@gingerjones I thought so too but blood test showed no inflammatory markers 🤷🏽♀️
Hi friends. I've been following this thread for a while but never posted. I have a basic question...do covid specialist doctors exist? Doctors who actually are experts on seeing patients with long term effects from either the disease or the vaccine? I really wish there were but i'm guessing the answer is no?
All the doctors I have thus seen barely know anything about it and I'm getting very frustrated (as I'm sure many people on this thread feel the same)
I received my first dose in late April. Couldn't stand or walk more than one minute. Felt like collapsing. Lots of brain fog. Those lasted 2.5 weeks. Luckily got better but stuck with lightheadedness for 8 weeks now! I can walk about a block but then need to sit immediately. I desperately want to go back to old times and exercise again. No abnormal results from blood tests or MRI. No answers 🙁
I'm glad to have found this forum of supportive people who have similar or other side effects.
Middle 2021 - Middle.earth USA here - eveningtide...
Week ending ...2 days ahead of no doctor visits, no tests, no test results, and no phone calls to health insurance companies, medical providers or their billing offices. A peaceful prospect.
In the middle of all this recovery effort, it's good to be coming into the oasis of a weekend, and in the company of others here - an oasis of its own.
I hope it's been a good day of balance regaining for us all. It seems like it was Monday only yesterday, but here it is Friday eve ...with hope for the rest and recouperation of a good week's end! Well wishes 🤗🙏
Well I was about 45 days of the on the boat feeling. I am finally feeling normal. I refuse to get the second vaccine. I’m pretty sure I will be considered a mutant because of it. It’s not worth it to feel how I felt for 45 days . I hope everyone starts feeling better soon
I hope so too, today I have disequilibrium again after it’s gone for like a week. Just Ike you I guess, some better days. Yes it normally takes a long time to see a specialist here. I used to have to wait 4 months to see a neurologist for my carpal tunnel syndrome. It was gone by the time I saw him LOL. I hope you feel better soon so you get to enjoy summer with your kids more. I was extremely stressed before but now it’s like well I can’t go back in time so I just have to look forward and hope for the best.
...I used Valerian last night to help me settle and sleep and it worked a treat! I’ve got two young boys and I need all the energy I can muster to get through school holidays!
Hi Jen - I think you've also shared about being in the Sydney, Australia area. I don't know a lot about how your weather and school calendars work there with being in the southern hemisphere. I hope you don't mind if I ask you a couple of questions.
I'm in the US and one of the teachers at the school I used to work at would take trips to Australia during our summer break from school (mid-May thru mid-August) and told me about how she'd get to experience two winter times a year that way.
You're talking about your kiddos being on school holidays. So I'm wondering, right now are your boys on a long break or a short break? And do you take a long break in some months that are summer for you? Or, maybe you have a year round school schedule, for all I know! 😊
I just looked ...you're living 15 hours in the future from me! 😄
@thenystagmus Hi Sassafras!! Yes, I’m down under in Australia 😃 - we’re currently in winter but it’s 19°C so we’re not really suffering!! Our school year follows the calendar year - so new year = new grade/level. Two semesters broken into four terms. Generally it’s a 2 week holiday each term but my kids have 3 wks in the winter as their school gives us the gift of an extra week 🙄🤦♀️ 😆
The biggest break is end of calendar year. They finish mid-December and return at the end of January.
If you look through the many pages on this forum you will see that folks here have some if not all of the same symptoms as you...people are taking supplements such as liquid liposomal glutathione and Quercetin for the dizzyness and it seems to have helped most folks...there are folks taking all sorts of supplements to help them reduce the inflammation...as for me, I only suffer from ringing in the ears...It started on May 9th, after my second dose and is still with me...but I can absolutely attest that this week the ringing seems to have subsided some...Not sure if it is time, or some of the supplements I am taking along with the others here on the forum...
About the second shot, well I can't say...I had my first shot and no symptoms...
If you read the below post below from @danb you will see that you will eventually recover eventually...
Hello All, I wanted to share this because it explains what is likely going on with post vaccine inflammation and covid long haulers so well. My wife has had lingering brain fog, vertigo for 8 weeks post 2nd dose vaccination and my mother in law is in the midst of long covid for 6 months. This truly looks to be a cheap, safe treatment to break the immune / inflammation cycle and let your body reset to homeostasis. The video below is timestamped where they discuss and visually show the mechanisms behind what is likely going on. We have a telemedicne call lined up with Dr. Haider for my mother in law and my wife has already had some relief using nasal corticosteroids.
