I would like to add a few things about mitochondrial disorders, as it could be an issue involved in the side effects.
There are two types of mitochondrial disorders: mitochondrial disease and mitochondrial dysfunction.
Mitochondrial diseases are those that occur in people who are born with genes for mitochondria that are less perfect. It must be said that this situation is not uncommon in the population. It should also be noted that mitochondrial disease can become manifest for the first time at any age, not just from childhood.
Mitochondrial dysfunction are cases in which the genes that program the mitochondria are healthy, but the factors, to which the person has been exposed, affected mitochondria. These factors are, for example: unhealthy lifestyle (unhealthy eating, smoking, etc.), environmental factors (pollution, drugs that affect mitochondria, etc.).
The cases of mitochondrial disease are very different from each other, depending on the genes that may be affected. It is very impressive that among the various possible manifestations of mitochondrial disease, there are people who, for example, have twitching 24 hours a day, 7 days, continuously:
https://www.youtube.com/watch?v=v9r_56h2B7k
Until the administration of the v., it could be said that cases of short-term twitching were quite known in human pathology, with different explanations, but cases in which they occur in the long term were much rarer.
But among the side effects described after v., these long-lasting fasciculations seem to be happening in a pretty much number of people.
Therefore, any known cause, which has been correlated with the appearance of twitchings, so far, should be investigated.
In other words, because prolonged fasciculations occur among the adverse reactions described post v. and it is known that such symptoms occur also in some people with mitochondrial disease, it means that mitochondria should be investigated in case of side effects after v.
There are many genes that can be affected in cases of mitochondrial disease. Depending on the genes affected, the manifestations are completely different. But it is interesting that the symptoms that may occur are: dizziness, hearing loss, tachycardia, cardiac arrhythmia and POTS, droopy eyelids, muscle weakness, muscle loss, difficulty breathing (through muscle weakness), difficulty swallowing, cyclic vomiting, slurring words and so on.
About the other type of damage, when the genes are normal, but the environmental factors have affected the mitochondria, so about the cases of mitochondrial dysfunction, it is stated that in fact they occur in many of the known chronic diseases (diabetes, fibromyalgia, cancer, etc.). These elements also may suggest that this topic deserves better knowledge, since, post v., for example, new cases of diabetes have appeared or a pre-existing diabetes has been aggravated (at least temporarily) or because, unfortunately, cases of appearance or aggravation of tumors are described.
Other arguments, quoted from various lectures:
-“the malfunction of the mitochondria affects, first of all, the organs that are the biggest consumers of energy, that is: hearing, brain, vision, heart, muscles”
-"unhealty mitochondria propagate inflammation”
-“more than 3 organ systems involved”
-“reccurence, setbacks and flare ups are characteristic (although this type of features
also occur in other conditions)”
-“mitochondrial problems are not structurally objective, they are microscopic, so investigations such as magnetic resonance imaging cannot identify them.”
Thus, the involvement of mitochondria in the generation of symptoms from adverse reactions to v. is a topic worth exploring.
Mitochondria have only been studied more in recent decades, so there are few doctors or clinics dedicated to this subject, but the knowledge gained is better known by doctors of functional medicine.
Laboratory investigations may be performed to confirm this type of disorder.
The therapeutic approach is based on the administration of supplements that help mitochondria: L-carnitine, ubiquinol (coenzyme Q10), alpha lipoic acid, PQQ, certain amino acids (eg. L-arginine), antioxidants (vitamin C, vitamin E), vitamin B5. There are also ready supplements dedicated to this disorder, which contain an association of these remedies.
Also helpful are intermittent fasting, carbohydrate reduction, anti-inflammatory diet.
I am pretty much over all my other symptoms, but the only thing left lingering is head and eye pain. Does anyone have lingering head pain?If this head pain would go away I would be 100%.
Hi, is it more of a head/eye pressure or scalp pain? Im 6.5 months post vaccine and still get occasional head/eye pressure along with scalp pain. It’s much milder than it was though.
Hi Sara. How is your head pain? I’m now 6 months out and still have the head and odd eye pain. The intensity hasn’t changed, but it seems to come on slightly less often. Booked in for a CT at the end of March as a precaution.
Hi Andy,
My head pains are actually very mild now, some days they are completely gone. The head pains started getting better at 7-8 months. I had an MRI two weeks ago and I'm currently waiting on results. I'm 9 months post first vaccine and doing so much better. I'll post an update on here as soon as I get my reports.
Curious if anyone here has or had creaky and cracky sounds from joints and bones ? 🤔 not all the time though and not painful.
Guys I generally go very early to bed since I had the vacc.
I go arund 6 p.m. to sleep. Is this a bad idea or is this even good for healing?
I take my medis which make me sleepy and then I go to sleep and I mostly sleep directly and have also seldom symptoms while I sleeep. ONly symptoms I get is sometime at 4 a.m. in the morning a hot flash shich wakes me up. But even that has become less intense & less annoying.
