I was searching for the benefits of castor oil the other day, and I read quite a lot of articles and wathced some videos, they all said that castor oil really did a lot of good. What do you think of this?
Black seed oil is another one. I was taking that for about 2 weeks I felt good but not sure if it was making a difference with my symptoms it was hard to say.
@margaret2022
Hi, I am sorry to hear you are suffering too. I have these symptoms since June 2021 after 2 Moderna vaccines. I enjoyed hell of a road with all kinds of specialists since them (mostly making me feel worse then helping with the issue).
The ground for prescribing SSRIs is vestibular migraine and PPPD diagnose itself. In both cases SSRIs can help to calm down overreacting brain and nervous system. This is something that does not happen over night, it’s a long way run but I am determined to try it (not that I have that many options after 15months of suffering of various debilitating symptoms).
Hanging in there!
m.
Hi Everyone, I used to post a ton in these forums when I first was going thru all my symptoms. Back in November of 2021 is when I started waking up w pins and needles in my arms which eventually turned into the biggest nightmare of my life.
-Numbness
-Muscle weakness
-Back spams
-Muscle twitching, internal tremors
-head aches, brain fog
-Shooting random nerve pain
-anxiety (thought for sure I had MS, ALS or a brain tumor.)
-nausea/GI issues
-Heart problems (pain) they put me on meds for pericarditis
This all started about 1-2 months after my second pfizer vx..some drs say its not that, but most of them say it could be and have no real answers besides "nerve inflammation"
Every day it would be something new...over time I saw so many drs, has MRIS, blood tests...couldnt figure anything out besides my IGG and EBV were high and my D was a little low and D dimer was high.
After a few months of a strict diet and lots of supplements I felt better, back to working out and being a mom again....then in March I got covid for the first known time and a lot of symptoms came flooding back..but again in time they got better. I would say I have been 80-90% better but never 100%
Recently I did start lifting heavier in my workout, but I work out 5-7 days a week and didnt think anything of it at the time. Then within a few days my back started feeling sore on the spine and radiating lower. It got so intense it was making me sick. I got an X ray-normal....Its been a little over a week and now I am feeling the pins and needles again, waking up feeling so strange and fuzzy, brain fog, my feet have the internal tremors again, some muscle twitching all over randomly and I feel just awful. Has anyone has trouble with back spasms? I did have a cold a few weeks ago, I almost wonder if everytime I get sick this is going to happen. I went to a new Dr Wednesday and told her everything. She said shes going to order another MRI with contrast since they did not last time. I am just so scared they are missing something that is happening to me, but then I try to tell myself this has been going on for a year now and its almost like flare ups, not a progressive condition. I still fear the worst (cancer obviously)...It would just be nice to hear from people that can understand my frustrations, really hard to someone who hasnt experienced this nightmare to fully grasp how awful its been.I am only 35 and has two babies under 3 and I just want to feel alive again.
KG
I have to admit I am truly saddened by the severe drop-off of activity on this forum. It was once a treasure trove of information, insights, and experiences from so many people suffering numerous adverse side effects from the Covid vaccines. My symptoms seemed to have subsided after 3-4 months, but have spiked again and it's been another 4 months and I don't see any level of improvement. While my biggest symptom/issue is tinnitus, I also have a constant mild (but still aggravating) headache, tight and sore shoulder and neck muscles, a slight dizziness feeling, and a brain fog/racing brain that is unnerving.
I don't know if I'm just suffering from severe anxiety and depression coming out of the pandemic into a world that des not mirror what it was before Covid, or if it's truly related to the vaccine. If it is anxiety/depression, I'm totally uncomfortable taking any kind of medicine (SSRI's can cause/worsen tinnitus, which I do not need). I wish that folks who have had success / recovery would come back on here to tell their stories to give us hope. I truly don't want to live the rest of my life feeling like this. I feel like a different person than I was just over a year ago.
you are right but that is one the reasons that the activity is less now. I guess everyone here tried all recommended drugs,supplements, treatments and there is nothing left to try, there is nothing left to write.
after 15 months, I guess I am getting used to living with this thing. I still use 24 or 32 mg prednisolone everyday (16 mg morning 8 or 16 mg night)and If I try to decrease the dosage I immediately get worse.
