Been struggling with all of this for awhile now. From panic attacks, to dizziness, to feeling like I was blacking out, numbness, chest pain. The shot crippled me. But it also brought me so much closer to Christ going through all of this. I’m ready for this part of my life to be put behind me. Some of the things that help me are staying busy, working out when I can, drinking surplus of water, and a lot of açaí bowls and fruits high in antioxidants, I’m praying for everyone on this thread because I know the fear that comes with all of this.
I started physical therapy about 4 weeks ago. My vertigo slowly subsided with the Epley Maneuver and it has now been a few weeks since I've had vertigo symptoms. I still have mild dizziness with imbalance and tingling with burning in my upper lip, face eye & ear on my right side. The symptoms have subsided where I can somewhat function unlike prior to PT my symptoms were very debilitating. The neurologist I saw does not think my symptoms will be permanent but how would anyone know that yet? At least they have subsided enough to allow me to function most days. I hope you are able to find someone or something to help ease your symptoms as well. Blessings to you on your journey to recovery!
Hi, how long did it take to subside? Has you taken both shots or just one?
How are you feeling these days?
Hi, I have been posting some questions here and there but today I went to see my doctor and I got a diagnostic (kind of) so I'd like to share what my symptoms are after the first short of Pfizer and what the doctor said.
May 21 - Pfizer shot, has some itchiness all over body but subsided after an hour or two, then pain in the injection site for 2 days. Four days later I started to develop a headache that lasted for 3 days. From Day 6 to today this is what I'm having.
- Numbness/tingling/vibrations are on both legs and feet (worse when I got up from sitting). Sometimes after I just woke up.
- Numbness on my fingers (more left hand) and sometimes hands, and (rarely) forearms.
- My legs (thighs) feel burn and tired after walking up stairs (basement to main floor).
- Dizziness (start about Day 10), more like disequilibrium to the right side especially when sitting down working or playing piano.
- left eye twitching
- I used to have a lot of pin and needles and now it's subsided.
Finally got to see my doctor in person today (had a phone call before and he was not worried). He said the result of my blood work is great. He did some physical testing and he thinks I have carpal tunnel syndrome on my left hand and slightly on my right. Which I kind of agreed on that. The strength of my legs feet hands arms are fine. However, when he tested dragging his finger under my feet, he knew something was not right on my right foot. He think it has something to do with spinal cord or brain (this totally scared me). So he refers me to a neurologist to have EMG test and he wants me to have CT scan for my brain (because of dizziness). He's also confused why I got hyperreflexic on right foot when most of my symptoms are on left side. He called "odd neurological symptoms to bilat legs, right clonus? hyperreflexic?"
So I guess it's not all from anxiety like many people trying to tell me. I was very healthy before and have no major health issue. I'm stress about what's happening and I'm glad to find this site. I'm taking Vit D, C, and B-12. Today I start taking Liposomal Glutathione and Quercetin (as some members have success in treating their dizziness). I hope it will help with any inflammation (I hope it's temporary inflamed and will go away with time), fingers crossed.
Hi there. Just was curious how you are getting on? As you haven't posted anything Inna while Im hoping that means you are now recovered. Just wondering if all your symptoms particularly the buzzing, dizziness and pins and needles finally went away completely? Reading your post your symptoms are so much like mine. I'm nearly 3 months out from my first Pfizer vaccine. Symptoms are very very gradually easing off.
Hi, how are you feeling these days?
How long did it take to recover from all of this? Has it gotten better for you and may I know what were your symptoms?
Sorry if this is inappropriate just jumping in, but I wanted to share my Dad's story. In Feb or March my 86 year old father got his first Moderna vaccine. About a week later he experienced some dizziness (really more a sense of imbalance) which was intermittent and seemed to be improving, so he went on to get the second Moderna shot. What followeding start a couple of weeks later was about 6 months of imbalance. He also experienced intermittent nausea (rare), and a couple of instances of Kaliedoscope vision (ocular migraine?). He received multiple workups (lab work, cardiac, etc), which were all negative. He experienced two falls related to his dizziness (the first was actually on a good day, as he tended to overdo things when he was having less inequalibrium). That fall was followed by an MRI, which again (and fortunately) showed nothing. After six months his lack of imbalance resolved. He had two good months and got permission to switch to the Pfizer vaccine for his booster (thinking Moderna was the culprit). 9 days later he has experienced his first day of "dizziness" in over 2 months. And it's like doctors out west aren't even allowed to think that a Covid vaccine might have some negative effects.
