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Covid-19 Vaccine side effects

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(@margaret2022)
Very Active Member
Joined: 2 years ago
Posts: 335
 
Posted by: @dupuis24

Hi @jwills1 ,

What is the source of this treatment. I saw a lot of similar stuff online but I would like to contact theses doctors.

 

Anyway here is my story :

I got pfizer on july 13 2021 (second dose) and on the 26 of july had some big headache and loss of binocular vision as a big concussion without any concussion. 

Here are my symptoms :

Convergence Insufficiency 

Dry eyes

Light sensitivity

Brain Fog

Vertigo

Tinnitus

 

I had 2 big crisis of this, one from the 26 of july to 2 months later, and one in december. I was on a medical leave for 8 weeks total.

 

Everything is gone except dry eyes and convergence insufficency that keeps coming back every now and then for no reason. I did have some kind of therapy for this but its does not work well as it keep coming back.

 

I have a MRI scheduled soon and something with a neurologist. In canada, its free but its long to have someone looking at your case.

 

Any news of a treatment ?

No news for treatment but there’s a post on the page before this page on a slide show of supplements that can be taken. I started celery juice I read that it helped with a girls tinnitus … I also have the same symptoms as you. The thing is I couldn’t even explain myself to my doctor.

has your tinnitus gone away completely was there anything you done to help to ease things ..for myself I feel like I’m making things worse. I had an mri with all these bad symptoms and it came back clean brain spine and neck. CTs as well. So Sorry you are experiencing things but your story gives us hope 


   
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Jwills
(@jwills1)
Active Member
Joined: 2 years ago
Posts: 32
 
Posted by: @buzzgirl
  1. @jwills1 thanks for sharing this info. I would be interested to see how you get on as well. Btw how did your neurologist diagnosis poor blood circulation in your brain?

My neurologist did a physical neuro exam and was able to determine this fairly easily. I did a tilt table test some months ago which confirmed pots and I get a lot of migraines. 


   
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Jwills
(@jwills1)
Active Member
Joined: 2 years ago
Posts: 32
 

Hi @dupuis24 

Glad to hear that most of your symptoms have gone. The treatment is called INUSpheresis and I am aware of two clinics offering this, biologicum in Germany and alpstein in Switzerland. You can get in touch with them to book a consultation with their doctors. I personally have not come across convergence insufficiency as a symptom, I am unsure if this particular treatment would help however do look into it and wishing you a full recovery. 


   
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(@kdjones51)
New Member
Joined: 3 years ago
Posts: 2
 

Good afternoon everyone! 

I had my 2 Phizer vaccine shots in May 2021. For 5 months I've experienced dizziness, off balance, paralysis in my left arm (used for both shots), nausea, severe headaches. I FINALLY got relief after a million test and PT/vestibular therapy!!  September 2021 was my last day of PT. I started to feel better.  October 2021, out of nowhere I started having leg pain in both legs.  Has anyone experience nerve pain.  As of today, no relief for my leg pain.  I'm 51 years old and NEVER had any health issues until after I got vaccinated.  I'm tired of feeling this way and not knowing what's wrong!!!!!!!


   
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(@buzzgirl)
Very Active Member
Joined: 2 years ago
Posts: 120
 
Posted by: @jwills1
Posted by: @buzzgirl
  1. @jwills1 thanks for sharing this info. I would be interested to see how you get on as well. Btw how did your neurologist diagnosis poor blood circulation in your brain?

My neurologist did a physical neuro exam and was able to determine this fairly easily. I did a tilt table test some months ago which confirmed pots and I get a lot of migraines. 

Thanks for your reply. Can you please advide what tests where done in the physical neuro exam? Walking or balancing with eyes closed etc? What was the neurologist suggestion in helping to increase the blood circulation? Exercise, Deep Breathing etc,  Thank you!!


   
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(@buzzgirl)
Very Active Member
Joined: 2 years ago
Posts: 120
 
Posted by: @buzzgirl
Posted by: @jwills1
Posted by: @buzzgirl
  1. @jwills1 thanks for sharing this info. I would be interested to see how you get on as well. Btw how did your neurologist diagnosis poor blood circulation in your brain?

My neurologist did a physical neuro exam and was able to determine this fairly easily. I did a tilt table test some months ago which confirmed pots and I get a lot of migraines. 

Thanks for your reply. Can you please advide what tests where done in the physical neuro exam? Walking or balancing with eyes closed etc? What was the neurologist suggestion in helping to increase the blood circulation? Exercise, Deep Breathing etc,  Thank you!!

