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DrL
 DrL
(@nresearcher)
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Joined: 3 months ago
Posts: 13
 
Posted by: @lmkk
Posted by: @rainyday

I've recently read several posts from people saying that NAC helped them to feel better. Which brand of NAC works best? I'm currently taking Vital Nutrients' BCQ supplement and it has helped immensely - so much so that I become anxious when I start running out. I must take 6-8 per day, though, and while it's helped considerably, the inflammation is still there. 

I'm also taking a multivitamin, CoQ10, and Vitamin D - along with a lot of pineapple juice, orange juice (for vitamin C), grape juice (for vitamin C and heart health), water, and a diet low in refined sugar and dairy. 

My last big flare occured during my cycle, and I'm trying to prepare as much as possible for the next flare. I'm hoping NAC might help. Any other suggestions would be appreciated as well! 

Coconut water for the electrolytes and lots of berries for the reservatol.

Maybe some pumpkin seeds too for the magnesium, zinc, iron, etc... (also: leafy greens, salmon...).


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Terrymaria
(@ttoth0210)
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Joined: 4 months ago
Posts: 15

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Madge
(@maddie628)
Active Member
Joined: 5 months ago
Posts: 13
 

@dmac01515 My 48 year old son is into month 7 of symptoms, after his 2nd Pfizer shot.Tingling and numbness in face, buzz in chest,vertigo,brain fog, pins and needles and numbness in arms, and more.I pray he will also get better as the vaccine wears off.So far all tests clear, numerous doctors.Mayo clinic declined seeing him. I am hoping he will go back to P.T. I think it could help.He is very depresssed as his entire life was stolen by these symptoms.I am so happy when people share IMPROVEMENTS on this site. 


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Mina
 Mina
(@mina)
Active Member
Joined: 5 months ago
Posts: 49
 
  • Hi, does anyone suffer from GI issues with extreme acidity and a lot of burping?

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Dee
 Dee
(@medee)
Very Active Member
Joined: 3 months ago
Posts: 480
 
Posted by: @s-m-a
Posted by: @medee
Posted by: @s-m-a

Hey everyone. I'm seeing a lot of comments of fear and anxiety. I get that. I do. But, time makes it better. I am better. I was super dizzy and sick with all the things for three months and two weeks and then I GOT BETTER. I do know it feels hopeless and the more I think back, the more I believe that is a side effect within itself. Like some people who have had Covid have a hard time coping. I know I did. And I felt the same despair after the vaccine, but I was much sicker after the vaccine. I never had dizzy spells with Covid alone. I think that the feeling if impending doom is a side effect. I felt it too, and I know every single thing you are feeling is real. It is. I felt it. Lots of others here have felt it. And we know that but still feel so very alone. Side effect. But for those in that spot, do not lose hope. Although I know it will be nearly impossible, do something to get your mind off of it. You are not crazy and you will get better. My muscles were super tight so I bought a neck massager. This one thing helped more than all the medication, doctor visits, tests, anything. It loosened my muscles enough to get some blood flow to my brain I think. I felt alot better, and this was daily massages for a few hours everyday, at least one hour, for weeks. It wasn't a cure all but it helped. And it took time. This happened to us. We are going to be ignored because the companies that gave us this are too well protected. They can't be held responsible for what they did to us, and we knew that. Very obvious no, isn't it? But nevertheless, you will get better. Guys, I got on a boat last month. And I was fine. You will come out of it. It just takes time. I hate reading all the scared posts because I was that post. So I feel compelled to try and encourage you all. It's gonna be okay. You don't need drugs. They don't help help. Take vitamins if you are deficient and then stop when you are not. They will not help. There is no cure. You have to heal. I took it it all. It was useless. Lower your anxiety however you can and give it time. You will be okay. Say it until you believe it. And neck and shoulder and back massages. My muscles seriously were noticeably swollen and super stiff to the touch. 