I also started to use tramadol(ultram) and it changed my life. It is an opioid and it is the only pain killer that worked for my bone pain and pins/needles and heat attacks. I no longer feel constant pain but some brief attacks thanks to tramadol. but it is a pain to get prescription because for some reason the doctors are so reluctant to prescribe(they think I might get addicted to it). as long as it stops the pain who cares if I get addicted to it!! apparently my doctors do!!. theyt dont care about my pain, they dont care about how I struggle everyday but they do care if I get addicted to a painkiller....I dont know what to say. So if you have bone pain and pin/needle type neuropaty you should try tramadol. I tried gabapentin , cymbalta, and several other painkillers before tramadol but they had like 0 effect. and the good thing is it has no side effects for me. cymbalta had so many side effects but no real effect at all.
I also tried 10 day continous prolonged water fasting. I was planning to go at least 15 days but unfortunatly I had to stop becauase I lost 8 kilos in 10 days (55 kilos) . I was already underweight to begin with so I had to stop. I realized that I can go easily for 20 days or more. So now I am trying to gain weight and then I will try for a longer period. I felt a lot better after fasting but it was not a cure. many sources about prolonged fasting state that for serious diseases like cancer, autoimmune diseases fasting period should be longer than 30 days and close to 40. I dont know if I can do 30 but I will retry as soon as I am over 75 kilos. (I am 65 kilos now so 10 more kilos left). As your body starts to starve, logically it starts to eat unused/unimportant cells, so the longer the fasting period, the more spike proteins should be removed.
I am still thinking about getting apheresis but my conclusion is that it just gives some temporary relief (at most like 2/3 months for some and no change at all for some) and then everything comes back. so I am not sure if is worth it.
I am lucky Tinnutus and dizziness not come back yet, I still remember the horrible days with nonstop tinnutus. I am still not sure how I get rid of it but perhaps it was the blood cupping done at the back of my ears. They actually let the dirty blood full of with toxins jammed between the cells behind your ear out of your body. so I guess it was how I get rid of tinnutus. it is also called hacamat. I know the procedure seems a little painful but I felt no pain and I was relieved. Now I do hacamat once per month on my back and legs to remove the dirty blood full of with spike proteins, I am pretty sure it helps a lot.
so most of the time my life is very close to normal but I am very worried about my dependence on cortisone. I dont have any short term cortisone side effects, but I am worried about long term side effects of it like osteoperosis/osteonecrosis. I dont really care about tramadol since it seems to have no side effects other than addiction. I am very lucky it worked on me.
Hi there how often were you taking the serc? I tried it in the beginning it did make me nauseous but I didn’t notice if it made a difference at the time when this was alll stated I think I was looking to be normal once again and when It didn’t then I gave up immediately on anything. Because what serc does is improve blood circulation to the ears…I’m wonder if the inflammation to the nerves in our inner ear parts are affected by this. And with improved blood flow can help restore the inflammation, I’m wondering and thinking. I wonder if that’s what happened in your case. And the cupping too makes sense of any heavy metals or toxins in that specific area. Cuz I’m a believer of acupuncture and cupping as acupuncture helped with my back problems. Cured it 95%. After years of suffering. Anyway yeah I was wondering about the dosing too like how much serc a day you were taking? and how often ?
After 18 months my son was finally diagnosed with POTS. This is the first "diagnosis" he has had since getting sick. I suspect there are more things to come, who knows. He was told to take 6-8 grams of salt per day via salt pills and increase water intake. Severe nausea and stomach pain since starting the salt pills. He's working up to a gallon of water a day. This is all so awful.
A must watch
Oh my goodness. I am lost for words. I wish there was someone who would be held accountable for all of us. This sucks. These ppl are still suffering
m
@margaret2022 Any improvement in your T?
