@tone, @sunrise, @nresearcher, @plandistry, @someone Hello! I went to the chiropractor/kinesiologist yesterday. He had a hunch on my first visit that my symptoms (off balance, head pressure, brain fog, hazy vision, pressure around eyes, head vibration) were a result of EPV reactivation. The labs confirm I had EPV in the past. He believes the positive EPV IGG results along with all my white blood cells being within normal limits but in the low range points to chronic viral infection. I also had an elevated CRP (2.4 mg/L). He says he's read up a lot on this and feels strongly my particular case is because the vax (dose taken 4/29/21) reactivated my EPV. He asked me to take L-lysine and St. Johns Wort. He says he thinks I'll be better in 2 weeks if he is correct. Having been through many relapses since May, I am cautiously optimistic.
Please note many of my early symptoms are significantly better by now. Dizziness/unsteadiness 95% improved, brain fog 80% improved, pressure around eye 60% improved, vibrations started 2 months ago but 50% improved. I now also have some numbness on my feet and left arm, neck pain that continues to come and go, heart rate increase/palpitations with minimal activities like vacuuming 🙁
St. John's Wort does have side effects and many drug interactions so please seek medical advice and research it well. It is commonly used for depression but the chiro believes it has anti-viral and anti-inflammatory properties. We discussed fluvoxamine (appears to have similar mechanism of action) which has been shown to help in COVID and he believes this proves his point.
I will definitely let you know how I'm doing in a couple of weeks. Prayers up for all of us.
@tone, @sunrise, @nresearcher, @plandistry, @someone, @gm1988 I wanted to follow up to let you know what happened with my holistic doctor. I quoted my previous post to remind you of where I am with my case. This forum is not the easiest to navigate when searching previous posts.
I went back to the holistic doctor and told him my energy level is finally normalizing (95%), my head pressure has improved tremendously (95%) and the head vibration is much improved as well. My heart rate also seems to have normalized and my brain fog is probably at 90% of where it should be. He believes this proves his theory about my case being caused by EBV is correct. He firmly believes much of the long COVID/vax issues stem from reactivation of viruses like EBV. He says he will keep me on St. Johns wort and L-Lysine for 6 more weeks (total - 8 weeks) and see how I am doing. I asked him to order an ANA lab test and I will be seeing a rheumatologist on March 21.
Although it's been over 10 months since my single vax, I don't believe my recent symptom improvement is a result of time passing. I had plateaued. I had good days and bad days, I even had good weeks and bad weeks, but the good ones were never as good as I have felt the past 7 - 10 days. The anti-inflammatory diet has been helpful but I do think these supplements have helped me. I have actually felt like my pre-vax self for the past few days without restricting my activities. I was beginning to think this would be impossible to achieve.
Again, I remain "cautiously" optimistic. I've been through many relapses and symptoms have disappeared only to have new ones appear. We shall see.
Great to hear ! What supplements were you taking again ? And what were your symptoms again? Nerve pain at all ? Insomnia ?
@tone my symptoms are all listed on these two posts. I have had a few episodes of nerve pain but its not frequent or prolonged. Definitely not my worse symptom up to now. I am currently taking St. Johns wort, L-Lysine, Vit D, Vit C, Zinc, B-12 and B-complex.
That's great news! So glad you are improving. I, too, feel like I've plateaued these past couple months. I'm almost 1 year from the JJ vaccine. I may try some of the things that you have been doing to see if it helps.
I did start taking an extra dose of vitamin C and D, along with my multivitamin, and I have been feeling a bit better since starting that. But who knows, could just be a good week. Whenever think I'm improving, it's quickly followed by a bad couple of days.
But so happy that you seem on the up-and-up! Keep us posted.
@gm1988 Not sure if you are on other medications but know the St. Johns Wort does interact with some other medications.
Also, I am wondering if other women have noticed a pattern of worsening symptoms with their menstrual cycle. I have been more symptomatic just prior to my cycle the last 4 months (that I've noticed). Just something to keep an eye on.