Hi! What were you symptoms apart from muscle tightness? Did you do any tests?

How long did it take to recover? Were there any relapses? How are you these days.

Do use the QUOTE option when you respond. Thanks and take care.

Thank you for the quote option suggestion. I didn't even realize. Yes, my symptoms were vast. I had the tight muscles everywhere, mostly neck and shoulders. My lymph nodes on the entire left side of my body swelled and stayed that way for about three to four weeks. I had severe migraines. The migraines were bad. Really bad, but I had them after the first time I had Covid so I wasn't too concerned, but then the dizzy spells started. They were new. In between headaches and then instead of headaches. I had fullness in my ears, nose, and head, and a weird wetness in my ears. Not dripping but definitely wet. Pins and needles and roaming numbness. Especially in my hands to the point that they were sometimes useless. I had heart palpitations. I had a tight swollen feeling behind my eyes. TBH, my eyes still aren't like they were before. I had a ton of anxiety and feeling trapped. I had brain fog so bad I couldn't come up with the word for a broom while I was looking right at one. I didn't have the insomnia and I didn't throw up, but I was nauseous alot because of the dizzy spells. I did have tests. I went to the doctor, told them everything, they denied it could even be possible it was related to the vaccine, and diagnosed my with an ear infection with no sign of infection in my ear and with a perfect blood tests. I have had severe anemia to the point of blood transfusions, so when I say this blood test was perfect, it was perfect. Better than I have ever had, but I have never been sicker in my life. They wouldn't send me for any scans because my bloodwork was perfect, which is also how I know I didn't have an ear infection. It took three months and two weeks for the dizzy spells to break. Then I had a massive migraine. It lasted two days and I was sore after. I can honestly say it was the worst headache of my life and I was expecting to get dizzy afterwards, but I didn't. I did end up with an intestinal infection after that. It might have been the medication, Ivermectin, or it might have just been a random infection, but I was sent for a scan after that. My digestive track was inflamed throughout the entire thing. At this point, I was better though. No dizzy spells, no headaches. I was having vision problems and head pressure, but nothing like before. I was given antibiotics, a colonoscopy, and steroids for the gut infection and I feel sort of better. I have had GI issues for a while so I can't say if it was the vaccine or not or the ivermectin or not. I was pretty bad with that until about mid September. I don't know if I would call it a relapse because I can't say for sure it was even related. I am feeling better from that and all other symptoms have subsided. Occasional blurry vision and head pressure. Oh, and I had a stiff neck for a few days last week for which I used the neck massager. It was bad but it didn't get to that massive stiff and swollen level like before. I had some allergies because of the season change and I was so scared the dizzy spells would come back but I tried to meditate, not something I normally do, and calm down any anxiety and the dizzy spells did not start back. If I relapse, I will let you guys know. Thank you. You take care as well.  

How long did it take for the palpitations to go back to normal heart rate? Did you do anything for that?

I have had chest pain post vax but it subsided. Then I went to a Neurologist and he gave me medicines. It was for nerve pain which was also an anti depressant. I shouldn't have taken it since it was for depression too. But since it is also prescribed for nerve pain, I took it. That night was the scariest night of my life. I had bad palpitations. I could hear myself breathe. Since then the palpitations have nevere gone. I took just one tablet on 15th Nov and then I stopped it but.... I still have issues.🥺

After 5 days, I had to visit a Cardio as it won't stop and I again started getting chest pain. He did an ECG, came back normal. BP was okay but the heart rate was high. I told him about the tablet and the side effect. Also told him about the vax to which he denied as usual. 

