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Covid-19 Vaccine side effects

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Holly D
(@hollyd)
Eminent Member
Joined: 8 months ago
Posts: 42
 

@lonestar92s

Hi Andrew - I got my first vaccine on January 22nd and started with about same as you 4 days later. Wound up in hospital the fifth day as I could not even open my eyes without non stop throwing up.
I am going on over 12 weeks of this now but must say the dizziness is so much better! Bad ear pressure, tinnitus and practically no hearing in my left ear still present in varying degrees. Not sure of the similarities, though...I am 65 and in pretty good health but maybe not the best shape, no pre-existing issues other than occasional migraines. Seems we all vary across so many lines of age, sex, health, and pre-existing issues.
I'd love to hear how the acupuncture goes! I have been massaging the corresponding pressure points to the ears. Not sure if it is helping, but can't hurt!

Have you reported on the VAERS site? https://vaers.hhs.gov/
I hope everyone reports their side effects so they can get some attention brought to this.


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Irene
(@ireneyoung)
New Member
Joined: 6 months ago
Posts: 1
 
Posted by: @wolf1476

Has anyone that has received any of the new Covid Vaccines, did you experience any increased dizziness or other symptoms?

HI yes a couple of days after receiving my first vaccine in FEBRUARY I began to feel dizzy I didn’t know what was happening with me at the time but it seems I was going on a horrible journey. After the 2nd vaccine things got worse.  One morning I got up from bed & fell flat out injuring My shoulder &ended up in A&E. it has been horrendous the vertigo, the tinnitus, sore heads, problems with my eyes & head I need sticks to help me walk, I have all the same as everyone on this forum & it’s now 9weeks & I still have it. That’s it I will never get another vaccine again.


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Rob S
(@ny01)
Active Member
Joined: 7 months ago
Posts: 8
 

All your symptoms are so common and I think you will find the Facebook group "Tinnitus and Hearing Loss/Impairment after COVID vaccination" helpful.  There are over 1,300 members and sadly seeing 50-100 people add a day.  Some people are recovering and there is great discussion on this affliction and potential treatments.  All of this is beyond infuriating as I am still suffering tinnitus/vertigo 3 weeks out from my 2nd Moderna.  


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dragonlover
(@isismadec)
Estimable Member
Joined: 8 months ago
Posts: 206
 
Posted by: @hollyd

@isismadec

Hi Dragonlover - I have had the loss of hearing in my left ear. Beside the dizziness (which is definitely better than it was) I basically have no hearing in my left ear.. except of course the loud, constant tinnitus. The deafness, pressure and ringing come and go in varying degrees - good days and bad days - but I never have my hearing back full. It might come up to about less than half hearing but everything is very garbled.

ENT did a hearing test on one of my good days - said it has gotten worse since my first test weeks before. Haha - I did not need a test to tell me that! She also said that generally Meniere's Disease would affect younger people and generally goes away with age. Not sure if that is the case but I am 65 and have never had any issues before (although I do get migraines here and there and that seems to be a common thread here too).

I'm not suggesting that anyone has developed Meniere's all of a sudden--only saying that what people are experiencing sounds very much like what those of us with Meniere's experience.  I have no idea of what that might mean or not mean, since I am not a medical professional.  And at this point, I don't think even the doctors know because this is all so new.   What I am speculating is if this is "Meniere's Syndrome", which is Meniere's-like symptoms which are caused for reasons other than Meniere's itself.

I beg to differ that Meniere's goes away with age.  I'm 67, have had Meniere's since I was young--and still have a lot of problems with it.  The last ENT I saw told me that the disease sometimes burns out over time, but not always.

www.menieres.org  If you have not read the forums there, please do.  Lots of good information there.


