Hi everyone,
I want to update my situation. I'm writing from Italy (so, forgive my English) and had my first shot on 9th may. After a few days I began having violent vertigoes, vomit, ears as if under water, problems with sight focus, tingling in the whole body especially the face and stiff neck. After 1 month and a half the situation has improved ( i have used L-gluthatione pills, vit.c and quercitin without caring about doses or moments of intake)- I still have dizziness but it doesn't last all day long and I can do things (reading or using my computer) without feeling on a ship in the middle of a storm. But I have other issues now, the stiffness in my neck is getting worse and it aches and I have aches in other parts of my body: the jaws, the lower back, the thighs and also my menstrual periods seem disregulated. It's only me? I suffer from arthritis but before the vaccine I was in remission. I don't know what to think. Maybe this has nothing to do with vaccine...
However I'm not taking the second dose. I don't want to risk.
Hope you all feel better
xxx
Hello Daisy, I just saw your post for the first time. Thank you for sharing! There is nothing to forgive with your English - I would have never known you weren't my neighbor in America!
In the middle part of my last 3 months, I experienced stiffness & pain in my hips & knees. My neck has been stiff & sore also most of the time, which I have wondered if it's due to not moving my head as much as usual, since doing that makes my dizziness much worse.
I've read that others have had some of the other symptoms that you mention, including some of the ladies having changes with menstrual cycles. If you've had a noticable change in anything since your vaccination, it could be related. But it is hard to know for sure.
Do you have a doctor that you can ask to give you some advice? Sometimes a few basic blood tests can give an idea of anything that needs attention, or give you peace of mind that nothing is begging to be noticed. 😊
Like you, I do not want to risk more Covid vaccination! And I also hope you and all of us feel much better very soon! 😏🙏
@thenystagmus saw my family doc yesterday. He was noncommittal as to how DVT happened. He appreciated my risks of taking & not taking second dose. In 10 days I will see the thrombosis doc. And in early August will see a doc who deals with vaccinations of all kinds: she works in infectious diseases part of hospital.
Right now my strong leaning is to say no to 2nd dose. I am not a people person so have no need to go to restaurants, bars, etc, etc. So my exposure should be quite limited whatever I do.
thanks for checking.
Figured I'd give you all an update on my progress. Got the Vaccine on April 27th. Have dealt with persistent dizziness and tinnitus ever since. I tried the supplements that dizzyfromvaccine suggested on here for two weeks, unfortunately, it didn't get rid of my dizziness or tinnitus.
I've gone to 6 different doctors (3 Ents, 3 vestibular specialists) all of whom have had different outlooks on what's causing this. First two ENT's refused to acknowledge that this was caused by the vaccine at all, very frustrating. Third Ent prescribed Prednisone which didn't do anything. The first vestibular specialist prescribed a low dose (0.25mg) of Xanax, she claimed it would help alleviate the dizziness and the tinnitus, it didn't do anything.
The past two vestibular specialists I've seen are both claiming that these symptoms are from a "Vestibular Migraine." They said they were 99.9% certain that's what's causing this. They acknowledged that the vaccine triggered this event and that the brain is overcompensating and that I need to take medication to get the brain back down to normal levels. I've maybe had two bad headaches in my life so this seemed far-fetched but at this point, I'm willing to try whatever will make this go away. They want me to use the Vestibular Migraine diet and go on medication. They claim that if I do this, there's an 80% chance I will recover in 6 weeks. They said if I don't want to go that route, I can try using the vestibular migraine diet and take 200 mg twice a day (400mg) of Vitamin B2 and 400 mg twice a day (800mg) of Magnesium oxide. As of now I'm testing the supplements and diet but am planning to start the medication soon and will post updates on how it goes.
For everyone on this forum, Please, if you get better, post it on here so that people can see that there's light at the end of the tunnel. Post what worked for you and what didn't work, we're all in this together.
My brother is a physician and he also mentioned vitamin B2 200 mg x 2/day and coenzyme Q10 200 mg x 2/day for a month. He uses this regimen for his migraine patients. BTW, I'm a vaccine side effect long hauler . Got vaccinated January 22 with Pfizer. Finally seeing improvement now after tons of tests,, meds, supplements and vestibular rehab. Getting discharged from rehab this Thursday.
I had my first dose the pfizer vaccine March 19th, 2021. April 30th I had a spontaneous detached vitreous, detached retina and fluid build up in my right eye. I went 95% blind. Had to have emergency eye surgery that I'm still recovering from. Surgeon told me today, my vision will probably never be 20/20 again. So far, my right eye is 20/80.
Figured I'd give you all an update on my progress. Got the Vaccine on April 27th. Have dealt with persistent dizziness and tinnitus ever since. I tried the supplements that dizzyfromvaccine suggested on here for two weeks, unfortunately, it didn't get rid of my dizziness or tinnitus.
I've gone to 6 different doctors (3 Ents, 3 vestibular specialists) all of whom have had different outlooks on what's causing this. First two ENT's refused to acknowledge that this was caused by the vaccine at all, very frustrating. Third Ent prescribed Prednisone which didn't do anything. The first vestibular specialist prescribed a low dose (0.25mg) of Xanax, she claimed it would help alleviate the dizziness and the tinnitus, it didn't do anything.
