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Dizzyisnotfun
(@dizzyisnotfun)
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Joined: 2 months ago
Posts: 10
 

I wanted to know if anyone has considered trying LDN (low dose naltrexone) to relieve these horrid symptoms?

Its an immune system modulator and alot of people use it for chronic inflammatory conditions and autoimmune diseases 

I have 1mg capsules at home from last year. I was going to take them but i fell pregnant so never used. (unfortunately was miscarriage) 

I was tempted to try lastnight but i was scared it may cause bigger issues. 


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Nath7
(@nath7)
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Joined: 4 months ago
Posts: 162
 

@dan1878 great news mate, as I’m kind of with the same sort of issues I’m also thinking time is going to be the healer if I’m honest. Keep at it hopefully see better results sooner rather than later! 


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Tarx
 Tarx
(@tarx)
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Joined: 4 months ago
Posts: 72
 

how have people helped their appetite? Physically can’t eat and feel so weak not eating but I just can’t stomach anything! My dizziness is crazy and my whole body just aches! 😩 I know not eating is probably making it worse but I’ve constantly got a lump feeling in my throat and food is just knocking me sick x


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catm
 catm
(@cathymason)
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Joined: 6 months ago
Posts: 42
 

@tomg 

 

Did you have relapses before it went away?


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jacquelyn sauriol
(@jacquelynsauriol)
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Joined: 5 months ago
Posts: 204
 

@tarx Congee is cooked rice simmered with extra water, to a gruel.  It can be simmered in chicken or veggie broth.

Slippery Elm tea, Burdock root tea, Dandelion root tea can help because they have inulin, ie natural sugars that will help get you some calories. 

I lost alot of weight with covid (the disease) in 2019, went from 130 to 118 lbs....like no flu or other illness I had ever had.

I used Burdock root tea because it is all i had and I swear it saved me, I drank a pint-quart daily !

Roasted roots make for a tastier tea.  Your body may also be craving tuna or fish with the rice...thinking of you!


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jacquelyn sauriol
(@jacquelynsauriol)
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Joined: 5 months ago
Posts: 204
 
Posted by: @dan1878

Had my heart MRI in London this week after my heart being what seems to be the last remaining symptom and one that has effected me the most after palpitations, chest pains, thumping heart beats, Rhythm issues and so on. 

And the MRI showed up absolutely nothing. Showed my heart was absolutely perfect. All heart valves and chambers working as they should. No past inflammation. Which is an absolute relief but also leaves you scratching your head even more as to what is happening. Doctor is now moving towards POTS and says it can take up-to 18 months to go away. Had MRI’s on both my head and heart in the last 5 months and both perfect. So now it’s just time to wait it out and be patient 

Fresh walnuts and Hawthorne berry tincture, results in 1-2 weeks....palps almost un-noticeable.

 


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Rainyday
(@rainyday)
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Joined: 3 months ago
Posts: 124
 

@nresearcher I've been thinking a lot about this, and I think you're right: Plasmapheresis may be a plausible solution. If there were some way to remove the antibodies from our system, I'm positive we'd find relief! 


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Tom Germana
(@tomg)
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Joined: 10 months ago
Posts: 23
 
Posted by: @cathymason

@tomg 

 

Did you have relapses before it went away?

Yes, I had several relapses. The most serious one came after a night of drinking alcohol resulting in an intense postional vertigo attack that set me back a few weeks. Relapses are a common complaint on this forum.

 


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jacquelyn sauriol
(@jacquelynsauriol)
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Joined: 5 months ago
Posts: 204
 
Posted by: @jacquelynsauriol

@tarx Congee is cooked rice simmered with extra water, to a gruel.  It can be simmered in chicken or veggie broth.

Slippery Elm tea, Burdock root tea, Dandelion root tea can help because they have inulin, ie natural sugars that will help get you some calories. 

I lost alot of weight with covid (the disease) in 2019, went from 130 to 118 lbs....like no flu or other illness I had ever had.

I used Burdock root tea because it is all i had and I swear it saved me, I drank a pint-quart daily !

Roasted roots make for a tastier tea.  Your body may also be craving tuna or fish with the rice...thinking of you!

i would add your local Chinese Pho restaurant, if they are traditional, will have some version of Congee, and if they don't douse it with too much msg (hopefully none) it may be worth investigating;  my favorite is duck congee and also liver/organ meat congee, i know it sounds kinda gross, but i swear....its healing in moderation.

