Hey I’m going on week 3 after first Pfizer vaccine. Been having numbness/tingling randomly in different parts of my body. I also have random pains that come and go mostly in joints but as well as other places. The most worrisome part is the chest pressure I am feeling. It makes me scared. Has anybody else experienced these and had any luck with doctors or the symptoms go away? I had went to the er last Friday and they did some blood work, chest x ray and stuff and said it was all normal.

I am not a doctor nor do I have any type of medical training. This information is only for my situation; it is not meant to be a diagnosis for others. After doing some research, I will be asking for a neurological referral to be assessed for auto-immune encephalitis. There are different types of encephalitis, but it’s the auto-immune type that I find most interesting. Traditional encephalitis presents very differently than this type. I found the particular symptoms, as read on the John Hopkins and Mayo sites a good read.  It occurs when your immune system attacks the brain and it swells. In reading about the brain in other articles, I found out that, depending on area that the brain inflammation is occurring, different symptoms may results. A lot of times it may start with a headache, dizziness, vertigo. As the swelling increases more symptoms may appear. It may feel like your head is “full” or floating sometimes. I read that these symptoms don’t always stay in the brain. They may manifest in other areas of the body, as the brain controls your nervous system. It may result in numbness or weakness in limbs. It may cause general fatigue. Brain swelling  could affect vision, hearing, speech. Brain swelling has been known to cause change in cognitive function (not thinking as well) and even hallucinations, etc. The symptoms for this condition generally arrive over several days or weeks. I am guessing that some days the swelling doesn’t occur as much and the symptoms lesson; other days the swelling increases and symptoms show up again. Hard to pin down what area it might be affected, as I wouldn’t imagine that the brain would swell evenly. Different areas of the brain control different things and areas right next to your swelling brain; ears (hearing and balance) and eyes may also be affected. I was also interested to learn that most people, not all, recover within 2-3 months from this.  For my situation, my recovery plan might be similar to a concussion (bruising in the brain). Avoiding electronic devices  (gaming, movies and videos being the worst) or doing any activity involving your brain having to multi task (driving, cooking, learning new skills). Doing these things may stress my brain; slowing it’s recovery. I would imagine anything that would aid in inflammation such as histamines would aggravate an already swelled brain; as would stimulants such as caffeine.  I plan to also avoid alcohol, msg, sugar things that might not help in healing. Some very good things to heal my hurt brain might be vitamins and supplements, but resting the brain will probably have the biggest impact for me. A nice quiet room with soft light, minimal noise really helps me; that’s why sleeping seems to reset me; the brain rest, cleans and repairs as I sleep. I wake up with very little symptoms, unless I slept badly. Exercise normally helps people, but not so much with a hurt brain. Keeping movement light while healing would be better for me. There is no doubt in my mind what caused my symptoms; as mine occurred  the moment I received the COVID vaccine (numbness and tingling (instant), vertigo (5 min),  weakness in limbs (1/2 hr), severe fatigue (1hr)… the loss of feeling in toes, legs, face, pain in limbs and twitching, slow processing in brain, rapid heart rate, etc. showed up over several days. Some symptoms lasted for weeks some left and returned generally when I over did it; or once when I had a coffee with sugar (never usually drink it but did for fatigue).

I hope this helps some people here. Again, I am not a doctor or trained in the medical field so these are just some of the things I read. For myself, having an idea of what may have caused my symptoms really helps me calm down, because not knowing what is going on, really is worse for me.
I am hoping everyone recovers soon. I won’t be able to check as much because I need to rest my brain for the next couple of weeks. I will be thinking of everyone here. Good luck. 

Hi Everyone,

I’ve been on the forum for a month when my symptoms started, I got my second moderna vaccine on July 24 ( first I had no symptoms) I’ve been dealing with anxiety that was uncontrollable, full ears and a heart beat sound in one of them, but the worst symptom being brain fog ( I feel like I’m always stoned or zoned out almost like derealization things just look different) it’s been a month and it has improved slightly where I can function but I don’t feel like myself at all, tonight I’m just very down that this is going to be forever, I am 26 female with 3 very little sons that need their mom back and a husband who misses me too 🙁 hoping someone dealt with the same kind of brain fog feeling that could give me some hope 

I am 42 and in very good physical condition. 7 weeks after my 1st pfizer shot I had a very bad vertigo  episode while I was mountain biking.  Non-stop vomiting for 16hrs, head spinning like crazy. Could not stand up, went to the hospital, after ruling out stroke, they kept me for the night. Had a ct scan the next day, it was good so they let me go. I saw a physio who thought it was better to let things settle. First week was very difficult to walk, and even though it was better, after 2 weeks i still felt something was not right. I went to see a specialized physiotherapist who was able to diagnose the vestibular neuritis. It’s been over 4 weeks of vestibular rehab. I’m probably at 80-85% for general but maybe only 60% Of my biking capacity. When i tilt my head down and to the right there’s still something. The vestibular rehab definitely helped, but I’m worried if I will get back 100%.

but my biggest issue is when I called 811 to report potential side effect, or events triggered by vaccine, they refused as this symptom is not on the list. Am I the only one to see a huge ethical problem here?

they referred me to my family doctor who thought it was unlikely.

