@margaret2022 hey wht did the functional doc tell you. Mine did a metal toxicity test and found levels of mercury, aluminum etc high. So am on a detox plan now with loads of supplement she also will to the OATs testing later that’s where all that mercury lead mould mitochondrial stuff comes in
she wants to do routine bloodwork first then we will go from there but she’s checking b12 CRP esr vit d tsh zinc mg hba1c iron cbc then she told me to track my water intake and start the melatonin to get my cortisol levels lower…she didn’t want to order all of the other blood work just yet…
I found an interesting information on another forum:
Non-invasive detection of small nerve fibre loss in post-covid symptome
This is a phenomenon I keep coming across on different forums, many people are having relapses right at this time of year, me included. Mine started 2 weeks ago and a lot of my original symptoms like vertigo came back and the burning skin is particularly bad. We’re learning that new variants are doing the rounds so it could be this, and where I live, it’s the rainy season so pressure changes can also aggravate neuropathy. I just hope this isn’t undoing all the progress!
Oh my goodness i am having a relapse. I got covid over Christmas now I am having heart flutters..which started about a week after my covid…then I ended up with vertigo one morning…about a week after heart palpitations started and the vertigo went away when I got up…I got nauseous to with it…then I started to get head pressure towards the day afternoon…now I have like an electrical nerve shot feeling in my body like I feel im on edge or nervous…my hearing sensitivity is pretty bad too where I feel dizzy when around loud sounds. Not sure what’s going on. Question for you when you had your relapse did you get covid or have anything viral? Just wondering what brought this on. Or if it’s even covid related relapse…I’m at home I feel so sick..like nauseous…I have an appointment today hopefully I can get more time off work.
This is a phenomenon I keep coming across on different forums, many people are having relapses right at this time of year, me included. Mine started 2 weeks ago and a lot of my original symptoms like vertigo came back and the burning skin is particularly bad. We’re learning that new variants are doing the rounds so it could be this, and where I live, it’s the rainy season so pressure changes can also aggravate neuropathy. I just hope this isn’t undoing all the progress!
Oh my goodness i am having a relapse. I got covid over Christmas now I am having heart flutters..which started about a week after my covid…then I ended up with vertigo one morning…about a week after heart palpitations started and the vertigo went away when I got up…I got nauseous to with it…then I started to get head pressure towards the day afternoon…now I have like an electrical nerve shot feeling in my body like I feel im on edge or nervous…my hearing sensitivity is pretty bad too where I feel dizzy when around loud sounds. Not sure what’s going on. Question for you when you had your relapse did you get covid or have anything viral? Just wondering what brought this on. Or if it’s even covid related relapse…I’m at home I feel so sick..like nauseous…I have an appointment today hopefully I can get more time off work.
Interesting because for me it was around November 21' that my symptoms appeared (a few weeks after VX and also after a Virus that was not covid), and then this year around the same time it all came back pretty fiercely after a cold/virus (maybe covid? who knows)...I am going on 12 weeks now and several wasted appointments/labs/imaging at every dr..still no answer. I decided I am done trying to seek out every specialist, they all have theyre own narrative and all it does it make my anxiety worse hearing more and more horrible diseases that exist. I am sticking to my integrative Dr and all my supplements, healthy diet and I finally started exercising again after months..I feel weak and shaky but I think that will get better over time. My back pain and spasms are starting to dissipate, along with nerve pain and pains and needles, ringing in my ear and gi issues...my vision I think will always be wacky and I can live with that for now I just want to get thru this relapse, hope my shaky muscles improve and pray sometime soon someone comes up with an explanation. Seems like this is starting to become more and more common so it has to be acknowledged at some point.
Side note...warmer weather seems to be my only time I feel great...whether vacation or summertime, I barely had any symptoms, as soon as the cold weather hit everything seemed to start back up, not sure if that is coincidental or not.
This is a phenomenon I keep coming across on different forums, many people are having relapses right at this time of year, me included. Mine started 2 weeks ago and a lot of my original symptoms like vertigo came back and the burning skin is particularly bad. We’re learning that new variants are doing the rounds so it could be this, and where I live, it’s the rainy season so pressure changes can also aggravate neuropathy. I just hope this isn’t undoing all the progress!
