Has anyone suffered any widespread twitching that has since resolved... any success stories would be hopeful but I'm fearing they are few and far between....
@memphismel I’m truly sorry that you are struggling.I agree it can be alienating when healthy friends try to empathize with our struggles - they had vertigo a couple of times in their life and wow, they know exactly what it’s like for us.
However, I do think we have a responsibility to not unnecessarily scare people into not getting a potentially life-saving vaccine - or really any other type of treatment. Yes, we should share our experiences but we should always make it clear that they are our experiences - good or bad.
I’m 52 and had my first vertigo attack at 18. I was diagnosed with Menieres in my early 20s and just when I thought in my late 40s that it was burning out, I went bilateral — so trust me, I get it. I tend to come to forms like this when I’m struggling and they’ve been a godsend for me. But I do always try to make it very clear that my experiences are my own and that just because something is happening to me, like going bilateral, doesn’t mean it’s going to happen to anyone else. I hope that makes sense.
@k-shoo that's great. Most people do just fine. And then there are the rest of us. Whenever someone asks me about me reaction the follow it with "well I did just fine and so did all of my friends". I'm sure they are coming from a good place but it is an alienating thing to say.
I've gotten the same crap more times than I can count. It isn't helpful. It's dismissive and alienating. I've had to cut people out of my life because of it. My concerns have been dismissed with "most people don't suffer any severe side effects", or "all vaccines can have side effects", or the attitude that the side effects can't possibly be real because they, and no one they know, suffered from them. Problem is, there is no way to know who will suffer severe side effects until it's too late--especially those of us with preexisting vestibular conditions. Not taking that chance and I don't care what anybody thinks about it.
@markm90 I had a similar experience. I noticed a lot of eye floaters in my right eye a week after the second Pfizer covid shot. I went to my eye doctor who told me that they would go away after three months. It has been almost three months and no improvement. I try eye exercises, drops, pineapples, nothing has helped so far. These floaters are impairing my vision because I feel like I am looking through fog. If this does not go away, I will have to see an eye specialist. Thanks covid vaccines
@k-shoo that's great. Most people do just fine. And then there are the rest of us. Whenever someone asks me about me reaction the follow it with "well I did just fine and so did all of my friends". I'm sure they are coming from a good place but it is an alienating thing to say.
I've gotten the same crap more times than I can count. It isn't helpful. It's dismissive and alienating. I've had to cut people out of my life because of it. My concerns have been dismissed with "most people don't suffer any severe side effects", or "all vaccines can have side effects", or the attitude that the side effects can't possibly be real because they, and no one they know, suffered from them. Problem is, there is no way to know who will suffer severe side effects until it's too late--especially those of us with preexisting vestibular conditions. Not taking that chance and I don't care what anybody thinks about it.
Problem is everyone is happy to give you their thoughts regarding what you should do with your body. I am outraged that other people are not outraged. Any other vaccine would have been pulled by now. Instead they are refusing to link complications to the vaccine.
@memphismel I’m truly sorry that you are struggling.I agree it can be alienating when healthy friends try to empathize with our struggles - they had vertigo a couple of times in their life and wow, they know exactly what it’s like for us.
However, I do think we have a responsibility to not unnecessarily scare people into not getting a potentially life-saving vaccine - or really any other type of treatment. Yes, we should share our experiences but we should always make it clear that they are our experiences - good or bad.
I’m 52 and had my first vertigo attack at 18. I was diagnosed with Menieres in my early 20s and just when I thought in my late 40s that it was burning out, I went bilateral — so trust me, I get it. I tend to come to forms like this when I’m struggling and they’ve been a godsend for me. But I do always try to make it very clear that my experiences are my own and that just because something is happening to me, like going bilateral, doesn’t mean it’s going to happen to anyone else. I hope that makes sense.
We also have a responsibility to let others know what they could possibly be in for, so that they can make an informed choice. Because we sure haven't seen any honesty from the powers that be.
Problem is everyone is happy to give you their thoughts regarding what you should do with your body. I am outraged that other people are not outraged. Any other vaccine would have been pulled by now. Instead they are refusing to link complications to the vaccine.