No improvement. None what’s so ever. It’s actually getting worse. I’ll be 9 months in soon. And my anti body levels dropped 1000. Was 1927 in April checked sept 2nd they are 900’s. I’m not even sure if it’s related. I’m guessing this vaccine triggered an vestibular injury that’s probably why I felt the pain behind my head followed by that 3 second dizzy spell and now my brain can’t reset itself. Or if it’s inflammation. I’ve read prednisone didn’t do any good for some ppl. With their tinnitus. So I’m not sure anymore. Just hate these rough days. I wish someone could tell me what it is and what to do. Like ohh yeah it’s a nerve issue here take this. Or it’s a mitochondrial issue start on these herbals. Like I never met anyone that even offered to try this or I’ll refer you to this person. There has to be someone out there that knows what labs to test for and see what can be offered to help. I’m worried this tinnitus will get worse and it’ll ruin my life even more. I’m constantly telling people to keep it down at work or at home I feel like such a burden. I might as well stay home and quit my job. So I’m not making others feel miserable. When they’re around me. I just hate it. All I hear is this loud hiss. And my ears are so sensitive. It’s over and over. And every time I go to the doctor I always get worse. I’m not sure anymore. I just feel so beat. I notice too if I have a night of crying my sensitivity gets much worse it does eventually ease up it could take up to a week but it’s still there and still awful. How are you holding up. Also I have issues with my eyes where they feel like they don’t work together. It’s awful. It hurts me to yell. When I’m going grocery shopping too at the supermarket it’s overwhelming for my head and eyes and ears. It’s awful. I hate the government so much. I honestly don’t know if it’s even a vaccine injury because everyone tells me it’s not and I’m starting to believe them. I’m just a ball of mess and all over the place. I was never this type of person as well. This is not me it has changed me. I’m afraid for my marriage and my children. Not sure what this will do for my future. Some days I feel like quitting my nursing job. But I love my job I love my patients. And I love my colleagues well most of them there’s the odd one or two that I think despise me but that’s their problem lol. Anyway my rant of the day.
@margaret2022 Any improvement in your T?
No improvement. None what’s so ever. It’s actually getting worse. I’ll be 9 months in soon. And my anti body levels dropped 1000. Was 1927 in April checked sept 2nd they are 900’s. I’m not even sure if it’s related. I’m guessing this vaccine triggered an vestibular injury that’s probably why I felt the pain behind my head followed by that 3 second dizzy spell and now my brain can’t reset itself. Or if it’s inflammation. I’ve read prednisone didn’t do any good for some ppl. With their tinnitus. So I’m not sure anymore. Just hate these rough days. I wish someone could tell me what it is and what to do. Like ohh yeah it’s a nerve issue here take this. Or it’s a mitochondrial issue start on these herbals. Like I never met anyone that even offered to try this or I’ll refer you to this person. There has to be someone out there that knows what labs to test for and see what can be offered to help. I’m worried this tinnitus will get worse and it’ll ruin my life even more. I’m constantly telling people to keep it down at work or at home I feel like such a burden. I might as well stay home and quit my job. So I’m not making others feel miserable. When they’re around me. I just hate it. All I hear is this loud hiss. And my ears are so sensitive. It’s over and over. And every time I go to the doctor I always get worse. I’m not sure anymore. I just feel so beat. I notice too if I have a night of crying my sensitivity gets much worse it does eventually ease up it could take up to a week but it’s still there and still awful. How are you holding up. Also I have issues with my eyes where they feel like they don’t work together. It’s awful. It hurts me to yell. When I’m going grocery shopping too at the supermarket it’s overwhelming for my head and eyes and ears. It’s awful. I hate the government so much. I honestly don’t know if it’s even a vaccine injury because everyone tells me it’s not and I’m starting to believe them. I’m just a ball of mess and all over the place. I was never this type of person as well. This is not me it has changed me. I’m afraid for my marriage and my children. Not sure what this will do for my future. Some days I feel like quitting my nursing job. But I love my job I love my patients. And I love my colleagues well most of them there’s the odd one or two that I think despise me but that’s their problem lol. Anyway my rant of the day.
@margaret2022: I'm sorry to hear that your tinnitus is not getting any better and is such a source of frustration for you. Reading your comment above, I would say the following: Both my wife and I got tinnitus shortly following our Moderna booster shot. I have had mild tinnitus before from loud noise/concerts, but it had essentially disappeared over the years. My wife has never had it. I think you can be pretty darn sure that your tinnitus is a direct adverse side effect of the covid vaccine. I got my sudden onset 6 weeks after my booster. My ENT said no hearing loss or other issues identified by tests. I started taking many of the recommended vitamins and supplements and it definitely felt that it started to resolve almost totally over a few months. Then, wham, a relapse hit me around early June. Same high-pitched ring/hiss as before. I'd read that people have relapses and then resolve again, so I thought "no big deal". Well it's been 4 months now and no change yet. I'm definitely getting more concerned that this is going to be a permanent situation that could continue to get worse over time. It is now noticeable pretty much all of the time. If I get busy I can forget about it for a while, but as soon as I slow down I can hear it. If it is the vaccine, then it seems it can be the result of 1 of 2 things: 1) inflammation of the cochlear nerve or other vestibular areas; 2) damage of the cochlear nerve or hair cells, etc. Inflammation can be healed, any damage would probably be permanent. Since a lot of people on here have reported periods of resolution followed by relapses, would indicate inflammation vs. damage. Only time is going to tell which it is and if there is any cure or treatment. I am definitely starting to hear from physicians that they have certainly seen quite a number of patients over the past year+ that have reported tinnitus following a vaccine dose. I think the medical community is starting to accept this, but they don't know what to do because pharma, CDC, etc. aren't about to admit this so no one is researching how exactly the vaccines are causing tinnitus and how it can be treated. Unfortunately I don't believe anybody will ever beheld accountable for this. Oh, and I have a few other symptoms, like a constant shoulder and neck muscle pain, constant mild headache on left side (side of tinnitus) and heightened anxiety and and a slight brain fog feeling. I think the best we can to is find vitamins, supplements, foods, etc. that fight inflammation and promote blood flow, and hope the brain/nerve pathway can find a way to ignore the tinnitus signal. As I've noted in other posts, the past 1-2 years have been tremendously stressful for me, and I stopped taking an SSRI in May of this year, so both may be contributing factors to my tinnitus. However, I remain convinced that the vaccine is the cause. Try to stay positive.