I was on a 5 days medication for the heart. Though I felt better in the day, I did have episodes of palpitations at night but I ignored them. Now my medication is over. I am not taking any tablets for the chest or heart. I still have palpitations. Today in the day as well. Also have chest pain. I don't know what to do anymore.🥺


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KirKan
(@kirkan)
New Member
Joined: 6 months ago
Posts: 2
 
Posted by: @medee
Posted by: @s-m-a
Posted by: @medee
Posted by: @s-m-a

Hey everyone. I'm seeing a lot of comments of fear and anxiety. I get that. I do. But, time makes it better. I am better. I was super dizzy and sick with all the things for three months and two weeks and then I GOT BETTER. I do know it feels hopeless and the more I think back, the more I believe that is a side effect within itself. Like some people who have had Covid have a hard time coping. I know I did. And I felt the same despair after the vaccine, but I was much sicker after the vaccine. I never had dizzy spells with Covid alone. I think that the feeling if impending doom is a side effect. I felt it too, and I know every single thing you are feeling is real. It is. I felt it. Lots of others here have felt it. And we know that but still feel so very alone. Side effect. But for those in that spot, do not lose hope. Although I know it will be nearly impossible, do something to get your mind off of it. You are not crazy and you will get better. My muscles were super tight so I bought a neck massager. This one thing helped more than all the medication, doctor visits, tests, anything. It loosened my muscles enough to get some blood flow to my brain I think. I felt alot better, and this was daily massages for a few hours everyday, at least one hour, for weeks. It wasn't a cure all but it helped. And it took time. This happened to us. We are going to be ignored because the companies that gave us this are too well protected. They can't be held responsible for what they did to us, and we knew that. Very obvious no, isn't it? But nevertheless, you will get better. Guys, I got on a boat last month. And I was fine. You will come out of it. It just takes time. I hate reading all the scared posts because I was that post. So I feel compelled to try and encourage you all. It's gonna be okay. You don't need drugs. They don't help help. Take vitamins if you are deficient and then stop when you are not. They will not help. There is no cure. You have to heal. I took it it all. It was useless. Lower your anxiety however you can and give it time. You will be okay. Say it until you believe it. And neck and shoulder and back massages. My muscles seriously were noticeably swollen and super stiff to the touch. 

Hi! What were you symptoms apart from muscle tightness? Did you do any tests?

How long did it take to recover? Were there any relapses? How are you these days.

Do use the QUOTE option when you respond. Thanks and take care.

Thank you for the quote option suggestion. I didn't even realize. Yes, my symptoms were vast. I had the tight muscles everywhere, mostly neck and shoulders. My lymph nodes on the entire left side of my body swelled and stayed that way for about three to four weeks. I had severe migraines. The migraines were bad. Really bad, but I had them after the first time I had Covid so I wasn't too concerned, but then the dizzy spells started. They were new. In between headaches and then instead of headaches. I had fullness in my ears, nose, and head, and a weird wetness in my ears. Not dripping but definitely wet. Pins and needles and roaming numbness. Especially in my hands to the point that they were sometimes useless. I had heart palpitations. I had a tight swollen feeling behind my eyes. TBH, my eyes still aren't like they were before. I had a ton of anxiety and feeling trapped. I had brain fog so bad I couldn't come up with the word for a broom while I was looking right at one. I didn't have the insomnia and I didn't throw up, but I was nauseous alot because of the dizzy spells. I did have tests. I went to the doctor, told them everything, they denied it could even be possible it was related to the vaccine, and diagnosed my with an ear infection with no sign of infection in my ear and with a perfect blood tests. I have had severe anemia to the point of blood transfusions, so when I say this blood test was perfect, it was perfect. Better than I have ever had, but I have never been sicker in my life. They wouldn't send me for any scans because my bloodwork was perfect, which is also how I know I didn't have an ear infection. It took three months and two weeks for the dizzy spells to break. Then I had a massive migraine. It lasted two days and I was sore after. I can honestly say it was the worst headache of my life and I was expecting to get dizzy afterwards, but I didn't. I did end up with an intestinal infection after that. It might have been the medication, Ivermectin, or it might have just been a random infection, but I was sent for a scan after that. My digestive track was inflamed throughout the entire thing. At this point, I was better though. No dizzy spells, no headaches. I was having vision problems and head pressure, but nothing like before. I was given antibiotics, a colonoscopy, and steroids for the gut infection and I feel sort of better. I have had GI issues for a while so I can't say if it was the vaccine or not or the ivermectin or not. I was pretty bad with that until about mid September. I don't know if I would call it a relapse because I can't say for sure it was even related. I am feeling better from that and all other symptoms have subsided. Occasional blurry vision and head pressure. Oh, and I had a stiff neck for a few days last week for which I used the neck massager. It was bad but it didn't get to that massive stiff and swollen level like before. I had some allergies because of the season change and I was so scared the dizzy spells would come back but I tried to meditate, not something I normally do, and calm down any anxiety and the dizzy spells did not start back. If I relapse, I will let you guys know. Thank you. You take care as well.  