Oh my goodness i am having a relapse. I got covid over Christmas now I am having heart flutters..which started about a week after my covid…then I ended up with vertigo one morning…about a week after heart palpitations started and the vertigo went away when I got up…I got nauseous to with it…then I started to get head pressure towards the day afternoon…now I have like an electrical nerve shot feeling in my body like I feel im on edge or nervous…my hearing sensitivity is pretty bad too where I feel dizzy when around loud sounds. Not sure what’s going on. Question for you when you had your relapse did you get covid or have anything viral? Just wondering what brought this on. Or if it’s even covid related relapse…I’m at home I feel so sick..like nauseous…I have an appointment today hopefully I can get more time off work.
Interesting because for me it was around November 21' that my symptoms appeared (a few weeks after VX and also after a Virus that was not covid), and then this year around the same time it all came back pretty fiercely after a cold/virus (maybe covid? who knows)...I am going on 12 weeks now and several wasted appointments/labs/imaging at every dr..still no answer. I decided I am done trying to seek out every specialist, they all have theyre own narrative and all it does it make my anxiety worse hearing more and more horrible diseases that exist. I am sticking to my integrative Dr and all my supplements, healthy diet and I finally started exercising again after months..I feel weak and shaky but I think that will get better over time. My back pain and spasms are starting to dissipate, along with nerve pain and pains and needles, ringing in my ear and gi issues...my vision I think will always be wacky and I can live with that for now I just want to get thru this relapse, hope my shaky muscles improve and pray sometime soon someone comes up with an explanation. Seems like this is starting to become more and more common so it has to be acknowledged at some point.
Side note...warmer weather seems to be my only time I feel great...whether vacation or summertime, I barely had any symptoms, as soon as the cold weather hit everything seemed to start back up, not sure if that is coincidental or not.
@kg1986: I totally understand about being done trying to seek out answers from a myriad of physicians/specialists. They either don't know what's really going on, or are dismissing it because it hasn't been "proven" in clinical trials, etc. I find that doctors, in general, are loathe to admit to something new or something they're not aware of. It's not that they're wrong with respect to traditional tests, etc. not showing anything wrong with folks like us. It's just that they don't know what to do next when that happens. I'm curious on two things: 1) you mentioned tinnitus and that it is starting to dissipate. Was yours pretty bad and how long did it take to start to resolve? 2) did you or are you also having heightened anxiety/panic attacks? I've been going thru that for a while now but it could be that I stopped taking my SSRI in the middle of all this because of "fear of it making my tinnitus worse" (I should have never gone down the google rabbit hole on that). Also, did you ever have an ANA test and did it show any elevated ANA antibodies? I hope you continue to get better.
This is a phenomenon I keep coming across on different forums, many people are having relapses right at this time of year, me included. Mine started 2 weeks ago and a lot of my original symptoms like vertigo came back and the burning skin is particularly bad. We’re learning that new variants are doing the rounds so it could be this, and where I live, it’s the rainy season so pressure changes can also aggravate neuropathy. I just hope this isn’t undoing all the progress!
Oh my goodness i am having a relapse. I got covid over Christmas now I am having heart flutters..which started about a week after my covid…then I ended up with vertigo one morning…about a week after heart palpitations started and the vertigo went away when I got up…I got nauseous to with it…then I started to get head pressure towards the day afternoon…now I have like an electrical nerve shot feeling in my body like I feel im on edge or nervous…my hearing sensitivity is pretty bad too where I feel dizzy when around loud sounds. Not sure what’s going on. Question for you when you had your relapse did you get covid or have anything viral? Just wondering what brought this on. Or if it’s even covid related relapse…I’m at home I feel so sick..like nauseous…I have an appointment today hopefully I can get more time off work.