When do you guys go to sleep?
Sleep is good...Helps to heal the body...resting is good too...
I am pretty much over all my other symptoms, but the only thing left lingering is head and eye pain. Does anyone have lingering head pain?If this head pain would go away I would be 100%.
Hi, is it more of a head/eye pressure or scalp pain? Im 6.5 months post vaccine and still get occasional head/eye pressure along with scalp pain. It’s much milder than it was though.
Hi Sara. How is your head pain? I’m now 6 months out and still have the head and odd eye pain. The intensity hasn’t changed, but it seems to come on slightly less often. Booked in for a CT at the end of March as a precaution.
Hi Andy,
My head pains are actually very mild now, some days they are completely gone. The head pains started getting better at 7-8 months. I had an MRI two weeks ago and I'm currently waiting on results. I'm 9 months post first vaccine and doing so much better. I'll post an update on here as soon as I get my reports.
Hi All
Just wanted to post an update on where I am. My main symptoms having been the below
lightheaded/feeling of being on a boat but no vertigo
ear popping
GI issues - gurgling belly and louder than normal sounds.
Tight throat feeling
Had MRA scan of brain which was clear, my bloods are all good and have all been re done 4 times in the last 8 months. My doctor immediately put all this down to anxiety however none of this started until after my 2nd jab.
Finally got referred to a long covid neuro who has said this looks like PPPD and have been referred vestibular therapy. I was also prescribed sertraline 50mg which is used for anxiety and also as it happens PPPD. I seem to get some good days and bad days but the GI noises are reasonably new. Anyone else have this and have an explanation? I have been trialing cutting out gluten and this does seem to help as when I go back on it my issues come back. My blood test test I'm not coeliac but I have a follow up test on this. A lot of my symptoms cross over with gluten intolerance/sensitivity and reading up on this scientists are finding a link between Covid and activation of coeliac and other auto immune disorders. This also applies to intolerances. My GI issues could also point at the sertraline as I believe this can cause all sorts of GI issues.
Any help advice would be appreciated but I just wanted to share.
Hi Everyone,
Just a general question.
Has anyone experienced an increase in hiccups since their symptoms started.
For those of you that have long-lasting symptoms, has anyone had multiple MRI's done?
Asking because I got an initial MRI done about 3 weeks after the neurological symptoms started (nothing came up). Today I went down an unfortunate internet rabbit hole that freaked me out and now I am considering getting another MRI done.
I was vaccinated about 11 months ago. My symptoms are MDDS type of dizziness, brain fog & spots in my vision.
Hi All
Just wanted to post an update on where I am. My main symptoms having been the below
lightheaded/feeling of being on a boat but no vertigo
ear popping
GI issues - gurgling belly and louder than normal sounds.
Tight throat feeling
Had MRA scan of brain which was clear, my bloods are all good and have all been re done 4 times in the last 8 months. My doctor immediately put all this down to anxiety however none of this started until after my 2nd jab.
Finally got referred to a long covid neuro who has said this looks like PPPD and have been referred vestibular therapy. I was also prescribed sertraline 50mg which is used for anxiety and also as it happens PPPD. I seem to get some good days and bad days but the GI noises are reasonably new. Anyone else have this and have an explanation? I have been trialing cutting out gluten and this does seem to help as when I go back on it my issues come back. My blood test test I'm not coeliac but I have a follow up test on this. A lot of my symptoms cross over with gluten intolerance/sensitivity and reading up on this scientists are finding a link between Covid and activation of coeliac and other auto immune disorders. This also applies to intolerances. My GI issues could also point at the sertraline as I believe this can cause all sorts of GI issues.
Any help advice would be appreciated but I just wanted to share.
Hi Danny, I understand the panic. I started getting those sounds in December and I know how much it freaked me out.
My body got wrecked by these drugs I took to cure me which added to more issues and I got these GI issues. Ignored it all the while as I was scared to take anymorr medicines or visit any doctor who just won't believe your pain.
This month, I decided to visit a GI specialist just to see what he says. After a physical examination and a round of questions, he asked me to ignore it. Told it could be an infection but nothing serious and definitely not the the V. Funny!
He prescribed me some antibiotics which I haven't even taken. Also to add on, I did have some sort of pain while passing stool or washing down there round about the same time I got my GI issues. Seems like some sort of tear or something. Was very painful at times. He gave me a cream tobapply right before I have to pass it out. I didn't use that as well.
So I'd say, do not worry. Yes, the foods you take might cause it too since our system is messed up rn. It will reduce on it's own.
I hope this helps to calm your mind. Take care!
Hi all
Found this thread whilst Googling my problems, so thought I’d sign up to share my story.
UK based 30 year old male usually healthy.