How long did it take for the palpitations to go back to normal heart rate? Did you do anything for that?

I have had chest pain post vax but it subsided. Then I went to a Neurologist and he gave me medicines. It was for nerve pain which was also an anti depressant. I shouldn't have taken it since it was for depression too. But since it is also prescribed for nerve pain, I took it. That night was the scariest night of my life. I had bad palpitations. I could hear myself breathe. Since then the palpitations have nevere gone. I took just one tablet on 15th Nov and then I stopped it but.... I still have issues.🥺

After 5 days, I had to visit a Cardio as it won't stop and I again started getting chest pain. He did an ECG, came back normal. BP was okay but the heart rate was high. I told him about the tablet and the side effect. Also told him about the vax to which he denied as usual. 

I was on a 5 days medication for the heart. Though I felt better in the day, I did have episodes of palpitations at night but I ignored them. Now my medication is over. I am not taking any tablets for the chest or heart. I still have palpitations. Today in the day as well. Also have chest pain. I don't know what to do anymore.🥺

Dee - please stop trashing this forum!!!!!!!!!!!!!!!!!!!!!


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Dee
 Dee
(@medee)
Very Active Member
Joined: 3 months ago
Posts: 480
 
Posted by: @chelsun

@holt Just reading what worked for you. Very interesting. I too had to find my own cure, didn't want to take steriods the doctors were recommending. 

I'm now 90% recovered. 

What worked for you?


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Dee
 Dee
(@medee)
Very Active Member
Joined: 3 months ago
Posts: 480
 
Posted by: @maisamy

25 yrs, female,  healthy with no medical conditions. I had a severe reaction to my first and only AZ jab. I'm 3 and half months in with no relief, here are to my symptoms

Very heavy head/ legs / arms 

Terrible headaches 

Dizziness/ balance issues 

Tingling/ numbness/ muscle twitches / tremors / stiff muscles 

Burning hands/ feet

Excruciating legs pain 

Ear pressure/ sinus 

Tight chest / Difficulty breathing 

Extreme fatigue/ Difficulty walking 

Difficulty swallowing food / throat is closing 

Feeling feverish without having a fever 

Veins/ Blood vessels are more prominent in my hands and feet

Did lots of bloodwork and all came back clear except for ESR ( high ). They gave me a steriod shot and It didn't do anything and doctors don't know how to help. It feels like my Immune system is attacking my body. I'm really depressed, can't no longer work and in bed 24/7 

I've been taking vitamin D3, vitamin C , Zinc, magnesium but nothing seems to help. I'm devastated. Has anyone recovered from this?? I'm 25 for God's sake !!!

 

 

How are you feeling now? I have the same symptoms as yours.

Do use the QUOTE option when you respond. Take care!


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Dee
 Dee
(@medee)
Very Active Member
Joined: 3 months ago
Posts: 480
 
Posted by: @chelsun

I'm posting to give some hope to those of you who are still suffering after getting vaccinated. I too, developed POTS like symptoms after getting vaccinated with Pfizer. First vaccine in Jan., 2nd one middle of Feb. I was experincing dizziness, low blood pressure when standing, rapid heart rate, numbness in my legs, floaters and extreme fatigue. Early in the month of May, I was so extremely tachycardia upon even sitting up, I was admitted to the hosptial for 8 days.