Interesting because for me it was around November 21' that my symptoms appeared (a few weeks after VX and also after a Virus that was not covid), and then this year around the same time it all came back pretty fiercely after a cold/virus (maybe covid? who knows)...I am going on 12 weeks now and several wasted appointments/labs/imaging at every dr..still no answer. I decided I am done trying to seek out every specialist, they all have theyre own narrative and all it does it make my anxiety worse hearing more and more horrible diseases that exist. I am sticking to my integrative Dr and all my supplements, healthy diet and I finally started exercising again after months..I feel weak and shaky but I think that will get better over time. My back pain and spasms are starting to dissipate, along with nerve pain and pains and needles, ringing in my ear and gi issues...my vision I think will always be wacky and I can live with that for now I just want to get thru this relapse, hope my shaky muscles improve and pray sometime soon someone comes up with an explanation. Seems like this is starting to become more and more common so it has to be acknowledged at some point.
Side note...warmer weather seems to be my only time I feel great...whether vacation or summertime, I barely had any symptoms, as soon as the cold weather hit everything seemed to start back up, not sure if that is coincidental or not.
what symptoms are experiencing? Sorry if you listed them. But have they worsened? I just feel like covid damaged my inner ear. I started taking prenatal vitamin. Vit c, vit d, magnesium, I feel like I need to support my mitochondrial, I joined Facebook groups and there’s a lady there too that was getting the same symptoms at me. And she did fasting and she shows her regimen of supplements and she’s healed her hyperacusis (sensitive hearing as well). I feel like it damaged my nerve that controls my ear and eye.
@thisistoomuch
My tinnitus was never the worst symptom I had tbh. I noticed it mostly when I was in a quiet environment. My anxiety was at an all time high when this all started last year and once again I feel the same. Constant fear, having to make myself eat, racing heart etc. I have had Drs go from one saying its the VX or Long Covid, to another saying its anxeity, to another throwing around MS and Parkinsons so the fear definitely stems from the unknown. I am pretty POSITIVE you don't wake up with Parkinsons and have all my symptoms. I have no hand tremors at rest. I did have random muscle twitches in my legs, stomach, back etc but they are very few and far between now. My shaking is A) way worse when I am nervous B) it is more muscle weakness than anything, like they quiver when I flex my bicep, or do a leg lift on all fours. That got better during the summer and all started again a few months ago. My vision is not so much blurry I actually have great vision and have seen an ophthalmologist. I just look at certain things and they will look like they are moving/shaking its so strange but that has never really gotten better. I get really dizzy at times especially going from sitting to standing I feel like I am going to faint and have to just catch my breath more than usual. I get random flutters esp at night I notice my heart feels funny, not all the time. The nerve pain (last year when this started I had horrible shooting pain all over randomly) has gotten almost 90% better. I do get random little aches and pains I have never experienced before all this. But they don't last long. In the beginning it affected my hands and fingers, could barely type or text and felt arthritic, hard to explain..this time that never came back. Brain fog comes and goes tho. Headaches have gone, rarely get those sharp pains anymore (ice pick headaches)
Of all the labs this is what I have found:
ANA positive 1:160...always have been since I was in my 20's I found this out when I had achy joints they checked me for all types of auto immune diseases but determined it was nothing and that some people just have positive ANA
CBC has been normal every time
IGG-M slightly high
Vitamin D was lower last year but normal now
My EBV is super high, but Drs keep saying its from having mono and its not active now, but IDK why it would be so high
Metabolic Panel is normal
Creatine Kinase normal but my Ck-MM is a little low
D dimer was high in the beginning (also was on meds for pericarditis after VX) That is now normal and I take Natto which is great for "micro clots" too
Cervical/Thoracic and Lumbar all normal (had a hemangioma which is nothing)
Abdominal ultrasound is normal
ECHO-normal
EKG- abnormal until a few weeks ago had my first normal one
Nerve test was normal last year
Brain MRI (had 2- 1 year apart) had 3 very tiny white spots but nothing indicative of MS or anything serious
Alk Phos has always been low
C Reactive was normal but there was another one they did for inflammation that was high
Integrative Dr did special lyme tests which showed I have had lyme and also had an active CO infection..so I am on antibiotics currently...maybe has helped some but I dont believe thats the whole issue at hand, maybe just was brought out like the EBV from the VX..seems it can bring thing out that may have been dormant, Viruses ETC
All my other rheumatology panels were normal except 1 early marker for Sjogren's, which they were not concerned with.