Hope these suggestions help you.
That's great news! So glad you are improving. I, too, feel like I've plateaued these past couple months. I'm almost 1 year from the JJ vaccine. I may try some of the things that you have been doing to see if it helps.
I did start taking an extra dose of vitamin C and D, along with my multivitamin, and I have been feeling a bit better since starting that. But who knows, could just be a good week. Whenever think I'm improving, it's quickly followed by a bad couple of days.
But so happy that you seem on the up-and-up! Keep us posted.
Great !what are your symptoms and how have been your improvements ? Any special diet and supplements ? When did you start to turn the corner?
Did you have any negative side effects from the st. John's Wort? I don't take any other medications besides vitamins and supplements. I did notice early on that my symptoms from the vaccine did seem worse during my time of the month, but haven't noticed that in recent months, there's really no rhyme or reason as to my good days and bad days.
I've had many symptoms, but the major (and most persistent) ones are: being constantly lightheaded (on-a-boat feeling), and head pressure specifically on my left side and behind my left eye. Previous symptoms include random burning sensations, tingling/vibration feeling in head, numb/tingly on my left side. Those don't seem as bad these days. I'm also currently having neck/thyroid issue that may or may not be related to all of this. Hopefully I'll have more answers on that after my neck CT scan this week. I've tried lots of suggestions from here over the past year, not much has helped except for recently the extra dose of vitamin C and D, in addition to a multivitamin, may be helping a bit.
I felt about 80-90% back to normal about 5 months post vaccine, but then I got covid in october and it was like starting from square 1. Now it's about 5 months since then, so maybe 5 months is the turning point for me. Sending healing vibes to everyone!
@tone, @sunrise, @nresearcher, @plandistry, @someone Hello! I went to the chiropractor/kinesiologist yesterday. He had a hunch on my first visit that my symptoms (off balance, head pressure, brain fog, hazy vision, pressure around eyes, head vibration) were a result of EPV reactivation. The labs confirm I had EPV in the past. He believes the positive EPV IGG results along with all my white blood cells being within normal limits but in the low range points to chronic viral infection. I also had an elevated CRP (2.4 mg/L). He says he's read up a lot on this and feels strongly my particular case is because the vax (dose taken 4/29/21) reactivated my EPV. He asked me to take L-lysine and St. Johns Wort. He says he thinks I'll be better in 2 weeks if he is correct. Having been through many relapses since May, I am cautiously optimistic.
Please note many of my early symptoms are significantly better by now. Dizziness/unsteadiness 95% improved, brain fog 80% improved, pressure around eye 60% improved, vibrations started 2 months ago but 50% improved. I now also have some numbness on my feet and left arm, neck pain that continues to come and go, heart rate increase/palpitations with minimal activities like vacuuming 🙁
St. John's Wort does have side effects and many drug interactions so please seek medical advice and research it well. It is commonly used for depression but the chiro believes it has anti-viral and anti-inflammatory properties. We discussed fluvoxamine (appears to have similar mechanism of action) which has been shown to help in COVID and he believes this proves his point.
I will definitely let you know how I'm doing in a couple of weeks. Prayers up for all of us.
@tone, @sunrise, @nresearcher, @plandistry, @someone, @gm1988 I wanted to follow up to let you know what happened with my holistic doctor. I quoted my previous post to remind you of where I am with my case. This forum is not the easiest to navigate when searching previous posts.
I went back to the holistic doctor and told him my energy level is finally normalizing (95%), my head pressure has improved tremendously (95%) and the head vibration is much improved as well. My heart rate also seems to have normalized and my brain fog is probably at 90% of where it should be. He believes this proves his theory about my case being caused by EBV is correct. He firmly believes much of the long COVID/vax issues stem from reactivation of viruses like EBV. He says he will keep me on St. Johns wort and L-Lysine for 6 more weeks (total - 8 weeks) and see how I am doing. I asked him to order an ANA lab test and I will be seeing a rheumatologist on March 21.