Hi everyone!
Thank you so much for all your posts if is really helpful where you otherwise can feel crazy about all this. I’m a 26F in great shape. I took tue Novavax vaccine 4 weeks ago in my right arm and 3 weeks ago I started having tingling in my right foot that spread up to my thigh and lost some sensation too. I also on and off had tingling in my right arm and muscle tension. Went to see a neurologist and she wants to do all these MRIs to make sure it’s nothing serious, but said she frequently saw these symptoms in people who got the COVID shot and they do subside, but it can take weeks to months. Anyways today my leg and arm is no longer tingly but my right knee can feel a bit stiff and I’ve started feeling like I have brain fog and dizziness. Reminds me of when I had COVID and symptoms came and went. Was super scared about all this until I found this forum and saw the symptoms matched perfectly with others. Just wanted to let y’all know and I’ll updated when all is gone just to encourage anyone else who is reading.
@margaret2022 Any improvement in your T?
No improvement. None what’s so ever. It’s actually getting worse. I’ll be 9 months in soon. And my anti body levels dropped 1000. Was 1927 in April checked sept 2nd they are 900’s. I’m not even sure if it’s related. I’m guessing this vaccine triggered an vestibular injury that’s probably why I felt the pain behind my head followed by that 3 second dizzy spell and now my brain can’t reset itself. Or if it’s inflammation. I’ve read prednisone didn’t do any good for some ppl. With their tinnitus. So I’m not sure anymore. Just hate these rough days. I wish someone could tell me what it is and what to do. Like ohh yeah it’s a nerve issue here take this. Or it’s a mitochondrial issue start on these herbals. Like I never met anyone that even offered to try this or I’ll refer you to this person. There has to be someone out there that knows what labs to test for and see what can be offered to help. I’m worried this tinnitus will get worse and it’ll ruin my life even more. I’m constantly telling people to keep it down at work or at home I feel like such a burden. I might as well stay home and quit my job. So I’m not making others feel miserable. When they’re around me. I just hate it. All I hear is this loud hiss. And my ears are so sensitive. It’s over and over. And every time I go to the doctor I always get worse. I’m not sure anymore. I just feel so beat. I notice too if I have a night of crying my sensitivity gets much worse it does eventually ease up it could take up to a week but it’s still there and still awful. How are you holding up. Also I have issues with my eyes where they feel like they don’t work together. It’s awful. It hurts me to yell. When I’m going grocery shopping too at the supermarket it’s overwhelming for my head and eyes and ears. It’s awful. I hate the government so much. I honestly don’t know if it’s even a vaccine injury because everyone tells me it’s not and I’m starting to believe them. I’m just a ball of mess and all over the place. I was never this type of person as well. This is not me it has changed me. I’m afraid for my marriage and my children. Not sure what this will do for my future. Some days I feel like quitting my nursing job. But I love my job I love my patients. And I love my colleagues well most of them there’s the odd one or two that I think despise me but that’s their problem lol. Anyway my rant of the day.