I am appalled that the canadian healthcare is not in listening mode. How is it ever gonna be on the list if they don’t write it down when people report the symptom?

Hello to everyone and sorry for my English.

Two months ago, my wife and I had the moderna vaccine. For the first few days we had a fever, muscle aches and fatigue. After a few days my wife developed diarrhea and nausea. The next day I also showed nausea, a tendency to faint. We contacted a doctor and he told us to take antiemetics and painkillers. But the days passed and the situation got worse. Now we have bloating, I have constipation, stomach pain and various other symptoms that look like irritable bowel syndrome. We have lost several kilos. We are afraid to eat our food. During theese two months we have visited two other doctors who suspect that all this may be from the vaccine but are not sure. Today we will do a gastroscopy. Has anyone had similar symptoms after the vaccine?

Hi All,

29 yo, male, lot of exercise (3-4 times a week 10k runs, cycling, swimming).

My journey started about 2 weeks after I had my first (and only) pfizer shot. First felt a needling sensation in my chest and ribs. Was very concerned as I thought it had something to do with my heart/lungs but dokter said all was fine. Some days later the anxiety started. Woke up 10 times each night with a lot of adrenaline. 
Tensed muscles, fatigue, fast heartbeat multiple times of the day, and after some weeks I started to develop a depressed feeling (maybe because i was putting a lot of effort into rest/meditation and it didn’t seem to work?). 
Doctor pointed in the direction of burn out and too much stress, which I actually believed for the first weeks. Until some stress symptoms faded away but the needling/tingling in my body increased. Only this is when I knew something is not right, and actually linked all of this to the vaccine. 

After my usual doctor and therapist, went to another doctor specialized into a more ‘holistic’ approach. Immediately linked all of this to the vax. He told me the following:

1) if you don’t take anything, you will heal anyways 4 months post vaccination because the vaccine doesn’t actually work that well and the spike protein will be gone (it’s not that simple but you get the point)

2) within now and 4 months post vax (which is for me still 2 months to go as I’m in 2 months already) it can do still quite some mental/physical damage so best to get rid of it ASAP. I was given some supplements straight away and doc told me if I take these all will be fine on 4 days from now. Will share these if they actually help. He was 99% sure they were going to.

Let’s see! Anyways hang in there people. In the meantime what has been working for me is doing anything that relaxes you. No phone no tv no loud traffic nothing. Eat healthy, rest, exercise/at least move 30-60mins per day and get some cuddles from your loved ones!! 
Better times are coming. Take care. 

I have been having noticable symptoms about 3 weeks after my first sinovac vaccine. The first one was facial pain and headache for a few days followed by an eye floater in my right eye+mildly blurry vision+light sensitivity. I had daily headaches right after the vaccine but I couldn't discern them from my usual headaches since I have sinus issues. The next night I started to feel that my left upper lip and my chin as well as the left edge of my lips were heavier and I felt sensation in these parts long after I would stop touching them. I went to an opthalmologist the next day for my floater. He said my retina was intact and there was no sign of optic neuritis so it was just a harmless floater. He didn't think much of the paresthesia as he thought it was anxiety. I also had a sore throat at this point as well as tingling in my left arm but I didn't mention it to the eye dr since he had already brushed off my facial paresthesia. I went to an ENT for the facial neuropathy+ sore throat. He found mild redness and inflammation in my throat and prescribed me an antihistamine spray. He also performed a laryngoscopy and couldn't find anything else. Finally I went to a neurologist who was actually a neurosurgeon. On my first visit, I told him about my neuropathies which at this point included body-wide transient paresthesia as well as muscle cramps and twitches esp b/w my thumb and index finger. I also mentioned that it all started after vaccination and could have some connection. He actually didn't rule it out and mentioned a patient with facial pain along the jawline due to narrowing of some canal through which a nerve passes, causing nerve compression ( due to inflammation). He also prescribed a Brain MRI and expected some inflammation. The next day I got a weird headache on my right temple+behind right eye which flowed down into my right ear and then would proceed to be felt in my occipital region. It almost felt like a wave of pain that would come and go. Did the MRI. The lab reports showed nothing except for partial empty sella (nothing to do with my symptoms). Went to my brain doctor. He took out a magnifying glass and looked over my scans and found slight bilateral inflammation. I mentioned my new right side headache. He thought it was the sign of the beginning of trigeminal neuralgia. He acknowledged that all of this was caused by the vaccine or a viral infection. He gave me two options, carbamazepine or steroids, though he did advise against steroids because of side effect despite giving quicker results. I took the former option. Also prescribed me 1800mg ibuprofen per day. To counter its high dosage side effects, he gave me a gastrointestinal drug. Also prescribed baclufen for the encephalitis+ surbex z as supplement

• Sorry for the long text. I am from Pakistan so forgive me for any grammatical or spelling mistakes. Also, I am not encouraging you to take any of these drugs for yourself without medical consultation from a professional. Also I did get the second dose but this time kept an icepack to prevent any overreaction. It's been 4 days. No additional symptoms plus the headaches are almost gone

Also I forgot to mention this in my last post. I also had bouts of tinnitus with ear pain in both ears right before I went to my neurologist. Also the right side headache which I started to get before my second visit to the neurologist would ve triggered moving around or tilting my head to the right

@masectid - hello, I wanted to ask if you noticed any improvement after taking zinc. I think my symptoms are very cyclic too. There are some days/ weeks where I feel absolutely normal and then it hits me again. Its highly unpredictable. I have not been able to find any food triggers or environmental triggers yet. Although I think a bright sunny day definitely elevates my mood. 