The past two vestibular specialists I've seen are both claiming that these symptoms are from a "Vestibular Migraine." They said they were 99.9% certain that's what's causing this. They acknowledged that the vaccine triggered this event and that the brain is overcompensating and that I need to take medication to get the brain back down to normal levels. I've maybe had two bad headaches in my life so this seemed far-fetched but at this point, I'm willing to try whatever will make this go away. They want me to use the Vestibular Migraine diet and go on medication. They claim that if I do this, there's an 80% chance I will recover in 6 weeks. They said if I don't want to go that route, I can try using the vestibular migraine diet and take 200 mg twice a day (400mg) of Vitamin B2 and 400 mg twice a day (800mg) of Magnesium oxide. As of now I'm testing the supplements and diet but am planning to start the medication soon and will post updates on how it goes.
For everyone on this forum, Please, if you get better, post it on here so that people can see that there's light at the end of the tunnel. Post what worked for you and what didn't work, we're all in this together.
Wow, you've been busy! I'm sorry your doctors and their advice hasn't proved to be more helpful for you. I didn't know there are Vestibular Specialists! It's good you found 2 giving you similar advice. You must be in an area with a large population base! Do you mind sharing if you're in the US, or in another country?
Yes, it is always good to hear updates ...thank you for yours. Well wishes!
@carym23 Hi Cary, I know that weird fun house distorted feeling! That's a good description of it! I also know the mystification of sudden, dramatic relapse, the dismaying disappointment, and the frustrating inventory that yields no explanation!
I'm glad Sudafed seems to be helping you. I used to use it any time I had a cold, but the last time I did I had an unusual paradoxical almost manic thought process set in and I ended up in a car accident that was my fault, the only time I've ever done that in my entire life. Later I figured out what had transpired. So, I'll pass on that.
Thanks for sharing your journey. And I hope you keep improving, without going through any more of those crazy dips in the road experiences! 😏🙏
@thenystagmus saw my family doc yesterday. He was noncommittal as to how DVT happened. He appreciated my risks of taking & not taking second dose. In 10 days I will see the thrombosis doc. And in early August will see a doc who deals with vaccinations of all kinds: she works in infectious diseases part of hospital.
Right now my strong leaning is to say no to 2nd dose. I am not a people person so have no need to go to restaurants, bars, etc, etc. So my exposure should be quite limited whatever I do.
thanks for checking.
I wonder if your thrombosis doc will tell you more about what transpired with your DVT. Oh, yeah, now I remember learning early on that an Infectious Disease doctor can see specialize in vaccination issues. I'd forgotten that and appreciate you bringing it up. If you learn more that could benefit others here, I hope you'll let us know.
Yes, I'm not interested in a lot of social mingling either, and I'm definitely not interested in taking the chance of retriggering all this vestibular craziness again with another vaccine dose.
Best wishes!
Wow, getting discharged from vestibular rehab; that's great. Do you recommend it? I'm not as long a Hauler as you ...only since early March for me.
I got to do a couple of rehab sessions a while back and felt that it showed potential to be helpful to me, but an insurance change stopped it and I'm having to wait a long time to restart. I felt better today, so after sunset it cooled off and I went for a walk down my street and back to challenge myself, since walking in the dark is much harder for me. No one could see me staggering since the sun had gone down ...my little attempt at rehab in the meantime. 😏
Congrats on your improvement 👍
@yoki One more thing - I wondered if you ended up being given a diagnosis? And, if so, would you mind sharing what you were told about that?
Thanks 🤗
@thenystagmus I'm in the US. I live in Orange County, California. The latest Vestibular Specialist I saw has apparently seen a ton of people come in with these exact symptoms after receiving the vaccine and has been able to cure them with the treatments he suggested to me. He was extremely confident in his diagnosis. I mentioned that there are thousands of people on this exact forum that are experiencing the same issues as I am and felt that saying every single person on here is experiencing vestibular migraines seemed pretty far-fetched, but at this point, he's one of the first doctors I've come across that's acknowledged that the vaccine triggered this event and has given me a solution for making this problem go away faster. I hope he's right. I'll keep everyone informed on my journey and let you all know if these medicines & dietary restrictions helped.
@sectormore Thank you, ...yes, you are in a large population base area, which would likely account for you having more specialized care and maybe quicker availability of appointments also. Living in the Midwest US, I've experienced a haltingly slow motion experience of scheduling doctor visits, tests and therapy. It seems that with pandemic restrictions lifting here, many people are piling into medical care with issues they'd deferred for a long time, so the medical system is clogged, fraught with long waits for everything. Also, contrary to here, it sounds like your doctor has the benefit of having a number of patients that came in prior to seeing you to be able to gain experience with treatments. Yes, I also hope his recommendations will prove helpful for you! And please do continue to update here!
Has anyone that had a severe reaction / vertigo with the first jab, had the second job and had similar issues/no issues/worsening of issues? What was your experience?
Update: I wanted to let you know that I am getting better.
My symptoms were nerve problems in my lower back, my sides, my torso, my stomach area, and my upper back on my right side which included numbness and random tingling as well as huge pressure in all these areas as well. (I had got one dose of Pfizer four weeks ago).
What has helped: Ivermectin + Famotidine
Famotidine, is often sold as Pepcid, has made the pressure go down a lot. Apparently, I must have been bloating and didn't realize it. I am told it does something with histamine and mast cells.
I hope everyone is able to find relief. I never thought there would be another side away from this as it looked really hopeless for me. I'm not out of the woods yet by any means but I'm on the right path finally.
Well since december 2020 it's a long time you have been dealing with pain. Do you think it will ever go away? Vertigoes are awful but also these aches are not a piece of cake.
I so much regret having taken the first shot ...
@daisy it's a very long time ! thank god the vertigo is gone, but these pains are a constant reminder that i'm not well. i've been reading a few long-haul covid threads and seen that many of their tests are also coming back clear with no diagnosis, and that many of them took a whole year to recover. so that gives me hope !