@centralx I was recently diagnosed with a high Ana level , Rheumatologist didn’t say which one just out me on anti inflammatory medicine which I’ve only taken 4 . When the pain is so bad. Please let me know what your results are and what’s the doctor said. Thanks . Hope we all recover soon.
My ANA test results come positive too. Now my doctor tells me I probably have Systemic Lupus. And I tell him I probably have systemic mastocytosis. There is a good information here about high ANA test results and MCAS relation and why high ANA test results does not automatically mean lupus or rhemoid Arthiritis.
I strongly suggest everyone to check for antinuclear antibodies (ANA) in their blood. Probably for many of us this test result will come back positive.
@tone Did you do anything special ? Anti-inflammatory diet , supplements , doctors , tests ? Were your symptoms debilitating? Could you not work ? Or function daily ?
I try and eat clean...everything freshly made...no processed foods...no dairy, except for a little light cream in my morning coffee...very limited carbohydrates...I have tried so many supplements, spent thousands of dollars, just like everyone else and to be honest, I think time and eating clean has made the difference...some symptoms are extremely scary...like when I am in bed at night and my body starts shaking...or, when I get cramps on the top of my feet...every time a new symptom is coming on my ears start ringing...I have seen my doctor more times in the last 10 months than I have in my 20+ years...useless...I tried the Patterson protocol...did nothing for me...I have seen ENTs...I am now seeing a neurologist who agrees my symptoms are from the vaccine and also believes they will resolve...Just that it is going to take time...
@tabby Hi, What major changes have you made to your diet if you don't mind me asking. Thanks.
I have eliminated sugar(only comes from fruit now)...dairy, except for light cream in my morning coffee...no processed foods...carbohydrates come from vegetables, fruit and organic bread only...I also do intermittent fasting...my eating window is from 6:00 am to 2:00 pm...after that, water only...I drink at least 64 ounces of water daily...Also, I do a 24 hour fast one day a week...
@tabby Today is day 1 with the tea and no noticeable difference yet, but its early days, i'll give it at least a week. I'm using fresh needles every brew doing 3 times a day. Tomorrow i'm also starting Quercetin and Zinc, 1 Tablet of each a day. I'll absolutely keep you up to date of any changes. I think stress is a big trigger for me as most of my issues are localised in my head (ears, balance, headaches, stiff neck, eye problems that kind of thing) A month ago I Felt ok'ish probably about 75% then 2 days ago i just hit a relapse so hard it was like being at day 1 again.
Keep your spirits up xx
@gingerjones I was wondering what GI symptoms did you have. Belching? Etc. thanks
@tabby Today is day 1 with the tea and no noticeable difference yet, but its early days, i'll give it at least a week. I'm using fresh needles every brew doing 3 times a day. Tomorrow i'm also starting Quercetin and Zinc, 1 Tablet of each a day. I'll absolutely keep you up to date of any changes. I think stress is a big trigger for me as most of my issues are localised in my head (ears, balance, headaches, stiff neck, eye problems that kind of thing) A month ago I Felt ok'ish probably about 75% then 2 days ago i just hit a relapse so hard it was like being at day 1 again.
Keep your spirits up xx
Thanks for getting back to me. My symptoms are so much like yours and I agree, stress makes things worse for me too. I hosted a distant family wake for 8 people over a week ago and I felt relatively good for that day and the day prior to it but for the next three days I was a wash out.
Day five of pine needles for me, I will continue in the hope of some relief, the upset stomach has passed but not the fuzzy dizzy head. I tried Quercentin and Zinc before, maybe I'll try it again. I seem to be sensitive to most supplements I take. I did start taking multivitamins yesterday. I hope you get some relief from the pine needles. Sending best wishes and will keep in touch.😊🙏
Hi all. I have some bad news to report. As of yesterday, I am having dizzy spells again. It started with my neck and shoulder muscles swelling up some. Then some bad headaches again. Then yesterday, the dizzy spell started. I am still dizzy today so far. I haven't had a dizzy spell since August of last year. I was hoping it was random, but it isn't. I did say I would come on here and update you guys if I had any relapses. I wish I had better news. I will keep you updated. My last shot was on April 19th, 2021. Almost a year ago. This is my first relapse since my symptoms resolved in August of 2021. I don't know what has triggered this. I am having some ear fullness and nose fullness a few days now. Maybe I am getting a cold or have come into contact with Covid again? Anyone else have a relapse after so long? I am concerned.
@tabby Hi, What major changes have you made to your diet if you don't mind me asking. Thanks.