Keep in mind, if everyone had as many blood tests as I have had I am sure there will always be something, so I try not to jump to conclusions
My cardiologist has told me more than any other DR that this VX has been a major disaster and there are many people such as myself with strange issues, so like I said before it IS being talking about. His wife deals with VX injury reports for certain counties where I live and there are a ton. I never even reported mine so think of how many people arent even accounted for or may not even realize their symptoms are related to this. Long covid and VX injuries are super similar to each other which I find interested. I also have to imagine so of the issues lie in the spike proteins which is why I may do the OZONE to detoxify my blood.
For now I have started working out after a 3 month break, so that could be why I feel extra weak and shaky...I also in the mean time had my annual breast MRI and need and ultrasound now because they saw something tiny (this has happened before I have super dense tissue) but its just adding to my already out of control nervous system lol. I feel like I am on flight or fight mode all the time. I started taking melatonin at night which has really helped me sleep. Hopefully that turns out to be nothing serious and I am honestly going to just focus on enjoying my life again and not schedule appts every week with different dr's. I have a 1 and 3 year old and this has taken away from my family as a whole. If my friends and family didnt see the things that have happened to me they would think I was a hypochondriac. My muscle weakness was so bad in the beginning my husband had to help me up and down stairs, so looking on the bright side I still think I am better now than I was...and even tho these flare ups come and go and change their symptoms, they do go away.
I take the following supplements:
NAC
Alpha Lipoic acid
Zinc (liquid form)
b12
A heavy metal detox liquid
Lemon balm (liquid)
Turmeric (liquid)
Vitamin D/Calcium/Magnesium
Glutathione paste
Lots of probiotics (I am on antibiotics for the LYME)
Green vibrance/collagen/vitamin C/wheat grass powder mixed together w water
NATTO/Milk Thistle
I try to eat a healthy diet with less red meat and more fish veggies and healthy proteins.
I also take magnesium baths at home, use our infrared sauna and steam shower almost everyday for detox
I go to a place and also do the HBOT1-2 times a week and I may also do OZONE.
I am trying it all!!
This is a phenomenon I keep coming across on different forums, many people are having relapses right at this time of year, me included. Mine started 2 weeks ago and a lot of my original symptoms like vertigo came back and the burning skin is particularly bad. We’re learning that new variants are doing the rounds so it could be this, and where I live, it’s the rainy season so pressure changes can also aggravate neuropathy. I just hope this isn’t undoing all the progress!
Oh my goodness i am having a relapse. I got covid over Christmas now I am having heart flutters..which started about a week after my covid…then I ended up with vertigo one morning…about a week after heart palpitations started and the vertigo went away when I got up…I got nauseous to with it…then I started to get head pressure towards the day afternoon…now I have like an electrical nerve shot feeling in my body like I feel im on edge or nervous…my hearing sensitivity is pretty bad too where I feel dizzy when around loud sounds. Not sure what’s going on. Question for you when you had your relapse did you get covid or have anything viral? Just wondering what brought this on. Or if it’s even covid related relapse…I’m at home I feel so sick..like nauseous…I have an appointment today hopefully I can get more time off work.
Interesting because for me it was around November 21' that my symptoms appeared (a few weeks after VX and also after a Virus that was not covid), and then this year around the same time it all came back pretty fiercely after a cold/virus (maybe covid? who knows)...I am going on 12 weeks now and several wasted appointments/labs/imaging at every dr..still no answer. I decided I am done trying to seek out every specialist, they all have theyre own narrative and all it does it make my anxiety worse hearing more and more horrible diseases that exist. I am sticking to my integrative Dr and all my supplements, healthy diet and I finally started exercising again after months..I feel weak and shaky but I think that will get better over time. My back pain and spasms are starting to dissipate, along with nerve pain and pains and needles, ringing in my ear and gi issues...my vision I think will always be wacky and I can live with that for now I just want to get thru this relapse, hope my shaky muscles improve and pray sometime soon someone comes up with an explanation. Seems like this is starting to become more and more common so it has to be acknowledged at some point.