@margaret2022: I'm sorry to hear that your tinnitus is not getting any better and is such a source of frustration for you. Reading your comment above, I would say the following: Both my wife and I got tinnitus shortly following our Moderna booster shot. I have had mild tinnitus before from loud noise/concerts, but it had essentially disappeared over the years. My wife has never had it. I think you can be pretty darn sure that your tinnitus is a direct adverse side effect of the covid vaccine. I got my sudden onset 6 weeks after my booster. My ENT said no hearing loss or other issues identified by tests. I started taking many of the recommended vitamins and supplements and it definitely felt that it started to resolve almost totally over a few months. Then, wham, a relapse hit me around early June. Same high-pitched ring/hiss as before. I'd read that people have relapses and then resolve again, so I thought "no big deal". Well it's been 4 months now and no change yet. I'm definitely getting more concerned that this is going to be a permanent situation that could continue to get worse over time. It is now noticeable pretty much all of the time. If I get busy I can forget about it for a while, but as soon as I slow down I can hear it. If it is the vaccine, then it seems it can be the result of 1 of 2 things: 1) inflammation of the cochlear nerve or other vestibular areas; 2) damage of the cochlear nerve or hair cells, etc. Inflammation can be healed, any damage would probably be permanent. Since a lot of people on here have reported periods of resolution followed by relapses, would indicate inflammation vs. damage. Only time is going to tell which it is and if there is any cure or treatment. I am definitely starting to hear from physicians that they have certainly seen quite a number of patients over the past year+ that have reported tinnitus following a vaccine dose. I think the medical community is starting to accept this, but they don't know what to do because pharma, CDC, etc. aren't about to admit this so no one is researching how exactly the vaccines are causing tinnitus and how it can be treated. Unfortunately I don't believe anybody will ever beheld accountable for this. Oh, and I have a few other symptoms, like a constant shoulder and neck muscle pain, constant mild headache on left side (side of tinnitus) and heightened anxiety and and a slight brain fog feeling. I think the best we can to is find vitamins, supplements, foods, etc. that fight inflammation and promote blood flow, and hope the brain/nerve pathway can find a way to ignore the tinnitus signal. As I've noted in other posts, the past 1-2 years have been tremendously stressful for me, and I stopped taking an SSRI in May of this year, so both may be contributing factors to my tinnitus. However, I remain convinced that the vaccine is the cause. Try to stay positive.
Thank you for the comment. I will try to stay positive. I think I need to start lying to myself with positive self talk. Like with repetitive “I will get better, it will be okay. You are alive and healthy and well. You done all the tests and time to move on.”
but I will share, when I saw the audiologist in July (which spiked my hissing in my head) he tested the hair cells in my ears and he said they are moving fine like they should be and they are normal.he couldn’t see anything wrong with me. Even my hearing sensitivity wasn’t bad. Slightly but not like before but it’s funny after that appointment I felt like that got worse as well. You are right about blood flow that’s why I was thinking of starting serc that increases blood flow to the head and inner ear parts. And a person posted that they stopped their serc after 3-4 months of being on it because their tinnitus resolved but it could be also that they cupped behind their ears. I’d be terrified to try that what if I disrupt the blood flow in that area.
I wish ppl would return and give us updates to let us know how they are doing.
@margaret2022 let me know, I’m curious if they are going up or down, I got 2 Moderna march and April 2021 and then moderna booster January 22, this test was done on June so 5 months post booster
I will definitely update. Do you plan to get another test done ?
Hi did you end up getting another antibody test?
so my results came back in the 900’s.
april 1927
sept 900’s
so it dropped 1000 in 5 months. Another 5 months hopefully zero. And hopefully everything gets better
😩
keep us posted with your levels. It might not be related but it’ll be interesting to see.
@margaret2022 hi! Yes I did get two of them,
June 25th 8601 u/ml
Sep 2nd 5553 u/ml
My booster was january 31st
However, Im not sure it’s related now, symptoms to antibody levels
@margaret2022: Interesting to hear that news from your audiologist. If the hair cells aren’t damaged the. That would just leave the cochlear nerve that could be damaged. Otherwise I guess it would point to inflammation. But then there are the stories about people who got on prednisone quickly and it resolved their hearing loss but not their tinnitus. Very frustrating that they haven’t isolated how the vaccines are causing tinnitus. By the way, what is serc?
@margaret2022: Interesting to hear that news from your audiologist. If the hair cells aren’t damaged the. That would just leave the cochlear nerve that could be damaged. Otherwise I guess it would point to inflammation. But then there are the stories about people who got on prednisone quickly and it resolved their hearing loss but not their tinnitus. Very frustrating that they haven’t isolated how the vaccines are causing tinnitus. By the way, what is serc?
Yeah and if the cochlear is damaged wouldn’t there be hearing loss along with that? Right?