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Plazervil2500
(@hisrichess)
Active Member
Joined: 7 months ago
Posts: 73
 
Posted by: @thamollusk

@chelsun I wouldn't touch the booster with a ten foot pole. Surprised to see so many on this site even considering it. 

people are going back for second shots and boosters? wow. 


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Plazervil2500
(@hisrichess)
Active Member
Joined: 7 months ago
Posts: 73
 

hey. kinda down…the beginning of the month i felt amazing. i don’t know what happened but i’m having alot more days where i feel like things are going backwards. i changed my diet to low histamine and i think this is the cause but i’m not sure. 


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DrL
 DrL
(@nresearcher)
Active Member
Joined: 8 months ago
Posts: 68
 

@chelsun

Can understand but am hoping there will be a decent alternative to the current vaccines soon - for example, maybe a less reactogenic vaccine will come out. Or maybe another preventive method, such as the monoclonal antibody treatment described in article below that was approved by FDA last week.

"People who have a history of “severe adverse reactions” to the COVID-19 vaccines or any components of those vaccines, a very small population, can also receive the antibody therapy."

https://www.msn.com/en-us/health/medical/the-fda-approved-a-new-drug-to-prevent-covid-19-here-s-what-experts-think/ar-AARV6xc?ocid=msedgdhp&pc=U531

Am not recommending this drug in any way - would want to first make sure that those with vaccine reactions would not also react to monoclonal antibodies - but at least it might give hope that some other preventive methods could be in the works. Another possible solution would be a good treatment that is safe and easily accessible for after someone tests positive. Hoping something will be available within the next few months.


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Plazervil2500
(@hisrichess)
Active Member
Joined: 7 months ago
Posts: 73
 

i have a question to see what guys think about it.

alot of the foods i’ve been eating have histamine and are labeled on the spike detox page. it’s confusing because then it says to follow a low histamine diet. but eating certain foods that have histamine are powerful for anti-inflammatory benefits…i’m starting to realize that you can’t cut out histamine entirely, it’s basically present in almost everything and is probably why it’s stated “low.” 

how are you guys going about the low histamine diet? i need pointers, some advice or something lol! 


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Britt
(@brittanylanae)
New Member
Joined: 6 months ago
Posts: 2
 

So I had my Pfizer booster shot end of sept.. I had been not feeling the best so i had labs done.. initial D Dimer was 0.8.. PE study was neg... i work in a hospital so i recheck my D dimer  and it is now 1.3...  has anyone else experienced a higher d dimer with vaccine? 


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Opheas
(@opheas)
Active Member
Joined: 10 months ago
Posts: 32
 
Posted by: @jaydev55

@opheas are you still taking them?

I take them as needed now, as my symptoms have greatly improved after month 3. 


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Opheas
(@opheas)
Active Member
Joined: 10 months ago
Posts: 32
 
Posted by: @jaydev55

@opheas are you still taking them?

Hit send too early….I wanted to ask what symptoms are you experiencing? How long since your vax?


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vaxdJJ4-21
(@jaydev55)
Active Member
Joined: 9 months ago
Posts: 95
 

@opheas I had my shot in April but didn't start having symptoms until August. I've had imbalance, gi issues, hands breakout in rash from soaps, head zaps, random pains in joints, burning in legs, floaters, eye pain, head pressure, ear thumping, headaches and random vibrations/twitching.

 I am left with a occasional imbalance, GI issues, hand rash is still present, floaters (although lightening up a bit) and ear thumping.  Occasionally I'll get a bit of burning in my knee, but not as much or as bad as previous months. I am about 4.5 months since symptom onset and just taking D3(2000 iu) and vitamin C (1000mg).  


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Britt
(@brittanylanae)
New Member
Joined: 6 months ago
Posts: 2
 

@medee   has anyone seen an increase in d-dimer after booster?


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Opheas
(@opheas)
Active Member
Joined: 10 months ago
Posts: 32
 
Posted by: @jaydev55

@opheas I had my shot in April but didn't start having symptoms until August. I've had imbalance, gi issues, hands breakout in rash from soaps, head zaps, random pains in joints, burning in legs, floaters, eye pain, head pressure, ear thumping, headaches and random vibrations/twitching.

 I am left with a occasional imbalance, GI issues, hand rash is still present, floaters (although lightening up a bit) and ear thumping.  Occasionally I'll get a bit of burning in my knee, but not as much or as bad as previous months. I am about 4.5 months since symptom onset and just taking D3(2000 iu) and vitamin C (1000mg).  

I am so sorry to hear you’re having symptoms, it’s so difficult. I also had major GI issues right after my shot. My doctor suggested daily Prilosec to calm the stomach and the probiotics. The combination really helped for me. I took the Prilosec for two weeks and then weaned off over an additional week. Kept on with the probiotics for another month and felt much better.


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DrL
 DrL
(@nresearcher)
Active Member
Joined: 8 months ago
Posts: 68
 
Posted by: @hisrichess

i have a question to see what guys think about it.

alot of the foods i’ve been eating have histamine and are labeled on the spike detox page. it’s confusing because then it says to follow a low histamine diet. but eating certain foods that have histamine are powerful for anti-inflammatory benefits…i’m starting to realize that you can’t cut out histamine entirely, it’s basically present in almost everything and is probably why it’s stated “low.” 

how are you guys going about the low histamine diet? i need pointers, some advice or something lol! 