Side note...warmer weather seems to be my only time I feel great...whether vacation or summertime, I barely had any symptoms, as soon as the cold weather hit everything seemed to start back up, not sure if that is coincidental or not.
what symptoms are experiencing? Sorry if you listed them. But have they worsened? I just feel like covid damaged my inner ear. I started taking prenatal vitamin. Vit c, vit d, magnesium, I feel like I need to support my mitochondrial, I joined Facebook groups and there’s a lady there too that was getting the same symptoms at me. And she did fasting and she shows her regimen of supplements and she’s healed her hyperacusis (sensitive hearing as well). I feel like it damaged my nerve that controls my ear and eye.
I have a holter monitor on right now for two days I’ve been getting a fast heart rate and some flutters and palpitations on exertion. But it subsides with rest. And how my head feels tight my hearing sensitivity is worse to the point I’m dizzy when I hear something loud. And I get sore or headaches around my eyes. Not sure if this is even a relapse anymore. Or something else. I’m kinda freaking out cuz my eyes are really bothering me they’re not workkkg together properly like inhave medicine head or something and pressure maybe? Not sure
I have a holter monitor on right now for two days I’ve been getting a fast heart rate and some flutters and palpitations on exertion. But it subsides with rest. And how my head feels tight my hearing sensitivity is worse to the point I’m dizzy when I hear something loud. And I get sore or headaches around my eyes. Not sure if this is even a relapse anymore. Or something else. I’m kinda freaking out cuz my eyes are really bothering me they’re not workkkg together properly like inhave medicine head or something and pressure maybe? Not sure
@margaret2022: I am getting a 48 hour Holter next Friday. I have also recently started to have some heart-related symptoms: palpitations (PVCs), rapid heart rate when standing up, flutters. I saw a Cardiologist last week. They did say that a high percentage of people have these symptoms and it's usually nothing to worry about. But I'm not taking chances. I have no idea if it's vaccine-related or not, but I'm not taking chances when it comes to my heart. Of course, once i feel a new symptom I get all hypochondriacal and start googling it and end up deep down another rabbit hole. Let me know what your holter results are. I know there has been a lot written about the vaccine potentially causing micro-clots. May need to get that tested next (I believe that's the D-dimer lab test). Best wishes and stay positive.
@gingerjones Did your liver enzymes came back to normal level again? And what do you think it helped?
Hope you are better! Stay strong
F.
@thisistoomuch
My tinnitus was never the worst symptom I had tbh. I noticed it mostly when I was in a quiet environment. My anxiety was at an all time high when this all started last year and once again I feel the same. Constant fear, having to make myself eat, racing heart etc. I have had Drs go from one saying its the VX or Long Covid, to another saying its anxeity, to another throwing around MS and Parkinsons so the fear definitely stems from the unknown. I am pretty POSITIVE you don't wake up with Parkinsons and have all my symptoms. I have no hand tremors at rest. I did have random muscle twitches in my legs, stomach, back etc but they are very few and far between now. My shaking is A) way worse when I am nervous B) it is more muscle weakness than anything, like they quiver when I flex my bicep, or do a leg lift on all fours. That got better during the summer and all started again a few months ago. My vision is not so much blurry I actually have great vision and have seen an ophthalmologist. I just look at certain things and they will look like they are moving/shaking its so strange but that has never really gotten better. I get really dizzy at times especially going from sitting to standing I feel like I am going to faint and have to just catch my breath more than usual. I get random flutters esp at night I notice my heart feels funny, not all the time. The nerve pain (last year when this started I had horrible shooting pain all over randomly) has gotten almost 90% better. I do get random little aches and pains I have never experienced before all this. But they don't last long. In the beginning it affected my hands and fingers, could barely type or text and felt arthritic, hard to explain..this time that never came back. Brain fog comes and goes tho. Headaches have gone, rarely get those sharp pains anymore (ice pick headaches)
Of all the labs this is what I have found:
ANA positive 1:160...always have been since I was in my 20's I found this out when I had achy joints they checked me for all types of auto immune diseases but determined it was nothing and that some people just have positive ANA