Edit.. I googled it

https://www.hopkinsmedicine.org/health/conditions-and-diseases/neurological-exam

How did you go with the exercises? Did the neurologist recommend any brain exercises for you to do? Or just medication?

 


   
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(@buzzgirl)
Very Active Member
Joined: 2 years ago
Posts: 120
 
Posted by: @jwills1
Posted by: @mike411
Posted by: @jwills1
Posted by: @ksharky13
Posted by: @jwills1
Posted by: @ksharky13

Question: Has anyone experienced a sort of chronic mild panic attack feeling, especially when talking and trying to put sentences together?  Includes feeling like your out of breath after every sentence and your head is “full”.  I'm recently having trouble just speaking and putting simple sentences together. Had my booster 8 months ago and sudden onset of tinnitus 6 months ago.  Recently started to have these new symptoms.  Now, I also recently weened off of an SSRI I had taken for several years so don’t know if that is what is causing these symptoms now.  Very much could be the reason.  Hard to say anymore after these vaccines.  Any comments/feedback would be appreciated.  Thanks.

Hi. I’m almost 8 months post booster (mordena) and I’ve also recently developed difficulties with my speech. When trying to talk it feels like my body gets worked up and I become exacerbated. My speech is slightly slurred and I sometimes struggle to put words together. Naturally, I’ve thought the worst, could this be the beginning stages of motor nuerons? Extremely scary stuff. Or, is this just brain fog and we must accept that our cognitive function has worsened slightly but not permanently. I hope to God the latter, and that a continuation of our recovery regime will fix this. Seeing a neurologist is also worth doing just to rule anything out. I have not taken any SSRI’s at all.

Thanks so much for the reply.  I was kind of grasping at straws in my last post since I thought I was probably just imagining thing or having symptom from stopping my SSRI.  Your situation sounds exactly like mine.  I certainly hope that this is just a temporary spike of new adverse reactions that will resolve over time.  I feel like every conversation I have lately is labored and stressful as I try to just have a normal conversation.  It's like I'm short of breath (from stress) and struggling to put sentences together.  We just have to stay positive and get through this the best we can.  I don't see much benefit from going to a lot of doctors as they are so engrained in what they know and are hard to get to think outside the box when it comes to these mRNA vaccines and the myriad of unknown adverse reactions.  

Reading your post was a relief in way to know I too wasn’t going crazy. Laboured is precisely the right word to use, it’s a strange new symptom and I hope it goes away for the both of us. My last visit to the neurologist found poor blood circulation to my brain - a natural symptom of POTS. I totally agree with you in that seeing Dr’s has become redundant, none of them will admit that they simply don’t know what’s going on and some even feel intimidated by the challenge we pose. Because we don’t present with a clear cut problem they don’t want to dig a little deeper to help, it’s a crying shame. However, whenever I get a new symptom like this, I can’t help myself but call the Dr just to be on the safe side, I’m afraid of ignoring something that may be more serious. 

I’ve been scouring threads all over the place and have learnt that the mRNA vaccine induced the same immune reaction as long covid patients so keeping a close eye on long covid studies will help us too. The initial reaction to the vaccine is just that, initial. What we now face months down the line is a chain reaction not directly linked to the vaccine and varies widely from person to person depending on how your body initially reacted and how it’s continuing to cope. It’s all very complex and the root causes from the possibility of MCAS to reactivation of viruses is fascinating. I recently did some antibody virus tests and come up positive for 5 “past” infections. Could these play a part? Who knows.

I’m booked in for INUSpheresis in 2 weeks, amongst its many benefits it should improve my circulation aswell as improve the brain fog. 

Sending you positive energy, we can get through this. 

Looking forward to your report on how Inuspheresis goes!

Which filter screens are they using? The auto antibodies level screen? or just the more basic one for clots and lipoproteins?

Inuspheresis vs. Immune Adsorption are on my radar to consider early next year for auto antibodies (positive on CellTrend autoimmune panel for ACE2 and MAS-1) causing my high BP issues. 

Hi mike! It was because of your very posts that I sought the treatment and for that I thank you. 

I considered biologicum but eventually booked in at alpstein with the auto antibodies filter. Immunadsorption has also been a consideration of mine but it’s similarities to IVIG are slightly concerning. INUS appears more targeted. I haven’t done the celltrend test and suffer from the opposite, low BP but I suspect my results will be similar to yours. 