Suffered with Psoriasis all over my body for in excess of 15 years now. (remember this bit!)
Initial Pfizer vaccine 27th May 21
Second Pfizer vaccine 31st July 21
Booster Pfizer 22nd December 21
None of my vaccines had any immediate side effects however somewhere between August and October I started to suffer dizziness, spells on and off throughout the day. Never thought of a connection to my vaccines hence having the booster in December.
February came and the dizziness started getting worse - lasting a long time and twice so bad I’ve been sick and have to lay down, unable to walk.
I’ve had various physical check ups at the doctors with everything coming back clear, them telling me it must be a reoccurring inner ear infection.
They have only last week referred me for an MRI which I’m waiting for a date to have done.
I have only in the last few days started to wonder if my Pfizer vaccines could be the answer and seeing this thread makes me convinced it must be.
My main symptoms:
Dizziness - feels like I’ve just stepped off a roller coaster
Sinuses feel like they have pressure, makes my ears feel a bit odd sometimes and as though my nose might start bleeding.
Sometimes the dizziness is so severe I vomit.
No other symptoms - no headaches etc JUST dizziness, bad dizziness!
The one really strange side effect I seem to have had is my psoriasis has almost completely gone within a month of my first vaccine. This cannot be a coincidence.. over 15 years suffering badly all over my body, all sorts of creams, hospital UVB light treatments etc all to no avail.
It’s the one plus to come from taking the vaccine but at the moment I’m not sure it was worth it with how bad the dizziness is! I’m now trying travel sickness tablets (Kwells) to see if they help, along with Sudofed sinus tablets.
Any advice or treatment for the dizziness would be hugely appreciated!
Thanks
Jordan
Curious if anyone here has or had creaky and cracky sounds from joints and bones ? 🤔 not all the time though and not painful.
Tone, it will go away. A lot of us had it. It will pass.
Also I'm seeing a trend here. I was the same as you when all of this began. Panicked af. I still am but I had gotten all nuts back then that added to me getting more symptoms.
The anxiety makes this shit worse. I'm a very anxious person and it's hard for me not to react to this shit. I'm still struggling 6 months down.
But as much as you can, try n be calm. Don't take any drugs. Eat anti inflammatory foods. Nobody knows our future. Not even these stupid doctors. Am I symptom free, no not even close. I'm sure I would've easily felt 80-90% better since I didn't have much symptoms back then but the mistake I did was taking medicines that made my system go all the more crazy and now I'm stuck with feeling miserable and suicidal.
Just be calm. It will pass soon. My blood clot report came back positive as you may know. I still haven't taken any blood thinners for it. My ANA report too is positive. I've left it now since I know no medicines can heal me. Rather will wreck my body even more.
I spoke to someone just 2 days ago who had a positive D Dimer and she said she didn't do a thing. It went back to normal on it's own so that gave me hope. But mind you, her and mine were not that elevated. It's just borderline high. If it's really high for someone, then definitely treatment is needed.
I wa told to redo the test in a few days after taking the blood thinners. I haven't taken anything yet but I may redo the test someday.
For me, I've left it on God and the Universe. All I know is I can't do shit anymore. It's beyond my control.
@50yofemale Thanks for your comments. I have tried very little medication, most just makes me sleepy. - Bjohns23
Curious if anyone here has or had creaky and cracky sounds from joints and bones ? 🤔 not all the time though and not painful.
Tone, it will go away. A lot of us had it. It will pass.
Also I'm seeing a trend here. I was the same as you when all of this began. Panicked af. I still am but I had gotten all nuts back then that added to me getting more symptoms.
The anxiety makes this shit worse. I'm a very anxious person and it's hard for me not to react to this shit. I'm still struggling 6 months down.
But as much as you can, try n be calm. Don't take any drugs. Eat anti inflammatory foods. Nobody knows our future. Not even these stupid doctors. Am I symptom free, no not even close. I'm sure I would've easily felt 80-90% better since I didn't have much symptoms back then but the mistake I did was taking medicines that made my system go all the more crazy and now I'm stuck with feeling miserable and suicidal.
Just be calm. It will pass soon. My blood clot report came back positive as you may know. I still haven't taken any blood thinners for it. My ANA report too is positive. I've left it now since I know no medicines can heal me. Rather will wreck my body even more.
I spoke to someone just 2 days ago who had a positive D Dimer and she said she didn't do a thing. It went back to normal on it's own so that gave me hope. But mind you, her and mine were not that elevated. It's just borderline high. If it's really high for someone, then definitely treatment is needed.
I wa told to redo the test in a few days after taking the blood thinners. I haven't taken anything yet but I may redo the test someday.
For me, I've left it on God and the Universe. All I know is I can't do shit anymore. It's beyond my control.