@tabby Are you on any preventative migraine medications? Besides the three different injections now available, there are also two new rescue medications on the market now. They can be used as soon as a migraine starts (including vestibular) or can be taken every other day to prevent any breakthrough migraines. My neurologist is taking me through a trial where we are combining the injections approach with the rescue medication approach (every other day). I cannot say how the trial is going because we just started it. 🙂
Thank you for replying. No, I am not in any medication for migraines or preventative medication. My migraines weren't severe or persistent enough until recently. I tried migraine meds years ago but couldn't tolerate them. Until now I've managed them with otc painkillers. I'm going to try vit b2 to see if that helps and if not I'm going to speak to my doctor about treatment. Do you know the names of the two new rescue medications you mention so that I can speak to my doctor about them? Thank you.
I am a 74 year male and I had the second Mederma vaccination on February 24th. with only slight side effects. A mild pain around the injection sigh and slight head ache, which subsided after a few days. In early April I started having extreme anxiety attacks. It got to a point where I couldn't get to sleep at night. If I did sleep, it was only was only for a few hours and I would wake up with a start. (like some shaking me) I would walk around the house at all hours, not being able to settle down. Irrational things would bother me. I never had these problems before. My doctor prescribed Xanax twice a day any the anxiety has subsided. Just wondering if anyone else has had these effects after the vaccine.
How are you feeling now? Has everything gone back to normal? Did you have any other symptoms in these months?
@jen789 - Thank you for your response Jennifer. Do you mind sharing what symptoms you had from the vaccine apart from the fullness of ears and dizziness. Did you also notice eye floaters or any other vision problems? Have you recovered 100% from the flare-ups caused by the vaccine? My neurologist prescribed me topiramate to see if this helps in getting rid of the inflammation and reset the brain. I am not sure if I should wait it out like many others or take the med. I am almost 70% back to normal. I got my vaccine on 3rd June and believe would have recovered faster had I not contracted flu from my daughter (who is only 3 and keeps picking up new viruses from her daycare).
I am so glad to see someone feeling better on this forum. How have you been feeling these days? Did the meds prescribed by the Neuro help you? Have you reached 100% recovery with no relapse?
If I may ask what were your symptoms? I have tingling, muscle tremors, now also feel like something crawling on my body and the head, weakness in hands and legs and nerve pain. Also have tinnitus and chest pain at times.
Do let me know as I too am planning to see a Neuro and I hope this works as I am tired of counting doctors since last 1 month and still felling terrible.
Hey, pls do use the Quote option whike responding. It helps. Take care!
Just a FYI, some of the symptoms I am seeing listed in some posts can be common side effects of meds like topomax, gabapentin, and others. My former neurologist several years ago prescribed me those types of meds and they made all of my vestibular issues much worse. My neurologist now keeps me far away from those types of meds. You may want to avoid those meds if being prescribed something to try to treat issues you are having after the vaccine.
I visting the Neuro yesterday and took the tablets prescribed, it just made everything worse for me.
Now I am just going to live with these symptoms and not let any medication further ruin my already troubled body. The Neuro said I seem fine and my nerves are responsive to the physical examination he did. Also when I told about my symptoms, he did seems a bit unsure and told, "You seem confused" to which I replied, "I am not confused. This is what is happening in my body and there are many things happening at a time." He was all ears but definitely confused. He said it is probably some chemical reaction in the brain that has caused it to send such signals to the body. I am thankful that he did not say I'm crazy or something.
While the tablets aren't being helpful. I am at least now sure that no doctor can fox my issue. The biggest healer here is time. I have also noticed the more we're anxious, the higher is the body's negative reaction.
I may not come back here so often or might never as it is just triggering me all the more. I will let me body do its work.
