@thenystagmus and @tabby the roller coaster is the ride i am on too. Same day head and energy and dizziness seems to be closer to normal, and then it hits me.
I guess we just have to monitor ourselves and rest when needed. Which is harder for those supporting families and job etc.
Another deep exhale, and then another...
I had my second Moderns dose 6 weeks ago. Four days afterward I was driving home from work and had a brief acute episode of nystagmus that lasted a couple of seconds. I got home and the episodes started becoming more frequent and lasting longer. First episode was around 6pm, by 11pm that night the nystagmus was causing me double vision, no balance (I fell into a wall), and vomiting. Right before and during these episodes the back of my head would tingle. I work in opthalmology and understand the normal causes of nystagmus, and this was not normal. My blood pressure was normal as well as my heart rate, I thought I was having a stroke. After dialated eye exam, visual field testing, and blood work, my doctor cannot find anything wrong. I never had it before and did not have it again. The vaccine was the only thing I can contribute it to.
Wanted to provide an update, now 21 days post first moderna shot and feeling completely back to normal. Actually better than normal as oddly enough the tinnitus that I’ve had since I was 10 is in fact still 90% gone which is so odd.
I began to feel normal at the 2 week mark then the last 10% came over the next week. I’m reading accounts of some of you feeling normal after a month then another month later it comes back, so I’m not holding my breathe.
A tip of advice, I see a lot of supplements being thrown around here, I’m guilty of it myself but I think what really helped me was upping my fiber/veggies.
70% of your immune system is in your gut, feeding those bacteria promotes SCFA growth which helps reduce inflammation and pretty much makes everything in the body work better. Rather than popping a bunch of vitamin c and whatnot (which can actually hamper good bacteria), really up the good fiber from veggies, almonds are also a good source of SCFA promoting fiber. I know it’s sounds hippy dippy and that taking pills is easier, but do some research of legitimate studies on SCFA production and I think you’ll be surprised.
Good luck!
Just curious if anyone here has experienced a feeling of weakness if there legs post covid vaccine? I received my first moderna shot back on March 10th, then about 9 days later I started feeling my legs going numb, mostly from knees down. Lasted a day or two then went away. Now it's back on me for the past 5 days. I ended up not taking 2nd dose this last Wednesday because I want to know what this issue is, plus also want the dizziness to go away also.. Now it feels like the inside of my legs are very hot. Taking Bayer seems to help alleviate that feeling but comes back once the Bayer wears off.
If you're in the UK, you can report side affects to any of the COVID vaccinations, regardless of whether you've been formally diagnosed or not, on this government website:
https://coronavirus-yellowcard.mhra.gov.uk/
I'm currently into week 3 of labyrinthitis following my jab - it's slowly getting better, but not quite out of the woods yet. Will see how it goes over the next couple of weeks before deciding whether to risk getting that second dose.
Can't wait to be able to sleep my side again :0)
Hi Vickers, Thanks for sharing your info; I'm glad you're seeing improvement! I'm wondering what symptoms you've been having and if you came to the conclusion that you have labyrinthitis or did you get diagnosed with it?
Funny how we develop such simple goals, like sleeping on our side! I'm 38 days out from #1 Moderna vaccination, 36 days of vestibular symptoms; yes, I've counted each day! I don't think I would stay on my back all night if I tried, so I lay on my back for a while, then turn on my side and try to ignore the resulting vertigo and nystagmus. It doesn't always trigger intense waves of nausea like it did earlier on. And during the day I'm having less episodes, pushing myself until I do, then politely backing away and hope it damps down again, believing my body needs to learn to compensate. Since it's been over a month now I'm hoping to start vestibular therapy soon to help me with that.
I'm fortunate to be recently retired (don't think I'd been able to keep working in this shape!) but I want to get back to painting the interior of my house, building some lazy susans, change my vehicles' oil... I usually enjoy using my riding lawnmower and my lawn is calling for it, but I've been procrastinating - dreading going round and round on it now! Wishes for better times ahead for us all!
Thank you for your contribution to clarifying side effects of covid 19 vaccine.
