i found vrt medical terms, been there done it since 24 I have Meneres. Now 72 and will not do any more therapy never helped me. I had nerve section 2001.
wish we could contact the company we had shit from and let them no what people are going through!
Good Morning everyone! I’ve been reading everyone’s stories this past 2 weeks! I’m 34 year old healthy male! I received my Pfizer shot 4/22! 3 days later the vertigo symptoms came! I never had any vestibular problems in my life!! My PCP tried to give me a steroid pack and Mycyzline! Didn’t help! Sent me to an ENT, gave me hearing test! Then told me I had Vestibular Neuritis! Today marks 4 weeks and 1 day and I’ve been struggling with this!! So after reading everyone’s comments , I started to do high dosage of vitamin C and Ibuorofen to see if I can get this inflammation down! These events have brought me great anxiety! I haven’t worked out in 4 weeks! I would run 4 miles a day:/ I see the ENT again tomorrow! I pray to god I just wake up and it’s gone! Want my life back!! The only thing that helps with the anxiety is hydroxyzine which my pcp prescribed , but I only take one at night to sleep!! I hope everyone recovers! God bless y’all!!
Found this thread looking for help with vaccine side effects. I’ve had tinnitus since about 20 hours after my second Pfizer shot back in March. Had a couple severe dizzy spells, one sent me to the ER as I almost blacked out completely at work. I’m getting really scared that this is here to stay but I’m trying to tamp down anxiety that could potentially amplify my symptoms. I feel most days like I’m weighted down, heavy arms and legs...I even talk a little differently now, like speaking alone is taking too much energy from me. I’m seeing an ENT in a couple weeks and just praying for help. I know I took the vaccine for the greater good, I’m not particularly at risk...but this is a heavy price. I can’t even listen to music without my ears hissing louder and louder until I turn it off. My favorite thing in life is going to concerts. Before COVID, I charted out my yearly live show schedule and then scheduled everything else around it! Now I can’t even see myself going to a show unless I want to wear earplugs.
Will follow up after my ENT appt, hoping for some hopeful news.
@hollyd I'm about to be a month with no vertigo spells, but I'm still being careful. Still have odd sensations that are brief and don't really bother me much, so I can't say I'm 100% back to normal. Last night I turned my head a bit and felt very faint dizziness than went away in seconds and completely disappeared when I opened my eyes. I was able to switch sides and sleep fine. But it bothers me that I have that feeling still, even if it's mild and not bothersome. Continue drinking a lot of water, taking vitamins and if you get vertigo, take 800mg of Ibuprofen for a couple of days. At least the dizziness has been infrequent which is what you want.
This is my last day as a short hauler, if 12 weeks makes me a long hauler! Haha, at least I can laugh about it a bit😂. Seriously, someday maybe crossing over into this category will help our docs move us into different treatment modalities.
I've spent Friday-Monday running my son around, trying to figure out why his insensitive feet suddenly started showing signs of pressure. His braces are on the outside of his special shoes, but after going to the PCP Friday, went to the brace shop yesterday to get their ideas anyway. The diagnosis? Seems his group home staff must have put his shoes on the wrong feet!! Such a little thing to cause so much grief!
Makes me think even the little things we do to give our body a boost towards recovery could be giving us more advantage than we realize. I've finished my Vitamin D prescription and got to 51 on my follow up test, so I need to figure out what I should do for over the counter supplementation from here. And I want to lean back into Vitamin C, also. Sometimes OJ seems to throw the balance of my appetite and nausea equation way off, so I need to do get back to doing my chewables.
I let my vestibular therapy getting pulled due to my change of insurance network dispirit me from doing other things, but I don't want to keep letting that happen. It's getting to be a long road for some of us and it is hard to figure out with the things we try what may be helping, but there's a few things I can put my finger on that could be helpful and probably can't hurt.
The Medrol taper I did seemed to help while I took it, but then my gain seemed to be lost as I experienced my symptoms seem to rebound. After that some symptoms backed off again - the sinus pressure and headache - but then I started feeling pressure, bordering on pain, in my affected ear. So, now I don't know if this was the roller coaster I'd be on anyway, or not.
Best wishes, wisdom and grace to keep on keeping on for us all!!
I received the second dose of the Pfizer vaccine on 4/29/21 and my life has been turned upside down ever since. I am a 36 year old female with very little preexisting conditions beside well-managed asthma. I used to workout 5 x a week strength training with kettlebells and dumbbells, and could walk long distances without a problem. I eat a mostly plant-based diet, I hardly ever drink alcohol, my body weight is healthy, I meditate daily, etc.
On 4/30/21 I started to experience dizziness unlike anything I've ever experienced in my life. It started off slowly and then progressed as the day went on; by the end of the day on 4/30 I wasn't even able to stand without feeling dizzy and had to scoot or crawl around my house in order to get anywhere. I spent the weekend feeling worse with dizziness, headaches, heart palpitations, and feeling short of breath. I went to Patient First on 5/2/21 to see if it was anything serious and expressed my concerns about this being related to the vaccine since the timeline from getting the second dose and the onset of my symptoms matched almost perfectly. Patient First did a COVID test which ended up being negative. They also ran some bloodwork to check to see if I was anemic -- also negative. They sent me home without answers or explanation.