That seems a bit tricky and may require some trial and error to see which foods help you feel best. A search for "anti-inflammatory low-histamine diet" does show some websites with recipes that could provide some ideas. There is also a facebook page "Low Histamine/Anti-Inflammatory Diet Group" below but have no idea if it could be useful.

https://www.facebook.com/groups/935693763549949/posts/1313920532393935/

 


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vaxdJJ4-21
(@jaydev55)
Active Member
Joined: 9 months ago
Posts: 95
 

@opheas my GI issues are no where near as bad as September/October.  It's just not back to normal. Hoping the probiotic will help push me there. Thanks for the info. 👍


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Numb and Number
(@numbsense)
New Member
Joined: 7 months ago
Posts: 2
 

Hi everyone,

31M here, received the J&J shot on Oct 26. I've been following this forum (and the other 800+ page epic) since early November, so want to start off by saying thanks to you all for your insights and testimonies.

As with most of you, I've also been through a range of symptoms that come and go...and come back—from headache on my right side and sinus pressure behind my nose to pins & needles in my extremities and feeling short of breath. What concerns me the most right is what I'd call nocturnal paresthesia. I'm having sleepless nights because I'm regularly waking up with hand numbness. Usually, it begins in my pinky finger on either hand, but sometimes when I wake up it's my entire hand or arm. Sometimes both pinky fingers at once. Thankfully the arm only happened once. Once I wake up, so does my hand and I regain feeling soon after. I presume others have felt this too but it would be very helpful to know that for sure, if it's temporary, and if there's ANYTHING I can do to prevent me from happening. It's an awful feeling and I'm now afraid to go to sleep.

If you want some additional background: So far I've met with an internist who ordered an echocardiogram, which came back fine, and a neurologist. Neither has been super helpful or proactive. At the moment the neurologist does not believe it to be GBS and says my current symptoms don't suggest a primary central nervous system disorder. An EMG has been scheduled 3-4 weeks from now in case my symptoms persist. I have also seen an endocrinologist after my bloodwork revealed elevated TSH, but this doctor wasn't convinced the pins and needles/numbness were tied to Hashimoto's. That symptom typically presents at a very late-stage result and I've shown no other symptoms related to the disease. Going to meet with her again in a couple of months after repeat bloodwork. 

Below have been my symptoms so far:

  • Lower back pain (dull ache, comes and goes)
  • Daytime pins and needles in right hand, left hand and feet (not all at once and not associated with hyperventilating). This has gone away, although my right cheek sometimes feels... not right. Not quite pins and needles, not numbness, but something feels off. 
  • Night sweats - mild but on and off 
  • Erratic heartbeat/rate
  • Shortness of breath (would come and go) - can't tell if this is anxiety-related
  • Nocturnal paresthesia in my hands/arms (this past week it's been nightly)
  • Waking up feeling as if forgot to take a breath (usually connected to paresthesia; again, not sure it's anxiety)

I recently stopped drinking coffee and alcohol in the last week (and don't plan to go back to it any time soon). Trying to keep my overall diet anti-inflammatory but I'm not sure this is really helping that much by itself. Any additional words of wisdom would be greatly appreciated. Acupuncture? Finding a physical therapist? 

Also, for what this is worth, I'm based in NYC so if any of you know of ANY doctors here who are willing to address these conditions as something tied to the vaccine, I would be immensely grateful. So far they've been very hesitant to outright connect this to the vaccine, which is insane and makes me feel like I ultimately can't trust their diagnosis processes. 

That's it for now, thank you all,

Michael


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Plazervil2500
(@hisrichess)
Active Member
Joined: 7 months ago
Posts: 73
 
Posted by: @nresearcher
Posted by: @hisrichess

i have a question to see what guys think about it.

alot of the foods i’ve been eating have histamine and are labeled on the spike detox page. it’s confusing because then it says to follow a low histamine diet. but eating certain foods that have histamine are powerful for anti-inflammatory benefits…i’m starting to realize that you can’t cut out histamine entirely, it’s basically present in almost everything and is probably why it’s stated “low.” 

how are you guys going about the low histamine diet? i need pointers, some advice or something lol! 

That seems a bit tricky and may require some trial and error to see which foods help you feel best. A search for "anti-inflammatory low-histamine diet" does show some websites with recipes that could provide some ideas. There is also a facebook page "Low Histamine/Anti-Inflammatory Diet Group" below but have no idea if it could be useful.

https://www.facebook.com/groups/935693763549949/posts/1313920532393935/

 

thank you!!!


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Jessie
(@jkro)
Very Active Member
Joined: 9 months ago
Posts: 249
 
Posted by: @nresearcher

@chelsun

Can understand but am hoping there will be a decent alternative to the current vaccines soon - for example, maybe a less reactogenic vaccine will come out. Or maybe another preventive method, such as the monoclonal antibody treatment described in article below that was approved by FDA last week.

"People who have a history of “severe adverse reactions” to the COVID-19 vaccines or any components of those vaccines, a very small population, can also receive the antibody therapy."

https://www.msn.com/en-us/health/medical/the-fda-approved-a-new-drug-to-prevent-covid-19-here-s-what-experts-think/ar-AARV6xc?ocid=msedgdhp&pc=U531

Am not recommending this drug in any way - would want to first make sure that those with vaccine reactions would not also react to monoclonal antibodies - but at least it might give hope that some other preventive methods could be in the works. Another possible solution would be a good treatment that is safe and easily accessible for after someone tests positive. Hoping something will be available within the next few months.

I wonder if this would in any way help those of us who are vaccine long haulers with our current symptoms? 


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