It really sounds like you went to a neuro that does not have the experience required to work with complicated cases. My neurologist is a research doctor and also has access to just about all the new meds out there. There are medications out there with little to no side effects now. I saw a post where someone said their neurologist was using topiramate to reset the brain. That drug does not reset the brain, so I have no clue why their doctor would say that. It is an epilepsy medication that is used off-label to treat migraines. It is an older med, and honestly, it is known to just make things worse. If you want a drug that resets the brain, you would need something like valium. The higher the dose, the greater chance of the brain resetting. My neurologist has done that one time with me along with a round of steroids. I think we did the steroids and then valium. We kept the valium dose low because I still had to take kids places, but if I did not have to, we could have increased it. Actually, if I remember correctly, that is what we did after my 2nd dose of the vaccine. There is something that will definitely reset the brain -- anesthesia. Anesthesia takes your brain to a close to coma state, and that will reset the brain. I actually have an upcoming surgery sometime towards the beginning of 2022 and may purposely get my booster shot (if they try to require it) a little before it so that I can use the anesthesia to reset my brain. 😉
I am planning to stop all meds and just let my body try to fix the issue on its own.
I think, this is the best I feel.
@medee Good! The fewer meds the better, and no meds is definitely ideal. I hope that it works for you.
Since I am a longterm vestibular patient, we knew what we needed to do to turn things around. The vaccine just caused a flare up, so we treated it like any other flare up. It was a more severe flare up so it took a bit longer to turn things around. After flare ups, I never get back to how I was before the flare up and instead the brain will adjust to a new normal. However, when I have had surgery, I have always woken up and been better than I was before the surgery. I have woken up feeling normal again. It is kind of funny and weird at the same time. We keep me on very few medications on purpose (have only been on two for the last two years and one of them I have been on for well over 7 years), and we stay away from any with side effects. We are trialing a 3rd to see if it can act as a rescue/buffer for any break through flare ups, but we have not tried it long enough for me to say if it works or not.
@tarruba I have taken Ivermectin for preventative treatment (no Covid) and suffered no ill effects. It worked as prescribed for my body weight.
Hiya @jacquelynsauriol I'm glad to see you posting. I didn't see you on here for a few weeks I thought you had left. Hope you are well!
@tabby I used to get dehabilitating headaches for years. I only took OTC because everything doctors gave me did not work anyway.
When my vestibular migraines (neurologist does not believe that is the full diagnosis but treats them as such) started in December of 2011, interestingly the regular, severe migraines disappeared and became very rare. I have not been bedridden with a headache for years, and in the last two years, any headache has been minor and easily controlled. I am sure that is partly due to the meds my doctor is using for the dizziness as since he is treating with a vestibular migraine approach, we are using the new kind of migraine medications.
The rescue drug that has been used for years with migraine patients is rizaptritan. I could not stand it and felt like it only made my dizziness worse. The new medication out there is Nurtec ODT. It was approved by the FDA I think it was is June? There used to be just Nurtec and it was used as a rescue med, but Nurtec ODT can be used both as a rescue medication and a preventative and has shown a good amount of success in clinical trials. Like the new injections out there (ajovy, aimovig, and emgality), it has a gene peptide approach and blocks a protein bond in the brain — CGRP receptor. For those who do not want to have to give themselves an injection every month, it could be a possible new option. Being that it has a different approach to attacking the migraine, it has also been more successful than the other, older rescue meds out there.
The trial my doctor is doing is having me both on one of the injections and then also nurtec ODT every other day. My injections are very successful but can wear off towards the end of the month, and as we learned with the vaccine, there can be breakthrough situations. Since I am more sensitive after the vaccine and get more breakthrough triggers now, we are doing this trial to see if having a second CGRP med in the mix will help reduce those.
Ubelvry is another new rescue medication out there. My doctor cannot use it because it is strictly for rescue situations and cannot be used as a preventative as well. It may be one to try if you are strictly wanting a rescue med. Nurtec ODT is currently the only rescue drug that can also be used as a preventative.
Finally, there is one more med out there. It is given via IV 4x a year, so it is not used as much but is very successful. It is called vyepti. It works well for those who do not feel comfortable giving themselves monthly or quarterly injections.
So in summary, the two new rescue meds are nurtec and ubelvry. If you want one that can work as a rescue and preventive, then you would want to try the new type of Nurtec — Nurtec ODT.