Instead, Pfizer has received FDA approval. 🙁 Obviously the deaths and horrific side effects have been either not acknowledged, or attributed to "coincidence" or anxiety. All the collateral damage doesn't matter. It's push, push, push.
@thenystagmus Hi! I just found this site after Googling my symptoms after my first Covid vaccine. (Pfizer) I was due to take my second shot today, but I postponed to give my body a bit more rest before taking the second. I have experienced hot flashes and sweats, muscle twitches, and VERTIGO/nausea. I am hopeful this will dissipate, but I am curious as to whether anyone else's has - given that many of your initial posts were months ago. I have active Epstein Barr Virus and some sort of autoimmune issue (which we're now calling Chronic Fatigue Syndrome). I'm wondering if the link will be people with active Epstein Barr often have this similar reaction from the Covid vaccine. There seems to be some link with reactivation of Herpes virus(es) and the vaccine, but I can't put it all together. Makes me worried to get the second vaccine, but I also don't want Covid. It's choosing between two undesirables, really.
Anybody "recovered" from vertigo after vaccine?
@jassy1957 how long was the head pressure and weird head sensations last? I would say this is triggering my anxiety. My anxiety is lasting for most of the day and then i feel like i "come down" from it a little early.
So tomorrow will be 12 weeks I have dealt with my symptoms- dizziness (not vertigo), brain fog, loss of energy, ringing in my ears and the constant pressure in my head and behind my eyes. I still cannot drive a car, drive the forklift at my job or climb a ladder, all of which affect me at work. I'm depressed and angry because nothing seems to give me any relief. Medications and relaxation exercises do nothing. I started feeling like I was adjusting to my 'new normal' at 10 weeks only to relapse a few days later. I am still hopeful that I will recover but after reading how the vaccine works, on Moderna's website, I'm scared. I encourage everyone to go the website of the manufacturer of the vaccine they received and file a reaction report. I am in the process of filling out an extensive questionnaire from Moderna to at least make me feel better about speaking up. And as far as the booster our government is pushing -absolutely, positively, no way for me.
@memphismel I’m truly sorry that you are struggling.I agree it can be alienating when healthy friends try to empathize with our struggles - they had vertigo a couple of times in their life and wow, they know exactly what it’s like for us.
However, I do think we have a responsibility to not unnecessarily scare people into not getting a potentially life-saving vaccine - or really any other type of treatment. Yes, we should share our experiences but we should always make it clear that they are our experiences - good or bad.
I’m 52 and had my first vertigo attack at 18. I was diagnosed with Menieres in my early 20s and just when I thought in my late 40s that it was burning out, I went bilateral — so trust me, I get it. I tend to come to forms like this when I’m struggling and they’ve been a godsend for me. But I do always try to make it very clear that my experiences are my own and that just because something is happening to me, like going bilateral, doesn’t mean it’s going to happen to anyone else. I hope that makes sense.
We also have a responsibility to let others know what they could possibly be in for, so that they can make an informed choice. Because we sure haven't seen any honesty from the powers that be.
Absolutely! I reported on the most confusing data collecting site in the states - VAERS... We need a better system to collect and analyze data. This whole thing is a joke and its at our expense.
@scuba76 try taking Benadryl I was in the same situation as you. Dizziness fatigue hyperventilating 3/4 of a day after taking Benadryl my hyperventilating went away. Still get dizzy have headache and fatigue now and then but I’m better then I was.
Hey everyone I joined a few months back and haven’t commented in a while so I wanted to give an update. I too dealt with dizziness, vertigo, brain fog, tinnitus, blurred vision and headaches. I have to say that after a long four months I am symptom free! I will be praying and thinking of all of you, and that you get better soon!
@courtneymchale2288 I was also pretty worried to take the celexa due to side effects because I was on lexapro in the past and a big side effect for me was....dizziness! But I haven’t had any problems with the celexa that I’ve noticed. Obviously that will vary by person, but honestly I would’ve dealt with any minor side effects if it had the chance of helping with my anxiety. It was debilitating. Plus most of my worries about celexa were just stemming from my anxiety anyways....funny how that works.