It’s a daunting procedure and I’m still coming to terms with going ahead however my symptoms have worsened and this may well be the only effective treatment. I will also undergo several other interventions including a procain infusion which should make a significant improvement to the brain fog. 

Your posts are very interesting.  The antibody tests you referred to, having 5 past active infections, was this done via yout normal GP or a specialist?

"Immunadsorption similarities to IVIG are slightly concerning"... can you please elaborate here?

What was your IGG, IGE, IGM levels out of curiosity? I have been reading your past posts.

Thanks 


   
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(@buzzgirl)
Very Active Member
Joined: 2 years ago
Posts: 120
 
Posted by: @jwills1
Posted by: @ksharky13
Posted by: @jwills1
Posted by: @ksharky13

Question: Has anyone experienced a sort of chronic mild panic attack feeling, especially when talking and trying to put sentences together?  Includes feeling like your out of breath after every sentence and your head is “full”.  I'm recently having trouble just speaking and putting simple sentences together. Had my booster 8 months ago and sudden onset of tinnitus 6 months ago.  Recently started to have these new symptoms.  Now, I also recently weened off of an SSRI I had taken for several years so don’t know if that is what is causing these symptoms now.  Very much could be the reason.  Hard to say anymore after these vaccines.  Any comments/feedback would be appreciated.  Thanks.

Hi. I’m almost 8 months post booster (mordena) and I’ve also recently developed difficulties with my speech. When trying to talk it feels like my body gets worked up and I become exacerbated. My speech is slightly slurred and I sometimes struggle to put words together. Naturally, I’ve thought the worst, could this be the beginning stages of motor nuerons? Extremely scary stuff. Or, is this just brain fog and we must accept that our cognitive function has worsened slightly but not permanently. I hope to God the latter, and that a continuation of our recovery regime will fix this. Seeing a neurologist is also worth doing just to rule anything out. I have not taken any SSRI’s at all.

Thanks so much for the reply.  I was kind of grasping at straws in my last post since I thought I was probably just imagining thing or having symptom from stopping my SSRI.  Your situation sounds exactly like mine.  I certainly hope that this is just a temporary spike of new adverse reactions that will resolve over time.  I feel like every conversation I have lately is labored and stressful as I try to just have a normal conversation.  It's like I'm short of breath (from stress) and struggling to put sentences together.  We just have to stay positive and get through this the best we can.  I don't see much benefit from going to a lot of doctors as they are so engrained in what they know and are hard to get to think outside the box when it comes to these mRNA vaccines and the myriad of unknown adverse reactions.  

Reading your post was a relief in way to know I too wasn’t going crazy. Laboured is precisely the right word to use, it’s a strange new symptom and I hope it goes away for the both of us. My last visit to the neurologist found poor blood circulation to my brain - a natural symptom of POTS. I totally agree with you in that seeing Dr’s has become redundant, none of them will admit that they simply don’t know what’s going on and some even feel intimidated by the challenge we pose. Because we don’t present with a clear cut problem they don’t want to dig a little deeper to help, it’s a crying shame. However, whenever I get a new symptom like this, I can’t help myself but call the Dr just to be on the safe side, I’m afraid of ignoring something that may be more serious. 

I’ve been scouring threads all over the place and have learnt that the mRNA vaccine induced the same immune reaction as long covid patients so keeping a close eye on long covid studies will help us too. The initial reaction to the vaccine is just that, initial. What we now face months down the line is a chain reaction not directly linked to the vaccine and varies widely from person to person depending on how your body initially reacted and how it’s continuing to cope. It’s all very complex and the root causes from the possibility of MCAS to reactivation of viruses is fascinating. I recently did some antibody virus tests and come up positive for 5 “past” infections. Could these play a part? Who knows.

I’m booked in for INUSpheresis in 2 weeks, amongst its many benefits it should improve my circulation aswell as improve the brain fog. 

Sending you positive energy, we can get through this. 

Apparently both C Jab and C Virus can trigger old dormant viruses? It can also fast track future diseases. Kinda explains why some people with Long Covid now have diabetes or perhaps its solely a nervous system regulation issue. Which 5 did you come up positive for? Did you get these tests done via your normal GP or a specialist?

I have been reading your posts. Please refer to the quote below.

"These include a full auto immune screening, cardiovascular health, blood clotting disorders, blood sugar levels, inflammatory markers, liver and kidney functions, full blood count, anemia studies, stool and urine samples and most importantly, IGG, IGE, IGM levels."