I got my second Moderna vaccine on April 5th 2021. Had no significant post-vacination symptoms after the first dose and none after the second until last night (5 days later). At midnight I was awaken with severe vertigo. I never experienced vertigo and, at first, my thought was "this was the end of my life". After a few seconds I slowly promted myself to sit and just breathe. It helped until I attempted to get out of bed.......
Being a retired medical professional, I started to self diagnose myself, realising that my hearth is functioning very well therefore it cannot be the end of my mortal life. After a while I realized that I may have a reaction to covid vaccine. Started searching the internet and that was unhelpful until I found theVeDA sight. In this time of pandemic and many unknowns, it was a blessing to learn that there are other people experiencing similar symptoms after various number of days post vaccine.
I still highly recommend covid vaccines, but would like to encourage vaccinated people to post their symptoms. It will help us patients and medical professionals know that immunity building can produce LATE symptoms. This knowledge will safe our minds and money spend on unnecessary doctor visits and use of medical diagnostic tests.
Official medical sites are waiting for real data analytics, which takes a long time to collect and produce. In the meantime, we humans are participants and need real time answers for our problems. Knowing there are other people in similar situations as ours is of tremendous help.
@irum Sounds like a good plan. I had a fairly good day until early evening and the headache came back. Dizziness not too bad today but I feel it still lurking around. Trying to stay positive and like you trying to maintain a healthy diet. Hope we all get over this soon! Take care.
Tabby, I find prochlorperazine works really well at controlling nausea - it doesn't have an antipsychotic effect at the 5mg dose used for nausea. No side effects (for me) either. My GP has prescribed cyclizine hydrochloride this time, but it doesn't work as well.
I had my first dose of Pfizer without any side effects other than a really sore arm. The second dose, I was fine the next morning, went to work, then spiked a fever a few hours later. Started to experience my first vertigo episode about 3 days after my second dose. It started out with just one episode, then increased in frequencies. They all have been mild until yesterday. It hit me hard and I felt nauseous and eventually threw up. I do have tinnitus and used to have really bad vertigo but the vertigo seemed to go away about six years ago. With yesterday's episode, it felt like when I used to have it real bad. My second dose was March 10... No fun.
@lh2021 Please post updates if it comes back. I also have tinnitus and was diagnosed with Meniere's Disease. I've had tinnitus for about 16 years now. If it goes away, that would be a blessing! I am still dealing with vertigo after my second shot of Pfizer.
@thenystagmus and @tabby the roller coaster is the ride i am on too. Same day head and energy and dizziness seems to be closer to normal, and then it hits me.
I guess we just have to monitor ourselves and rest when needed. Which is harder for those supporting families and job etc.
Another deep exhale, and then another...
Yes, one foot in front of the other, one step at a time... But it's a bit disconcerting when that lands you with your shoulder against one side of the wall in the hall. BTW, if anyone else has times that you're staggering like that, I'd advise you to be sure to mention it to any medical provider you see. I ended up at the ER on the weekend early on in this adventure, concerned I might have facial/eye shingles starting (apparently cellulitis instead) after not being able to be seen in my clinic over several days. You ought to have seen the ER doc's quick, hard look and sudden, furious scribbling when I mentioned it! They do seem take note upon hearing you're staggering and at risk for falling! Guess maybe that's a sign, instead of these pesky symptoms?
I had a vestibular incident six years ago followed by PT which stopped it. Now six years later after my second Pfizer it is back with a vengeance along with tinnitus that is almost unbearable and daily headaches. Wish I had have been forewarned.
@lisae Hi, it amazes me that doctors are in denial 're these vaccine side effects, I mean how can they possibly know, they cannot, the drugs are new and very little is known about their effects on individuals or long term effects. The truth is they don't have the answers. Thank goodness your physical therapist has some common sense. Good to hear you're making good progress and good luck with the dry needling. I don't know anyone who has tried that.
@thenystagmus Hi, my doctors surgery is closed to patients and has been for about a year. We can only get telephone appointments. They will only ask you to visit if they think you have something seriously wrong with you. When I spoke to my doctor on the phone the other day 're my dizziness and headaches, it took less than 2 minutes for him to prescribe me an antipsychotic drug, which I haven't taken. I think we just have to be pro-active and vigilant, that's why this site has been an anchor for me.