If you get migraines and/or vestibular migraines — which could have been triggered by the vaccine — the newer medication approach may be one to consider.
Hi Guys!
38 year old man from Poland.At the beginning of May I had 1st jab (pfizer).30 hours after the jab brain fog, small vertigo (like walking on a boat) and anxiety started.I had anxiety problems in the past but never with brain fog or vertigo.Tried all different supplements but nothing worked. Only xanax made me relaxed and made symptoms go away.It was worse when in stress (could not work), and better after sex or in the evenings (when I'm usually relaxed).This lasted 12 days. Thought it was over.Unfortunately after another good 9 days without symptoms I had a dentist appointment.Of course I didn't like going to the dentist in the past but it never made me panic.This time the visit triggered the symptoms again. Today is the day 6 of the symptoms.During all the days dealing with this talked with my family doctor, neurologist, psychiatrist, psychologist.The first two said it happens and to give it time. Even 2-3 months.Psychiatrist and psychologist additionally told me that after the vaccine the nervous system can get affected.Not directly because of the vaccine but with your body immunological response.And then things that usually didn't affect you in the past are now really hard to deal with (weak nervous system).And as you know (or not) brain fog, vertigo, headache are one of the most common anxiety symptoms.So from my experience the best advice I heard and can pass along: try to rest as much as possible, try to postpone or cancel anything that makes you stress, try not to watch emotional shows on tv/internet that make your blood pressure go up, do what you like doing (walking? sleeping? reading? sex or even masturbation?). Just try for few days quit anything that makes your brain work too hard and be stimulated too much. Help your nervous system regenerate. And many of the supplements mentioned in this topic of course help with that.Would love to hear if that helped in few days.Best!ps. I intend to get my 2nd jab (pfizer) next sunday anyway. But of course the perspective of that is not helping with my anxiety and brain resting method 🙂
Since June, how are you been feeling? Have all your symptoms gone completely?
What were your symptoms? Could you please share what helped you recover.
Do you the Quote option to respond. Take care.
@medee Good! The fewer meds the better, and no meds is definitely ideal. I hope that it works for you.
Since I am a longterm vestibular patient, we knew what we needed to do to turn things around. The vaccine just caused a flare up, so we treated it like any other flare up. It was a more severe flare up so it took a bit longer to turn things around. After flare ups, I never get back to how I was before the flare up and instead the brain will adjust to a new normal. However, when I have had surgery, I have always woken up and been better than I was before the surgery. I have woken up feeling normal again. It is kind of funny and weird at the same time. We keep me on very few medications on purpose (have only been on two for the last two years and one of them I have been on for well over 7 years), and we stay away from any with side effects. We are trialing a 3rd to see if it can act as a rescue/buffer for any break through flare ups, but we have not tried it long enough for me to say if it works or not.
So are you saying our lives will never go back to how it was before since you said the brain will adjust to the new normal?
@tabby I used to get dehabilitating headaches for years. I only took OTC because everything doctors gave me did not work anyway.
When my vestibular migraines (neurologist does not believe that is the full diagnosis but treats them as such) started in December of 2011, interestingly the regular, severe migraines disappeared and became very rare. I have not been bedridden with a headache for years, and in the last two years, any headache has been minor and easily controlled. I am sure that is partly due to the meds my doctor is using for the dizziness as since he is treating with a vestibular migraine approach, we are using the new kind of migraine medications.
The rescue drug that has been used for years with migraine patients is rizaptritan. I could not stand it and felt like it only made my dizziness worse. The new medication out there is Nurtec ODT. It was approved by the FDA I think it was is June? There used to be just Nurtec and it was used as a rescue med, but Nurtec ODT can be used both as a rescue medication and a preventative and has shown a good amount of success in clinical trials. Like the new injections out there (ajovy, aimovig, and emgality), it has a gene peptide approach and blocks a protein bond in the brain — CGRP receptor. For those who do not want to have to give themselves an injection every month, it could be a possible new option. Being that it has a different approach to attacking the migraine, it has also been more successful than the other, older rescue meds out there.