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Holly D
(@hollyd)
Eminent Member
Joined: 8 months ago
Posts: 42
 

@isismadec

Thanks for the link. You are right - it is all so new. It certainly does sound very similar to Meniere's. I cannot imagine what you have had to go through for so many years? Have you found anything that helps at all?
Hopefully everyone who is experiencing vaccine related side effects is sharing their experiences on the VAERS CDC reporting site so more doctors and people can know about these vaccine side effects, esp if they already have pre-existing vestibular or tinnitus issues.


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Meg
 Meg
(@meggybee)
New Member
Joined: 6 months ago
Posts: 1
 

I also experienced dizziness and nausea about 10 days out from my Johnson and Johnson COVID vaccine. Had the sensation that you sometimes get if you take too much cold medicine—swimmy headed. Also extreme fatigue. Finally started feeling better 16 days out. No more nausea or dizziness. 


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dragonlover
(@isismadec)
Estimable Member
Joined: 8 months ago
Posts: 206
 
Posted by: @hollyd

@isismadec

Thanks for the link. You are right - it is all so new. It certainly does sound very similar to Meniere's. I cannot imagine what you have had to go through for so many years? Have you found anything that helps at all?
Hopefully everyone who is experiencing vaccine related side effects is sharing their experiences on the VAERS CDC reporting site so more doctors and people can know about these vaccine side effects, esp if they already have pre-existing vestibular or tinnitus issues.

I had surgeries on both ears, in 1974 and 1993  that did away with the severe vertigo, so far.  Mostly I deal with the blocked feeling, tinnitus and hearing loss.  Unfortunately nothing has really helped.  There is a pharmaceutical company working on something to treat Meniere's but from what I understand, it's still a couple of years away.  I was only 17 when I got the Meniere's in the first ear; 39 when it went to the second year.  I wouldn't wish it on my worst enemy.


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Jim H
(@mrjimsir)
New Member
Joined: 6 months ago
Posts: 1
 

The night I got my second shot of the Pfizer-BioNTech COVID-19 vaccine I woke up with a high fever that lasted only 6 hours. By morning all I had was a little ache in my shoulder.

I started getting dizzy when I lie down beginning 3 weeks after my second shot. I can keep it at bay if I lie down slowly. I'm a swimmer, and at first this really screwed up my back stroke, and made me afraid to try flip turns.

I also had traces of nausea, like if I had had too much wine the night before.

The nausea is gone, and the vertigo is slowly going away, 4 weeks after the 2nd shot.

I'm going to see my D. O. tomorrow, and I'm considering reporting  to Pfizer and/or the VAERS.

I hasten to add that I'm still very glad I got immunized, and this is all much better than getting the RONA.

 


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RahulMantri
(@rahtrip)
New Member
Joined: 6 months ago
Posts: 2
 

@ny01 I'm on the same boat as you. I had my Moderna 2nd shot on 3/11 and from 3/23+3/24 onwards I started to notice ringing in both ears with the left being a bit more prominent.

I went to the ENT on 3/27 and they did a hearing test and said my hearing came back normal and that I have no hearing loss. I told them that the only thing that changed was that I got the vaccine within the last few weeks. They asked if I use headphones etc., I told them yes but at very low volumes. I even pulled out the iOS Health App to show the volume decibel levels. The ENT dismissed that me having had Covid prior in April of 2020, or having a BPPV flare up in the August of 2020 (fixed with the Epley), and getting the vaccine might have caused a strong immune/inflammatory response in my body and attacked my inner ears. He didn't think there was even a link and didn't want to blame the vaccine as "there isn't data or evidence to say that vaccine causes these issues." He said to not use headphones for a month, over the ear or in ear. Also said to not use the Bose Sleepbuds 2 at night to help fall asleep, not even at low volume. I haven't touched my headphones in over a month...

Now within the last two weeks I've also started to experience dizziness, imbalance, minor headaches, and nausea. I went to see a Neurologist and he had me get a blood test, CT scan w/ and w/out contrast. Everything came back normal and they keep telling me that I'm a perfectly healthy 33 year old. 