 

This post was modified 2 months ago 2 times by jacquelyn sauriol

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diana_tt
(@dianatt)
New Member
Joined: 2 months ago
Posts: 1
 

Hi everyone! I'm so relieved to find this forum and see that I'm not the only one having a complete nightmare after getting the Pfizer vaccine. My symptoms started to appear around 10 weeks post vaccination - I have pretty much all the symptoms mentioned over here including heart palpitations, pain and numbness in legs and arms, horrible insomnia and difficulty staying asleep for more than 1h. I've never felt more lonely, tired and discouraged in my life, I've been to several doctors and even ended up at the ER and all I've been told is that I'm completely fine and need to relax a bit as it's probably all psychological. It's been 3 weeks since I started having the symptoms and it's not getting any better. Hope we will all get past this soon!!


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catm
 catm
(@cathymason)
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Joined: 6 months ago
Posts: 42
 

@tomg 

Are your symptoms gone now? How long did it take? Did you have head pressure and dizziness (or boat feeling)?


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Tom Germana
(@tomg)
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Joined: 10 months ago
Posts: 23
 
Posted by: @cathymason

@tomg 

Are your symptoms gone now? How long did it take? Did you have head pressure and dizziness (or boat feeling)?

My positional vertigo, dizziness brain fog and balance problems are completely gone for about 6 weeks now. I never had head pressure. My problems were vestibular (inner ear). Tinnitus and fatigue still linger but the worst is over. 


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DrL
 DrL
(@nresearcher)
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Joined: 3 months ago
Posts: 16
 
Posted by: @rainyday

@nresearcher I've been thinking a lot about this, and I think you're right: Plasmapheresis may be a plausible solution. If there were some way to remove the antibodies from our system, I'm positive we'd find relief! 

Wonder if @gatordoc who posted some very helpful posts might have an opinion...

It would be nice to be able to have measurements of different types of antibodies and different inflammatory cytokines (such as TNF-α and IL-6).

In the meantime, it seems lowering inflammation as much as possible through lifestyle (anti-inflammatory diet, reducing stress, etc.) may be helpful.


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Brawlerino
(@brawlerino)
New Member
Joined: 5 months ago
Posts: 3
 

Here i am again guys, just wanted yo update my personal experience and share it here.

 

I had many of the symptoms described here, but after 5 months from the second dose (14th august), almost everything is gone. The only 2 symptoms that persists are fatigue and eyestrain, i'm always tired and when i do anything my eyes sometimes lose focus, i feel like i have a weight between them. I am taking alpha-lipoic acid as an integrator and it's working really well (Tiobec 600mg), it was suggested by my doc. Also, sometimes at random my heart rate spikes and remains between 90 and 110 bpm for about 15 mins to 1-2 hours, then back to normal (70).

 

 


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jacquelyn sauriol
(@jacquelynsauriol)
Very Active Member
Joined: 5 months ago
Posts: 204
 
Posted by: @mina
Posted by: @hopetofeelbetter

@mina i do and it is not resolving and the normal antacids arent really helpful my body is not tolerating medicine well at all. 

foods to stimulate the appetite and keep weight on-

Congee is cooked rice simmered with extra water, to a gruel.  It can be simmered in chicken or veggie broth.

Slippery Elm tea, Burdock root tea, Dandelion root tea can help because they have inulin, ie natural sugars that will help get you some calories. 

I lost alot of weight with covid (the disease) in 2019, went from 130 to 118 lbs....like no flu or other illness I had ever had.

I eventually gained the weight back but it took about 3 months. While I was sick  I used Burdock root tea because it is all i had

and I swear it saved me, I drank a pint-quart daily !

Roasted roots make for a tastier tea.  Your body may also be craving tuna or fish with the rice...thinking of you!

i would add your local Chinese Pho restaurant, if they are traditional, will have some version of Congee, and if they don't douse it with too much msg (hopefully none) it may be worth investigating;  my favorite is duck congee and also liver/organ meat congee, i know it sounds kinda gross, but i swear....its healing in moderation.

I'm in the same boat. I'm also losing a lot of weight, so afraid 😟😭

 


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