The trial my doctor is doing is having me both on one of the injections and then also nurtec ODT every other day. My injections are very successful but can wear off towards the end of the month, and as we learned with the vaccine, there can be breakthrough situations. Since I am more sensitive after the vaccine and get more breakthrough triggers now, we are doing this trial to see if having a second CGRP med in the mix will help reduce those.
Ubelvry is another new rescue medication out there. My doctor cannot use it because it is strictly for rescue situations and cannot be used as a preventative as well. It may be one to try if you are strictly wanting a rescue med. Nurtec ODT is currently the only rescue drug that can also be used as a preventative.
Finally, there is one more med out there. It is given via IV 4x a year, so it is not used as much but is very successful. It is called vyepti. It works well for those who do not feel comfortable giving themselves monthly or quarterly injections.
So in summary, the two new rescue meds are nurtec and ubelvry. If you want one that can work as a rescue and preventive, then you would want to try the new type of Nurtec — Nurtec ODT.
If you get migraines and/or vestibular migraines — which could have been triggered by the vaccine — the newer medication approach may be one to consider.
Thank you so much for taking the time to provide all this information. I think the covid vaccines have triggered these persistent migraines for me along with the dizziness. They were never severe enough before to see a neurologist or take any serious meds.I am still hopeful that things will return to as they were pre-vaccine. When I get a triage appointment with my doctor I will mention the oral vaccines, going to stay clear of injections for now. I am going to try vit B2 first though. Once again, thank you so much, hope you too are coping well.🙏😊
Hi Guys!
38 year old man from Poland.At the beginning of May I had 1st jab (pfizer).30 hours after the jab brain fog, small vertigo (like walking on a boat) and anxiety started.I had anxiety problems in the past but never with brain fog or vertigo.Tried all different supplements but nothing worked. Only xanax made me relaxed and made symptoms go away.It was worse when in stress (could not work), and better after sex or in the evenings (when I'm usually relaxed).This lasted 12 days. Thought it was over.Unfortunately after another good 9 days without symptoms I had a dentist appointment.Of course I didn't like going to the dentist in the past but it never made me panic.This time the visit triggered the symptoms again. Today is the day 6 of the symptoms.During all the days dealing with this talked with my family doctor, neurologist, psychiatrist, psychologist.The first two said it happens and to give it time. Even 2-3 months.Psychiatrist and psychologist additionally told me that after the vaccine the nervous system can get affected.Not directly because of the vaccine but with your body immunological response.And then things that usually didn't affect you in the past are now really hard to deal with (weak nervous system).And as you know (or not) brain fog, vertigo, headache are one of the most common anxiety symptoms.So from my experience the best advice I heard and can pass along: try to rest as much as possible, try to postpone or cancel anything that makes you stress, try not to watch emotional shows on tv/internet that make your blood pressure go up, do what you like doing (walking? sleeping? reading? sex or even masturbation?). Just try for few days quit anything that makes your brain work too hard and be stimulated too much. Help your nervous system regenerate. And many of the supplements mentioned in this topic of course help with that.Would love to hear if that helped in few days.Best!ps. I intend to get my 2nd jab (pfizer) next sunday anyway. But of course the perspective of that is not helping with my anxiety and brain resting method 🙂Since June, how are you been feeling? Have all your symptoms gone completely?
What were your symptoms? Could you please share what helped you recover.
Do you the Quote option to respond. Take care.
Hi!
As mentioned in my original post I did get the second jab. That didn't make it worst or better. Took around 2-3 months to get back to full recovery. Vertigo (more on that in my original post) took maybe 4-6 weeks in total. Anxiety and brain fog were my biggest problem. All of the supplements that I took did not help much (nothing spectacular). I did start to take SSRI (selective serotonin reuptake inhibitor) and I think it made it easier. As for advice I would write the same thing that I wrote in June:
"So from my experience the best advice I heard and can pass along: try to rest as much as possible, try to postpone or cancel anything that makes you stress, try not to watch emotional shows on tv/internet that make your blood pressure go up, do what you like doing (walking? sleeping? reading? sex or even masturbation?). Just try for few days quit anything that makes your brain work too hard and be stimulated too much. Help your nervous system regenerate."
Of course psychiatrist and psychologist is something that I would also strongly recommend.
Ps. I'm planning to take the 3rd jab when possible.