5/7/21 I found a new primary care doctor and explained that I was still experiencing the same symptoms. The doctor ordered blood tests -- which were normal, and EKG -- also normal, and a Zio Patch heart monitor to wear for one week -- results pending. He thought it was anxiety but wanted to double check my heart in case it was that. Again, I was sent home to wait but this time with a .25 mg Xanax prescription and a heart patch.
5/19/21 went to Patient First again because a theory it could be lyme disease after talking with a friend. I thought it would be best to rule this out so I had some bloodwork done. Lyme results ended up being negative. The physician recommended seeing an ENT or getting a CT scan.
5/21/21 had a telemedicine follow-up with my primary doctor's NP. She reinforced the idea of visiting an ENT and getting a CT scan.
5/24/21 I ended up in the ER because my dizziness and heart palpitations were so bad. The doctors/nurses ran a battery of tests -- CT scan with and without contrast -- normal, EKG -- normal, bloodwork and urine test -- normal. The ER physician wrote a prescription for meclizine to see if that helps with the dizziness -- tbd on whether or not that works
My symptoms always seem to be worse at night -- sometimes I wake up multiple times because my heart is beating so fast or I feel a weird sensation in my chest. The lack of sleep and stress is really starting to weigh on me. Hoping to find relief soon. I've read numerous posts that say that an allergy pill and vitamin C has helped them. I am taking the meclizine and vitamin C starting today and hope it helps a bit.
Thank you to everyone that has shared their stories, thus far, it helps me to realize that I am not alone in this.
Question for those taking Vitamin C to combat inflammation: How much are you taking and how often? My issues are due to Meniere's but I was given a steroid taper for inflammation and have felt somewhat better the last few days. Crossing fingers. The issues with the vaccine reaction and the Meniere's issues are so very similar and seem to be treated the same way. The next thing for me may be a steroid injection behind the eardrum, but I'll have to wait and see what the ENT has to say when I go back June 7.
UPDATE:
I am 8 days into my 10 day prednisone taper course. I have been taking prednisone, 10mg Zyrtec, Flonase, and 1000mg vitamin c 3x/day. 25mg meclazine whenever I felt really foggy. None of it was working or providing ANY relief so I have decided to stop taking so many meds. Ibueprofen has helped me in the past after my first shot so I am just sticking to that along with eating healthy(mostly vegan). I honestly believe that all the meds mixed with me quitting caffeine abruptly and starting to eat vegan (I was mostly vegan before) was too much for my body. Trying to subtly return to normal (SMALL amounts of caffeine and SMALL amounts of dairy and meat) along with the ibueprofen for anti inflammation. Still some fullness in the ears(feels like they need to pop even though I am popping them multiple times a day!) and MAJOR brain fogginess. Trying to return to some normalcy has provided some relief today which is great. Will keep updated in the next few days!
ANOTHER UPDATE(ACTUAL GOOD NEWS!!)
- I recieved my first Moderna shot on March 21st and my second shot on April 18th. I have written previous posts (including the post that I have quoted) that explain my side effects on my profile if you would like to read those. I was mainly dealing with severe brain fog and some vertigo (absolutely debilitating. Had to quit my job and did not get out of bed for 2 weeks) unfortunately the prednisone mentioned in the above post did not do anything for me, in fact my body did not respond well to being on high does steroids at all. I stopped taking the Zyrtec, Flonase, vitamin C, and meclazine as I really was not a fan of filling my body with drugs and other supplements, and had my suspicions that putting all these things in my body when I usually take nothing could be making me worse (don’t underestimate this!! Your body is not meant to handle so many drugs/changes at once!!) I went to my 6th and final doctor on May 4th (2.5 weeks after my second shot) she was very understanding and had said she had seen people with similar symptoms from the vaccine. She did full blood work on me and everything was great except it indicated that I had a virus. Since I had already taken several courses of prednisone she said there was really nothing I could do except wait it out, which is NOT what I wanted to hear and not what you want to here either I’m sure. She said I NEED to focus on taking care of myself (ie. Drinking TONS of water, Eating healthy, etc) she also insisted that once I am up for the day I have to stay up. I cannot just lay in my bed or on the couch all day which was horrible news for me because I had been bed ridden for almost 2 weeks at the point because it was so disorienting to walk around and do things. I took the advice anyways and literally just walked around my house aimlessly or took walks around my neighborhood just to keep myself up. If I did watch tv I made sure to sit straight up (and trust me I did!! It was very very hard to stay walking around.) she also prescribed me Buspirone because my anxiety was through the roof. At this point I was taking busiprone and 25 mg Benadryl twice a day. I credit most of my recovery to the Benadryl (along with really paying attention to my self care) to be honest with you. It did make me drowsy but it helped significantly with the brain fog. At this point in time (May 25th) I am about 95% recovered. This took 9 weeks from my first shot. I am no longer taking buspirone or Benadryl and am able to go out and do thing (driving, working out, hangout with friends) and I am considering going back to work within the the next week or two. This journey has been HARD and really impacted my mental health and life in general. I know that it can also be hard being surrounded by people that do not understand what you’re going through. I am now in therapy just to deal with the mental health impacts it had on me and my life, but overall I am doing very well and am SO ecstatic to be returning back to my normal life fully vaccinated. I just want to let people know that there IS an end to it, and doctors telling you to “wait it out” can be hard to hear but things will work out!!