Since then I am 90% better. I did see two cardiologist and a neurologist, all wanted to put me on steriods, but I wanted to try to solved this without. What I did was, I increased my hydration, 80 Fl oz of water a day, as well as a half a bottle of Pedalyte every morning, increased my salt intake and went back to taking my vitamin supplement that I had stopped prior to the vaccine. I also bought a rowing machine and have used it to get endurance back while being in a seated position. 

As of today, I can now do about a mile walk and my heart rate and blood pressure have returned to normal, I'm no longer fatigue and if I have floaters I'm not seeing them.  

It did take some time to get back to normal, but want to give encouragment to those who are still suffering. Don't give up hope and try different approaches until you get one that works for you. 

P.S. I beat cancer in 2019 and I wasn't about to let the vaccine beat me! 

 

How long did it takw for the heart rate and palpitations to go back to normal? Did you also have chest pain?

Do use QUOTE option when you reply.


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Coco
 Coco
(@coco)
Active Member
Joined: 8 months ago
Posts: 17
 

@sickofthis sometimes i have strong bladder issues for 2 weeks and then it lessens, but comes back after a few days/weeks. My doctor is not sure if it’s going to fade, but there are médications that I can take. I have tried them because sometimes the pain and the urge to go to the toilets is unbearable ! But i had to stop because i’m taking another medication for my other issues and i can’t take both 


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LorraineB
(@swtammie78)
Active Member
Joined: 5 months ago
Posts: 39
 

Apologies in advance for the rant/vent post. Maybe skip if experiencing anxiety. 

My neurologist diagnosed me with CNS Demyelination due to the COVID vaccine. In general, it's tough to find a doctor who will acknowledge these symptoms are a vaccine side effect and this guy did without hesitation. Yet, this doctor is also telling me that I need to proceed with getting the second shot. Okay... What?! I'm really confused. Guillain-barré is a Demyelinating syndrome that is listed as a side effect of the J&J vaccine. How am I not at increased risk for a Demyelinating syndrome when you just told me that I experienced a vaccine side effect which resulted in my immune system attacking my brain? I also told this doctor that my husband and I are trying to conceive after suffering a late pregnancy loss last summer and naturally I want to know how this side effect will affect both me and the baby if I were to experience it again. His response was that there is no data, that he is aware of, on pregnant mothers who suffered from this particular reaction while pregnant. He also said let's just hope it doesn't happen again. Again what?! So you want me to get a vaccine after already experiencing severe side effects (which you diagnosed me with) because maybe I'll be fine this time and hey, at least I won't get COVID? Look, I get it. COVID has ruined our lives and I don't want to get sick - especially while pregnant. But, doesn't the CDC recommend "talking to your doctor" to assess your personal risk factors? You know, because the general guidelines don't always apply at the individual level?  I'm sorry, but COVID is not more of a threat to a woman (pregnant or otherwise) who works from home and hardly leaves the house than the vaccine when that woman already experienced side effects listed in the damn data sheet. Unbelievable.


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LorraineB
(@swtammie78)
Active Member
Joined: 5 months ago
Posts: 39
 
Posted by: @medee
Posted by: @swtammie78

@tunafish15 I'm so very sorry to hear about your adverse reaction. I posted about my reaction in early August and although my symptoms are not identical to yours, there are some similarities. I went to the ER when the pressure in my head and brain fog was so intense that I thought I had encephalitis or something that was going to kill me. The way you described your head pressure is almost identical to mine (back of head, top of head, temples, back of neck). I felt like my brain was going to explode and could no longer fit in my skull. I also had brain fog, dissociation, confusion, off balance, vertigo, and occasional brain zaps. I'm writing to say that it's been a month and a half and I feel so much better although the head pressure is not entirely gone. However I can now function at work and can drive again. I think everything is going to be okay. Try to accept your situation if it's possible. Depression and anxiety are only going to make your head hurt more and that's the last thing you need right now; easier said than done, I know. Be kind to yourself while you recover - I believe that you will but it's going to take time. I also thought that my life was ruined and I suppose it was for a time, but I'm still here.