I have eliminated sugar(only comes from fruit now)...dairy, except for light cream in my morning coffee...no processed foods...carbohydrates come from vegetables, fruit and organic bread only...I also do intermittent fasting...my eating window is from 6:00 am to 2:00 pm...after that, water only...I drink at least 64 ounces of water daily...Also, I do a 24 hour fast one day a week...
Thanks for replying. Carbs are a big problem for me, I need to cut out the pasta and bread. I eat very little fruit so will have to change that too. Good luck.😊🙏
Hi all. I have some bad news to report. As of yesterday, I am having dizzy spells again. It started with my neck and shoulder muscles swelling up some. Then some bad headaches again. Then yesterday, the dizzy spell started. I am still dizzy today so far. I haven't had a dizzy spell since August of last year. I was hoping it was random, but it isn't. I did say I would come on here and update you guys if I had any relapses. I wish I had better news. I will keep you updated. My last shot was on April 19th, 2021. Almost a year ago. This is my first relapse since my symptoms resolved in August of 2021. I don't know what has triggered this. I am having some ear fullness and nose fullness a few days now. Maybe I am getting a cold or have come into contact with Covid again? Anyone else have a relapse after so long? I am concerned.
Sorry about your relapse, it must be so devastating. Stress triggers symptoms for me and I have been dizzy for a couple of days and I am wondering if it's to do with all the bad news we are hearing about. When I look at the news I sometimes feel an onset of stress/anxiety. Hope your renewed symptoms are short lived. Best wishes.🙏😊
@bjohns23 I'm so sorry that you're going on 10 months of struggle. It sounds completely life-altering. I wanted to reach out because your story is very similar to mine - including the amount of time suffering. My symptoms started April 26th, 2021 about 1 week after my 2nd Pfizer shot. So, I'm going on 11 months too. Our early symptoms were a little different but what you're left with has some similarities to my symptoms - mainly the debilitating 24/7 non-spinning dizziness (like rocking on a boat), Sensitivity to light and heart pounding / irregular beats. The other thing I struggle with is severe brain fog and confusion, disorientation. I wish that I could pass along some solutions but unfortunately haven't landed on much yet but wanted to say you are not alone!!. I've tried some medications - venlafaxine was prescribed by a neurologist who specializes in vestibular disorders. I tried it for 3 months but it brought on other side-effects so I stopped. Now I'm trying Fluvoxamine which was prescribed by a long-COVID doc that I'm working with. I'm giving the Fluvoxamine another two weeks and then will have exhausted most of my western medicine options. I'm thinking of turning to some eastern approaches next. I plan to try acupuncture and maybe seen a functional doctor?. I am starting on a heart monitor for a few days so that the cardiologist can see if there's any concern with the heart but as of now he's said the heart palpitations are benign but admits they can be annoying and the thing that concerns me is that they've increased frequency over time.
What have you tried so far? What specialists if any have helped? Any luck with anything? Sending you good thoughts for slow improvement soon.
@gingerjones I was wondering what GI symptoms did you have. Belching? Etc. thanks
GI symptoms were diarrhea to the point it was all water...had an upper GI and they said I had acid reflux and maybe gastritis...personally, I agree I had GI issues, but I don't believe I had or have acid reflux...anyway, my GI issues are resolved and I now take a probiotic...
Hi all. I have some bad news to report. As of yesterday, I am having dizzy spells again. It started with my neck and shoulder muscles swelling up some. Then some bad headaches again. Then yesterday, the dizzy spell started. I am still dizzy today so far. I haven't had a dizzy spell since August of last year. I was hoping it was random, but it isn't. I did say I would come on here and update you guys if I had any relapses. I wish I had better news. I will keep you updated. My last shot was on April 19th, 2021. Almost a year ago. This is my first relapse since my symptoms resolved in August of 2021. I don't know what has triggered this. I am having some ear fullness and nose fullness a few days now. Maybe I am getting a cold or have come into contact with Covid again? Anyone else have a relapse after so long? I am concerned.