I would like to add that sometimes I still feel slight symptoms of brain fog when I wake up from naps In the afternoon. Why?? NO CLUE. It usually does wear off after about 10-20 minutes though.
This entire situation has completely freaked me out. I worry a great deal that we are going to be stuck with some sort of chronic condition. Some of our symptoms overlap with those of MS. Does anyone think there is a possibility that this vaccine has led to the development of MS? I don’t know much about the disease, except what google tells me. Someone help me down off this ledge! 🤦♀️
Another link to a good article about adenovirus-based Covid vaccines. It interesting that when some study participants accidentally received half-doses they had less side effects and better antibody production, theorized to possibly be from less inflammation interference from antibody production.
Hello all, I'm very grateful I discovered this forum. I'd like to know if anyone else had a similar trajectory to my experience, described here:
1. March 2020 suspected COVID-19 with NO respiratory symptoms, never tested due to lockdown and passing of symptoms after 48 hours (extreme fatigue, vomiting).
2. May 2020 first episode of acute, severe vertigo - relieved by Epley maneuver.
3. July 2020 second severe episode of acute, severe vertigo - NOT relieved by Epley maneuver. Post-vertigo symptoms persisted until late October, including dizziness, off/on headaches at back of crown of skull w/sometimes pressure or tingling, wobbly feeling, brain fog, general unsteadiness, and full eustachian tubes. TESTS: complete bloodwork; 2 MRIs (1 w/o contrast; 1 w/contrast); complete audiologist testing (e.g., VNG/ENG, Rotary Chair).
3a. September 2020 negative COVID test and negative antibody test, not sure how valid on the antibody test, but it seems the virus becomes undetectable and can still cause the inflammation of the vestibular nerve.
4. Mid October 2020 symptoms gradually resolved on their own.
5. April 22, 2021, received 1st dose of Pfizer vaccine
6. May 1, 2021, awoke with severe, acute vertigo - went to local ER, received another MRI w/o contrast; EKG; bloodwork, sent home with meclazine
7. May 12 - ultrasound on carotid arteries - normal result
8. May 14, 2021, received 2nd dose of Pfizer vaccine
9. Since May 1, 2020, post-vertigo symptoms have persisted including dizziness, off/on headaches at back of crown of skull w/sometimes pressure or tingling, wobbly feeling, brain fog, general unsteadiness, and full eustachian tubes.
10. Referred for vestibular therapy...appt. scheduled in early June - so in the meantime, I'm taking Alpha Lipoic Acid, Vit C, Vit D, Via E, CoQ10, Omega-3 fish oil, digestive enzymes, prebiotic, N-acetyl cysteine (NAC), magnesium, flonase 1x per day, 25 mg Benedryl before bedtime.
Note: I have Hashimoto's thyroid, for which I take 30 Armour and 4.5 low dose naltrexone
If anyone else has a similar trajectory (i.e., suspected COVID-19 followed by suspected vestibular neuritis followed by reactivation of suspected vestibular neuritis) please share. It's a long journey, but this forum has given me hope.
Has anyone that has received any of the new Covid Vaccines, did you experience any increased dizziness or other symptoms?
31/12/20
First dose Pfizer BioNtech vaccine
09/01/21
Woke up with crippling vertigo which subsided throughout the day and returned at night. Also experienced arm tingling/numbness.
Dizziness lasted almost every day until 13/04/21. For some time, dizziness seemed worse at night (possibly due to tiredness).
Other symptoms include arm tingling and numbness, severe headaches, double vision, back pain, knee inflammation and dry eye. Unsure which are vaccine related and which are not. Many of these symptoms are still present/intermittent.
Have been dizziness-free for six weeks. An important factor is that I cut out caffeine on 13/04/21 and began taking beta blockers (half beta prograne) at the beginning of April as well. Had been taking serc (betahistine) before then which seemed to curb the dizziness briefly and then stop working again - hard to tell if it ever worked at all.
Have also been experiencing severe anxiety of course and perhaps depression but would say this is definitely secondary to my other symptoms.
Have had clear MRI brain & whole spine with and without contrast. Clear bloods/urine/ECG.
Have found drinking lots of water (2L) and cutting out caffeine has helped a lot. Likely that the beta blockers are helping too (half beta prograne).
That's my experience in a nutshell. Thanks everyone for posting yours.
Notes:
- Neurologist also considered prescribing amitriptyline which may be helpful to someone. I didn't take these as the half beta prograne seems to work for me.
- Still experiencing general pain/parasthesia in left arm particularly. As well as back pain, knee pain and dry eye.
- Totally, 100% healthy prior to vaccine. No prior conditions or hospital visits.
- Now looking to be tested for autoimmune diseases and such. Seeing general doctor tomorrow.
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