At my worst I tried to eat an "anti inflammatory" diet and I didn't exercise much. I also eliminated coffee because it seemed to aggravate my symptoms. I also practiced acceptance because no doctor could help me and honestly I just felt happy to be alive. I don't think any of these habits treated my symptoms, but they didn't make me feel worse. 

Hugs to you. You will get through this.

Please continue to provide updates. 

How are you feeling these days? Have you completely recovered from it?

Did you have any other symptoms? 

Do use the QUOTE option when you respond. Take care 

Hi! Ive been stuck in this "mostly better" stage of recovery for a month or so. I'm starting to think this is how things will be for a while. I've moved beyond persistent symptoms to what is now little to no symptoms except when there are. So sometimes I feel fine and without warning I get this burning sensation in my head again but it's never as severe as back in August. Dizziness creeps in randomly too and as a reminder I don't have a history of getting dizzy so that's discouraging. I suppose, coffee is still a trigger for me but it's not consistent. Overall, things are trending in the right direction 🙂

Hope you're feeling better too!! This can really wear on a person. 


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Dizzyisnotfun
(@dizzyisnotfun)
Active Member
Joined: 2 months ago
Posts: 10
 
Posted by: @courtneymchale2288

If anyone wants to join a zoom chat I’m going to be planning one for next week hopefully! Send me an email and I will join you to my email list! [email protected] 

I’m in pacific standard time so it might take me a bit to reply if we aren’t in the same time zone!

I think seeing each other face to face would be so amazing to feel understood and make something out of this positive if we can! 

Hi would love to join! My email address is [email protected] 


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Seema
(@seemamkhrj)
Active Member
Joined: 6 months ago
Posts: 44
 
Posted by: @june42

@seemamkhrj - Your monthly summary was very helpful.  I too got the first Pfizer shot and had the same issues you reported.  I have been dealing with multiple ENT doctors who don't know anything.  I finally found a Neurologist and he just now has started me on a high taper dose of Prednisone.  And Diazapem at 4mg per day for 7 days.  What was your dosage?  Finally both these medicines are helping reduce the headache and dizziness when I walk I feel natural not drunk.  Now why did that other Doctor tell you to stop the Diazapem?  From what you said you got worse so maybe that Doc was just stupid?  What do you think most helped you?

As I read your posts you are almost there.  You can drink coffee! How's that going for you?  Are you exercising?

Thank you

 


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Seema
(@seemamkhrj)
Active Member
Joined: 6 months ago
Posts: 44
 
Posted by: @june42

@seemamkhrj - Your monthly summary was very helpful.  I too got the first Pfizer shot and had the same issues you reported.  I have been dealing with multiple ENT doctors who don't know anything.  I finally found a Neurologist and he just now has started me on a high taper dose of Prednisone.  And Diazapem at 4mg per day for 7 days.  What was your dosage?  Finally both these medicines are helping reduce the headache and dizziness when I walk I feel natural not drunk.  Now why did that other Doctor tell you to stop the Diazapem?  From what you said you got worse so maybe that Doc was just stupid?  What do you think most helped you?

As I read your posts you are almost there.  You can drink coffee! How's that going for you?  Are you exercising?

Thank you

I am fine, still at 90-95% mark. I sometimes get pins n needles on my head, but it's way milder now. The only thing that bothers me is the dark vision and tinnitus. The floaters are getting lighter or may be my brain has started to ignore them. I will keep you all posted about my progress. I am not sure how long it will take to be 100%. But, we all will get there.  


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