Thanks ...I haven't taken any medication yet 2 months in . What supplements did yiu take did anything help? So far symptoms are somewhat mild .what symptoms did you have and have any of them gone ? Wer they progressive . Got some gut issues happening now. Taking pepcid not sure if helping maybe should take benadryl or claritin with ? Nerve pain on and off ( anything for that ) . I'm staying positive and not really stressing....put ofy hands all I can do is pray and try heal myself with time and natural stuff.
Hope yiu heal soon as well.
Curious if anyone here has or had creaky and cracky sounds from joints and bones ? 🤔 not all the time though and not painful.
Tone, it will go away. A lot of us had it. It will pass.
Also I'm seeing a trend here. I was the same as you when all of this began. Panicked af. I still am but I had gotten all nuts back then that added to me getting more symptoms.
The anxiety makes this shit worse. I'm a very anxious person and it's hard for me not to react to this shit. I'm still struggling 6 months down.
But as much as you can, try n be calm. Don't take any drugs. Eat anti inflammatory foods. Nobody knows our future. Not even these stupid doctors. Am I symptom free, no not even close. I'm sure I would've easily felt 80-90% better since I didn't have much symptoms back then but the mistake I did was taking medicines that made my system go all the more crazy and now I'm stuck with feeling miserable and suicidal.
Just be calm. It will pass soon. My blood clot report came back positive as you may know. I still haven't taken any blood thinners for it. My ANA report too is positive. I've left it now since I know no medicines can heal me. Rather will wreck my body even more.
I spoke to someone just 2 days ago who had a positive D Dimer and she said she didn't do a thing. It went back to normal on it's own so that gave me hope. But mind you, her and mine were not that elevated. It's just borderline high. If it's really high for someone, then definitely treatment is needed.
I wa told to redo the test in a few days after taking the blood thinners. I haven't taken anything yet but I may redo the test someday.
For me, I've left it on God and the Universe. All I know is I can't do shit anymore. It's beyond my control.
Thanks ...I haven't taken any medication yet 2 months in . What supplements did yiu take did anything help? So far symptoms are somewhat mild .what symptoms did you have and have any of them gone ? Wer they progressive . Got some gut issues happening now. Taking pepcid not sure if helping maybe should take benadryl or claritin with ? Nerve pain on and off ( anything for that ) . I'm staying positive and not really stressing....put ofy hands all I can do is pray and try heal myself with time and natural stuff.
Hope yiu heal soon as well.
I wouldn't wanna talk about it in detail since it breaks my heart and I'm feeling quite down today.
I'd suggest you check my posts. All I can say is the initial symptoms since 9th Oct '21 were pins and needles, muscle tremors, burning thighs, ear issues, some odd feeling in my head, shaky hands, weakness, chest pain at times, some electric sorta feeling on my right ear, pelvic pain and nerve pain.
Nerve pain was the last one to manifest. Before that I was just asked to take B12 and trust me I was already feeling 70-80% better by October end. Had other symptoms on and off but the tremors ans tingling had almost gone. I was pretty much able to manage my life and had made peace with other symptoms as it wasn't that bad.
But when I got nerve pain, I panicked and visted a doctor in October. Took Gabapin NT and damn it all came back strong plus new symptoms.
After a few days on Mov 14th or 15th went to a Neurologist, took his tablet, instantly got high papls within 2 hrs. This was my biggest mistake.
Since then I haven't gotten better. Things have gotten worse plus a lot of new symptoms. I haven't improved since November.
For everything else in detail, pls read my older posts. Though I've summarized it already here.
Also as mentioned in my last post, I'm not taking any shit anymore. Just diet is all I'm following.
This is either gonna kill me, wreck my life forever or I'll go back to my earlier happy self in a few months from now.
I am okay with the 1st and definitely want it to be the last one. But if it's the 2nd one I endup at, I rather die or kill myself. Who'd wanna live a dead life!
But I still have some hope deep down that things will go back to normal someday. Don't know how far that day is but hopefully soon. Though I don't see anything positive happening since months now.
If God wrecks the life of a person who's struggled all her life and lived not for herself but for her family, it's on him then. And I don't think a good Lord would wanna ruin my life even more. I hope not. I have faith he will someday hear my cry.
I'm sorry for pouring it out here but I can't let it be inside. I don't see how I'll get better. All I know is I wanna get completely better. I miss her and I want to go back to how she was 🤍 before getting injected with this shit.
@jess Sorry for the belated reply. Since I'm new here, I didn't notice the notification bell. Your words beyond caring are very comforting - and they help me. Thank you! I can't imagine being unable to work, given the debilitating side effects you went through. I am working despite the lingering physical and mental lows, though taking work on a daily basis without excesses (I'm a retiring as teacher early next year). I hope and pray you will keep recovering, and as you say, hoping time itself can be the bigger healer. It's harrowing to think we ought to effectively put up with the constant spike protein poison generated by the vaccine(s). *painful sigh*