Although it's been over 10 months since my single vax, I don't believe my recent symptom improvement is a result of time passing. I had plateaued. I had good days and bad days, I even had good weeks and bad weeks, but the good ones were never as good as I have felt the past 7 - 10 days. The anti-inflammatory diet has been helpful but I do think these supplements have helped me. I have actually felt like my pre-vax self for the past few days without restricting my activities. I was beginning to think this would be impossible to achieve.
Again, I remain "cautiously" optimistic. I've been through many relapses and symptoms have disappeared only to have new ones appear. We shall see.
Thanks so much for the update. That's great to hear your symptoms have improved and your holistic doctor has been helpful. Best wishes in your continued recovery.
Does anyone think we will getbback to our prevax lives ? Or our we destined to be supplementing and anti-inflammatory dieting and being cautious on doing the things we once loved . Is there hope ?
@nresearcher wow thanks for letting me know. I hadn't seen that. He's pretty vague in his chat but makes sense with the further research needed.
@adelaide Hi. I discontinued after 19 sessions. I found temporary relief for my migraines, but no long term help. The protein spike is still in my system after 1 year. As long as it remains, no therapy will be beneficial. Good luck to you!
The d-dimere test (when has hight numbers) cann tell you if you have blood clots in body, legs or the lungs.
for example a leg thrombosis or pulmonary embolism.
This sounds very bad. My main panic is that I get an heartattack, a stroke or blood clots in lungs.
I am now nearly at six weeks.
Will the ANA test tell me if I have autoimmune acitivity or conditions to get the sysmtemic mystocitos , Gullaın Barre sydnrome , lupus stuff.
leukemia i think we can check with the blood tests.
I heard to see leukemia pretty fast in too high numbers in your blood numbers.
BUt this all sounds very desperate and scary. I have barely managed this last 6 weeks, I have no clue how to go to 3-4 months.
I am already taking Tavor & opripramol but still my anxiety & restlessness breaks me. Also I read to much horrible stuff on the internet which drives me into even more anxiety.
Guys I generally go very early to bed since I had the vacc.
I go arund 6 p.m. to sleep. Is this a bad idea or is this even good for healing?
I take my medis which make me sleepy and then I go to sleep and I mostly sleep directly and have also seldom symptoms while I sleeep. ONly symptoms I get is sometime at 4 a.m. in the morning a hot flash shich wakes me up. But even that has become less intense & less annoying.
When do you guys go to sleep?
I am pretty much over all my other symptoms, but the only thing left lingering is head and eye pain. Does anyone have lingering head pain?If this head pain would go away I would be 100%.
Hi, is it more of a head/eye pressure or scalp pain? Im 6.5 months post vaccine and still get occasional head/eye pressure along with scalp pain. It’s much milder than it was though.
Hi Sara. How is your head pain? I’m now 6 months out and still have the head and odd eye pain. The intensity hasn’t changed, but it seems to come on slightly less often. Booked in for a CT at the end of March as a precaution.
Are there any long haul headache sufferers on here? I’m 6 months in and all I have left are these awful pressure/tension headaches along with neck stiffness.
I’ve had a couple of 2 weeks breaks from them, but they’re pretty much constant. Some days it’s like there’s a baseline headache that gets worse then eases off again. Other days I feel very little. I’m currently on amitriptyline, but it only seems to work some days. CT booked for end of March as all avenues have been exhausted trying to find the root of the problem. Dr was reluctant as I don’t have any other worrying symptoms.
It would reassure me to hear from other long term headache suffers?
Strange today I also have this feeling, that something as stuck in my throat. I had this feeling in last weeks 2 times already. But it was ginde since today.
Is it posible that this vacc sideeffects come back in waves (or you call it relapses, but I do not think it is a relapse, but relly no idea).
Did anyone of you guys had to go to hospital (apart from bad heart palpitations) because of his/her symptoms and a generally unwell feeling?