Hi has anyone caught covid while dealing with these symptoms from the vax?
Did they get worse? I have caught covid and my symptoms have been reactivated so to speak. Wanted to know though if they will pass quickly or will this mean another 6 or so months of hell?
I caught covid in mid January. My symptoms started to flare up 24 hours before symptoms of mild covid occured. Had mild covid symptoms for about 4 days then tiredness for a few weeks after. Once the COVID symptoms went after about 4 days my Pfizer symptoms calmed down again although they have never completely resolved since my jab 8 months ago.
I have an MRI of brain ..nuero symptoms . And CT scan GI issues. In two days, should I mention I think symptoms are from vaccine. Or get a diagnosis first ? Also have an appointment with neurologist in a month. Not sure what to do ?seems doctors are hesitant when mention vax.
Get tested first, see what they say then tell them it all started after your Vax.
Hi everyone
I wanted to share an update, about one month on from my last post.
I’ve been reading some of the discussions, especially those involving dizziness, e.g. @adelaide, @josephine, @garfybrown, @lindsay, @yjjy – and others.
See my first post back in January for my symptoms and timeline. To summarise, symptoms of dizziness and nausea, but also body aches and tremors, burning sensations, insomnia, fatigue, tinnitus, anxiety, head pressure, vision ‘off’, and cognitive impairment. For a couple of months I was completely debilitated, unable to do hardly anything. Medication helped bring panic attacks under control. Consultations with Cardiologist were largely clear, just observations re mild postural blood pressure drop and mild calcification of aorta. I am now five months in and have still not been able to return to work, or to my ‘normal’ life.
I was diagnosed by my ENT five weeks ago with peripheral vestibulopathy. My understanding is this could be caused by a virus or a vaccine. My symptoms started the day after my second Covid vaccine. I am not aware of having had a virus, and I did a test (with claimed 97% accuracy) that says I have not had Covid.
My ENT thinks hair cells in the inner ear canal are damaged. Like @adelaide’s ENT, he says the damage will be permanent, but the brain can compensate, and not to take any medication for the vestibular symptoms as this will delay recovery. I am five weeks into doing the vestibular physiotherapy exercises designed to help the brain with this compensation. These are not much fun as they are designed to flare the symptoms of dizziness, nausea etc. But … my experience of doing them lines up with what the ENT and the vestibular physiotherapist told me to expect, which gives me some hope the diagnosis is correct, and I do believe they are helping me make progress. This progress is not linear, it’s often X steps forward, Y steps back, but overall I think the severity of the symptoms is decreasing slowly over time, and very slowly I am able to start doing more (moderate) activities, in short spells with lots of rest in between.
I’ve been told to expect relapses, and that a sustained recovery can take many months. I have experienced one significant relapse. We decided to go away for a few days. I was unsure and apprehensive whether I’d be OK with it. Turns out I wasn’t, and we cut it short. Combination of a long journey, more activity and more visual stimulation than normal, being out of familiar home surroundings, etc, flared symptoms massively. Interesting thing was that some of the less obviously vestibular symptoms flared, as well as the dizziness and nausea, such as the body aches and tremors, insomnia and anxiety. Again, this makes me hope the diagnosis is right. I rested for a few days, but kept up with the exercises, at a slightly lower level than I had been doing them, and then I was back to the level I had been before we went away.
I am lucky that my insurance covers the ENT and the various tests I had done in order to get to a diagnosis. Anyone experiencing the same kind of symptoms might want to consider the ENT route, if you have not done already. Below are the tests I think I had - to the best of my knowledge / recollection, I’m a bit hazy on some of what was done. I hope this might help someone. I’ll post another update in due course.
Wishing everyone well with their recovery.
Oh, and PS, I tested normal for ANA (antinuclear antibodies) but low twice, six weeks apart, for IgM - so my immune system is not quite ‘normal’. I’m trying to get a referral to Immunology to see if there could be anything important going on there, or at least rule it out.
Vestibular tests:
Audiogram (hearing test)
Otoscopy / Tympanogram (examine ear canal and ear drum and how well it moves)
Lateral head impulse testing
Sharpened Romberg’s test
Unterberger’s stepping test
Hallpike-Dix’s test
MRI scan (of internal auditory meati – the canals within the skull)
Video head impulse testing
Posturography / balance platform
Vestibular Evoked Myogenic Potentials (cVEMP)
@lmkk hi do you think the snow vision that you have is caused by covid19 vaccine? Did your eye problem fully resolve? Thanks.
Hi sorry for the slow reply I just found your msg when I was reading back over the last few pages as I haven't been on the site for about a week. For some reason I'm not getting notifications when I receive a message so apologies.
When I was a child I used to see snow vision when I was tired usually when I was in bed trying to sleep. It was very very mild. Either it went away as I got older or I got used to it and no longer noticed it.