Hey there, interesting to see you went symptom free for so long and things just flared up again. I didn't go as long as you, but I did have a 3 month span where I felt 100% and thought things were officially back to normal, but unfortunately it didn't last. I'll leave my time line below. I do think my symptoms came back in September after those 3 months because I had a cold. I've had 2 colds and Covid since September and symptoms came back after each of those episodes although I did have a relapse without any cold or Covid, and I think that came on due to over exertion. I do think there is something to be said for making sure to stay rested and not overdue it. Even things as minor as running errands, sending emails, etc., can set things off. That being said, I was so active during my great 3 month stretch, so who knows what to make of it all. My only real symptoms at this point are lightheadedness/dizziness & eye strain from too much screen time. Minor anxiety at times as well. Also, I can tell when relapses are coming because my left toe gets a little numb feeling and my left hand fingers get a tiny bit tingly at times. I know this is a lot of random info, but it's been a random experience. My hope is as we near a year things may cease for good. I did see someone mention that spike proteins can last for 15 months in the body, so maybe it's going to take a while longer. I'm much better than I was the initial 2-3 months after my shots and for that I do believe we'll all fully heal in time.
Shot 1 - April 1, 2021 led to minor headaches Shot 2 - April 29th 2021, led to dizziness, headache, fatigue, anxiety, night sweats, and probably a couple others I can't remember. This all wore off around mid June and I was completely fine until September 15th. I got a cold and the dizziness came back. Since then I seem to follow a patter of a couple good weeks followed by a couple bad weeks. MRI was good, CT scan was good, ANA test was good, inflammatory test was good, ENT tests were all good, except one. Interestingly enough I was diagnosed with Vestibular Neuritis around 7 years ago. I had a 33% weakness in my left ear back then and they found that is still the case, so maybe the vaccine sparked something there and that's why I am still dizzy? Every time I think I might have figured things out something comes along and contradicts that thought. Also the fact that I had a great 3 months in between all of this makes things even harder to figure out! Feel free to send me thoughts or info if any of this message resonates with you. Hope you feel better soon.
Hey there, interesting to see you went symptom free for so long and things just flared up again. I didn't go as long as you, but I did have a 3 month span where I felt 100% and thought things were officially back to normal, but unfortunately it didn't last. I'll leave my time line below. I do think my symptoms came back in September after those 3 months because I had a cold. I've had 2 colds and Covid since September and symptoms came back after each of those episodes although I did have a relapse without any cold or Covid, and I think that came on due to over exertion. I do think there is something to be said for making sure to stay rested and not overdue it. Even things as minor as running errands, sending emails, etc., can set things off. That being said, I was so active during my great 3 month stretch, so who knows what to make of it all. My only real symptoms at this point are lightheadedness/dizziness & eye strain from too much screen time. Minor anxiety at times as well. Also, I can tell when relapses are coming because my left toe gets a little numb feeling and my left hand fingers get a tiny bit tingly at times. I know this is a lot of random info, but it's been a random experience. My hope is as we near a year things may cease for good. I did see someone mention that spike proteins can last for 15 months in the body, so maybe it's going to take a while longer. I'm much better than I was the initial 2-3 months after my shots and for that I do believe we'll all fully heal in time.
Shot 1 - April 1, 2021 led to minor headaches Shot 2 - April 29th 2021, led to dizziness, headache, fatigue, anxiety, night sweats, and probably a couple others I can't remember. This all wore off around mid June and I was completely fine until September 15th. I got a cold and the dizziness came back. Since then I seem to follow a patter of a couple good weeks followed by a couple bad weeks. MRI was good, CT scan was good, ANA test was good, inflammatory test was good, ENT tests were all good, except one. Interestingly enough I was diagnosed with Vestibular Neuritis around 7 years ago. I had a 33% weakness in my left ear back then and they found that is still the case, so maybe the vaccine sparked something there and that's why I am still dizzy? Every time I think I might have figured things out something comes along and contradicts that thought. Also the fact that I had a great 3 months in between all of this makes things even harder to figure out! Feel free to send me thoughts or info if any of this message resonates with you. Hope you feel better soon.
Thank you.
I am having some bad anxiety about it. I really didn't think these dizzy spells would come back. I never had them before and they can be pretty scary. I do not feel as bad as right after my second shot though. I do hope it doesn't get any worse. I think if I try to stay calm and breath, fast, etc. that it may go away sooner than later. Please keep me in your prayers.
Some light at the end of the tunnel. I read today, in the covid vaccine long haul autoimmune support in facebook, 4 stories of people that had recovered almost a 100% after a year or so of suffering. They were just doing the detox that we all are talking about but they said mainly was time that healed them. I am 5 months into this now but I continue to feel dizzy, have tinnitus, brain fog,memory loss. I feel a little better from the time I had the first vertigo attack and ended up like many of you in the er. I continue taking zeolite (1 month now) and charcoal along with the other vitamins suggested.The truth about all this will come out one day. All I am thinking now is stay away from 5G and the 5G phones. Radiation to your head and it might not help with all the problems we already have.