Does not mean that will happen or you won't adjust but it's a watch out. I had been taking rosuvastatin and switched to atorvastatin in early March. never had any side effects with the former but when I switched had some dizziness and mild nausea that lasted for several days before I adjusted. Since then all has been fine.
I prefer atorvastatin 20mg as I'm not taking maravoric yet and want to get the most anti inflammatory and immune modulating effects directly into the brain, hoping both to address recent neurological symptoms and hopefully prevent new ones from developing. I already have my hands full! Atorvastatin 20mg to 40mg is also what the FLCCC recovery protocol calls for. If I try out maravoric later this summer, I will likely switch to pravastatin while taking that and then if I still need statin after, would then switch back.
@jpdevoys me too! I’m being treated for Lyme since Moderna. How are you now?
I'm doing ok, thanks. Still suffering with neurological symptoms (muscle twitches, soft palate issues, burning mouth, tinnitus). My neurologist has me on gabapentin and clonazepam which calms the nerves a bit. Took anti-biotics for 6 weeks to deal with the Bartonella but not sure it did anything. Since nerves can take a long time to heal, I guess I'm in it for the long haul. I have an NCS/EMG test coming up in early May to test for nerve/muscle damage in my legs. Fingers crossed that will come out negative.
Has anyone already tested Maraviroc?
It is what Dr. Patterson's group is recommending, in addition to statins, for some patients with long-covid and for some covid vaccine long-haulers.
Maybe @krista @gingerjones @heybro @libbysimon @ncoleston might have a better opinion on whether Maraviroc is a good medication to consider for vaccine long-haulers and if they know of any side effects?
Thanks!
What statin do you recommend? I know several people on Maraviroc. They have mixed results to say the least. It's better than doing nothing but I don't know anyone who was cured by it (yet).
Thanks for your reply. That is good to know.
It seems Dr. Patterson's group is using a statin that doesn't interact with Maraviroc but I think he said other statins should also work to reduce monocyte binding to endothelial cells and thus reduce the resulting inflammation. It seems the University of Marburg in Germany is using a different statin for post-vaccine injuries. Maybe @mike411 has more thoughts about which statin could be best for vaccine injuries? It might be easier to tell once theories about what causes vaccine injuries are confirmed.
Marburg is using Rosuvastatin 10 mg together with 4mg candesartan, Vitamin D and histaminfree diet
Patterson is using Plavastatin 10 mg (because it does not interact with Maraviroc)
Otherwise not using Maraviroc He recommends 20mg Atorvastatin, because Atorvastatin is lipophil and able to pass the Brain-Blood Barrier. The other Statins can not, they are hydrophil.
There is also the recommendations to takt 81 mg BabyAspirin with the statin, because together they can reduce the VEGF cytokines which are primarily responsible for the neurological symptoms.
Has anyone already tested Maraviroc?
It is what Dr. Patterson's group is recommending, in addition to statins, for some patients with long-covid and for some covid vaccine long-haulers.
Maybe @krista @gingerjones @heybro @libbysimon @ncoleston might have a better opinion on whether Maraviroc is a good medication to consider for vaccine long-haulers and if they know of any side effects?
Thanks!
What statin do you recommend? I know several people on Maraviroc. They have mixed results to say the least. It's better than doing nothing but I don't know anyone who was cured by it (yet).
Thanks for your reply. That is good to know.
It seems Dr. Patterson's group is using a statin that doesn't interact with Maraviroc but I think he said other statins should also work to reduce monocyte binding to endothelial cells and thus reduce the resulting inflammation. It seems the University of Marburg in Germany is using a different statin for post-vaccine injuries. Maybe @mike411 has more thoughts about which statin could be best for vaccine injuries? It might be easier to tell once theories about what causes vaccine injuries are confirmed.
Marburg is using Rosuvastatin 10 mg together with 4mg candesartan, Vitamin D and histaminfree diet
Patterson is using Plavastatin 10 mg (because it does not interact with Maraviroc)
Otherwise not using Maraviroc He recommends 20mg Atorvastatin, because Atorvastatin is lipophil and able to pass the Brain-Blood Barrier. The other Statins can not, they are hydrophil.
There is also the recommendations to takt 81 mg BabyAspirin with the statin, because together they can reduce the VEGF cytokines which are primarily responsible for the neurological symptoms.
Thank you.
After watching the Patterson video, does anyone have an explanation for why so many people have symptoms that go away for weeks at a time and then reappear? I’ve had many good weeks the past few months, but I always seem to have a relapse at some point.
I personally notice my symptoms reappear when my immune system ramps up such as when I get a cold, eat rubbish foods, menstruate etc then the symptoms calm down again.
How long do your symptoms generally last once they reappear?
The longest was for two months while I was battling a strange virus/covid or glandular fever....never found out what it was but I suspect it was Delta covid. I was moderately ill with strange cold like symptoms, head neuralgia, and swollen lymph nodes for two month and all my other jab injuries reared their ugly heads for the duration of this time. This was also when my eyes started getting worse. Once my symptoms finally went down they only flare up for a week to two weeks when I catch a cold, have PMS or eat rubbish inflammatory foods (no more cheeky McDonald's breakfast for me). I had Omicron late Jan early Feb and my jab symptoms flared up for a week then went back to a milder baseline. I always can tell when I'm about to get sick because about 24 hours before my sickness symptoms show my pins and needles, tinnitus, and dizziness flare up. Once I'm over the virus again they settle down.
Thanks for the info. That's so crazy, I also know when I'm about to relapse because my left pinky toe starts to feel numb and my left finger tips also get that pin and needles feeling. About 24 hours after that I get the dizziness and tinnitus. I'm 7 days into a relapse, so hoping it resolves sooner than later.