Next step is to get an MRI w/ and w/out contrast because they want to check for tumors in the back of the head etc. 

This has been incredibly frustrating and I've had to put some travel plans on hold until I can feel close to 100% again. 

^ IDK if anyone is on the same boat as me 🙁 


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RahulMantri
(@rahtrip)
New Member
Joined: 6 months ago
Posts: 2
 

@isismadec What surgeries did you have, if you don't mind me asking?


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Rraymo11
(@rraymo1123)
Eminent Member
Joined: 7 months ago
Posts: 39
 

I’ve mentioned this before, but what if we made a Facebook support page?  I joined the Tinnitus Covid Vaccine support group and they have been amazing!  The are people in the group that don’t have tinnitus and have more headaches/dizziness. Aside from the amazing support, it’s also much easier to sort through questions and the search options are super helpful. Maybe I’ll ask the Tinnitus group to open it up to all vestibular issues. 


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Twoo
 Twoo
(@twoo)
New Member
Joined: 6 months ago
Posts: 1
 

@susanfeuerstein Thank you for posting the Resveratrol and Alpha Lipoic Acid! I’m on day 3 of using them just Resveratrol 500mg and Lipoic Acid 600mg once a day and I finally can function without dizziness and the whirling! I tried the Eply maneuver and Half-Somersault without success, MeciliZine, etc. 
I had my 1st dose of Pfizer vaccine Thursday, March 25 and by Sunday day #3 everything tilted and I was holding onto the walls! 3wks with only slight improvement leaving me whirling all day and messing with my depth perception and like I wasn’t standing straight. I was supposed to get my 2nd dose April 16 and I cancelled it. No way. I tried antibiotics too in case was sinus infection with no decrease in symptoms. I finally decided to try the combo of Resveratrol and Apha Lipoic Acid and aside from restless legs for 2hrs at night trying to fall asleep the dizziness, vertigo/whirling are almost gone! I’m so relieved. 


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Rraymo11
(@rraymo1123)
Eminent Member
Joined: 7 months ago
Posts: 39
 

@jen789 what medication are you on that didn’t help the flair up?  I’m still experiencing dizziness and headaches 5wks post 1st Pfizer. I’m considering starting nortriptyline for dizziness and headaches. 


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Jennifer
(@jen789)
Active Member
Joined: 6 months ago
Posts: 14
 

@rraymo1123

I have been on Ajovy for over 2 years now and it has kept me pretty much vestibular symptom free other than a flare up from a virus once or twice — before the vaccine of course. My neurologist treats my vestibular issues like vestibular migraine, but he does not believe that is the full diagnosis. Once I take my quarterly dose of ajovy (neurologist just changed it to monthly after I had a virus in December), it will reverse a flare up. That has not worked so far when it comes to the flare up instigated by the vaccine. The only other prescription med I am on regularly is lamictal. 

I am on one other regular med -  lamictal. My doctor has had me on it for years. The meds my doctor will sometimes also use for flare ups are migraine meds like rizaptran and even Valium. None of them have worked though. We have stayed away from most dizziness and headache meds as they have always made me worse. We may try a dose of steroids or stronger Valium if things don’t turn around by the middle of May.

 

This may sound crazy, but there is a treatment that has always worked for me — anesthesia. It somehow resets my brain. Unfortunately I have no upcoming surgeries. 😂


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Pipergirl
(@ccmiles)
Active Member
Joined: 7 months ago
Posts: 16
 
Posted by: @rraymo1123

I’ve mentioned this before, but what if we made a Facebook support page?  I joined the Tinnitus Covid Vaccine support group and they have been amazing!  The are people in the group that don’t have tinnitus and have more headaches/dizziness. Aside from the amazing support, it’s also much easier to sort through questions and the search options are super helpful. Maybe I’ll ask the Tinnitus group to open it up to all vestibular issues. 

 

Apparently there was one on FB with 70,000 members and FB shut it down

 

 


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