CBC has been normal every time
IGG-M slightly high
Vitamin D was lower last year but normal now
My EBV is super high, but Drs keep saying its from having mono and its not active now, but IDK why it would be so high
Metabolic Panel is normal
Creatine Kinase normal but my Ck-MM is a little low
D dimer was high in the beginning (also was on meds for pericarditis after VX) That is now normal and I take Natto which is great for "micro clots" too
Cervical/Thoracic and Lumbar all normal (had a hemangioma which is nothing)
Abdominal ultrasound is normal
ECHO-normal
EKG- abnormal until a few weeks ago had my first normal one
Nerve test was normal last year
Brain MRI (had 2- 1 year apart) had 3 very tiny white spots but nothing indicative of MS or anything serious
Alk Phos has always been low
C Reactive was normal but there was another one they did for inflammation that was high
Integrative Dr did special lyme tests which showed I have had lyme and also had an active CO infection..so I am on antibiotics currently...maybe has helped some but I dont believe thats the whole issue at hand, maybe just was brought out like the EBV from the VX..seems it can bring thing out that may have been dormant, Viruses ETC
All my other rheumatology panels were normal except 1 early marker for Sjogren's, which they were not concerned with.
Keep in mind, if everyone had as many blood tests as I have had I am sure there will always be something, so I try not to jump to conclusions
My cardiologist has told me more than any other DR that this VX has been a major disaster and there are many people such as myself with strange issues, so like I said before it IS being talking about. His wife deals with VX injury reports for certain counties where I live and there are a ton. I never even reported mine so think of how many people arent even accounted for or may not even realize their symptoms are related to this. Long covid and VX injuries are super similar to each other which I find interested. I also have to imagine so of the issues lie in the spike proteins which is why I may do the OZONE to detoxify my blood.
For now I have started working out after a 3 month break, so that could be why I feel extra weak and shaky...I also in the mean time had my annual breast MRI and need and ultrasound now because they saw something tiny (this has happened before I have super dense tissue) but its just adding to my already out of control nervous system lol. I feel like I am on flight or fight mode all the time. I started taking melatonin at night which has really helped me sleep. Hopefully that turns out to be nothing serious and I am honestly going to just focus on enjoying my life again and not schedule appts every week with different dr's. I have a 1 and 3 year old and this has taken away from my family as a whole. If my friends and family didnt see the things that have happened to me they would think I was a hypochondriac. My muscle weakness was so bad in the beginning my husband had to help me up and down stairs, so looking on the bright side I still think I am better now than I was...and even tho these flare ups come and go and change their symptoms, they do go away.
I take the following supplements:
NAC
Alpha Lipoic acid
Zinc (liquid form)
b12
A heavy metal detox liquid
Lemon balm (liquid)
Turmeric (liquid)
Vitamin D/Calcium/Magnesium
Glutathione paste
Lots of probiotics (I am on antibiotics for the LYME)
Green vibrance/collagen/vitamin C/wheat grass powder mixed together w water
NATTO/Milk Thistle
I try to eat a healthy diet with less red meat and more fish veggies and healthy proteins.
I also take magnesium baths at home, use our infrared sauna and steam shower almost everyday for detox
I go to a place and also do the HBOT1-2 times a week and I may also do OZONE.
I am trying it all!!
@kg1986: Thank you for your reply and detailed information. Sorry to hear about how many adverse side effects that you have dealt with, but glad to hear you are doing much better with many of them. A few comments come to mind:
- I have read form many people on here that some of their doctors have irresponsibly thrown out potential diagnoses like MS, Parkinsons, ALS, without a full work-up of symptoms and tests. That only serves to heighten already elevated levels of anxiety. I have not read anywhere that the Covid mRNA vaccines cause either of those diseases.
- I also had a positive ANA test at 1:160. I followed up with a rheumatologist who order a 9-test panel and everything came back “normal” except for an elevated ssDNA (single strand DNA). Apparently, in the absence of any other symptoms, etc., this is considered a not significant finding and no reason for any follow-up tests. Did you have any ANA tests beyond the first one? Maybe I should get a D-dimer lab test.