The bottom line is to reduce inflammation which reduces the immune response, inhibits the spike proteins, and let the mast cells and immune function reset to normal.
All of the things here that have helped people reduce inflammation (omega 3's, turmeric, NSAID, corticosteroids) but the use of ivermectin, fluvoxamine, and steroids either by themselves or sometimes in conjunction seem to fully reset the system to get back to your normal self.
P.S. They do mention that although the function of inflammation is similar from vaccine to long covid that the vaccine related inflammation will not be a viscous cycle like the long haulers have. It's similar reaction but shorter durations. Most long haulers are taking a year or so to recover whereas the post vaccine is within weeks or months.
Dr. Syed Haider Discusses COVID Management
Perfect, thank you 😀
Agree with all of it
has anyone here (with parasthesia/numbness) had a nerve conduction study done? due for one in the coming weeks, though there's a wait-list. also due for more in-depth bloods including tests for lyme, HIV, inflammatory markers etc. . a full autoimmune work-up. . will report back !
Sassafras, when I read your post and your poem I immediately had James Taylor’s song playing in my mind. Here’s a link I found with the song and lyrics on YouTube if anyone wants to listen. (I can’t sing worth a darn or I’d try it. 🤪)
I've just found this forum. I developed acute severe labyrinthitis on march 30th approximately 2 weeks after second Pfizer vaccine.
Severe vertigo and nystagmus worse on looking right. Hearing loss and tinnitus came on day 3 and lasted only a couple of weeks.
I've seen ENT and have no vestibular function in the 3 right semicircular canals. Had MRI a week ago awaiting results.
I was getting more used to symptoms and back driving.
I've tried to get back into cycling. Very difficult but can manage as long as I don't move my head, so rely on my family to look behind and both ways if crossing a path. Only using cycle trails. No way I'd go on the road
Few days ago I foolishly and reflexively looked back over my shoulder just as we were leaving the parked car to check I'd locked the car. Bad mistake immediately fell off bike to left side. Minor injuries only. Don't think I really hit my head, but interestingly my vertigo which has been very stable for months got suddenly worse, and this has persisted since. I feel so much more disabled now.
So depressing. I'm in my 40s previously fit with no health problems. Very keen cyclist and now I feel so disabled. People don't see it, but everything I do need so much concentration.
I thought I'd been just unlucky and had viral labyrinthitis (although didn't have any viral symptoms at the time), but very interesting to see so many people developing this after covid vaccine and makes me wonder if this might have been the trigger. Presumably the only real way to know would be to find out if the incidence of labyrinthitis has gone up this last 6 months compared with previous years. The problem is always with association. That is, people have always been getting labyrinthitis and will therefore be continuing to get it this year, as we all receive the vaccine.
Anyway, I'm just hoping my MRI is fine and nothing more sinister, then I guess I just have to learn to live with these symptoms and adjust my life accordingly. My ENT consultant was not confident of any recovery in vestibular function now as I've had symptoms for so long now.
Best wishes to all those who have been affected, and hopefully we will see or hear of more data to find out if there is a true association with the vaccine
Thanks Gloria, When I was awakened by my nystagmus halfway thru my sleep night and realized that it had the quality and character of the kind you least want to have and I thought about the fact that no one here had responded to me saying they'd had a secondary set of symptoms come on and slowly increase as I have, I was pretty concerned.
Then I saw that you'd sent me a reply, so I logged into my account, with all the hopeful symbolism portrayed by my logging in credentials, then read your note and linked to the song you shared. I was caught unawares as to what it would be and as I listened, the fear and grief that's been stalking me for over 3 months caught up with me.
Man, I am so looking forward to getting that long awaited MRI and its results behind me next week! I need that information to be able join the rest here, to settle into the hope that this may be "only" vaccine reaction.
Thank you, my friend.
@melanie22 this made me laugh, I didn’t even want the vaccine but people made me feel so bad I did it! Now feel dreadful.. I will go nowhere near the second jab and they will have to get through me first if they want to jab my kids!!
so happy to read you are feeling normal... fingers crossed for all x
@melanie22 Hi Melanie! So glad to hear that you’re recovering! Did you take any medication?
Fingers crossed 🤞🏼