Within days of having my jab a whole heap of issues started including several different eye issues. Suddenly for the first time in years the snow vision was noticeable again. My eye floaters I've had for about 20 years also suddenly got very noticeable again. Over the last 8 months since my jab my snow vision has flared up and down. It gets more noticeable when I'm ill or tired. 100% the jab caused it to flare up. Two eye checks and OCT scans revealed nothing wrong with my eyes despite having so many problems and pain.
Does anybody know, what triggers yours symptoms? I thought that mine flare up after eating sugar, or drimkimg glass of wine, but at this moment is so bad, that i am confused tgat with time its get worse, i am at month 5 post vaccine.
Caffeine, sugar, alcohol, smoking, salt and highly processed foods are known to create inflammation which will make symptoms worsen. Feels like everything I eat these days makes my symptoms flare.
Anyone have persistent back pain ? Have had for approximately month . Doctor set up xray of back to see if anything. It is not always there and isn't debilitating . But is consistent and wondering if anyone has any relief ? Have taken Advil but can't take forever. Please anyone. Advil did help buy can only take short-term.
Horrible backache started one week after my Pfizer jab. It lasted about 3 months then slowly went away. Using a hot water bottle on it helped with the pain.
Does anybody know, what triggers yours symptoms? I thought that mine flare up after eating sugar, or drimkimg glass of wine, but at this moment is so bad, that i am confused tgat with time its get worse, i am at month 5 post vaccine.
Caffeine, sugar, alcohol, smoking, salt and highly processed foods are known to create inflammation which will make symptoms worsen. Feels like everything I eat these days makes my symptoms flare.
I feel exactly the same. It is fair to say I only eat when I have to and I have to eat because only prednisone pills help my pain and prednisone should be taken on full stomach. Usually I eat once a day. I sometimes dont eat for 2-3days just because of my fear that eating will trigger my symptoms.
My insomnia is generally OK, as long as I don’t do “too much”. If the other symptoms flare up, insomnia can come along with it. I’m sorry you are still suffering, it’s horrible. I was on sleeping medication (Zoplicone) for a while, but I know not everyone wants to go the medication route, or at least not for too long. I came off them when I could.
Am curious about anyone's experience on this site who may have worked with Dr. Patterson's group.
They have some interesting theories about what causes long-term post-vaccination symptoms, which they group with symptoms of long covid, ME/CFS, post-lyme disease, and fibromyalgia. For example, the theory that the spike protein is taken up by monocytes, which leads to inflammation of the inner lining of blood vessels, which results in vasodilation (and microclots) and a variety of associated symptoms. Apparently, IL-8 tends to be elevated in their patients with long-term post-vaccine reactions. They say a patient's ability to resume some exercise without feeling too bad afterwards is a marker of healing.
https://www.youtube.com/watch?v=h2xyWiMS2Q0
Would generally promote allowing the body to heal on its own with the support of a healthy lifestyle, including an anti-inflammatory diet, but do wonder in this post-vaccine situation if certain medications taken for a short time might provide some added benefit to some people.
@lmkk thanks for taking the time and answering my question, I feel totally that the vaccine cause this problem to me too I did not have that problem before I reported to vaers because they need to investigate this further, thanks hopefully you get better.
@nickpaul thank you for your response. I would take anything at this point but my doctor won’t prescribe anything. I have to go through a psychiatrist and that is 300.00 each visit. I’m completely helpless as I need some type of medication as the extreme anxiety and restlessness and depression is beyond and I can’t financially keep going to these appointments at 300.00 a pop and they only give you 30 days medicine then it’s another 300.00 . Sorry for the rant, it’s been a rough couple of days and I don’t see any end in sight.
I feel sorry for all of us. My vaccine has hit me the hardest MENTALLY!! Never had an issue before or I was able to control it naturally. Not sleeping right for a few months isn't helping.
I hear you, I was desperate at points, and the medication with the promise of some brief respite through sleep, was the moment I longed to reach each day - sad as that is. We’re lucky that here (UK) once you have a medicine prescribed, you can continue getting repeats at nominal cost, no need to pay to see a doctor or specialist each time. I also found some help with warm bath before bed, and sleep meditations on You Tube. One of my fallbacks is a guy called Michael Sealey. I’d recommend his meditation videos. Hang in there, you are not alone, and I hope you get some relief.
Anyone have persistent back pain ? Have had for approximately month . Doctor set up xray of back to see if anything. It is not always there and isn't debilitating . But is consistent and wondering if anyone has any relief ? Have taken Advil but can't take forever. Please anyone. Advil did help buy can only take short-term.
Horrible backache started one week after my Pfizer jab. It lasted about 3 months then slowly went away. Using a hot water bottle on it helped with the pain.
What other symptoms did you have and are you any better ? How long has your journey been so far ?