IGG, IGE, IGM levels tests?? Can you please explain a little more specifically? You got these done to understand your antibody levels at present or was it mainly referring to specific active antibodies you have now against old virus (I.e. antibody tests). Sorry about all of my questions..


   
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(@rose30)
Active Member
Joined: 3 years ago
Posts: 15
 

Hi, 

anybody in here with autoimmune disorder got the vaccine and had wired symptoms? 😢


   
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(@margaret2022)
Very Active Member
Joined: 2 years ago
Posts: 335
 
Posted by: @asanders

Sometimes I think I am getting better but all of a sudden I lose all progress and all my symptoms come back.  June 21st will be my anniversary with the 1st Pz.

The inflammation is so stubborn and it does not stop. Now I have inflamed shoulders and foot. Every now and then my eyes burn with a different kind of pain I've not experienced before. I took antibiotics and it helped a little and now I can use my arms, but still all my muscles start to pulsate when stretched or used heavily.  This pulsation feeling is all over my body.

My blood vessels became so visible sometimes my hands seem to belong to a 90 year old. some of my artilleries especially the ones in my foot have turned red. I dont kow what it means but they were blue before... I live in a constant state of burning pain, pins and needles, sudden jerks, tachycardia , moving pain around my body.... At least my insomnia and tinnutus is now way better. 

I am planning to try a long water fast without any drugs or supplements. I mean at least 7-10 days.  Drbeens video about intermittent fasting maskes sense. He believes that if you dont feed your body then your body and cells should eat all non productive and non-essential cells. I am already living in a continous state of intermittent fasting but unfortunately doing 18 hours of intermittent fasting did not provide any significant progress for me so I want to try longer periods. Actually I've tried 3 days fasting and it did not work too but at that time I took same supplements and coconut oil while fasting.

since no drugs/supplements seems to work for me, my only hope seems to be long fasting but my muscles are already too weak because of continous twitches and pulses. 

I guess I just dont know what to do.

 

 

How long did you notice your tinnitus to improve and how would you describe it was compared to now. How often did you take herbal supplements? Sorry so many questions just looking for hope thanks 


   
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(@mojosunshine)
Active Member
Joined: 2 years ago
Posts: 6
 

@margaret2022 thank you for the links! Yes I’m taking multiple vitamin pills daily so hopefully to see improvements soon, might get started on intermittent fasting


   
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(@mojosunshine)
Active Member
Joined: 2 years ago
Posts: 6
 

Has anyone been exercising all these while even though exercise worsen symptoms? I’m 32 yo and has been active my entire life so to suddenly drop all exercises is a painful change for me. I’ve a bike at home which I’ll try to clock in some 30 mins easy workouts on my good days but just wondering if I’m hindering my own progress.. 


   
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DrL
 DrL
(@nresearcher)
Very Active Member
Joined: 3 years ago
Posts: 86
 

Hopefully Dr. Poland will bring more attention to tinnitus after vaccination as he experienced it.

https://www.msn.com/en-us/health/medical/study-tinnitus-is-widespread-deserves-more-attention-from-researchers/ar-AA10s52g?pc=U531&cvid=b3d8bbe4c75946c09d8e8060d9e1ad83


   
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(@margaret2022)
Very Active Member
Joined: 2 years ago
Posts: 335
 
Posted by: @nresearcher

Hopefully Dr. Poland will bring more attention to tinnitus after vaccination as he experienced it.

https://www.msn.com/en-us/health/medical/study-tinnitus-is-widespread-deserves-more-attention-from-researchers/ar-AA10s52g?pc=U531&cvid=b3d8bbe4c75946c09d8e8060d9e1ad83

That’s what I said but why does it have to take a professional practitioner to be in the same boat as us. Just as Justin beiber is another one i thought that would shed some light to the issue. But he’s back on stage I’m sure he had his own personal physician that treated him with steroids. Lucky him. He seems to be much better. I wonder if that’s all we need is a course treatment of prednisone but I read on here that not all people responded well to it. There was one lady that was on it for 8 weeks and her symptoms completely gone. It’s like posts in the 700 -800’s. I also seen fasting is another way to get rid of toxins fast. anyway I hope everyone is having a good day. 


   
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(@pepms)
Active Member
Joined: 2 years ago
Posts: 48
 

@sweetie a month ago i measured my antibody levels and was 8600, I have tachycardia symptoms and nerve symptoms, like shooting pains, feeling of being poked with a needle, and tingling, do you have that too? i plan to test mine again soon to see how they are decreasing, my moderna booster was end of january


   
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