I've had dizzyness and chest pain that started about 1 week after the vaccine (July 20), and still bothers me.  I ended up in the emergency room thinking I had a heart issue on July 27th, and they did various tests and said it wasn't a heart attack. About a week later they asked me to wear a 24 hour Holter monitor to basically monitor my heart over the course of the day.  I just got the results and they said:

"Patient had multiple episodes of [dizzyness, chest pain, lightheadedness] correlating with sinus rhythm and ST-T wave changes for which I would suggest a rather urgent exercise tolerance test for ischemia workup"

I had an exercise tolerance test a year ago and was given a clean bill of health, so whatever is happening with my heart is new and post-vaccine. I still have dizzyness at various times during the day, and the odd stabbing chest pain that comes and goes (but sometimes is enough to make my flinch).  I have an appointment with a cardiologist in 3 days so I'm anxious to start figuring this out.

@jen789 - Hi Jennifer- It's good to know that you have recovered fully and back to normal. It helps people like us who are still looking for answers. I do experience some vestibular symptoms which are mild after I get a viral infection. I don't take any medications for that. I took my first Pfizer shot on 1st June and experiencing many vestibular issues since then- lightheadedness, head and ear pressure, tinnitus, fullness of ears, and other vision problems such as floaters, blurry vision. I was on Lamotigine for two weeks and I am not sure if it really worked but I had to come off it due to side effects. My neuro has prescribed me topiramate now, which I will be starting soon. I was wondering if you can share your experience about what drugs worked for you and how long did it take you to notice a difference? Were you taking any supplements? Thanks a lot.

Hi everyone, I thought I would give an update to give hope to newcomers 🙂

My initial symptoms were : severe fatigue, severe brain fog, dizziness, ear and eye pressure (with kind of blurry vision) on one side, mild tinnitus same side, nausea a few times, low blood pressure.

After 3,5 months I am not completely recovered but I feel much better : way less fatigue, way less brain fog even if I still feel a little foggy at times, no more nausea, blood pressure normal. I still have ear and eye pressure and mild tinnitus, but it's (very very slowly) decreasing in intensity. 

What I tried to cure it :

- a lot of supplements, including the combo Quercetin/Glutathion/Zinc for a few weeks, which helped up to a point

- Ivermectine, I kind of followed the FLCCC protocol but with less doses : I took 3 doses the same week, and then 1 dose a few weeks later --> it seemed to help esp. with brain fog and fatigue, but only when I was taking the treatment.

- Prednisolone --> did not seem to help at all.

- Anti histamines for the last weeks --> have helped a lot reducing the symptoms (brain fog and ear issue), I will keep taking them for an extra few weeks to try to completely solve ear and eye issue.

- Nasal sprays also helped (anti histamine ones and one with cortisone)

Please note that I took all of this under close supervision of doctors, I did not self medicate.

Wishing everyone full recovery !!

@courtneymchale2288 I don't intend to offend you or make you feel worse, but these afflictions we're experiencing don't usually resolve in a month. However, symptoms do get better, albeit slowly - try to compare how you were a week ago and how you are functioning now, cause over-the-night improvement is really rare. That being said, most recovery stories posted here mention that they got noticeably better after/during week 6 post-jab and make a (near)full recovery around 3 months. 

I am exactly your age with similar domestic circumstances (partner-wise), knowing full-well how you feel. Concerning brain fog, mine was so intense I've occasionally felt detached from reality. And that passes as well. You'll return to normal, just don't push it - be aware of your limits and don't try to surpass them forcefully, as that will worsen every possible symptom. 

Regards

JeanK

When does this end?

The only symptoms I have had are:

• my nerves feeling pancaked together / smashed together and trying to tear apart from something (probably trying to get unstuck) in my shoulder blades on my back
• my nerves feeling extreme pressure on my sides
• my nerve across my stomach feeling like an electric fence
• nerves feeling extra sensitive and smashed together on my side

Ivermectin and glutathione are helping.  But gosh, when does this all just go away?

I am 3 months into it and it feels like it is going to last forever.

I am told that some people who got the H1N1 vaccine also had various nerve problems afterward.  Does anyone know when these things go away?  A year?  6 months?  Any guess?

Not knowing what it is or how long it will take is a hard aspect of this.

@jeank you haven’t offended or made me feel worse! 🙂 

thank you for your words! Last night I was having a rough night, I’ve never experienced anything like this in my life and it can get you down, I’ve tried so many things like acupuncture, IV vitamin therapy, all the recommended things on here but I guess I just need to give it time as well. 

Hopefully by Christmas I will be better!