- I noticed your comment about constantly feeling in a “fight or flight” mode. This is exactly wat I’ve been dealing with for most of the past year. For no reason at all and in totally normal, non-stressful situations, I find it stressful just to get sentences out without feeling short of breath and tightness in my chest. From what I’ve read the vaccine (and out immune response) can enter and impact the Vagus nerve, which essentially controls our parasympathetic nervous system. This “fight or flight” feeling can be a direct result of that. Not sure if/how long it takes to self-resolve.
- Interesting that your cardiologist is the specialist that is basically admitting that the vaccines have definitely caused so many issues that they are seeing in their patients. I recently had a cardiology visit (due to heart palpitations, rapid heart rate, etc.) and will be getting an echocardiogram and a 48 hour Holter monitor next week. I’m hoping it’s nothing more than anxiety-driven (my understanding is that a very high percentage of people have palpitations, or PVCs).
I hope you continue to get better. Please keep us all posted on your efforts and results. Take care and stay positive.
I have a holter monitor on right now for two days I’ve been getting a fast heart rate and some flutters and palpitations on exertion. But it subsides with rest. And how my head feels tight my hearing sensitivity is worse to the point I’m dizzy when I hear something loud. And I get sore or headaches around my eyes. Not sure if this is even a relapse anymore. Or something else. I’m kinda freaking out cuz my eyes are really bothering me they’re not workkkg together properly like inhave medicine head or something and pressure maybe? Not sure
@margaret2022: I am getting a 48 hour Holter next Friday. I have also recently started to have some heart-related symptoms: palpitations (PVCs), rapid heart rate when standing up, flutters. I saw a Cardiologist last week. They did say that a high percentage of people have these symptoms and it's usually nothing to worry about. But I'm not taking chances. I have no idea if it's vaccine-related or not, but I'm not taking chances when it comes to my heart. Of course, once i feel a new symptom I get all hypochondriacal and start googling it and end up deep down another rabbit hole. Let me know what your holter results are. I know there has been a lot written about the vaccine potentially causing micro-clots. May need to get that tested next (I believe that's the D-dimer lab test). Best wishes and stay positive.
its really hard to get any bloodwork because there’s no reason for it is what I’m told and that’s very frustrating. I totally understand what you mean about googling your symptoms. I do the same and I hate it. I found Facebook groups that seem helpful. I am not sure what to do from here. I haven’t felt and heart flutters recently maybe only once since I out the holter on also I’m at home for 2 weeks gonna try and get better. I do miss work a lot I miss my colleagues. I’m supposed to get an echo too at some point after my holter. I didn’t see a cardiologist this time around but I did see him In September. I’m supposed to get a stress test done in march. However I am afraid. It’s been a year since I ran. Not sure what covid or the vax did to me or if it was even vax and not something else. I have an appointment on the 19th with a doctor so I’m hoping they would draw a d dimer. I will keep you posted with my results of the holter. It’s hard to stay positive these days. Hopefully it does get better.
Study: changes of ECG parameters
https://link.springer.com/article/10.1007/s00431-022-04786-0
@ksharky13They did do several panels, and nothing came back to out of the ordinary, my rheumatologist just said follow up with them every 6 months. I get the weird feeling in my chest too, and sometimes I think thats why I feel like my whole body is vibrating when I lay down I think its more my heart and my anxiety. My BP seems to be very low at times, which may be why I get SO dizzy when I go from sitting to standing. The one thing that hasn't really come back is the shooting nerve pains, in the beginning I had horrible electrical shock type pains from my head to my teeth all the way to my legs. Just tells me this is not some sudden onset of Parkinsons or ALS or anything, it changes, it get better, it gets worse again, I never know what I am waking up to from day to day.
I still take colchicine for the heart inflammation. I just read an article that says since Covid 19, more than 40 million new people have been diagnosed with some type of neurological issue. I think I need to just take a serious break from Dr's besides my integrative guy who is AMAZING. I just hope over the next 6 months things calm down again, seems like the summer is the best time for me. PS here is that article: